Re: [MBZ] OT - neurpathy, CIDP, etc
Hi Gang, Have been taking Phenocane - also called Curcumin - for a couple of days with no apparent change in pain level. But things that work for one doesn't always work for others. Best wishes for others suffering - I hope you get help. I will continue to take the Phenocane becuase it is supposed to be a good source of Antioxidants - hopefully true. Take care -- Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: Sunny Letot [EMAIL PROTECTED] To: mercedes@okiebenz.com Sent: Wednesday, February 06, 2008 10:18 AM Subject: [MBZ] OT - neurpathy, CIDP, etc Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain
Re: [MBZ] OT - neurpathy, CIDP, etc
Hi Sunny, Bought some Phenocane which evidently is now called Curcumin or Super Curcumin from a place called Ageless Cures. It says (the Bottle) Super Curcumin C3 Complex w/Bioperine Natural Immmune Defense Antioxidants 1000mg - 100 caps. Paid approx $30 incl shipping. The bottle says little about fighting Pain - it talks much about helping Cancer patients. I hope this works - would love to get away from some of the narcotics - We'll see how it works and report ;-) Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: Sunny Letot [EMAIL PROTECTED] To: mercedes@okiebenz.com Sent: Wednesday, February 06, 2008 10:18 AM Subject: [MBZ] OT - neurpathy, CIDP, etc Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. [SNIP] ___ http://www.okiebenz.com For new parts see official list sponsor: http://www.buymbparts.com/ For used parts email [EMAIL PROTECTED] To Unsubscribe or change delivery options go to: http://okiebenz.com/mailman/listinfo/mercedes_okiebenz.com
Re: [MBZ] OT - neurpathy, CIDP, etc
Hi Sunny, Just ordered 100 caps 1000mg of Super Curcumin C3 Complex w/Bioperine for $28 with free shipping. Stopped by GNC and asked for Phenocane (couldn;t remember the official name) and he said he;d heard of it but didn;t know what they had. So the internet came through - hopefully that's not a very high price. Thanks for the suggestion -- Hopefully it'll work - Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: Sunny Letot [EMAIL PROTECTED] To: mercedes@okiebenz.com Sent: Wednesday, February 06, 2008 10:18 AM Subject: [MBZ] OT - neurpathy, CIDP, etc Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet
Re: [MBZ] OT - neurpathy, CIDP, etc
I wonder if they also market a relaxer pill On Feb 8, 2008 12:14 PM, LarryT [EMAIL PROTECTED] wrote: Hi Sunny, Just ordered 100 caps 1000mg of Super Curcumin C3 Complex w/Bioperine for $28 with free shipping. Stopped by GNC and asked for Phenocane (couldn;t remember the official name) and he said he;d heard of it but didn;t know what they had. So the internet came through - hopefully that's not a very high price. Thanks for the suggestion -- Hopefully it'll work - Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: Sunny Letot [EMAIL PROTECTED] To: mercedes@okiebenz.com Sent: Wednesday, February 06, 2008 10:18 AM Subject: [MBZ] OT - neurpathy, CIDP, etc Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter
Re: [MBZ] OT - neurpathy, CIDP, etc
Hi Wilton, MCV is different from UVA but similar in that they are both University Med Centers and these happen to do a lot of work with each other.-- MCV is in Richmond - UVA in Charlottesville. Minor difference. Yes, it *is* a small world! Your pain sounds like it was *really* bad! Some people have a difficult time understanding how my feel can be numb on the outside and generate extreme pain on the inside. The nerve system is very complex. My biggest problem now is my feet - I get blisters because I cannot feel any problem - the blisters get worse, bleed and take forever to heal. I have probably spent a couple thousand $$s on shoes I can;t wear for more than an hour or so - but they felt comfortable when I 1st tried them. So I think it's back to slippers. People hear how bad my pain is (and yours!) and say something like, I don't see how you can stand it. Obviously, they're not thinking - I have no choice in the matter. But things could always be worse and there are people all over the world who have things much worse than I. I'm having a problem controlling my weight. At 6'1 I should be at 180-190 but I went as high as 270 then down to 215 on a low carb diet - but it has crept up to 240 because I cheated during the holidays. But because of my feet its hard to be active. Oh well - hope you all have a nice week -- Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: wilton strickland [EMAIL PROTECTED] To: mercedes mercedes@okiebenz.com Sent: Tuesday, February 05, 2008 8:30 PM Subject: [MBZ] OT - neurpathy, CIDP, etc LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet and legs, especially knees. 