Re: [CMLHope] Just wanted to check in with folks I remember
Thanks Marty! Absolutely Beautiful presentation Richard H. On Friday, February 19, 2016 at 5:17:05 PM UTC-6, wa2yyx wrote: > > Oh Susan and everyone else, yes they will find a cure, I have no doubt > about that. > > I want to pass something across to you as well as to everyone else, and it > has to do with being alive. Please sit back and enjoy it. > > 18's, > > Marty > > On Fri, Feb 19, 2016 at 6:05 PM, 'Susan Zimmerman' via CMLHope < > cml...@googlegroups.com > wrote: > >> Yes Judy, >> I was off gleevec for over seven years after having brain bleeds (small >> strokes because of the medicine.) i was tested every 3 mos. all that time. >> I stayed in cellular remission but not in molecular remission. Long story >> but I pray you get to stay off until they find a cure!! >> >> We are all rooting for you!!! >> Blessings and 18's, >> Susan zimmerman >> >> >> >> "Look among the nations and watch; be utterly astounded! For I will work >> a work in your days which you would not believe, though it were told you." >> Hab. 1:5 >> -- >> On Thursday, February 4, 2016 'judy' via CMLHope > > wrote: >> Hello I for got my pass work so couldn get on cml I was on gleevec for I >> don't rember how long ND MY DR SAIR I DIDN'T HAVE TO TAKE IT ANY MORE MY >> COUNTS HAD BEEN GOOD AND NO SIGN OF THE CML I VE BEEN OFF IT FOR ABOUT YEAR >> NOW AND STILL NO SIGN OF THE CML COUNTS STILL GOOD hAS ANY BODY HEARD OF >> THIS IF O HOW ARE YOU DOING??? judy >> >> >> On Thursday, February 4, 2016 4:26 PM, Marty Gartenberg > > wrote: >> >> >> Hi Peg, >> >> I don't want you to ever forget something. TWO NUMBERS 18's I always put >> them at the end of any of my posts, and if you don't remember the their >> meaning it is life. >> >> I think that you must have remembered what I have gone through for this >> past year and also from 26 years ago. >> >> You know what I see more people posting 18's I wonder why but I already >> know why. >> >> 18's >> Marty >> >> On Tue, Feb 2, 2016 at 10:55 AM, peg > >> wrote: >> >> Hi all, >> Thought I would check in today...it has been a while. I see lots of new >> names, but still a few that I remember. I am now two years at zero >> detectable on only 100mg of Tasigna daily...1/4th of the recommended >> dosage. It got a bit rocky for a while, not from the CML, but along that >> course they diagnosed me with five other, assume-ably unrelated, cancers >> including skin, gastric, thyroid and lungs! While I never lost my hope, I >> didn't wanted to dim anyone else's hope by sharing news from my scary >> corner. However, as of last month, all cancers are regressing, some we know >> for certain are also due to Tasigna, and well, the others they are not sure >> why, so I choose to believe it is also because of the Tasigna...and faith! >> I am battling some malnutrition issues that were from a severe reaction I >> had to Gleevec when I was first diagnosed six years ago, but now knowing >> what those are we are slowly making improvement towards gaining back a >> quality of life. You can never underestimate the value of quality of >> life! I hope you are all finding your own quality, never give up on that. >> You are never far from my thoughts and prayers! >> >> Six years and still here! >> Fight on!!! >> peg >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com . >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com/ >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> >> To unsubscribe from this group, send email to >> cmlhope-u...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com . >> For more options, visit https://groups.google.com/d/optout. >> >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You rec
Re: [CMLHope] Just wanted to check in with folks I remember
Yes Judy, I was off gleevec for over seven years after having brain bleeds (small strokes because of the medicine.) i was tested every 3 mos. all that time. I stayed in cellular remission but not in molecular remission. Long story but I pray you get to stay off until they find a cure!! We are all rooting for you!!! Blessings and 18's, Susan zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 On Thursday, February 4, 2016 'judy' via CMLHope wrote: Hello I for got my pass work so couldn get on cml I was on gleevec for I don't rember how long ND MY DR SAIR I DIDN'T HAVE TO TAKE IT ANY MORE MY COUNTS HAD BEEN GOOD AND NO SIGN OF THE CML I VE BEEN OFF IT FOR ABOUT YEAR NOW AND STILL NO SIGN OF THE CML COUNTS STILL GOOD hAS ANY BODY HEARD OF THIS IF O HOW ARE YOU DOING??? judy On Thursday, February 4, 2016 4:26 PM, Marty Gartenberg wrote: Hi Peg, I don't want you to ever forget something. TWO NUMBERS 18's I always put them at the end of any of my posts, and if you don't remember the their meaning it is life. I think that you must have remembered what I have gone through for this past year and also from 26 years ago. You know what I see more people posting 18's I wonder why but I already know why. 18's Marty On Tue, Feb 2, 2016 at 10:55 AM, peg wrote: Hi all, Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life. You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!! peg -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send
Re: [CMLHope] Just wanted to check in with folks I remember
