[CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION

2016-03-31 Thread Sue
Hi Everyone 

 

Are you on face book - If so we have a new face book page seeking to
reconnect with those who received a ZAVIE ZERO CLUB NUMBER 

 

Facebook Page for those who were diagnosed prior to 2010 

 

Searching for those who were on the Yahoo Site prior to June 2010 

...

and presented with a Zero Club Number when they got to CCR 

 

Do you have a Zavie Miller ZERO CLUB Number ? 


If so please join this group - add Name, Number, where located, how long you
have been diagnosed with CML, medication and dose and how you are currently.


Zavie always left a sign off with a Yippee !! Yahoo !!

 

 

 
https://www.facebook.com/groups/1673390782910601/

ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ?

Reunite with friends from the start of your diagnosis of CML (Yahoo) Group 

The Zavie Zero Club Number only went up to 1340 as this was the last number
presented

 

 

Thank you in advance 

Sue Hurt

(Australia #1197) 

 

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Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION

2016-03-31 Thread Myvety2k via CMLHope
Marty,  I forgot to add that many people would ask me  what the number 48 
on the side of the hat stood for, then I would tell them the  story about 
Zavie, etc.
 
greenie
 
 
In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time,  
cmlhope@googlegroups.com writes:

Hi Marty, I do remember the good old day's and Zavie's club  which I am 
#48.  Well, anyway I had some hats made up, I was stationed at  the "Glenview 
Navy Air Station" for 6 Years from 1956 to 1962, and on the side  of each hat 
I had the number 48 embroidery on the side of all the hats. I  still where 
them every day.
 
Greenie,
South Fort Myers, FL.
 
 
In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 
Hi Sue,


I don't like to get involved with any social media because, first I  just 
don't  have the time and I am to busy as well as for some personal  reasons.


If it helps, many years I actually personally knew Zavie and his wife  Ida, 
and since my bone marrow transplant came way before became Zavie became  
because of how active I was even able to help him. I remember when he  first 
met Dr. Drunker and started on a drug at the time that was called  STI-571 
which then became Gleevec. And this became something what was able  to save so 
many lives of the people with CML, and still does, more and more  drugs 
(TKI) started to spring up, and this is why I always keep saying that  there 
WILL be a cure soon.


Probably most of the newcomers to CML, as we referred to it as "the  club 
that no one wants to be in" probably never even heard about Zavie  or even 
have never seen him. So without further a-due let me present you  with a 
picture of him an the cover of a magazine that I have kept for a very  long 
time. 


I am also number 1 in Zavie's zero club, and Zavie and Ida personally  
presented it to me when they were down in Florida. The last thing I would  like 
to say about Zavie is that he was a real Mensch, meaning a real good  man.


Also please let me know if you were able to receive this along with the  
picture I have enclosed in the attachment.


18's


Marty 


On Thu, Mar 31, 2016 at 10:00 AM, Sue <_hol...@iinet.net.au_ 
(mailto:hol...@iinet.net.au) > wrote:


 
Hi Everyone  
Are you on face book – If so we have a new face book  page seeking to 
reconnect with those who received a ZAVIE ZERO CLUB NUMBER   
Facebook Page for those  who were diagnosed prior to 2010  
Searching  for those who were on the Yahoo Site prior to June 2010   
... 
and  presented with a Zero Club Number when they got to CCR   
Do  you have a Zavie Miller ZERO CLUB Number ?  

If  so please join this group - add Name, Number, where located, how long 
you  have been diagnosed with CML, medication and dose and how you are  
currently.  
Zavie  always left a sign off with a Yippee !! Yahoo !! 
https://www.facebook.com/groups/1673390782910601/ 
ZAVIE   - CML ZERO CLUB MEMBERS - WHERE ARE YOU ? 
Reunite  with friends from the start of your diagnosis of CML (Yahoo) Group 
  
The  Zavie Zero Club Number only went up to 1340 as this was the last 
number  presented 
Thank  you in advance  
Sue  Hurt 
(Australia  #1197)  


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Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION

2016-03-31 Thread Myvety2k via CMLHope
Hi Marty, I do remember the good old day's and Zavie's club  which I am 
#48.  Well, anyway I had some hats made up, I was stationed at  the "Glenview 
Navy Air Station" for 6 Years from 1956 to 1962, and on the side  of each hat 
I had the number 48 embroidery on the side of all the hats. I still  where 
them every day.
 
Greenie,
South Fort Myers, FL.
 
 
In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time,  
wa2...@gmail.com writes:

 
Hi Sue,


I don't like to get involved with any social media because, first I just  
don't  have the time and I am to busy as well as for some personal  reasons.


If it helps, many years I actually personally knew Zavie and his wife  Ida, 
and since my bone marrow transplant came way before became Zavie became  
because of how active I was even able to help him. I remember when he  first 
met Dr. Drunker and started on a drug at the time that was called  STI-571 
which then became Gleevec. And this became something what was able to  save so 
many lives of the people with CML, and still does, more and more drugs  
(TKI) started to spring up, and this is why I always keep saying that there  
WILL be a cure soon.


