[QUAD-L] Fwd: Marci's Medicare Update: Week of 08/22/05--Long-term care
Maybe interesting information to you.Dana (C4-5, 31 years post, 51, KC) ---BeginMessage--- www.medicarerights.org | e-newsletters Volume 4, Issue 34: Week ofAugust22, 2005 Welcome to Dear Marci, a free,weekly newsletter designed to keep you in the loop about health care benefits, rights and options for older Americans and people with disabilities. Dear Marciis a service of the Medicare Rights Center (MRC) (www.medicarerights.org), the nation's largest independent source of health care information for people with Medicare.A national nonprofit founded in 1989, MRChelps older adults and people with disabilities get good, affordable health care. For reprint rights, please contact [EMAIL PROTECTED] ***Lend Marci a Hand Volunteer!*** We need you! There are 2.7 million New Yorkers with Medicare and only one Marci. Join MRCs hotline team at its offices in Times Square, NYC, to help others navigate the health care maze. Hotline counselors answer questions about eligibility, enrollment, coverage and other related topics. For more information, contact Volunteer Director Betty Duggan at [EMAIL PROTECTED]. Topic of the Month: Long-Term Care Long-term care, commonly abbreviated as LTC, refers to a range of medical, personal and social services designed to meet the needs of people with disabilities, chronic illnesses or ongoing limitations in their ability to function asindependently as possible. LTC may be delivered at home, in a nursing home, inan adult day care facility or other facility. While Medicare does not pay for most long-term care needs, in this month'sissues we will examine the coverage Medicare does provide through the HomeHealth, Skilled Nursing Facility and Hospice benefits. Marci's Mailbox * * * * * * * * * * * * Dear Marci, Im currently living in a nursing home and as a resident I have to buy my medications from the pharmacy my facility contracts with. Will I be able to use the new Medicare prescription drug benefit? Jim (Henderson, NV) Dear Jim, Yes, Medicare private drug plans are required to provide convenient access to long-term care facility pharmacies in their plan networks. But you need to make sure you enroll in a Medicare prescription drug plan that works at the specific pharmacy that your nursing home uses and covers the drugs that you need. If you are a nursing home resident and have both Medicare and Medicaid, your Medicaid drug coverage will end December 31, 2005 (your other Medicaid coverage will remain the same). Starting January 1, 2006, Medicare will begin covering your drugs. You will be automatically enrolled in extra help paying for Medicare prescription drug coverage and you will not have to pay anything for your medications. But you should choose and enroll in the Medicare private drug plan that is right for you. If you do not make a plan selection by December 31, 2005, you will be automatically enrolled in a randomly selected plan that may not cover the drugs you need or work with your pharmacy. In order to ensure thatyou have access to the prescription drugs you need as a long-term care facility resident, you will be able to change your Medicare private drug plan when you enter a nursing home and once a month while you are living there. In addition, when you leave the facility, you will have two months to change your Medicare private drug plan, should your current plan not fit your needs outside the facility. To guarantee access to the appropriate drugs, there will be a mandatory transition period for nursing home residents during which plans must honor a 60-180 day prescription if a resident's current medication is not included in their formulary. Note: If you do not have Medicaid, you may qualify for extra help paying your Medicare prescription drug costs (including the monthly premium, deductible and coinsurance) if your monthly income is below $1,197 for singles ($1,604 for couples) and your assets are below $11,500 for singles ($23,000 for couples). But you have to apply for this help apply online atSocial Security. Stay tuned next week to learn more about home care provided through the Medicare hospice benefit! Marci Have a question for Marci? Click here to e-mail your questions. Please include your city, county and state of residence. Spotlight on Resources * * * * * * * * * * * * For more information about how the new Medicare drug benefit and extra help will work, visit theMedicare Rights Center web site. Want an experts help in choosing a long-term care facility? Visit theNational Long-term Care Ombudsman Resource Centeronline to read about how an ombudsman can assist you and then search by state to find a local representative. Long-term care can be a difficult issue to discuss with your loved ones. Find conversation guidelines for families online at theFamilies 4 Careweb site. The site also outlines the various financial options you can explore to pay for long-term care. Find your local
