Re: [CMLHope] PCRU
Great news Marcie! I never got to PCRU on Gleevec, but did after 3 months on Sprycel. Happy New Year everyone, Jeanie3 In a message dated 12/21/2012 1:05:45 P.M. Eastern Standard Time, margoo...@aol.com writes: Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] PCRU
Hi Marcie, l'chaim, another way to say 18's. Take care of yourself and enjoy another happy and healthy New Years. 18's l'chaim Marty On Sat, Dec 22, 2012 at 11:20 AM, margoo...@aol.com wrote: l'chaim -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] PCRU
Hi Marcie, Fighting Leukemia is a tough battle, but as you have proved, it can be done. You now have your Christmas Present called PCRU[?] I wish you many more years of HEALTH and HAPPINESS. 18's (stands for life) Marty On Fri, Dec 21, 2012 at 1:05 PM, margoo...@aol.com wrote: Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope360.gif
Re: [CMLHope] PCRU
Thanks, Marty. I actually got a delayed Chanukah gift, so I've always understood your 18's! Best wishes to you and your family for a happy, healthy and joyous 2013 and l'chaim!!! Marcie PS: We said the shehecheyanu last night for reaching this amazing moment. -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Dec 22, 2012 7:56 am Subject: Re: [CMLHope] PCRU Hi Marcie, Fighting Leukemia is a tough battle, but as you have proved, it can be done. You now have your Christmas Present called PCRU I wish you many more years of HEALTH and HAPPINESS. 18's (stands for life) Marty On Fri, Dec 21, 2012 at 1:05 PM, margoo...@aol.com wrote: Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHopeinline: 360.gif
Re: [CMLHope] PCRU
The best gift of all marcie...to life!! Thanks for sharing. and happy holidays to you and everyone else out there...safe, peaceful, joyful and healthy. Love,Beth -Original Message- From: margood18 margoo...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Dec 22, 2012 10:20 am Subject: Re: [CMLHope] PCRU Thanks, Marty. I actually got a delayed Chanukah gift, so I've always understood your 18's! Best wishes to you and your family for a happy, healthy and joyous 2013 and l'chaim!!! Marcie PS: We said the shehecheyanu last night for reaching this amazing moment. -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Dec 22, 2012 7:56 am Subject: Re: [CMLHope] PCRU Hi Marcie, Fighting Leukemia is a tough battle, but as you have proved, it can be done. You now have your Christmas Present called PCRU I wish you many more years of HEALTH and HAPPINESS. 18's (stands for life) Marty On Fri, Dec 21, 2012 at 1:05 PM, margoo...@aol.com wrote: Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHopeinline: 360.gif
Re: [CMLHope] PCRU
Happy Holidays to all my CML friends and caregivers. And drive safely. greenie In a message dated 12/22/2012 10:13:05 A.M. Pacific Standard Time, bkbar...@aol.com writes: The best gift of all marcie...to life!! Thanks for sharing. and happy holidays to you and everyone else out there...safe, peaceful, joyful and healthy. Love,Beth -Original Message- From: margood18 margoo...@aol.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Dec 22, 2012 10:20 am Subject: Re: [CMLHope] PCRU Thanks, Marty. I actually got a delayed Chanukah gift, so I've always understood your 18's! Best wishes to you and your family for a happy, healthy and joyous 2013 and l'chaim!!! Marcie PS: We said the shehecheyanu last night for reaching this amazing moment. -Original Message- From: Marty Gartenberg wa2...@gmail.com To: cmlhope cmlhope@googlegroups.com Sent: Sat, Dec 22, 2012 7:56 am Subject: Re: [CMLHope] PCRU Hi Marcie, Fighting Leukemia is a tough battle, but as you have proved, it can be done. You now have your Christmas Present called PCRU I wish you many more years of HEALTH and HAPPINESS. 18's (stands for life) Marty On Fri, Dec 21, 2012 at 1:05 PM, margoo...@aol.com wrote: Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHopeinline: 360.gif