Yes Judy. Congratulations on a successful year off TKI's. Yes a several of us have had long vacations off the TKI's. Some of us were able to maintain low counts for long periods of times after the counts were noticed again and then went back on Gleevec. I am now at my 14 year mark and am on 300mg of Gleevec in Nov. I was only showing .003% on my last test on my test as I fight low Hemoglobin on a weekly basis. I am glad you found your way back to join us. 18's (life) Richard H. On Thursday, February 4, 2016 at 7:09:05 PM UTC-6, JUDYdx00 wrote: > > Hello I for got my pass work so couldn get on cml I was on gleevec for I > don't rember how long ND MY DR SAIR I DIDN'T HAVE TO TAKE IT ANY MORE MY > COUNTS HAD BEEN GOOD AND NO SIGN OF THE CML I VE BEEN OFF IT FOR ABOUT YEAR > NOW AND STILL NO SIGN OF THE CML COUNTS STILL GOOD hAS ANY BODY HEARD OF > THIS IF O HOW ARE YOU DOING??? judy > > > On Thursday, February 4, 2016 4:26 PM, Marty Gartenberg > wrote: > > > Hi Peg, > > I don't want you to ever forget something. TWO NUMBERS 18's I always put > them at the end of any of my posts, and if you don't remember the their > meaning it is life. > > I think that you must have remembered what I have gone through for this > past year and also from 26 years ago. > > You know what I see more people posting 18's I wonder why but I already > know why. > > 18's > Marty > > On Tue, Feb 2, 2016 at 10:55 AM, peg > > wrote: > > Hi all, > Thought I would check in today...it has been a while. I see lots of new > names, but still a few that I remember. I am now two years at zero > detectable on only 100mg of Tasigna daily...1/4th of the recommended > dosage. It got a bit rocky for a while, not from the CML, but along that > course they diagnosed me with five other, assume-ably unrelated, cancers > including skin, gastric, thyroid and lungs! While I never lost my hope, I > didn't wanted to dim anyone else's hope by sharing news from my scary > corner. However, as of last month, all cancers are regressing, some we know > for certain are also due to Tasigna, and well, the others they are not sure > why, so I choose to believe it is also because of the Tasigna...and faith! > I am battling some malnutrition issues that were from a severe reaction I > had to Gleevec when I was first diagnosed six years ago, but now knowing > what those are we are slowly making improvement towards gaining back a > quality of life. You can never underestimate the value of quality of > life! I hope you are all finding your own quality, never give up on that. > You are never far from my thoughts and prayers! > > Six years and still here! > Fight on!!! > peg > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-u...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@googlegroups.com . > For more options, visit https://groups.google.com/d/optout. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to cml...@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-u...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+u...@googlegroups.com . > For more options, visit https://groups.google.com/d/optout. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Just wanted to check in with folks I remember
Hello I for got my pass work so couldn get on cml I was on gleevec for I don't rember how long ND MY DR SAIR I DIDN'T HAVE TO TAKE IT ANY MORE MY COUNTS HAD BEEN GOOD AND NO SIGN OF THE CML I VE BEEN OFF IT FOR ABOUT YEAR NOW AND STILL NO SIGN OF THE CML COUNTS STILL GOOD hAS ANY BODY HEARD OF THIS IF O HOW ARE YOU DOING??? judy On Thursday, February 4, 2016 4:26 PM, Marty Gartenberg wrote: Hi Peg, I don't want you to ever forget something. TWO NUMBERS 18's I always put them at the end of any of my posts, and if you don't remember the their meaning it is life. I think that you must have remembered what I have gone through for this past year and also from 26 years ago. You know what I see more people posting 18's I wonder why but I already know why. 18'sMarty On Tue, Feb 2, 2016 at 10:55 AM, peg wrote: Hi all,Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life. You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!!peg-- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Just wanted to check in with folks I remember
Hi Peg, I don't want you to ever forget something. TWO NUMBERS 18's I always put them at the end of any of my posts, and if you don't remember the their meaning it is life. I think that you must have remembered what I have gone through for this past year and also from 26 years ago. You know what I see more people posting 18's I wonder why but I already know why. 18's Marty On Tue, Feb 2, 2016 at 10:55 AM, peg wrote: > Hi all, > Thought I would check in today...it has been a while. I see lots of new > names, but still a few that I remember. I am now two years at zero > detectable on only 100mg of Tasigna daily...1/4th of the recommended > dosage. It got a bit rocky for a while, not from the CML, but along that > course they diagnosed me with five other, assume-ably unrelated, cancers > including skin, gastric, thyroid and lungs! While I never lost my hope, I > didn't wanted to dim anyone else's hope by sharing news from my scary > corner. However, as of last month, all cancers are regressing, some we know > for certain are also due to Tasigna, and well, the others they are not sure > why, so I choose to believe it is also because of the Tasigna...and faith! > I am battling some malnutrition issues that were from a severe reaction I > had to Gleevec when I was first diagnosed six years ago, but now knowing > what those are we are slowly making improvement towards gaining back a > quality of life. You can never underestimate the value of quality of > life! I hope you are all finding your own quality, never give up on that. > You are never far from my thoughts and prayers! > > Six years and still here! > Fight on!!! > peg > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Just wanted to check in with folks I remember
