[QUAD-L] Fwd: Talk of the Nation Tues. 8-23-05 to discuss nursing homes vs. other alte...

[DAANOO]

Dana (C-4-5, 31 years post, 51, KC)
--- Begin Message ---
A friend from Michigan alerted us that tomorrow, Tues August 23 on NPR Radio
show Talk of the Nation (from 2 - 4 pm in his area) they are going to be
talking about "what do we do with people when they can't take care of
themselves?"


Join the Program
You can participate by calling (800) 989-8255 or by e-mailing [EMAIL PROTECTED]

***

>From the website they have listed for tomorrow:

Aug. 23 7 Iraqi negotiators continue to seek agreement on the new
constitution ...

 Also, we look at caring for the elderly. Is a nursing home the best
alternative to home care?

Anyone who gets Talk of the Nation in their area might want to call in and
let the listeners know about MiCASSA and Money Follows the Person.

A tip!  Callers are screened and our friend has found the screeners often
like people who ask questions as opposed to people who plan to make a
speech.  So when you are being screened phrase your issue as a question and
then, when you are on the air you can add your own ideas about the answers
too!

Join the Program
You can participate by calling (800) 989-8255 or by e-mailing [EMAIL PROTECTED]

NATIONAL ADAPT MAILING LIST - Adapt MiCASA List http://www.adapt.org
--- End Message ---

[QUAD-L] S-&-P - Telephones?

[Michael Norville]

Good Evening -
Anyone on the list have any firsthand eXperience/knowledge with devices which will turn on ceiling fans such as the one directly above my head?  You know on the ceiling?  Above my head... right above...  Uh, OK...  Unfortunately, it doesn't have a wall switch and so I'm not certain if any "Environmental Control" applications will be viable.  
Also, I've bEen using a Sip-&-Puff telephone system which I purchased sometime in the '80s from a company called:
 'InvoTek' - Tom Jakobs, P.E. President - InvoTek, Inc. 1026 Riverview Drive Alma, AR  72921.
They no longer sell nor service this particular unit.  And, it's truly served its purpose, above and beyond... anyway, I just nEed a similar device with an emergency "Puff Switch" that can be utiliZed without spEaking in case of Ventilator disconnecti0n.  It works by spEaking into a micr0phone and reQuesting a persons name and the number will be subseQuently dialed aut0matically.  But, if by chance you're unable to spEak (Ventilator malfuncti0n) this is where the emergency "Puff Switch" can literally save your life!  Especially, if you're alOne at night and the teleph0ne is your only lifeline.  
So, there yOu have it... Any hElp with these Q's will be grEatly appreciated!  
EnjOy yoUr evEning...
D0wn by that Highwayside -
~ Michael  '-/  
P.S.  BTW - Money's an object, in my particular situation.
 "Be aware of the time passing by, they say the end it's the wink of an eye" 
"Do it! Do it! For the love of Mike, just do it!"
 
http://community.webtv.net/hotmail.com/prairiesedge/NewsFromPrairies

Re: Re: [QUAD-L] Pain and AD

[Stacy Harim]

I'm an incomplete para but have the same problems. My legs wouldn't go 
straight when I wanted them to or would shoot straight and lock when I wanted to 
bend them.  I take 1200mg of neurontin 3x a day and 40mg of baclofen 3x a 
day.  My doc started working zanelfex into it.  When I saw the pain 
specialist, he put me on a low dose of methadone and it helped everything 
considerably.  I still have pain but no where near as bad and helped my 
spasms.
 
