Re: [CMLHope] Test Results
Suzieq, I can't write this in stone but I think Novartis is still making way to much money so it will be awhile before they give it up. Such a shame, it cost more in the U. S. then any other country. They had a store about them on 60 minutes a few months ago, Greed, but it is saving lives, I'm on it. Saved my life. greenie In a message dated 8/14/2015 8:27:30 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: To my CML Survivors: Just wanted to let everyone know that my BCR-ABL results came back and I am once again "none detected"...I'm so very happy. So, who knows why the results last Dec. 31st turned up positive after being negative since July of 2009. Might just have been a false positive or something. I know it sure upset me. LOL!! My doctor settled me down as did my husband. She wants me to continue on with the 100mgs. a day of Gleevec. I think I started that about a year and half ago. We're hoping it will keep me at the "none detective". I just do not feel comfortable with going off the Gleevec completely. Okay, everyone have a great evening. And, if anyone knows how to get a hold of Skip, send him a message and try and find out how he is doing. Keep Looking Up, Suzieq p.s. did Novartis extend the patent on Gleevec or is it up. I was thinking it was suppose to be up around the 4th of July. I know it is still very expensive. I thought surely it would start dropping in price by now. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to CMLHope-unsubscribe @googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
Hi Suzieq, always happy to here good news, keep it up. greenie In a message dated 8/14/2015 8:27:30 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: To my CML Survivors: Just wanted to let everyone know that my BCR-ABL results came back and I am once again "none detected"...I'm so very happy. So, who knows why the results last Dec. 31st turned up positive after being negative since July of 2009. Might just have been a false positive or something. I know it sure upset me. LOL!! My doctor settled me down as did my husband. She wants me to continue on with the 100mgs. a day of Gleevec. I think I started that about a year and half ago. We're hoping it will keep me at the "none detective". I just do not feel comfortable with going off the Gleevec completely. Okay, everyone have a great evening. And, if anyone knows how to get a hold of Skip, send him a message and try and find out how he is doing. Keep Looking Up, Suzieq p.s. did Novartis extend the patent on Gleevec or is it up. I was thinking it was suppose to be up around the 4th of July. I know it is still very expensive. I thought surely it would start dropping in price by now. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
I also have been cleared nothing found thank GOD to all of us and hope we stay that wayJudith Martyn On Friday, August 14, 2015 10:49 PM, Marty Gartenberg wrote: Hi Suzieq, First let me congratulate you on you success about being non detectable, a very good step in the right direction. I already have been in touch with Skip and we talk to each other about every couple of weeks. I have already mentioned about all of you and he is happy for all of you. He is just very busy with his regimen but I will see if i can get hold of him and possibly get on here. 18's, Marty On Fri, Aug 14, 2015 at 8:27 PM, Suzieq wrote: To my CML Survivors: Just wanted to let everyone know that my BCR-ABL results came back and I am once again "none detected"...I'm so very happy. So, who knows why the results last Dec. 31st turned up positive after being negative since July of 2009. Might just have been a false positive or something. I know it sure upset me. LOL!! My doctor settled me down as did my husband. She wants me to continue on with the 100mgs. a day of Gleevec. I think I started that about a year and half ago. We're hoping it will keep me at the "none detective". I just do not feel comfortable with going off the Gleevec completely. Okay, everyone have a great evening. And, if anyone knows how to get a hold of Skip, send him a message and try and find out how he is doing. Keep Looking Up, Suzieq p.s. did Novartis extend the patent on Gleevec or is it up. I was thinking it was suppose to be up around the 4th of July. I know it is still very expensive. I thought surely it would start dropping in price by now.-- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
