Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Skip, I'm so happy to hear that your feeling better. You just continue to keep on getting better each and every day. May GOD bless you in a million ways. I haven't been feeling well myself. I go for dialysis and after each treatment my blood pressure drops to about 80 over 62 or so. It also effects me the next day. I spoke to the doctor and he told me to stop taking my prostate medication (Terrazosin Generic for Hytrin) because it also has a blood pressure medication in it. He gave me a prescription for Flomax and I sent it to my pharmacy company. I should be getting it soon so I will give it a try and see what happens. In the meantime I have been drinking Gateraid and eating some salted popcorn and they really do help me get my blood pressure up into the normal range. Tomorrow (Wednesday) is another treatment day for me so I will see what happens. Thank you for your concern and have a very happy and healthy 4th of July. 18's, Marty On Tue, Jul 2, 2013 at 8:22 AM, wrote: > ** > Good luck SkipD, We are all continuing the battle everyday 24/7. I am > doing really well and Spycel and except for a few minor things, getting > along good. > Hang in there, > Blessings, > Jeanie<3 > > In a message dated 4/17/2013 1:20:30 P.M. Eastern Daylight Time, > skipd_2...@yahoo.com writes: > > >Hello Marty, and all > sorry I have not been keeping tabs with the Groups but I have been rather > ill for a while, although I must admit > today I feel much better today than in months. going back over me email I > do not see much in the way of email, is there a problem > with what I receive or is it that cml 2 and hope are just being quiet... > MARTY how are you feeling, I do hope your well. Anyway I am slowly getting > back > SkipD > > > > > > *From:* Marty Gartenberg > *To:* cmlhope@googlegroups.com > *Sent:* Tuesday, April 16, 2013 11:20:06 AM > *Subject:* Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon > >Hi Peg and everyone else. > > Just so you know, Novartis was sued by some people in India over the > patent rights of Gleevec and they won the law suit. Now, this means that > India is now allowed to use a generic drug instead of the original Gleevec. > > So, with this said, Gleevec may just become a thing of the past with a > generic drug and ends up costing much less. > > 18's (symbol for life) > > Marty > > > > > On Tue, Apr 16, 2013 at 9:37 AM, peg wrote: > > Hi All, > > Been out of the loop for a while, but wanted to add my two cents to this > post about Gleevec patent. The end of the patent on any TKI is going to be > a mixed bag. While the development of a generic will dramatically bring > the cost down on that generic, it will pose a real problem for those on the > other TKI's still under patent. Once the cost playing field is no longer > level, you will find that insurance formularies will no longer approve the > non-generic TKI's, opting for the lower cost one...under the assumption > that all TKI's are equal. While some folks will fight for and be granted > exceptions, based on previous trial with Gleevec, others of us will not. > To grant an exception is to the discretion of the insurance company. The > idea that all TKI's are equal is a wide-spread idea in many countries, some > refusing to grant use of TKI's that the manufacturer would not negotiate > lower pricing. While there is always patient assistance programs > available, only some will qualify, and even then just having to go through > that change will be unnerving for those of us who's live depend on the drug > we are currently taking. Like always, we must be careful what we wish for! > > > Warmest regards to everyone! > > peg > Currently PCRU on Sprycel 50mg every other day. > > On Monday, March 11, 2013 11:30:24 AM UTC-7, Vivi wrote: > > Unfortunately, the U.S. Food and Drug Administration is making it > extremely difficult for bio-similar generic drugs to be produced and > marketed in the U.S. I'm not familiar with the regulations in Canada but > it's possible we won't see a generic of Gleevec all that soon in the U.S. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Good luck SkipD, We are all continuing the battle everyday 24/7. I am doing really well and Spycel and except for a few minor things, getting along good. Hang in there, Blessings, Jeanie<3 In a message dated 4/17/2013 1:20:30 P.M. Eastern Daylight Time, skipd_2...@yahoo.com writes: Hello Marty, and all sorry I have not been keeping tabs with the Groups but I have been rather ill for a while, although I must admit today I feel much better today than in months. going back over me email I do not see much in the way of email, is there a problem with what I receive or is it that cml 2 and hope are just being quiet... MARTY how are you feeling, I do hope your well. Anyway I am slowly getting back SkipD From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Tuesday, April 16, 2013 11:20:06 AM Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon Hi Peg and everyone else. Just so you know, Novartis was sued by some people in India over the patent rights of Gleevec and they won the law suit. Now, this means that India is now allowed to use a generic drug instead