Stacy

  - Original Message - 
  From: William 
  Willis 
  To: quad-list@eskimo.com 
  Sent: Monday, August 22, 2005 9:14 
  PM
  Subject: FW: Re: [QUAD-L] Pain and 
  AD
  I have developed that same problem. My legs tend to stay 
  contracted. I can force them semi-straight, but they bounce right back up. 
  At night they just about kill me. They feel like taut rubberbands that 
  tremble and shake..and hurt. Baclofen helps a bit, but not much. Makes 
  it hell to put on my pants. I too was in a wreck that broke my legs and 
  jammed my hips (1993).  I guess the results are now catching me. Wm. 
  Willis>From: "Greg" <[EMAIL PROTECTED]>>To: "Lana Baugh" 
  <[EMAIL PROTECTED]>>CC: 
  >Subject: 
  Re: [QUAD-L] Pain and AD>Date: Sun, 21 Aug 2005 13:35:29 
  -0700>>I take Neurontin too, but for me, that only helps with 
  the arm tingling and >some arm pain. It does nothing for my real bad 
  body pain.>2 years ago, I went into the ER spamming very bad, hard 
  enough to be >grunting. I as breathing hard, but felt like I was not 
  getting enough air. >Almost panic attacks.>One day I noticed my 
  right leg would not goes perfectly straight, it would >if you pushed 
  it, but once you let go my knee would pop up about 4 inches.>My right 
  thigh hurt so bad I was going crazy. It felt like it was being >crushed 
  by a vice. I would wakeup from nightmares of my leg being on 
  fire.>After a bloodclot test, catscan, and MRI, they found I had H.O. 
  (sp? >Hepeotopic Ossification) on my hip. A year before I slightly hurt 
  my hip >and the bruise on my hip calcified into bone. Grew like tree 
  branches into >my muscles.>So I guess I was having AD but 
  without the sweating.>They got the H.O. to shrink, but the pain is 
  still there.>The MRI also showed a "Thing" on my butt, though under the 
  skin. No sore >every broke threw. I changed to a Roho, do more pressure 
  releases, etc. >After a year they did a ultrasound and found nothing, 
  but they would not do >another MRI. They said it could have been a 
  sore, or some bruising around >the bone after 20 years of 
  sitting.>They still don't know for sure what is causing the pain. They 
  say neither >one of those should cause that bad of pain. I think it's 
  obviously one of >those 
  things.>Greg- Original Message 
  ->Gabe takes 2400mg of neurontin for pain. Recently I increased 
  oral baclofen >and pain is reduced significantly. However the AD still 
  appears everyday. >We have seen Ad appear over anything. Wrinkled 
  sheets, underware too tight, >you name it. I think you're right we need 
  to explore the kidney stones and >gall 
  stone.>>>Thanks,>>Lana>>Gabe's 
  mom>>>From: 
  Greg [mailto:[EMAIL PROTECTED]>Sent: Thursday, August 18, 2005 1:19 
  PM>To: Lana Baugh>Subject: Re: [QUAD-L] Pain and 
  ADI'm no expert, but in my 23 years of being a 
  quad, doctors have often said >that one thing or another should not 
  cause AD or that much pain. BUT they >were wrong.>>I 
  would guess kidney and gall stones would hurt even if small. My aide had 
  >to go to the ER from stomach pain and it was gall stones. I've had AD 
  from >small things like my shoes (very loose shoes, but my feet swell), 
  or just >my Superpubic cath not clogged but just needing to be moved 
  around. Maybe >it gets poking my inner bladder... who 
  knows.>>Is he on pain meds other than Baclofen? I have to take 
  40mg of Oxycontin >for my pain. I tried all those spasm pills, none 
  worked for me. Oxycontin >stopped my spasms completely and helps the 
  pain a 
  lot.>>Greg>>- 
  Original Message ->>From: Lana Baugh>>To: quad-list@eskimo.com>>Sent: 
  Tuesday, August 16, 2005 6:59 PM>>Subject: [QUAD-L] Pain and 
  ADI have posted several times about Gabe, my 
  son and a problem that he is >having with autonomic dysreflexia (AD) 
  and pain.  It started with AD in the >late afternoon and some 
  bladder and bowel spasms would follow. The Ad would >resolve when he 
  would lay down.  Now he has serious pain. We have been to >all the 
  doc's. The urologist says he has two kidney stones. One in each 
  >kidney. She thinks they are to small to cause the problem, but says 
  it's >possible. Neurosurgeon says his shunts are ok and he does not 
  think >anything in the spine could cause this. The abdominal ct shows a 
  small gall >stone in the neck of the gall bladder. The surgeon d