Hi Suzieq, First let me congratulate you on you success about being non detectable, a very good step in the right direction. I already have been in touch with Skip and we talk to each other about every couple of weeks. I have already mentioned about all of you and he is happy for all of you. He is just very busy with his regimen but I will see if i can get hold of him and possibly get on here. 18's, Marty On Fri, Aug 14, 2015 at 8:27 PM, Suzieq wrote: > *To my CML Survivors:* > > *Just wanted to let everyone know that my BCR-ABL results came back and I > am once again "none detected"...I'm so very happy. So, who knows why > the results last Dec. 31st turned up positive after being negative since > July of 2009. Might just have been a false positive or something. I know > it sure upset me. LOL!! My doctor settled me down as did my husband. She > wants me to continue on with the 100mgs. a day of Gleevec. I think I > started that about a year and half ago. We're hoping it will keep me at > the "none detective". I just do not feel comfortable with going off the > Gleevec completely. * > > *Okay, everyone have a great evening. And, if anyone knows how to get a > hold of Skip, send him a message and try and find out how he is doing. * > > *Keep Looking Up,* > > *Suzieq* > > *p.s. did Novartis extend the patent on Gleevec or is it up. I was > thinking it was suppose to be up around the 4th of July. I know it is > still very expensive. I thought surely it would start dropping in price by > now.* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
Congratulations Suzieq! What a relief for you. Keep up the good work. Marcie Sent from my iPhone > On Aug 14, 2015, at 8:27 PM, Suzieq wrote: > > To my CML Survivors: > > Just wanted to let everyone know that my BCR-ABL results came back and I am > once again "none detected"...I'm so very happy. So, who knows why the > results last Dec. 31st turned up positive after being negative since July of > 2009. Might just have been a false positive or something. I know it sure > upset me. LOL!! My doctor settled me down as did my husband. She wants me > to continue on with the 100mgs. a day of Gleevec. I think I started that > about a year and half ago. We're hoping it will keep me at the "none > detective". I just do not feel comfortable with going off the Gleevec > completely. > > Okay, everyone have a great evening. And, if anyone knows how to get a > hold of Skip, send him a message and try and find out how he is doing. > > Keep Looking Up, > > Suzieq > > p.s. did Novartis extend the patent on Gleevec or is it up. I was thinking > it was suppose to be up around the 4th of July. I know it is still very > expensive. I thought surely it would start dropping in price by now. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Test Results
*To my CML Survivors:* *Just wanted to let everyone know that my BCR-ABL results came back and I am once again "none detected"...I'm so very happy. So, who knows why the results last Dec. 31st turned up positive after being negative since July of 2009. Might just have been a false positive or something. I know it sure upset me. LOL!! My doctor settled me down as did my husband. She wants me to continue on with the 100mgs. a day of Gleevec. I think I started that about a year and half ago. We're hoping it will keep me at the "none detective". I just do not feel comfortable with going off the Gleevec completely. * *Okay, everyone have a great evening. And, if anyone knows how to get a hold of Skip, send him a message and try and find out how he is doing. * *Keep Looking Up,* *Suzieq* *p.s. did Novartis extend the patent on Gleevec or is it up. I was thinking it was suppose to be up around the 4th of July. I know it is still very expensive. I thought surely it would start dropping in price by now.* -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
That's great news Richard. I may try to go off my meds if I am still PCRU on my next visit. My onc is talking about it but my WBC and Platelets tend to go up without my meds, so I keep taking them. I pray for your health daily. Blessings, Jeanie<3 In a message dated 3/24/2014 4:43:32 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes: I received my RT PCR test results today. This test showed 10.577% vs 10.183% in Dec. 2013. We had a great visit about if I were in a formal test group I would be told I have to take a med. Having worked with me since 2002 he is allowing me to continue with no treatment for another 3 months. My ONC noted that my history of slow growth of my mutated cells was a unique factor when compared to most CMLers, particularly those in test groups. Another factor was that my CBCs have never shown white cell counts that indicated a need for a BMB to due further investigation. I send my prayers all, but especially those battling new problems. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8 Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57%6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
