Re: [CMLHope] Hi Everyone its been awhile

2016-03-25 Thread Shannon L 
Hi Jeanie

Thankyou I don't feel young, I hope to better better soon one day at a time 
I suppose and yes I will keep doing photography it has saved my life 
besides my son and Glivec

Glad you have found another drug that works for you, you have certainly 
been on a few I hope the side affects are not too bad.

Love Shannon


On Friday, March 25, 2016 at 5:32:57 AM UTC+11, Icandoallttc wrote:
>
> Hi Shannon and great to hear from you.   So happy Gleevec is working.   It 
> quit working for me after 5 years as you probably remember.  
> I am now on one of the new generation of drugs called Ponatinib. It is 
> working for me for one year now. 
> You are still a young chick. Keep fighting and taking pictures.  Your son 
> sounds wonderful.  
> Love and happy Easter to you!!!
>
>
> My Motto: Faith and Pills❤️
> With Jeanie 18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Mar 24, 2016, at 6:41 AM, Shannon L  
> wrote:
>
> I checked out a few posts good to see a few I remember. I hope everyone is 
> doing well.
> I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the 
> year I have just past my 18yr of CML.
> Im since on Glivec 400mg and still in remission ( with a few problems as 
> to be expected.
>
> I will have some major financial decisions to make soon but I have seen my 
> son complete high school and he is now studying for a yr at TAFE and 
> working part time now if he would only get his car licence but I will 
> probably worry more when he gets it. 
>
> I have my own photography business which I work around my health as much 
> as I can I find as I get older now 56 I do find it harder I recently had 
> the worst chest infection that I can remember.
>
> I am still dreaming of doing some travelling OS and around Australia so I 
> hope I can make this happen 
>
> I wish everyone a safe easter 
> love to all Shannon xo
>
> -- 
> -- 
> [CMLHope]
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Re: [CMLHope] Hi Everyone its been awhile

2016-03-24 Thread 'Icandoallttc' via CMLHope 
Hi Shannon and great to hear from you.   So happy Gleevec is working.   It quit 
working for me after 5 years as you probably remember.  
I am now on one of the new generation of drugs called Ponatinib. It is working 
for me for one year now. 
You are still a young chick. Keep fighting and taking pictures.  Your son 
sounds wonderful.  
Love and happy Easter to you!!!


My Motto: Faith and Pills❤️
With Jeanie 18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 24, 2016, at 6:41 AM, Shannon L  wrote:
> 
> I checked out a few posts good to see a few I remember. I hope everyone is 
> doing well.
> I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the year 
> I have just past my 18yr of CML.
> Im since on Glivec 400mg and still in remission ( with a few problems as to 
> be expected.
> 
> I will have some major financial decisions to make soon but I have seen my 
> son complete high school and he is now studying for a yr at TAFE and working 
> part time now if he would only get his car licence but I will probably worry 
> more when he gets it. 
> 
> I have my own photography business which I work around my health as much as I 
> can I find as I get older now 56 I do find it harder I recently had the worst 
> chest infection that I can remember.
> 
> I am still dreaming of doing some travelling OS and around Australia so I 
> hope I can make this happen 
> 
> I wish everyone a safe easter 
> love to all Shannon xo
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to 
> cmlhope-unsubscr...@googlegroups.com
> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.

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[CMLHope] Hi Everyone its been awhile

2016-03-24 Thread Shannon L 
I checked out a few posts good to see a few I remember. I hope everyone is 
doing well.
I was dx 1998 sone was 15mths he is now 19 turning 20 at the end of the 
year I have just past my 18yr of CML.
Im since on Glivec 400mg and still in remission ( with a few problems as to 
be expected.

I will have some major financial decisions to make soon but I have seen my 
son complete high school and he is now studying for a yr at TAFE and 
working part time now if he would only get his car licence but I will 
probably worry more when he gets it. 

I have my own photography business which I work around my health as much as 
I can I find as I get older now 56 I do find it harder I recently had the 
worst chest infection that I can remember.

I am still dreaming of doing some travelling OS and around Australia so I 
hope I can make this happen 

I wish everyone a safe easter 
love to all Shannon xo

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