Re: [QUAD-L] Transfers

[Stacy Harim]

I saw a video of a quad transferring himself once but can't remember 
where.  He had an L shaped transfer board and it had straps somehow.  
I think he slid his hands in the straps, transferred himself and picked his legs 
up w/the board.  The video didn't show how he took his hands out of the 
straps or anything.  It was a long time ago.
 
Good luck Paul,
Stacy

  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Monday, August 22, 2005 8:07 
  PM
  Subject: [QUAD-L] Transfers
  
  Hi Everyone,
   
  I am a C5/6 complete quad who would like to transfer myself from chair to 
  bed.Anyone able to transfer themselves at my level of injury or any level? Any 
  tips or techniques or equipment to help me?
   
  Thanks Paul

FW: Re: [QUAD-L] Pain and AD

[William Willis]

I have developed that same problem. My legs tend to stay contracted. I can 
force them semi-straight, but they bounce right back up. At night they just 
about kill me. They feel like taut rubberbands that tremble and 
shake..and hurt. Baclofen helps a bit, but not much. Makes it hell to 
put on my pants. I too was in a wreck that broke my legs and jammed my hips 
(1993).  I guess the results are now catching me. Wm. Willis




From: "Greg" <[EMAIL PROTECTED]>
To: "Lana Baugh" <[EMAIL PROTECTED]>
CC: 
Subject: Re: [QUAD-L] Pain and AD
Date: Sun, 21 Aug 2005 13:35:29 -0700

I take Neurontin too, but for me, that only helps with the arm tingling and 
some arm pain. It does nothing for my real bad body pain.
2 years ago, I went into the ER spamming very bad, hard enough to be 
grunting. I as breathing hard, but felt like I was not getting enough air. 
Almost panic attacks.
One day I noticed my right leg would not goes perfectly straight, it would 
if you pushed it, but once you let go my knee would pop up about 4 inches.
My right thigh hurt so bad I was going crazy. It felt like it was being 
crushed by a vice. I would wakeup from nightmares of my leg being on fire.
After a bloodclot test, catscan, and MRI, they found I had H.O. (sp? 
Hepeotopic Ossification) on my hip. A year before I slightly hurt my hip 
and the bruise on my hip calcified into bone. Grew like tree branches into 
my muscles.

So I guess I was having AD but without the sweating.
They got the H.O. to shrink, but the pain is still there.
The MRI also showed a "Thing" on my butt, though under the skin. No sore 
every broke threw. I changed to a Roho, do more pressure releases, etc. 
After a year they did a ultrasound and found nothing, but they would not do 
another MRI. They said it could have been a sore, or some bruising around 
the bone after 20 years of sitting.
They still don't know for sure what is causing the pain. They say neither 
one of those should cause that bad of pain. I think it's obviously one of 
those things.

Greg



- Original Message -
Gabe takes 2400mg of neurontin for pain. Recently I increased oral baclofen 
and pain is reduced significantly. However the AD still appears everyday. 
We have seen Ad appear over anything. Wrinkled sheets, underware too tight, 
you name it. I think you're right we need to explore the kidney stones and 
gall stone.



Thanks,

Lana

Gabe's mom






From: Greg [mailto:[EMAIL PROTECTED]
Sent: Thursday, August 18, 2005 1:19 PM
To: Lana Baugh
Subject: Re: [QUAD-L] Pain and AD



I'm no expert, but in my 23 years of being a quad, doctors have often said 
that one thing or another should not cause AD or that much pain. BUT they 
were wrong.


I would guess kidney and gall stones would hurt even if small. My aide had 
to go to the ER from stomach pain and it was gall stones. I've had AD from 
small things like my shoes (very loose shoes, but my feet swell), or just 
my Superpubic cath not clogged but just needing to be moved around. Maybe 
it gets poking my inner bladder... who knows.