[CMLHope] PCRU
Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
RE: [CMLHope] PCRU
Congratulations 13 yr SurvivorMerry Christmas and a Happy New Year to you. To: CMLHope@googlegroups.com Subject: [CMLHope] PCRU From: margoo...@aol.com Date: Fri, 21 Dec 2012 13:05:42 -0500 Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] PCRU
Thanks, Pete. Hope 13 years from now I'll still be around with the same good news! Sent from my iPad On Dec 21, 2012, at 1:36 PM, Pete Pabon nyc...@hotmail.com wrote: Congratulations 13 yr Survivor Merry Christmas and a Happy New Year to you. To: CMLHope@googlegroups.com Subject: [CMLHope] PCRU From: margoo...@aol.com Date: Fri, 21 Dec 2012 13:05:42 -0500 Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] PCRU
Same here, on January 9, 2013 it will be 13 years that I have been on Gleevec. greenie In a message dated 12/21/2012 10:37:05 A.M. Pacific Standard Time, nyc...@hotmail.com writes: Congratulations 13 yr Survivor Merry Christmas and a Happy New Year to you. To: CMLHope@googlegroups.com Subject: [CMLHope] PCRU From: margoo...@aol.com Date: Fri, 21 Dec 2012 13:05:42 -0500 Finally - PCRU after 3 3/4 years on Gleevec! Thanks to all of you for your support, friendship and responses to my many questions. I wish all of you a Merry Christmas and a New Year filled with all wonderful things. Marcie -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] PCRU
Hey Group. . . After being diagnosed in the Accelerated Phase in November, 2003 with 800,000+ per Million. . .I began my Survival on Gleevec. I became '0~~Negative' per the FISH Test in January, 2005; and reached 0.00136 per the RT-PCR Test in 2006. After I maintained this level over a year, I knew that I would never meet my demise from our Bug it would be from one of my other 22+ Chronic Diseases. However, in February, 2008; I was 0.00021 per the RT-PCR Test, and knew that I had reached my maximum. However, yesterday I received results of PCRU per the RT-PCR Test. I know that this is accurate due to the fact that ALL my testing has been done at the same lab, by the same Dr, and at the same level 100,000. 5 years later after being given 2-5 months morbid mortality at diagnosis; not being a candidate for a BMT; and unable to enter any Clinical Trials--use any of the 2nd, 3rd, or 4th generation medications available. . . I AM A SURVIVAL . . .I AIN'T FINISHED YET ! ! ! Brother Sister Survivors, please take care; and know that ALL of US aren't meant to reach '0'. . .there is no CURE for our Bug. I know that being PCRU, I have Phillies in the -3Trillion cells not examined and always will have our bug, I am only experiencing my Best Response~~not remission~~not CURE (heHeHE). I am not a Doctor, never portrayed one on TV, nor do I aspire to be a Physician in another life. This is FYI/my 2 cents only. K I AIN'T FINISHED YET!!! --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] PCRU
Hi folks, Just got my latest (10/1/08) Quant. PCR back--I'm still PCRU. YEAH Bob Stewart, Granger, Indiana Zavie Club # 54 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
[CMLHope] PCRU Results
My PCR done 2 weeks ago at 8 months post diagnosis came back as undetectable for Ph+. It was a periphial blood PCR. I realize that I am very fortunate to respond so well. I started on 400mg Gleevec, and when I tolerated that very well, I asked to go to 600mg at the 3 month point for faster results. That did drive my blood counts crazy, but I stayed on 600mg for nearly three months. When my FISH came back zero at 6 months post dx, I returned to 400mg, and my blood counts are now CML normal -- a bit odd but close enough. The PCRU was great news. My Onc says I should stay on 400mg Gleevec, a CBC every 3 - 4 weeks, a PCR every three months, and maybe a BMB once a year, but maybe not needed if I remain PCRU. --Trey dx Oct 2005 --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