Hi all and yes we each have other health issues but fighting our blood cancers us a battle we all share. I'm glad you are winning your battle. Fight on warrior. My Motto: Faith and Pills❤️ With 💗Jeanie 🐟🐟18,s Dx 1/2004. CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 Dr Balducci Moffitt Cancer Center > On Feb 3, 2016, at 11:41 AM, 'Susan Zimmerman' via CMLHope > wrote: > > Hello Peg, > So glad to hear from you! We are tough, us CML bunch. We can take it if you > want to share with us the additional battles that have gone along with your > CML. We are here to encourage! You don't need to suffer alone, (altho I'm > hoping you have a good family, etc.) Your battle could have involved fear, > as most people would let it in. But just to remind, fear is False Evidence > Appearing Real, put there by the enemy. Can you think of one thing that is > good about fear? Same goes for worry. No, they are only destructive. Many > of us have come to the place where we know our bodies are only one third of > our whole being, and probably the least important of the three. (body, soul > and spirit). So we try to let the other two rule our thinking, our outward > actions, and so on. I know because of your faith you walk by faith, not by > sight! > > I just thought of a good joke that came from facebook. A big picture of a > huge grisly bear roaring. The caption read, "Fear NOTHING! Except a grisly > bear, because they will kill you." > > Anyway, so glad your reports are getting better all the time. I hope you > enjoy your days and come back to share a word with us often! We have missed > you! > > 18's and blessings, > Susan F. Zimmerman > "Look among the nations and watch; be utterly astounded! For I will work a > work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message- > From: bkbarney via CMLHope > To: cmlhope > Sent: Tue, Feb 2, 2016 3:36 pm > Subject: Re: [CMLHope] Just wanted to check in with folks I remember > > Thanks for the update Peg..I am glad that things sound a bit more stable > for you...I do understand about not wanting to share with others if your road > is hard so as to not scare us, ..but truly, each of us is unique, and our > bodies respond very differently to treatments..so, please don't worry. > Getting good support is also key to quality of life, as it's a lot less > lonely...and together we can persevere... I am so sorry you have had to go > through all that you didI hope and pray that it somehow gets easier for > you...wow...2 years at zero is marvelous, but the price you have > paidI don't have words for that..except you are so resilient, so > amazingtake good care and know that you are cared for and loved here... > > 18's, love and hugs, > Beth > > > -Original Message- > From: Myvety2k via CMLHope > To: cmlhope > Sent: Tue, Feb 2, 2016 2:24 pm > Subject: Re: [CMLHope] Just wanted to check in with folks I remember > > Peg, that was my Aunt's name. Anyway, don't be a stranger. All of us that > have CML are in the same boat but taking different drugs. I've been on > Gleevec 16 years 1 month, yes their are side effects but done that I can't > handle. Cramps are the worse but I'm still here driving my wife crazy and > she love's every second of it :) > > greenie > club member #48 > > In a message dated 2/2/2016 1:55:33 P.M. Eastern Standard Time, > peg@live.com writes: > Hi all, > Thought I would check in today...it has been a while. I see lots of new > names, but still a few that I remember. I am now two years at zero > detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. > It got a bit rocky for a while, not from the CML, but along that course they > diagnosed me with five other, assume-ably unrelated, cancers including skin, > gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to > dim anyone else's hope by sharing news from my scary corner. However, as of > last month, all cancers are regressing, some we know for certain are also due > to Tasigna, and well, the others they are not sure why, so I choose to > believe it is also because of the Tasigna...and faith! I am battling some > malnutrition issues that were from a severe reaction I had to Gleevec when I > was first diagnosed six years ago, but now knowing what those are we are > slowly making improvement towards gaining back a quality of life. You can > never underestimate the va
Re: [CMLHope] Just wanted to check in with folks I remember
Hello Peg, So glad to hear from you! We are tough, us CML bunch. We can take it if you want to share with us the additional battles that have gone along with your CML. We are here to encourage! You don't need to suffer alone, (altho I'm hoping you have a good family, etc.) Your battle could have involved fear, as most people would let it in. But just to remind, fear is False Evidence Appearing Real, put there by the enemy. Can you think of one thing that is good about fear? Same goes for worry. No, they are only destructive. Many of us have come to the place where we know our bodies are only one third of our whole being, and probably the least important of the three. (body, soul and spirit). So we try to let the other two rule our thinking, our outward actions, and so on. I know because of your faith you walk by faith, not by sight! I just thought of a good joke that came from facebook. A big picture of a huge grisly bear roaring. The caption