of the original Gleevec. So, with this said, Gleevec may just become a thing of the past with a generic drug and ends up costing much less. 18's (symbol for life) Marty On Tue, Apr 16, 2013 at 9:37 AM, peg <_peg.hss@live.com_ (mailto:peg@live.com) > wrote: Hi All, Been out of the loop for a while, but wanted to add my two cents to this post about Gleevec patent. The end of the patent on any TKI is going to be a mixed bag. While the development of a generic will dramatically bring the cost down on that generic, it will pose a real problem for those on the other TKI's still under patent. Once the cost playing field is no longer level, you will find that insurance formularies will no longer approve the non-generic TKI's, opting for the lower cost one...under the assumption that all TKI's are equal. While some folks will fight for and be granted exceptions, based on previous trial with Gleevec, others of us will not. To grant an exception is to the discretion of the insurance company. The idea that all TKI's are equal is a wide-spread idea in many countries, some refusing to grant use of TKI's that the manufacturer would not negotiate lower pricing. While there is always patient assistance programs available, only some will qualify, and even then just having to go through that change will be unnerving for those of us who's live depend on the drug we are currently taking. Like always, we must be careful what we wish for! Warmest regards to everyone! peg Currently PCRU on Sprycel 50mg every other day. On Monday, March 11, 2013 11:30:24 AM UTC-7, Vivi wrote: Unfortunately, the U.S. Food and Drug Administration is making it extremely difficult for bio-similar generic drugs to be produced and marketed in the U.S. I'm not familiar with the regulations in Canada but it's possible we won't see a generic of Gleevec all that soon in the U.S. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _mailto:cmlhope%2Bunsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message beca
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Millie, thanks for keeping us posted I am so sorry you are having such a hard time. I will say special prayers for you tomorrow. I believe they will figure out what is wrong and then they can tend to it. In the mean time, we are thinking of you...so glad yoru son is beside you!!! Take good care Millie, Warm regards, Beth. "18's as Marty has taught us! -Original Message- From: C.M. Houtz To: cmlhope Sent: Thu, May 16, 2013 3:50 pm Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon Hi MartyI know that you're dealing with a lot and that having dialysis isn't easy. I went through that with a sister. She didn't watch her diet and so it didn't work to well for her. I know that the diet alone is almost impossible, but it is what it is. I can remember that green beans are about the only thing you can have and not be bothered by it. I keep you in my prayers along with our whole group of warriors. I'm still in limbowaiting for a call from my introgasterologist. He and my Oncologist spoke and they don't think this is medicine related. I do have a liver problem but they think I might have something stuck in my bio-duct (or whatever it is). They are going to do a procedure where they go down my throat and check it out and see if it is. If it is, try to unblock it. I pray that will all go well. My Oncologist is such a great man. He called me personally yesterday to explain this to me and said "Don't you have enough wrongWhy did you ask for more?" I laughed and told him that I guess I wasn't getting enough attention. He's been with me for 20 years, so we've become friends. He's such a caring person and anyone that has him for a doctor is so lucky. I'm still yellow, and the liver function tests are not going down, so they figure it isn't medicine related. I'll let you know how it goes when I know. We are fighters, but have had to be. Your 18's mean a great deal, along with your stories of what you've been through. I didn't sleep last night as I had a stomach ache all night. I'm going to go lay down for a little while before supper. I'm so glad you have such a caring wife. That's really important. I thank God each day for giving me this son that helps me and cares for me so much. I am truly blessed. Hugs, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi MartyI know that you're dealing with a lot and that having dialysis isn't easy. I went through that with a sister. She didn't watch her diet and so it didn't work to well for her. I know that the diet alone is almost impossible, but it is what it is. I can remember that green beans are about the only thing you can have and not be bothered by it. I keep you in my prayers along with our whole group of warriors. I'm still in limbowaiting for a call from my introgasterologist. He and my Oncologist spoke and they don't think this is medicine related. I do have a liver problem but they think I might have something stuck in my bio-duct (or whatever it is). They are going to do a procedure where they go down my throat and check it out and see if it is. If it is, try to unblock it. I pray that will all go well. My Oncologist is such a great man. He called me personally yesterday to explain