Probably most of the newcomers to CML, as we referred to it as "the club  
that no one wants to be in" probably never even heard about Zavie or even  
have never seen him. So without further a-due let me present you with a  
picture of him an the cover of a magazine that I have kept for a very long  
time. 


I am also number 1 in Zavie's zero club, and Zavie and Ida personally  
presented it to me when they were down in Florida. The last thing I would like  
to say about Zavie is that he was a real Mensch, meaning a real good  man.


Also please let me know if you were able to receive this along with the  
picture I have enclosed in the attachment.


18's


Marty 


On Thu, Mar 31, 2016 at 10:00 AM, Sue <_hol...@iinet.net.au_ 
(mailto:hol...@iinet.net.au) > wrote:


 
Hi Everyone  
Are you on face book – If so we have a new face book page  seeking to 
reconnect with those who received a ZAVIE ZERO CLUB NUMBER   
Facebook Page for those who  were diagnosed prior to 2010  
Searching  for those who were on the Yahoo Site prior to June 2010   
... 
and  presented with a Zero Club Number when they got to CCR   
Do  you have a Zavie Miller ZERO CLUB Number ?  

If  so please join this group - add Name, Number, where located, how long 
you  have been diagnosed with CML, medication and dose and how you are 
currently.   
Zavie  always left a sign off with a Yippee !! Yahoo !! 
https://www.facebook.com/groups/1673390782910601/ 
ZAVIE  - CML ZERO CLUB MEMBERS - WHERE ARE YOU ? 
Reunite  with friends from the start of your diagnosis of CML (Yahoo) Group 
  
The  Zavie Zero Club Number only went up to 1340 as this was the last 
number  presented 
Thank  you in advance  
Sue  Hurt 
(Australia  #1197)  


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Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION

2016-03-31 Thread 'Icandoallttc' via CMLHope
Hi all,
I got my number many years ago but can't remember it. Did he have a list and 
does anyone have access to it?
Thanks

My Motto: Faith and Pills❤️
With 💗Jeanie 🐟🐟18,s Chi
Dx 1/2004. CML Leukemia
Started Gleevec 2/2004
Started Tasigna  9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
Dr Balducci Moffitt Cancer Center

> On Mar 31, 2016, at 12:14 PM, Myvety2k via CMLHope  
> wrote:
> 
> Marty,  I forgot to add that many people would ask me what the number 48 on 
> the side of the hat stood for, then I would tell them the  story about Zavie, 
> etc.
>  
> greenie
>  
> In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time, 
> cmlhope@googlegroups.com writes:
> Hi Marty, I do remember the good old day's and Zavie's club which I am #48.  
> Well, anyway I had some hats made up, I was stationed at the "Glenview Navy 
> Air Station" for 6 Years from 1956 to 1962, and on the side of each hat I had 
> the number 48 embroidery on the side of all the hats. I still where them 
> every day.
>  
> Greenie,
> South Fort Myers, FL.
>  
> In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time, 
> wa2...@gmail.com writes:
> Hi Sue,
> 
> I don't like to get involved with any social media because, first I just 
> don't  have the time and I am to busy as well as for some personal reasons.
> 
> If it helps, many years I actually personally knew Zavie and his wife Ida, 
> and since my bone marrow transplant came way before became Zavie became 
> because of how active I was even able to help him. I remember when he first 
> met Dr. Drunker and started on a drug at the time that was called STI-571 
> which then became Gleevec. And this became something what was able to save so 
> many lives of the people with CML, and still does, more and more drugs (TKI) 
> started to spring up, and this is why I always keep saying that there WILL be 
> a cure soon.
> 
> Probably most of the newcomers to CML, as we referred to it as "the club that 
> no one wants to be in" probably never even heard about Zavie or even have 
> never seen him. So without further a-due let me present you  with a 
> picture of him an the cover of a magazine that I have kept for a very long 
> time.
> 
> I am also number 1 in Zavie's zero club, and Zavie and Ida personally 
> presented it to me when they were down in Florida. The last thing I would 
> like to say about Zavie is that he was a real Mensch, meaning a real good man.
> 
> Also please let me know if you were able to receive this along with the 
> picture I have enclosed in the attachment.
> 
> 18's
> 
> Marty 
> 
>> On Thu, Mar 31, 2016 at 10:00 AM, Sue  wrote:
>> Hi Everyone
>> 
>>  
>> 
>> Are you on face book – If so we have a new face book page seeking to 
>> reconnect with those who received a ZAVIE ZERO CLUB NUMBER
>> 
>>  
>> 
>> Facebook Page for those who were diagnosed prior to 2010
>> 
>>  
>> 
>> Searching for those who were on the Yahoo Site prior to June 2010
>> 
>> ...
>> 
>> and presented with a Zero Club Number when they got to CCR
>> 
>>  
>> 
>> Do you have a Zavie Miller ZERO CLUB Number ?
>> 
>> 
>> If so please join this group - add Name, Number, where located, how long you 
>> have been diagnosed with CML, medication and dose and how you are currently.
>> 
>> Zavie always left a sign off with a Yippee !! Yahoo !!
>> 
>>  
>> 
>>  
>> 
>> https://www.facebook.com/groups/1673390782910601/
>> 
>> ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ?
>> 
>> Reunite with friends from the start of your diagnosis of CML (Yahoo) Group
>> 
>> The Zavie Zero Club Number only went up to 1340 as this was the last number 
>> presented
>> 
>>  
>> 
>>  
>> 
>> Thank you in advance
>> 
>> Sue Hurt
>> 
>> (Australia #1197)
>> 
>>  
>> 
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
> 
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
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> For more options, visit this group at http://groups.google.com/group/CMLHope
> --- 
> You received this message because yo