Is he on pain meds other than Baclofen? I have to take 40mg of Oxycontin 
for my pain. I tried all those spasm pills, none worked for me. Oxycontin 
stopped my spasms completely and helps the pain a lot.


Greg





- Original Message -

From: Lana Baugh

To: quad-list@eskimo.com

Sent: Tuesday, August 16, 2005 6:59 PM

Subject: [QUAD-L] Pain and AD



I have posted several times about Gabe, my son and a problem that he is 
having with autonomic dysreflexia (AD) and pain.  It started with AD in the 
late afternoon and some bladder and bowel spasms would follow. The Ad would 
resolve when he would lay down.  Now he has serious pain. We have been to 
all the doc's. The urologist says he has two kidney stones. One in each 
kidney. She thinks they are to small to cause the problem, but says it's 
possible. Neurosurgeon says his shunts are ok and he does not think 
anything in the spine could cause this. The abdominal ct shows a small gall 
stone in the neck of the gall bladder. The surgeon doubts it's the cause.




So I started thinking about when was the last time Gabe had pain like this. 
It was before he got his baclofen pump and the central cord pain, skin pain 
and spasms about killed him.  He got a new pump last summer and almost died 
from an allergic reaction to an antibiotic. So he went two months last 
summer without his pump when he was in the hospital. He was drugged on 
morphine for most of the time. He was too ill from the allergic reaction to 
replace the pump. So his baclofen pump dose now is a lot lower then it was 
before last summer.




So the question is.. could the pain that is going on now be central cord 
pain and the AD be a response to the central cord pain.




I've made an apt for him to see his rehab doc. Until then I'm going to give 
him oral baclofen everyday as an experiment.




What do y

Re: [QUAD-L] Transfers

[jtc6quad]

 Hi Paul,
I am a C5/6 incomplete. I do have some triceps now through electric 
stimulation.  At first I didn't have any. Do you have inervasion in your 
deltoids?

  I have been practicing slide - board transfers since I was able to sit up in 
rehab.  Then I still needed assistance, but as a built-up my shoulders I needed 
less and less help.  But I have heard of 5/6's becoming independent with a 
sideboard.

  I remember in rehab doing different exercises to build deltoids, there was 
one piece of equipment called a rick shaw, where you back in with a wheelchair 
and pushed down to lift weights behind you?  If that makes sense.

  I'm still not completely independent, I still need a spotter and have been 
practicing with my physical therapists, using my leg straps, and have been 
about 50% successful at not needing any help.  All of this sure beats using a 
lift.

Good luck, JT

 [EMAIL PROTECTED] wrote: 
> Hi Everyone,
> 
> I am a C5/6 complete quad who would like to transfer myself from chair to 
> bed.Anyone able to transfer themselves at my level of injury or any level? 
> Any tips or techniques or equipment to help me?
> 
> Thanks Paul

[QUAD-L] Transfers

[paul38]

Hi Everyone,
 
I am a C5/6 complete quad who would like to transfer myself from chair to bed.Anyone able to transfer themselves at my level of injury or any level? Any tips or techniques or equipment to help me?
 
Thanks Paul

Re: [QUAD-L] test

[David K. Kelmer]

A+[EMAIL PROTECTED] wrote:

test

Re: [QUAD-L] test

[MikeyBird3]

In a message dated 8/22/2005 7:27:32 PM Eastern Standard Time, 
[EMAIL PROTECTED] writes:

  test

Got it. 
 
BillLeesburg, 
FLC-6 Incomplete since 7/20/68AOL/AIM & Yahoo ID: 
MikeyBird3Stupidity is NOT a handicap!  Park 
elsewhere!

Re: [QUAD-L] test

[DiannaL767]

your working!