I am happy for you Richard. while up, not too much up at all...and another 3 months with out meds!!! You are very lucky to have slow growing mutated cells!!! I hope next quarter's shows stability and that you can continue to stay off medsindefinately :) Thanks for sharing...it's always so good to hear from you...keep us posted..-Beth -Original Message- From: Richard H To: cmlhope Sent: Mon, Mar 24, 2014 3:43 pm Subject: [CMLHope] Test Results I received my RT PCR test results today. This test showed 10.577% vs 10.183% in Dec. 2013. We had a great visit about if I were in a formal test group I would be told I have to take a med. Having worked with me since 2002 he is allowing me to continue with no treatment for another 3 months. My ONC noted that my history of slow growth of my mutated cells was a unique factor when compared to most CMLers, particularly those in test groups. Another factor was that my CBCs have never shown white cell counts that indicated a need for a BMB to due further investigation. I send my prayers all, but especially those battling new problems. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8 Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57% 6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
Richard, I'm so happy for you, and know that you are too. I hope that your test results will continue to be good. I will still pray for you and hope that you can continue to stay off of any drugs for your CML. Hugs, Millie - Original Message - From: Richard H To: cmlhope@googlegroups.com Sent: Mon, 24 Mar 2014 16:43:29 -0400 (EDT) Subject: [CMLHope] Test Results I received my RT PCR test results today. This test showed 10.577% vs 10.183% in Dec. 2013. We had a great visit about if I were in a formal test group I would be told I have to take a med. Having worked with me since 2002 he is allowing me to continue with no treatment for another 3 months. My ONC noted that my history of slow growth of my mutated cells was a unique factor when compared to most CMLers, particularly those in test groups. Another factor was that my CBCs have never shown white cell counts that indicated a need for a BMB to due further investigation. I send my prayers all, but especially those battling new problems. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8 Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57% 6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
[CMLHope] Test Results
I received my RT PCR test results today. This test showed 10.577% vs 10.183% in Dec. 2013. We had a great visit about if I were in a formal test group I would be told I have to take a med. Having worked with me since 2002 he is allowing me to continue with no treatment for another 3 months. My ONC noted that my history of slow growth of my mutated cells was a unique factor when compared to most CMLers, particularly those in test groups. Another factor was that my CBCs have never shown white cell counts that indicated a need for a BMB to due further investigation. I send my prayers all, but especially those battling new problems. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 RBC 8 Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Procrit 8/08-11/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 QT-PCR 4.57% 6/13 RT-PCR 10.183% 10/13 RT-PCR 10.577% 2/14 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
Re: [CMLHope] Test Results
Great Richard; hope your test come out good. Jeanie<3 In a message dated 4/24/2013 7:33:42 P.M. Eastern Daylight Time, wa2...@gmail.com writes: Hi Richard, As I said on the other site, I wish you the best of luck. 18's Marty On Wed, Apr 24, 2013 at 6:16 PM, Richard H <_richard1huffman@comcast.net_ (mailto:richard1huff...@comcast.net) > wrote: My tests show a sharp increase in counts indicating that my Gleevec vacation is coming to an end. I will complete my 5th year off Gleevec by being retested to be sure this test was correct. My ONC and I agree that is correct when we viewed the graph for the last 3 years. I will also have a BMB to see if any mutations have occurred. I feel better than I have for years, so it is hard believe that it is happening. The GOOD news is I was able to complete 5 years when most people pursing this path failed in less than two. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 11/8 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to _cmlhope+unsubscribe@googlegroups.com_ (mailto:cmlhope+unsubscr...@googlegroups.com) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Test Results
Thinking of you Richard. Wishing you all good things. And it is GOOD news that you were able to be off for five years thus far. Take good care, Beth -Original Message- From: Marty Gartenberg To: cmlhope Sent: Wed, Apr 24, 2013 6:33 pm Subject: Re: [CMLHope] Test Results Hi Richard, As I said on the other site, I wish you the best of luck. 18's Marty On Wed, Apr 24, 2013 at 6:16 PM, Richard H wrote: My tests show a sharp increase in counts indicating that my Gleevec vacation is coming to an end. I will complete my 5th year off Gleevec by being retested to be sure this test was correct. My ONC and I agree that is correct when we viewed the graph for the last 3 years. I will also have a BMB to see if any mutations have occurred. I feel better than I have for years, so it is hard believe that it is happening. The GOOD news is I was able to complete 5 years when most people pursing this path failed in less than two. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 11/8 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Test Results