Re: [CMLHope] ZAVIE ZERO CLUB NUMBER - INVITATION

2016-03-31 Thread Marty Gartenberg
I believe that Ida had it but when she died I guess that it went with her.
Maybe some one that I don't know of may still have it, try asking around.

18's

Marty

On Thu, Mar 31, 2016 at 3:40 PM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi all,
> I got my number many years ago but can't remember it. Did he have a list
> and does anyone have access to it?
> Thanks
>
> My Motto: Faith and Pills❤️
> With 💗Jeanie 🐟🐟18,s Chi
> Dx 1/2004. CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna  9/2009
> Started Sprycel 11/2009
> Started Ponatinib January 2015
> Dr Balducci Moffitt Cancer Center
>
> On Mar 31, 2016, at 12:14 PM, Myvety2k via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Marty,  I forgot to add that many people would ask me what the number 48
> on the side of the hat stood for, then I would tell them the story about
> Zavie, etc.
>
> greenie
>
> In a message dated 3/31/2016 12:12:27 P.M. Eastern Daylight Time,
> cmlhope@googlegroups.com writes:
>
> Hi Marty, I do remember the good old day's and Zavie's club which I am
> #48.  Well, anyway I had some hats made up, I was stationed at the
> "Glenview Navy Air Station" for 6 Years from 1956 to 1962, and on the side
> of each hat I had the number 48 embroidery on the side of all the hats. I
> still where them every day.
>
> Greenie,
> South Fort Myers, FL.
>
> In a message dated 3/31/2016 11:27:36 A.M. Eastern Daylight Time,
> wa2...@gmail.com writes:
>
> Hi Sue,
>
> I don't like to get involved with any social media because, first I just
> don't  have the time and I am to busy as well as for some personal reasons.
>
> If it helps, many years I actually personally knew Zavie and his wife Ida,
> and since my bone marrow transplant came way before became Zavie became
> because of how active I was even able to help him. I remember when he first
> met Dr. Drunker and started on a drug at the time that was called STI-571
> which then became Gleevec. And this became something what was able to save
> so many lives of the people with CML, and still does, more and more drugs
> (TKI) started to spring up, and this is why I always keep saying that there
> WILL be a cure soon.
>
> Probably most of the newcomers to CML, as we referred to it as "the club
> that no one wants to be in" probably never even heard about Zavie or even
> have never seen him. So without further a-due let me present you with a
> picture of him an the cover of a magazine that I have kept for a very long
> time.
>
> I am also number 1 in Zavie's zero club, and Zavie and Ida personally
> presented it to me when they were down in Florida. The last thing I would
> like to say about Zavie is that he was a real Mensch, meaning a real good
> man.
>
> Also please let me know if you were able to receive this along with the
> picture I have enclosed in the attachment.
>
> 18's
>
> Marty
>
> On Thu, Mar 31, 2016 at 10:00 AM, Sue  wrote:
>
>> Hi Everyone
>>
>>
>>
>> Are you on face book – If so we have a new face book page seeking to
>> reconnect with those who received a ZAVIE ZERO CLUB NUMBER
>>
>>
>>
>> Facebook Page for those who were diagnosed prior to 2010
>>
>>
>>
>> Searching for those who were on the Yahoo Site prior to June 2010
>>
>> ...
>>
>> and presented with a Zero Club Number when they got to CCR
>>
>>
>>
>> Do you have a Zavie Miller ZERO CLUB Number ?
>>
>>
>> If so please join this group - add Name, Number, where located, how long
>> you have been diagnosed with CML, medication and dose and how you are
>> currently.
>>
>> Zavie always left a sign off with a Yippee !! Yahoo !!
>>
>>
>>
>>
>>
>> https://www.facebook.com/groups/1673390782910601/
>>
>> ZAVIE - CML ZERO CLUB MEMBERS - WHERE ARE YOU ?
>>
>> Reunite with friends from the start of your diagnosis of CML (Yahoo)
>> Group
>>
>> The Zavie Zero Club Number only went up to 1340 as this was the last
>> number presented
>>
>>
>>
>>
>>
>> Thank you in advance
>>
>> Sue Hurt
>>
>> (Australia #1197)
>>
>>
>>
>> --
>> --
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at
>> http://groups.google.com/group/CMLHope
>> ---
>> You received this message because you are subscribed to the Google Groups
>> "CMLHope" group.
>> To unsubscribe from this group and stop receiving emails from it, send an
>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>>
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
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> To post to this group, send email to CMLHope@googlegro