[QUAD-L] test

[paul38]

test

Re: [QUAD-L] Re: Home help/health care & DD

[David K. Kelmer]

Hi Smurf,
 
There are different reasons for developmental disorders, but the term generally refers to a condition where the brain has not developed correctly.  Here is a Web Site that will explain some of the specific conditions.  
 
http://nindssearch.ninds.nih.gov/verity_web/templates/jsp/pages/search/public_graphical_internal_advanced.jsp?AdvQueryText=&QuerySubmit=true&Page=&CollectionSelection=1&Coll=NINDS_Internal&QueryText=Developmental+Disorders+
 
I hope this helps.  :)
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  
[EMAIL PROTECTED] wrote:



Do you know what it all means?  I've never heard of the term before
 
Love Smurf xxx
 
In a message dated 22/08/2005 18:58:13 GMT Standard Time, wheelchair writes:
I believe that DD represents the term, Developmental DisAbilityBest WishesWIn a message dated 8/22/05 12:52:58 PM, [EMAIL PROTECTED] writes:<< Hey all,I know this is going to come across as a stupiud question, but what does it  mean to be/or have DD?  It's only because I noticed in one of the emails  that your considered DD if you was injuried before the age of 21.  I was  injuried when I was 18.Help me out guys!Love Smurf xxx >>

 

Re: [QUAD-L] Mattresses

[TheOmen723]

what problems did you have with the Prodigy mattress?  
i just got one.
 
luke
 
 
 
 
 
 
 
In a message dated 8/22/2005 3:43:46 PM Central Standard Time, 
[EMAIL PROTECTED] writes:

  I have been a C-5 quad for almost 40 years and, 
  remarkably, I have been very few skin problems.  A while ago, on the 
  advice of a therapist, I began using a Prodigy 
  mattress overlay.  Since it is not a reliable product, I would like to 
  replace it with another kind of overlay.  Does anyone have any 
  suggestions?
   
  Thanks.

 

Re: [QUAD-L] Alone at night

[B. Kimberlin \(Quadius\)]

Silas, 
They started me by setting my ventilator on various settings to see if I could develop some use of my diaphragm.  I was extremely fortunate to get the majority of my diaphragm to work properly.  After being in rehab for about one week one of the respiratory therapists use the device he called a "T piece" which allowed me to breathe air from the room as well as some oxygen through my trachea.  He explained to me this device was not used outside of the hospital, but I am sure it has now been manufactured by someone.  I remember hearing him complained that his ideas have been usurped for a business opportunity.  Anyway, between the ventilator settings and the T piece I was finally able to breathe without the aid of a ventilator.  This process took approximately 3 1/2 months, but the individual in the bed next me was not able to wean using the same devices.  This is not for everyone.  It depends, like most everything, on the return.&n!
 bsp;
 However, if you are able to breathe for approximately four hours unassisted you might be able to be wean and is not you may also be a candidate for, excuse my ignorance for not knowing the proper name, breathing pacemaker -- like Christopher Reeve had installed.BillySilas Shelburne <[EMAIL PROTECTED]> wrote:



Great Billy, 
How did they start the weaning process, I got up to 4hrs off the vent when I first got home then I went to see about having the probs installed.  They said I wasn't a candidate so I quit trying to wean.  
Whats a ECU?  
Silas 

- Original Message - 
From: B. Kimberlin (Quadius) 
To: quad-list@eskimo.com 
Sent: Saturday, August 20, 2005 2:16 PM
Subject: Re: [QUAD-L] Alone at night