this to me and said "Don't you have enough wrongWhy did you ask for more?" I laughed and told him that I guess I wasn't getting enough attention. He's been with me for 20 years, so we've become friends. He's such a caring person and anyone that has him for a doctor is so lucky. I'm still yellow, and the liver function tests are not going down, so they figure it isn't medicine related. I'll let you know how it goes when I know. We are fighters, but have had to be. Your 18's mean a great deal, along with your stories of what you've been through. I didn't sleep last night as I had a stomach ache all night. I'm going to go lay down for a little while before supper. I'm so glad you have such a caring wife. That's really important. I thank God each day for giving me this son that helps me and cares for me so much. I am truly blessed. Hugs, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Millie, sorry it took so long to get back to you. Since I am on dialysis it is sometimes difficult to do what I want. However we are both fighters so that is what we know how to do. Even with all of your problems you are still hanging in there and so am I. As far as 18's well that is what we are trying to do, just staying alive and trying to enjoy our lives. So, it gives me great pleasure to wish you many more 18's Marty On Wed, May 8, 2013 at 11:45 AM, C.M. Houtz wrote: > ** > *Hi Marty.I did have the scope into my stomach done, and other then > minor things, nothing showed up. I did, however, spend a couple of days in > the hospital as my blood thinner working overtime and I was bleeding > internallyalso I was completely dehydrated. The cause is still unknown > ad I hadn't changed anything and was getting my blood work done on time, > etc. Now I find out that there is something going on with my liver and it > worries me, but they have cut back on some of the medicine that could be > causing it. They also put me back on Home Care from our local hospital. > They are great people, but it keeps me in the house, which is difficult, > but right now, I can't go anywhere as I'm very weak from everything. There > are other things going on too, but I won't go into all of it. Needless to > say, I'm hoping to get these things cleared up. They want to do a > colonoscopy next, but that's going to wait until my hemorrhoids clear up. > It seems like I'm getting hit from all sides right now, but I'm keeping > busy and trying to think positive and that's the best I can do. I am > wondering if the Tasigna is causing the liver function problems. It scares > me to think of coming off of it, but it might be something I have to > do.at least for a while. I'll have to wait and see what my Oncologist > says. I see him in a couple of weeks, but the nurses that will be coming > in might just talk to him sooner and we'll go from there. I've lost about > 20 lbs and that's not a bad thing. I know that I'm not eating right, but > just find it difficult to do that when it makes me sick, so on and on. I > am smiling and staying positiveor trying very hard. Thanks for caring > and hope I haven't given you to much information. I'll try to keep > everyone informed. Don't know if others have had issues with their liver. > If so, I'd appreciate hearing from them. * > ** > *Thanks for all of your 18's.I really need them now.* > *Millie* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Marty.I did have the scope into my stomach done, and other then minor things, nothing showed up. I did, however, spend a couple of days in the hospital as my blood thinner working overtime and I was bleeding internallyalso I was completely dehydrated. The cause is still unknown ad I hadn't changed anything and was getting my blood work done on time, etc. Now I find out that there is something going on with my liver and it worries me, but they have cut back on some of the medicine that could be causing it. They also put me back on Home Care from our local hospital. They are great people, but it keeps me in the house, which is difficult, but right now, I can't go anywhere as I'm very weak from everything. There are other things going on too, but I won't go into all of it. Needless to say, I'm hoping to get these things cleared up. They want to do a colonoscopy next, but that's going to wait until my hemorrhoids clear up. It seems like I'm getting hit from all sides right now, but I'm keeping busy and trying to think positive and that's the best I can do. I am wondering if the Tasigna is causing the liver function problems. It scares me to think of coming off of it, but it might be something I have to do.at least for a while. I'll have to wait and see what my Oncologist says. I see him in a couple of weeks, but the nurses that will be coming in might just talk to him sooner and we'll go from there. I've lost about 20 lbs and that's not a bad thing. I know that I'm not eating right, but just find it difficult to do that when it makes me sick, so on and on. I am smiling and staying positiveor trying very hard. Thanks for caring and hope I haven't given you to much information. I'll try to keep everyone informed. Don't know if others have had issues with their liver. If so, I'd appreciate hearing from them. Thanks for all of your 18's.I really need them now. Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Millie, I'm just checking up on you. Did you get those tests done yet? I hope that everything turned out well for you. 18's, Marty On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote: > ** > *Hi Marty.It is good to see you one line. I will keep you in my > prayers and pray that you hear something about a transplant soon. You are > always such an inspiration to all of us. No one keeps on top of things > like you do. I've been feeling sick for months now, and now they're going > to send me to a specialist and perhaps he can figure it all out. I am > working hard on feeling good. We all have down times, but I don't give > up. You take care.* > *18's to you and yours,* > *Millie* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Remember Millie what I told you. Your mind is a very powerful tool. It seems that your starting to use it with things that you seem to enjoy. You also Beth. Both of you are survivors! Keep that in mind when you have any problems that may be a bit difficult to deal with. 18's Marty On Fri, Apr 19, 2013 at 9:30 AM, Marty Gartenberg wrote: > Hi Millie, > > You just said something that shows me what type of a person you really > are. You said that you are working to make yourself feel better. Maybe not > in those exact words but the same idea. I would like to send you something > that was given to me when I had my bone marrow transplant. It was pasted on > the outside of the plastic bubble I had to live in for many months. I read > it every day and it gave me insperation to continue along my journey. > Please see below... > > I hope that your tests come out well for you and hopefully they may find a > solution to your problem. > > You also have something that is very precious and that is how your mind > works. I always say that when you have Leukemia it is not only a disease of > the body but the mind as well. You seem to be controling your disease with > your mind helping you along. I'm not saying that you can cure yourself with > your mind but only that you yourself make it a lot eiser to deal with it > because your a very strong willled person. > > So, I know that this is also meant for you as well... > > 18's Marty > > EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF > CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN > YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET > (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. > > WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF > MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING > INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU > THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. > > EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. OUR BELIEF AT THE > BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE > SUCCESSFUL OUTCOME... > > FOCUS... > > > > On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote: > >> ** >> *Hi Marty.It is good to see you one line. I will keep you in my >> prayers and pray that you hear something about a transplant soon. You are >> always such an inspiration to all of us. No one keeps on top of things >> like you do. I've been feeling sick for months now, and now they're going >> to send me to a specialist and perhaps he can figure it all out. I am >> working hard on feeling good. We all have down times, but I don't give >> up. You take care.* >> *18's to you and yours,* >> *Millie* >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> - >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/groups/opt_out. >> >> >> > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Thanks for the wonderful words. I printed them out and will do something with them. I might just stitch them and then make a picture, or pillow to look at and read. That way, I can share it with others and perhaps help someone. I know that reading them helped me. I just wrote Beth, and hope that she also read your wonderful words. It meant a lot to me that you shared them with me. Talk to you soon. 18's to you, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Great advice, Marty! Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us Angie From: Marty Gartenberg To: cmlhope@googlegroups.com Sent: Friday, April 19, 2013 9:30:59 AM Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon Hi Millie, You just said something that shows me what type of a person you really are. You said that you are working to make yourself feel better. Maybe not in those exact words but the same idea. I would like to send you something that was given to me when I had my bone marrow transplant. It was pasted on the outside of the plastic bubble I had to live in for many months. I read it every day and it gave me insperation to continue along my journey. Please see below... I hope that your tests come out well for you and hopefully they may find a solution to your problem. You also have something that is very precious and that is how your mind works. I always say that when you have Leukemia it is not only a disease of the body but the mind as well. You seem to be controling your disease with your mind helping you along. I'm