'Took two 650 mg Tylenol/day coupla yrs; last year or so 1/day; sometimes none for 2-3 days. BTW, 'tried Lyrica; made me feel impaired. Also tried Prednasone, cyclosporine, methotrexate, celcept, imuran, bunch of others, some of which made me sick - all were ineffective; also plasma pheresis and retuxan treatments, but nothing has worked as well as IVIG, especially for last yr @ 2 weeks. Tremor is nearly (~97%) gone. Oh, I also went to MCV (is that UVA?); saw Dr. Phillips there abt 3 yrs ago; 'been going to Duke abt 6 yrs. Wilton, LTCOL, USAF, Ret. 91 350SDL (188 kmi) oil changed via $2 sucker 87 300D (107 kmi) oil changed via $2 sucker ___ http://www.okiebenz.com For new parts see official list sponsor: http://www.buymbparts.com/ For used parts email [EMAIL PROTECTED] To Unsubscribe or change delivery options go to: http://okiebenz.com/mailman/listinfo/mercedes_okiebenz.com ___ http://www.okiebenz.com For new parts see official list sponsor: http://www.buymbparts.com/ For used parts email [EMAIL PROTECTED] To Unsubscribe or change delivery options go to: http://okiebenz.com/mailman/listinfo/mercedes_okiebenz.com
[MBZ] OT - neurpathy, CIDP, etc
Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet and legs, especially knees. 'Took two 650 mg Tylenol/day coupla yrs; last year or so 1/day; sometimes none for 2-3 days. BTW, 'tried Lyrica; made me feel impaired. Also tried Prednasone, cyclosporine, methotrexate, celcept, imuran, bunch of others, some of which made me sick - all were ineffective; also plasma pheresis and retuxan treatments, but nothing has worked as well as IVIG, especially for last yr @ 2 weeks. Tremor is nearly (~97%) gone. Oh, I also went to MCV (is that UVA?); saw Dr. Phillips there abt 3 yrs ago; 'been going to Duke abt 6 yrs. Wilton, LTCOL, USAF, Ret. 91 350SDL (188 kmi) oil changed via $2 sucker 87 300D (107 kmi) oil changed via $2 sucker Women and cats will do as they please. Men and dogs should relax and get
Re: [MBZ] OT - neurpathy, CIDP, etc
There seems to be quite a bit of ethical research being done on the uses of of curcumin, the active ingredient in turmeric (Phenocane). Side effects seem to be either rare or undocumented. For a list of some 300+ abstracts go to: www.pubmed.gov and type in curcumin side effects. Gerry - From: Sunny Letot [EMAIL PROTECTED] Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet and legs, especially knees. 'Took two 650 mg Tylenol/day coupla yrs; last year or so 1/day; sometimes none for 2-3 days. BTW, 'tried Lyrica; made me feel impaired. Also tried Prednasone, cyclosporine, methotrexate, celcept, imuran, bunch of others, some of which made me sick - all were ineffective; also plasma pheresis and retuxan treatments, but nothing has worked as well as IVIG, especially for last
Re: [MBZ] OT - neurpathy, CIDP, etc
Thx Sunny - Sorry to hear you're a member of our little exclusive club. I used to be a member of The Neuropathy Organization (or something) which collects info from all over the world on this disease. People write in a tell of things that work for them Ice Water soak Mint rubbing alcohol with aspirin disolved into it - then used as a rub. Some people swear the results are phenomenal. As far as homeopathy, I've tried some remedies and will try the one you suggest, but in *general* (that being a large quantifier) they need to be taken in massive doses taken over long terms to be effective. But I'll be buying Phenocane this afternoon! The narcotics I take and Lyrica all have long term affects - naturally, **every** drug we take has long term affects - I have started having 2nd thoughts about the Flouride that surrounds us. It's in the water, toothpaste, etc, etc. - and the gov't. hasn't done long term tests that are publicized - I've heard other countries have done tests with less than acceptable results. Anyway -- thanks for ths suggestion - I've got my fingers crossed! ;-) Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: Sunny Letot [EMAIL PROTECTED] To: mercedes@okiebenz.com Sent: Wednesday, February 06, 2008 10:18 AM Subject: [MBZ] OT - neurpathy, CIDP, etc Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I
Re: [MBZ] OT - neurpathy, CIDP, etc
So that's 3 of us so far - anyone know how many people are on the MB List? Larry T (66 MGB, 74 911, 78 240D, 91 300D) www.youroil.net for Oil Analysis and Weber Parts Test Results http://members.rennlist.com/oil PORSCHE POSTERS! youroil.net Weber Carb Info http://members.rennlist.com/webercarbs . - Original Message - From: Sunny Letot [EMAIL PROTECTED] To: mercedes@okiebenz.com Sent: Wednesday, February 06, 2008 10:18 AM Subject: [MBZ] OT - neurpathy, CIDP, etc Wilton [and others] -- Make that three -- been there, done that. I've had one sensory nerve surgically severed because it just wouldn't respond positively without a long series of major reconstructive work (injury-related, and being out-of-country at the time, it healed wrong), and I'm too impatient for that! Like many of us, I'm a walking example of that saying about, If I'd known I was gonna live this long, I'd have taken better care of