Sorry this took me so long to respond, but I lost my Internet service for several days.
Yes I was on a ventilator for just over four months. The weaning process started once I arrived at the Tampa VA and I give 80% of the credit to the outstanding respiratory staff at the hospital. If it was not for them I would still be on a ventilator. No I do not do my own transfers and therefore I do require assistance daily. No I do not need to be suctioned anymore. After weaning, they left the trachea tube in my throat for just about one month longer, waiting until my secretions diminished to the point where they could finally removed the tube. Now if I have secretions I need to do quad coughs, but hopefully that does not occur very often. As for my daily requirements: I usually have someone come in the late morning and give me up. They perform all of my daily rituals and make sure I have everything set up and give me lunch. My mother or father usually come over at dinner, but not always. I then have someone who arrives very late at night and puts me to bed, once again!
 ! setting
 everything up so I have control. I have an ECU which operates my equipment and telephone and I additionally have a rotating mattress. I have been able to set up a makeshift method to take my medication, so I don't need anybody in the very early morning. Obviously I am my maintenance, but it is important for me to be a self-sufficient as humanly possible.
BillySilas Shelburne <[EMAIL PROTECTED]> wrote: 



Hey Billy, 
Were you ever on a vent?  If so how did you wean yourself, if I could get off this frigging vent I could do so much more.  Surly you don't do your own transfers, do you have help every day?  Ill get around to sending the pictures of my chair and cell phone.  Have a good evening.  Silas 
Oh yeah!  Do you have to be sucktioned?  

- Original Message - 
From: B. Kimberlin (Quadius) 
To: Greg ; quad-list@eskimo.com 
Sent: Monday, August 15, 2005 1:14 PM
Subject: Re: [QUAD-L] Alone at night


Greg,
I am a C2-3 quadriplegic that is not ventilator depended. I have managed to live at home alone for the last year and a half, but this was something I had to develop over a time. I also have an extensive support system, which many other people are not able to get. There is no way I would have been able to accomplish this earlier due to complications with catheters kinking, needing additional water, and general anxiety. I have had frequent problems with my catheter plugging and thus have had to call for help in the middle of the night. What I typically do is assess each problem which I have and then determine what course of action I will take to rectify this difficulty. If it is something that I need to have done, but is not an absolute emergency then I'll call a member of my family, depending on which one is available. If it is an emergency I feel can be rectified easily and one of my neighbors can handle it, I will call in a friend and have them handle the situation for m!
 ! ! e.
 Obviously all emergencies which cannot be handle quickly I need to call 911. The closest family members I have are approximately 20 minutes away, but my well-trained family members are about 20 to 25 minutes away. Establishing a network of this type requires getting out and making great friendships in ad

Re: [QUAD-L] Mattresses

[David K. Kelmer]

Hi Billy,
 
No, but the design of the siliconized hollow core shafts allow me to shift to keep any pressure off any one area.
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA   "B. Kimberlin (Quadius)" <[EMAIL PROTECTED]> wrote:

Does this mattress pad rotate?Billy"David K. Kelmer" <[EMAIL PROTECTED]> wrote: 


Hi Jack,
 
I've used the Spenco Bed Pad with Silicore Padding overlay for 18 years and think it's great.  The siliconized hollow core shafts don't mat down, retaining their loft and air flow.  It's washable and dryable, reversible with cotton/polyester fabric on one side and moisture-resistant nylon on the other side.  It is made in USA.  
http://www.albionsmo.com/pr-spenco-silicore.asp (Third down from top)
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  Jack Hines1 <[EMAIL PROTECTED]> wrote:




I have been a C-5 quad for almost 40 years and, remarkably, I have been very few skin problems.  A while ago, on the advice of a therapist, I began using a Prodigy mattress overlay.  Since it is not a reliable product, I would like to replace it with another kind of overlay.  Does anyone have any suggestions?
 
Thanks.


Start your day with Yahoo! - make it your home page 

Re: [QUAD-L] Mattresses

[B. Kimberlin \(Quadius\)]

Does this mattress pad rotate?Billy"David K. Kelmer" <[EMAIL PROTECTED]> wrote:


Hi Jack,
 
I've used the Spenco Bed Pad with Silicore Padding overlay for 18 years and think it's great.  The siliconized hollow core shafts don't mat down, retaining their loft and air flow.  It's washable and dryable, reversible with cotton/polyester fabric on one side and moisture-resistant nylon on the other side.  It is made in USA.  
http://www.albionsmo.com/pr-spenco-silicore.asp (Third down from top)
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA  Jack Hines1 <[EMAIL PROTECTED]> wrote:




I have been a C-5 quad for almost 40 years and, remarkably, I have been very few skin problems.  A while ago, on the advice of a therapist, I began using a Prodigy mattress overlay.  Since it is not a reliable product, I would like to replace it with another kind of overlay.  Does anyone have any suggestions?
 