not saying that you can cure yourself with your mind but only that you yourself make it a lot eiser to deal with it because your a very strong willled person. So, I know that this is also meant for you as well... 18's Marty EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. OUR BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote: >Hi Marty.It is good to see you one line. I will keep you in my prayers and pray that you hear something about a transplant soon. You are always such an inspiration to all of us. No one keeps on top of things like you do. I've been feeling sick for months now, and now they're going to send me to a specialist and perhaps he can figure it all out. I am working hard on feeling good. We all have down times, but I don't give up. You take care. >18's to you and yours, >Millie -- >-- >[CMLHope] >A support group of http://cmlhope.com/ >- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to CMLHope@googlegroups.com >To unsubscribe from this group, send email to >cmlhope-unsubscr...@googlegroups.com >For more options, visit this group at http://groups.google.com/group/CMLHope >--- >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To unsubscribe from this group and stop receiving emails from it, send an >email to mailto:cmlhope%2bunsubscr...@googlegroups.com. >For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com/ - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Millie, You just said something that shows me what type of a person you really are. You said that you are working to make yourself feel better. Maybe not in those exact words but the same idea. I would like to send you something that was given to me when I had my bone marrow transplant. It was pasted on the outside of the plastic bubble I had to live in for many months. I read it every day and it gave me insperation to continue along my journey. Please see below... I hope that your tests come out well for you and hopefully they may find a solution to your problem. You also have something that is very precious and that is how your mind works. I always say that when you have Leukemia it is not only a disease of the body but the mind as well. You seem to be controling your disease with your mind helping you along. I'm not saying that you can cure yourself with your mind but only that you yourself make it a lot eiser to deal with it because your a very strong willled person. So, I know that this is also meant for you as well... 18's Marty EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. OUR BELIEF AT THE BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE SUCCESSFUL OUTCOME... FOCUS... On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote: > ** > *Hi Marty.It is good to see you one line. I will keep you in my > prayers and pray that you hear something about a transplant soon. You are > always such an inspiration to all of us. No one keeps on top of things > like you do. I've been feeling sick for months now, and now they're going > to send me to a specialist and perhaps he can figure it all out. I am > working hard on feeling good. We all have down times, but I don't give > up. You take care.* > *18's to you and yours,* > *Millie* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Marty.It is good to see you one line. I will keep you in my prayers and pray that you hear something about a transplant soon. You are always such an inspiration to all of us. No one keeps on top of things like you do. I've been feeling sick for months now, and now they're going to send me to a specialist and perhaps he can figure it all out. I am working hard on feeling good. We all have down times, but I don't give up. You take care. 18's to you and yours, Millie -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Skip, I have been sending you email but I never get any answers from you. I think there is something wrong with your email??? I'm glad to learn that your feeling better. Still waiting on a kidney transplant. Nothing yet. 18's Marty On Wed, Apr 17, 2013 at 1:20 PM, Skip Duffie wrote: > > Hello Marty, and all > sorry I have not been keeping tabs with the Groups but I have been rather > ill for a while, although I must admit > today I feel much better today than in months. going back over me email I > do not see much in the way of email, is there a problem > with what I receive or is it that cml 2 and hope are just being quiet... > MARTY how are you feeling, I do hope your well. Anyway I am slowly getting > back > SkipD > > > > > > *From:* Marty Gartenberg > *To:* cmlhope@googlegroups.com > *Sent:* Tuesday, April 16, 2013 11:20:06 AM > *Subject:* Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon > > Hi Peg and everyone else. > > Just so you know, Novartis was sued by some people in India over the > patent rights of Gleevec and they won the law suit. Now, this means that > India is now allowed to use a generic drug instead of the original Gleevec. > > So, with this said, Gleevec may just become a thing of the past with a > generic drug and ends up costing much less. > > 18's (symbol for life) > > Marty > > > > > On Tue, Apr 16, 2013 at 9:37 AM, peg wrote: > > Hi All, > > Been out of the loop for a while, but wanted to add my two