read, "Fear NOTHING! Except a grisly bear, because they will kill you." Anyway, so glad your reports are getting better all the time. I hope you enjoy your days and come back to share a word with us often! We have missed you! 18's and blessings, Susan F. Zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -Original Message- From: bkbarney via CMLHope To: cmlhope Sent: Tue, Feb 2, 2016 3:36 pm Subject: Re: [CMLHope] Just wanted to check in with folks I remember Thanks for the update Peg..I am glad that things sound a bit more stable for you...I do understand about not wanting to share with others if your road is hard so as to not scare us, ..but truly, each of us is unique, and our bodies respond very differently to treatments..so, please don't worry. Getting good support is also key to quality of life, as it's a lot less lonely...and together we can persevere... I am so sorry you have had to go through all that you didI hope and pray that it somehow gets easier for you...wow...2 years at zero is marvelous, but the price you have paidI don't have words for that..except you are so resilient, so amazingtake good care and know that you are cared for and loved here... 18's, love and hugs, Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Feb 2, 2016 2:24 pm Subject: Re: [CMLHope] Just wanted to check in with folks I remember Peg, that was my Aunt's name. Anyway, don't be a stranger. All of us that have CML are in the same boat but taking different drugs. I've been on Gleevec 16 years 1 month, yes their are side effects but done that I can't handle. Cramps are the worse but I'm still here driving my wife crazy and she love's every second of it :) greenie club member #48 In a message dated 2/2/2016 1:55:33 P.M. Eastern Standard Time, peg@live.com writes: Hi all, Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life.You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!! peg -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, s
Re: [CMLHope] Just wanted to check in with folks I remember
Thanks for the update Peg..I am glad that things sound a bit more stable for you...I do understand about not wanting to share with others if your road is hard so as to not scare us, ..but truly, each of us is unique, and our bodies respond very differently to treatments..so, please don't worry. Getting good support is also key to quality of life, as it's a lot less lonely...and together we can persevere... I am so sorry you have had to go through all that you didI hope and pray that it somehow gets easier for you...wow...2 years at zero is marvelous, but the price you have paidI don't have words for that..except you are so resilient, so amazingtake good care and know that you are cared for and loved here... 18's, love and hugs, Beth -Original Message- From: Myvety2k via CMLHope To: cmlhope Sent: Tue, Feb 2, 2016 2:24 pm Subject: Re: [CMLHope] Just wanted to check in with folks I remember Peg, that was my Aunt's name. Anyway, don't be a stranger. All of us that have CML are in the same boat but taking different drugs. I've been on Gleevec 16 years 1 month, yes their are side effects but done that I can't handle. Cramps are the worse but I'm still here driving my wife crazy and she love's every second of it :) greenie club member #48 In a message dated 2/2/2016 1:55:33 P.M. Eastern Standard Time, peg@live.com writes: Hi all, Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life.You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!! peg -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Just wanted to check in with folks I remember
Peg, that was my Aunt's name. Anyway, don't be a stranger. All of us that have CML are in the same boat but taking different drugs. I've been on Gleevec 16 years 1 month, yes their are side effects but done that I can't handle. Cramps are the worse but I'm still here driving my wife crazy and she love's every second of it :) greenie club member #48 In a message dated 2/2/2016 1:55:33 P.M. Eastern Standard Time, peg@live.com writes: Hi all, Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life. You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!! peg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope -unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Just wanted to check in with folks I remember
Hi all, Thought I would check in today...it has been a while. I see lots of new names, but still a few that I remember. I am now two years at zero detectable on only 100mg of Tasigna daily...1/4th of the recommended dosage. It got a bit rocky for a while, not from the CML, but along that course they diagnosed me with five other, assume-ably unrelated, cancers including skin, gastric, thyroid and lungs! While I never lost my hope, I didn't wanted to dim anyone else's hope by sharing news from my scary corner. However, as of last month, all cancers are regressing, some we know for certain are also due to Tasigna, and well, the others they are not sure why, so I choose to believe it is also because of the Tasigna...and faith! I am battling some malnutrition issues that were from a severe reaction I had to Gleevec when I was first diagnosed six years ago, but now knowing what those are we are slowly making improvement towards gaining back a quality of life. You can never underestimate the value of quality of life! I hope you are all finding your own quality, never give up on that. You are never far from my thoughts and prayers! Six years and still here! Fight on!!! peg -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