Thanks.
		 Start your day with Yahoo! - make it your home page 

Re: [QUAD-L] Must go for a while....

[David K. Kelmer]

Hi Dana,
 
You take care and get caught-up with some of your stuff.  We'll miss you but you do what is best for you, and Rocco, and we'll see you when you get back.  Stay strong.
 
With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USADana Miller <[EMAIL PROTECTED]> wrote:
I just have too much stuff on my plate right now to stay on all my lists. Plus all the others are on yahoo and that takes longer to do those than the outlook express page. I will miss all the goodies and info from this list, but I will be back. Everyone take care!Dana and Rocco[EMAIL PROTECTED] 

Re: [QUAD-L] Must go for a while....

[gina]

Hate to see you go Dana...Take care
ginaQuadPirate <[EMAIL PROTECTED]> wrote:






Take care Dana,
 
Mark 
 
---Original Message---
 

From: Dana Miller
Date: 08/21/05 14:38:53
To: quad
Subject: [QUAD-L] Must go for a while
 
I just have too much stuff on my plate right now to stay on all my lists.
Plus all the others are on yahoo and that takes longer to do those than the
outlook express page.  I will miss all the goodies and info from this list,
but I will be back.  Everyone take care!
 
Dana and Rocco
[EMAIL PROTECTED]
 
 
.







You can do it. You may not see results right away, but keep on trucking.

[QUAD-L] Re: Home help/health care & DD

[Smurfonwheels]

Do you know what it all means?  I've never heard of the term 
before
 
Love Smurf xxx
 
In a message dated 22/08/2005 18:58:13 GMT Standard Time, wheelchair 
writes:
I 
  believe that DD represents the term, Developmental DisAbilityBest 
  WishesWIn a message dated 8/22/05 12:52:58 PM, 
  [EMAIL PROTECTED] writes:<< Hey all,I know 
  this is going to come across as a stupiud question, but what does it  
  mean to be/or have DD?  It's only because I noticed in one of the 
  emails  that your considered DD if you was injuried before the 
  age of 21.  I was  injuried when I was 
  18.Help me out guys!Love Smurf xxx 
  >>

 

[QUAD-L] Home help/health care & DD

[wheelchair]

I believe that DD represents the term, Developmental DisAbility
Best Wishes
W

In a message dated 8/22/05 12:52:58 PM, [EMAIL PROTECTED] writes:

<< Hey all,

 

I know this is going to come across as a stupiud question, but what does it  

mean to be/or have DD?  It's only because I noticed in one of the emails  
that 

your considered DD if you was injuried before the age of 21.  I was  injuried 

when I was 18.

 

Help me out guys!

 

Love Smurf xxx >>

Re: [QUAD-L] Home help/health care - Gabe

[Smurfonwheels]

Hey all,
 
I know this is going to come across as a stupiud question, but what does it 
mean to be/or have DD?  It's only because I noticed in one of the emails 
that your considered DD if you was injuried before the age of 21.  I was 
injuried when I was 18.
 
Help me out guys!
 
Love Smurf xxx
 
In a message dated 20/08/2005 21:55:07 GMT Standard Time, 
[EMAIL PROTECTED] writes:

  
  Liz,
  When I worked at the 
  P&A and we had to determine eligibility by the fed standards a SCI met the 
  standard of DD.
  Lana
  Gabe’s 
  mom
  
  
  
  
  From: Liz 
  [mailto:[EMAIL PROTECTED] Sent: Saturday, August 20, 2005 6:26 
  AMTo: Lana Baugh; 
  'Lori Michaelson'; quad-list@eskimo.comSubject: Re: [QUAD-L] Home help/health 
  care - Gabe
   
  
  Not sure how true it is but if you 
  were injured before 21 you are considered 
  DD.
  