cents to this > post about Gleevec patent. The end of the patent on any TKI is going to be > a mixed bag. While the development of a generic will dramatically bring > the cost down on that generic, it will pose a real problem for those on the > other TKI's still under patent. Once the cost playing field is no longer > level, you will find that insurance formularies will no longer approve the > non-generic TKI's, opting for the lower cost one...under the assumption > that all TKI's are equal. While some folks will fight for and be granted > exceptions, based on previous trial with Gleevec, others of us will not. > To grant an exception is to the discretion of the insurance company. The > idea that all TKI's are equal is a wide-spread idea in many countries, some > refusing to grant use of TKI's that the manufacturer would not negotiate > lower pricing. While there is always patient assistance programs > available, only some will qualify, and even then just having to go through > that change will be unnerving for those of us who's live depend on the drug > we are currently taking. Like always, we must be careful what we wish for! > > > Warmest regards to everyone! > > peg > Currently PCRU on Sprycel 50mg every other day. > > On Monday, March 11, 2013 11:30:24 AM UTC-7, Vivi wrote: > > Unfortunately, the U.S. Food and Drug Administration is making it > extremely difficult for bio-similar generic drugs to be produced and > marketed in the U.S. I'm not familiar with the regulations in Canada but > it's possible we won't see a generic of Gleevec all that soon in the U.S. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to > mailto:cmlhope%2bunsubscr...@googlegroups.com > . > For more options, visit https://groups.google.com/groups/opt_out. > > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com/ > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://grou
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
> >Hello Marty, and all >sorry I have not been keeping tabs with the Groups but I have been rather ill >for a while, although I must admit >today I feel much better today than in months. going back over me email I do >not see much in the way of email, is there a problem >with what I receive or is it that cml 2 and hope are just being quiet... >MARTY how are you feeling, I do hope your well. Anyway I am slowly getting >back >SkipD > > > > > >From: Marty Gartenberg >To: cmlhope@googlegroups.com >Sent: Tuesday, April 16, 2013 11:20:06 AM >Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon > > > >Hi Peg and everyone else. > >Just so you know, Novartis was sued by some people in India over the patent >rights of Gleevec and they won the law suit. Now, this means that India is now >allowed to use a generic drug instead of the original Gleevec. > >So, with this said, Gleevec may just become a thing of the past with a generic >drug and ends up costing much less. > >18's (symbol for life) > >Marty > > > > > > > >On Tue, Apr 16, 2013 at 9:37 AM, peg wrote: > >Hi All, >> >> >>Been out of the loop for a while, but wanted to add my two cents to this post >>about Gleevec patent. The end of the patent on any TKI is going to be a >>mixed bag. While the development of a generic will dramatically bring the >>cost down on that generic, it will pose a real problem for those on the other >>TKI's still under patent. Once the cost playing field is no longer level, >>you will find that insurance formularies will no longer approve the >>non-generic TKI's, opting for the lower cost one...under the assumption that >>all TKI's are equal. While some folks will fight for and be granted >>exceptions, based on previous trial with Gleevec, others of us will not. To >>grant an exception is to the discretion of the insurance company. The idea >>that all TKI's are equal is a wide-spread idea in many countries, some >>refusing to grant use of TKI's that the manufacturer would not negotiate >>lower pricing. While there is always patient assistance programs available, only some will qualify, and even then just having to go through that change will be unnerving for those of us who's live depend on the drug we are currently taking. Like always, we must be careful what we wish for! >> >> >>Warmest regards to everyone! >> >> >>peg >>Currently PCRU on Sprycel 50mg every other day. >> >>On Monday, March 11, 2013 11:30:24 AM UTC-7, Vivi wrote: >>Unfortunately, the U.S. Food and Drug Administration is making it extremely >>difficult for bio-similar generic drugs to be produced and marketed in the >>U.S. I'm not familiar with the regulations in Canada but it's possible we >>won't see a generic of Gleevec all that soon in the U.S. >>> >>> -- >>-- >>[CMLHope] >>A support group of http://cmlhope.com/ >>- >> >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To post to this group, send email to CMLHope@googlegroups.com >>To unsubscribe from this group, send email to >>cmlhope-unsubscr...@googlegroups.com >>For more options, visit this group at http://groups.google.com/group/CMLHope >>--- >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To unsubscribe from this group and stop receiving emails from it, send an >>email to mailto:cmlhope%2bunsubscr...@googlegroups.com. >>For more options, visit https://groups.google.com/groups/opt_out. >> >> >> > -- >-- >[CMLHope] >A support group of http://cmlhope.com/ >- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to CMLHope@googlegroups.com >To unsubscribe from this group, send email to >cmlhope-unsubscr...@googlegroups.com >For more options, visit this group at http://groups.google.com/group/CMLHope >--- >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To unsubscribe from this group and stop receiving emails from it, send an >email to cmlhope+unsubscr...@googlegroups.com. >For more options, visit https://groups.google.com/groups/opt_out. > > > > > -- -- [CMLHope] A su
Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi Peg and everyone else. Just so you know, Novartis was sued by some people in India over the patent rights of Gleevec and they won the law suit. Now, this means that India is now allowed to use a generic drug instead of the original Gleevec. So, with this said, Gleevec may just become a thing of the past with a generic drug and ends up costing much less. 18's (symbol for life) Marty On Tue, Apr 16, 2013 at 9:37 AM, peg wrote: > Hi All, > > Been out of the loop for a while, but wanted to add my two cents to this > post about Gleevec patent. The end of the patent on any TKI is going to be > a mixed bag. While the development of a generic will dramatically bring > the cost down on that generic, it will pose a real problem for those on the > other TKI's still under patent. Once the cost playing field is no longer > level, you will find that insurance formularies will no longer approve the > non-generic TKI's, opting for the lower cost one...under the assumption > that all TKI's are equal. While some folks will fight for and be granted > exceptions, based on previous trial with Gleevec, others of us will not. > To grant an exception is to the discretion of the insurance company. The > idea that all TKI's are equal is a wide-spread idea in many countries, some > refusing to grant use of TKI's that the manufacturer would not negotiate > lower pricing. While there is always patient assistance programs > available, only some will qualify, and even then just having to go through > that change will be unnerving for those of us who's live depend on the drug > we are currently taking. Like always, we must be careful what we wish for! > > > Warmest regards to everyone! > > peg > Currently PCRU on Sprycel 50mg every other day. > > On Monday, March 11, 2013 11:30:24 AM UTC-7, Vivi wrote: >> >> Unfortunately, the U.S. Food and Drug Administration is making it >> extremely difficult for bio-similar generic drugs to be produced and >> marketed in the U.S. I'm not familiar with the regulations in Canada but >> it's possible we won't see a generic of Gleevec all that soon in the U.S. >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi All, Been out of the loop for a while, but wanted to add my two cents to this post about Gleevec patent. The end of the patent on any TKI is going to be a mixed bag. While the development of a generic will dramatically bring the cost down on that generic, it will pose a real problem for those on the other TKI's still under patent. Once the cost playing field is no longer level, you will find that insurance formularies will no longer approve the non-generic TKI's, opting for the lower cost one...under the assumption that all TKI's are equal. While some folks will fight for and be granted exceptions, based on previous trial with Gleevec, others of us will not. To grant an exception is to the discretion of the insurance company. The idea that all TKI's are equal is a wide-spread idea in many countries, some refusing to grant use of TKI's that the manufacturer would not negotiate lower pricing. While there is always patient assistance programs available, only some will qualify, and even then just having to go through that change will be unnerving for those of us who's live depend on the drug we are currently taking. Like always, we must be careful what we wish for! Warmest regards to everyone! peg Currently PCRU on Sprycel 50mg every other day. On Monday, March 11, 2013 11:30:24 AM UTC-7, Vivi wrote: > > Unfortunately, the U.S. Food and Drug Administration is making it > extremely difficult for bio-similar generic drugs to be produced and > marketed in the U.S. I'm not familiar with the regulations in Canada but > it's possible we won't see a generic of Gleevec all that soon in the U.S. > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Despite what you may read elsewhere on the Internet, the Gleevec patent is not coming to an end soon in the US. While the original expiration date was May 28, 2013, Novartis was granted an extension to Jan 4, 2015. And as noted earlier, there are other issues as well. http://www.uspto.gov/patents/resources/terms/156.jsp On Mar 11, 11:30 am, Vivi wrote: > Unfortunately, the U.S. Food and Drug Administration is making it extremely > difficult for bio-similar generic drugs to be produced and marketed in the > U.S. I'm not familiar with the regulations in Canada but it's possible we > won't see a generic of Gleevec all that soon in the U.S. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