myself! I've found something that helps a lot with pain, and has had no side effects for anyone I know who's used it. Called Phenocane, you can find it on the web. It's herbal, you can't overdose (unless you use it as your main source of nutrition!), and has produced surprising results. Because it's so unbelievable, our local health food store gives away samples of half a dozen capsules for people to try -- it almost always sells after folks use it. I'm well-educated in alternative medicine. Fortunately, Germany and Great Britain still consider -- and test! -- both herbs and homeopathy as sciences, and being certified in both countries means I still get all the reported research and monographs on new uses and information. Most pain medication in these two disciplines is low cetane -- great for a sinus headache or a banged finger, but next to useless for neuropathy, chronic pain, disk disease or damage, etc. Phenocane is different. It works remarkably well. No fuzziness and no stomach upset, but by being a very effective inflammation reducer with a few other goodies, it either eliminates the pain or ratchets it back far enough to allow you to function. Ibuprophen and acetominophen have their own drawbacks, some serious and irreversable, especially in higher dosages. Since we're all subject to the bumps, bruises, and banged knuckles of taking care of our cars (and, as Tiny Tim said, God bless us every one for doing it!), I thought this might be a useful resource. I have no financial interest in the stuff -- in fact, I'm dabbling with reverse-engineering it, since I use so much of it! BTW, ignore the bottle directions -- if the pain is enough to really slow you down, take two caps instead of one, and two more if you don't notice a difference in 30 to 45 minutes. Remyelinization, of course, is the optimum solution, and there are promising and partially sucessful treatments out there for that, too. But while we pursue that ultimate solution, reducing PAIN! to a background noise allows us to move and do the things we want to do -- to get on with our lives, without being defined by our disabilities. Date: Tue, 5 Feb 2008 20:30:06 -0500 From: wilton strickland [EMAIL PROTECTED] Subject: [MBZ] OT - neurpathy, CIDP, etc To: mercedes mercedes@okiebenz.com Message-ID: [EMAIL PROTECTED] Content-Type: text/plain; charset=Windows-1252 LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet and legs, especially knees. 'Took two 650 mg Tylenol/day coupla yrs; last year or so 1/day; sometimes none for 2-3 days. BTW, 'tried Lyrica; made me feel impaired. Also tried Prednasone, cyclosporine, methotrexate, celcept, imuran, bunch of others, some of which made me sick - all were
[MBZ] OT - neurpathy, CIDP, etc
LarryT, Acher, etc., small world, isn't it? This condition supposedly affects only about 1 in 100K, yet, here are TWO of us on this list and a third associated. My pain started 12 - 14 yrs ago as nail driven into lft heel, then on to toes, legs, hands, arms; fire, needles on bottoms of feet, etc. Began to have slight hand tremor abt 10 yrs ago. As my averall condition worsened, so did the tremor. By 4 - 5 yrs ago, had lost most feeling below knees. By abt 2 yrs ago, I was nearlly helpless because of the tremor. Trouble walking for several yrs, but I continued to put on good act - tried to make it look to others like I was walking normally, but I was having to think about every step. Started using stick/cane abt 5 yrs ago, went to 4-wheel walker nearly 3 yrs ago. Still use walker around house (one on each floor) and back and forth to car. I keep an elec. scooter in the car trunk for shopping, longer treks from car, etc. I charge the scooter in the car with Diesel, so I ride a Diesel-electric scooter; I even put a smaller, paper decal copy of a MB DIESEL decal on back of the scooter to so designate it. 'Haven't been bothered by really bad pain for several yrs. - just slight in feet/legs all the time. I've many times awakened with steady pain in feet and legs, especially knees. 'Took two 650 mg Tylenol/day coupla yrs; last year or so 1/day; sometimes none for 2-3 days. BTW, 'tried Lyrica; made me feel impaired. Also tried Prednasone, cyclosporine, methotrexate, celcept, imuran, bunch of others, some of which made me sick - all were ineffective; also plasma pheresis and retuxan treatments, but nothing has worked as well as IVIG, especially for last yr @ 2 weeks. Tremor is nearly (~97%) gone. Oh, I also went to MCV (is that UVA?); saw Dr. Phillips there abt 3 yrs ago; 'been going to Duke abt 6 yrs. Wilton, LTCOL, USAF, Ret. 91 350SDL (188 kmi) oil changed via $2 sucker 87 300D (107 kmi) oil changed via $2 sucker ___ http://www.okiebenz.com For new parts see official list sponsor: http://www.buymbparts.com/ For used parts email [EMAIL PROTECTED] To Unsubscribe or change delivery options go to: http://okiebenz.com/mailman/listinfo/mercedes_okiebenz.com