- Original Message - 


From: Lana Baugh 


To: 'Lori 
Michaelson' ; quad-list@eskimo.com 


Sent: Friday, 
August 19, 2005 10:08 PM

Subject: RE: 
[QUAD-L] Home help/health care - Gabe

 
Lori,
It’s true that 
individuals with developmental disabilities have different needs and 
different programs. Working through the “DD maze” is just as difficult and 
problematic. I’ve worked through both in our state. We had to fight to get 
Gabe’s programs and prove that we and our insurance were capable of 
providing time and $$. Gabe is one individual in our state that is 
fortunate enough to receive 24/7 in his home. 3 -8 hour shifts. However, to 
be eligible he has to be very very ill all the time as well as having 
parents and insurance that provide time and $. I really wish he had a 
world of opportunities open to him.  
Individuals with a 
SCI as a single diagnosis are very unlikely to receive 24/7 in our state. 
However, I know a lot of people with and parents of individuals with 
developmental disabilities that are fighting to get better services for all, 
including people with SCI. They do not put down people with SCI. They work 
side by side with them.  We have a great coalition of people and 
agencies that are banding together to resolve services for everyone. It’s 
not us and them. We call ourselves the Coalition of Idahoans with 
Disabilities. We are a large group, about 25 agencies, non-profit and for 
profit. We have come along way, made a lot of changes and we have a long way 
to go.  We all suffer when we have losses and we are all sure we will 
have success. We will have 24/7 for everyone. 
Lana
Gabe’s 
mom
 
 
 
 




From: 
Lori Michaelson 
[mailto:[EMAIL PROTECTED] Sent: Friday, August 19, 2005 6:07 
PMTo: QuadSubject: Re: [QUAD-L] Home help/health 
care - Gabe
 

  
  

  
  Yeah.  
  Lana mentioned DD was involved and THAT is a whole other ball 
  game!  Anyone with developmental 
  disabilities
  
  has a world 
  of opportunities open to them.  Again, life isn't fair and the 
  government is NOT here to help you.  
  LOL
  
   
  
  Lori 
  Michaelson
  
  C4/5 complete 
  quad, 25 years post
  
  Tucson, AZ
  
   
  
   
  
  ---Original 
  Message---
  
   
  
  
  From: 
  [EMAIL PROTECTED]
  
  Date: 
  08/19/05 16:53:38
  
  To: 
  quad-list@eskimo.com
  
  Subject: 
  Re: [QUAD-L] Home help/health care - 
  Gabe
  
   
  
  
  I'm never 
  surprised anymore. I know 2 brothers with birth defects that live in 
  their own home and their father GETS PAID to manage their 24/7 help. 
  These are guys that wouldn't know if they were in a nursing home or 
  pigeon coop.
  
   
  
   
  
  john
  
   
  
  In a message 
  dated 8/19/2005 3:48:42 P.M. Eastern Daylight Time, 
  [EMAIL PROTECTED] writes:
  
  


  

Lana,

 

You've 
mentioned before that Gabe gets home help via a waiver (and 
maybe some other source as well?) 
24/7.

 

I am 
shocked by that as probably many here on the list are.  
That would be three 8-hr shifts, or by whichever 
arrangement, and I know

 

Re: [QUAD-L] Must go for a while....

[QuadPirate]

Take care Dana,
 
Mark 
 
---Original Message---
 

From: Dana Miller
Date: 08/21/05 14:38:53
To: quad
Subject: [QUAD-L] Must go for a while
 
I just have too much stuff on my plate right now to stay on all my lists.
Plus all the others are on yahoo and that takes longer to do those than the
outlook express page.  I will miss all the goodies and info from this list,
but I will be back.  Everyone take care!
 
Dana and Rocco
[EMAIL PROTECTED]
 
 
.