Hi Richard, As I said on the other site, I wish you the best of luck. 18's Marty On Wed, Apr 24, 2013 at 6:16 PM, Richard H wrote: > My tests show a sharp increase in counts indicating that my Gleevec > vacation is coming to an end. I will complete my 5th year off Gleevec by > being retested to be sure this test was correct. My ONC and I agree that > is correct when we viewed the graph for the last 3 years. I will also have > a BMB to see if any mutations have occurred. > > I feel better than I have for years, so it is hard believe that it is > happening. The GOOD news is I was able to complete 5 years when most > people pursing this path failed in less than two. > > > > Richard H. > > ** ** > > dxd 2/2003 > > 400mg Gleevec 3/2003 > > Undetectable 11/03 > > RT-PCR negative 11/04 > > QT-PCR .003 11/05 > > 11/8 RBC 8. > > Gleevec Vacation 11/06-6/07 > > Iron infusion 11/06 > > Transfusions 12/06-5/07 > > QT-PCR .007 > > Gleevec 1/08 -5/08 > > Gleevec Vacation 7/08-Present > > QT-PCR .003 4/09 > > QT-PCR .00156/09 > > QT-PCR .00219/09 > > QT-PCR .00281/10 > > QT-PCR .001 4/10 > > QT-PCR .00468 10/10 > > QT-PCR 1.049% 2/11 > > QT-PCR .0612% 8/11 > > QT-PCR 2.616 %2/12 > > QT-PCR 2.410% 8/12 > > QT-PCR 9.183% 4/13 > > ** ** > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > - > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
Re: [CMLHope] Test Results
Richard, I hope the best for, it's been a good run for you. greenie In a message dated 4/24/2013 6:16:38 P.M. Eastern Daylight Time, richard1huff...@comcast.net writes: My tests show a sharp increase in counts indicating that my Gleevec vacation is coming to an end. I will complete my 5th year off Gleevec by being retested to be sure this test was correct. My ONC and I agree that is correct when we viewed the graph for the last 3 years. I will also have a BMB to see if any mutations have occurred. I feel better than I have for years, so it is hard believe that it is happening. The GOOD news is I was able to complete 5 years when most people pursing this path failed in less than two. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 11/8 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .0015 6/09 QT-PCR .0021 9/09 QT-PCR .0028 1/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Test Results
My tests show a sharp increase in counts indicating that my Gleevec vacation is coming to an end. I will complete my 5th year off Gleevec by being retested to be sure this test was correct. My ONC and I agree that is correct when we viewed the graph for the last 3 years. I will also have a BMB to see if any mutations have occurred. I feel better than I have for years, so it is hard believe that it is happening. The GOOD news is I was able to complete 5 years when most people pursing this path failed in less than two. Richard H. dxd 2/2003 400mg Gleevec 3/2003 Undetectable 11/03 RT-PCR negative 11/04 QT-PCR .003 11/05 11/8 RBC 8. Gleevec Vacation 11/06-6/07 Iron infusion 11/06 Transfusions 12/06-5/07 QT-PCR .007 Gleevec 1/08 -5/08 Gleevec Vacation 7/08-Present QT-PCR .003 4/09 QT-PCR .00156/09 QT-PCR .00219/09 QT-PCR .00281/10 QT-PCR .001 4/10 QT-PCR .00468 10/10 QT-PCR 1.049% 2/11 QT-PCR .0612% 8/11 QT-PCR 2.616 %2/12 QT-PCR 2.410% 8/12 QT-PCR 9.183% 4/13 -- -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
[CMLHope] Test Results & Coming off of Gleevec
Latest genetics results showed a drop from 0.002% to 0.001%.Whoo- hoo! What is the log reduction, Zavie, cause I've never figured it out. :( This is after being on Gleevec six years this month..I've only been "none-detected" twice in all that time, but at least the Gleevec is keeping the CML at a low level. Doc says I will never be able to come off of it as long as these low levels show up because the CML would just come back in full force. So, I take it faithfully each and every day! Keep Looking Up People, Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Test Results
Well after almost a monththey finally sent me my BCR/ABL results. Positive: Major breakpoint (0.002%) I've been a bit emotional all day and when I saw that..didn't help matters any, to say the least. I was sure hoping for another "none detected" or "negative" like last time. My whole graph line looks like a roller coaster rideup, down, up, down, up, down since I began. Very discouraging to me but the doctor doesn't seem to be to concerned as this just looks normal for me since I began taking Gleevec back in early 2004.I have been in a bit of a "funk" for the past few days as I've been "sick & tired of being sick & tired" if you know what I mean. So, I've been having my little "pity parties" while I'm alone. (smile) Guess we all get there sometime, huh? Thanks for listening, Suzieq --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~--~~~~--~~--~--~---