Re: [QUAD-L] pressure sore on butt miracle mist link
In a message dated 8/23/2005 4:53:50 A.M. Central Daylight Time, DAANOO writes: Hi quad-gang: I'm enclosing the link below about the story in New Mobility about a girl that was facing amputation when all kinds of wound care treatment were not working. She found miracle mist to work. It sure beats spending thousands of dollars on dressings and treatment. I'm going to order a bottle.Dana (C4-5, 31 years post, 51, KC)http://www.newmobility.com/review_article3.cfm?id=1027action=""> In a message dated 8/21/2005 1:46:56 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: River, I found the article very interesting, thanks for sharing. My son is right now seeing a wound care specialist regarding a wound on his ankle. It is improving but should that progress slow or stop I am headed out to find this product. Karen -Original Message-From: River Wolfe [mailto:[EMAIL PROTECTED] Sent: Sunday, August 21, 2005 11:08 AMTo: Stacy HarimCc: Quad-ListSubject: Re: [QUAD-L] pressure sore on butt Hi Stacy: Here's a link for Miracle Misthttp://www.healthylifeandtimes.com/shop/miracle-mist-plus.aspwhat New Mobility had an article about this stuff, and it's supposed to be wonderful for healing sores. It's costly, but I think it's damn worth it if it cures the sore. Go to the New Mobility site and read the article. I can't believe you have yet another hurdle to jump. I don't know how you do it. You are definitely a fighter peace and love, River --No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.338 / Virus Database: 267.10.13/78 - Release Date: 8/19/2005 --No virus found in this outgoing message.Checked by AVG Anti-Virus.Version: 7.0.338 / Virus Database: 267.10.13/78 - Release Date: 8/19/2005
[QUAD-L] Fwd: Fw: HHS Medicaid Commission Adopts Recommendations For $10 Billion In P...
More info .Dana(C4-5, 31 years post, 51, KC) ---BeginMessage--- - Original Message - From: Justice For All Moderator [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Friday, August 19, 2005 1:37 PM Subject: HHS Medicaid Commission Adopts Recommendations For $10 Billion In Program Savings HHS Medicaid Commission Adopts Recommendations For $10 Billion In Program Savings On August 18, the Medicaid Commission, appointed by U.S. Department of Health and Human Services Secretary Michael Leavitt, unanimously adopted its short-term recommendations for $10 billion in savings in the Medicaid program over the next five years. The recommendations will be sent to Secretary Leavitt in a report by September 1 in order to allow consideration by Congress during the budget reconciliation process this fall. The Commission has 13 voting members and 15 non-voting members. The final recommendations include a provision to allow states to charge beneficiaries increased co-payments for certain non-preferred prescription drugs in order to encourage beneficiaries to use the least costly effective prescriptions. Although several of the non-voting members of the Commission spoke vigorously against this proposal, Gwen Gillenwater was the only voting Commissioner to oppose this provision. Gillenwater is with the American Association of People with Disabilities and had proposed an amendment to replace this co-payment proposal. Her amendment failed. The co-payment provision is expected to save $2 billion over 5 years. Two additional provisions in the Commission's recommendations will have a direct impact on Medicaid beneficiaries or applicants through increasing penalties for people who transfer assets to qualify for Medicaid long tem care (changing the starting date of the penalty period and increasing the look-back period from 3 to 5 years). Other provisions included in the Commission's final recommendations address complex reimbursement issues: prescription drug reimbursement formula reform; extension of the Medicaid drug rebate program to Medicaid managed care; and reform of the Medicaid managed care organization provider tax requirement. The total package of recommendations would save between $10.3 to 11.1 billion over 5 years (2006-2010). More details on the provisions will be provided when they become available. The Arc and United Cerebral Palsy Disability Policy Collaboration's (DPC) Marty Ford addressed the Commission during the public comment portion of the Commission's two-day meeting. Ford's comments focused on the potential harm that adding co-payment requirements for purchasing drugs would impose on Medicaid beneficiaries, who already have few, if any, financial resources. Ford also asked the commission members to ensure that the special exemptions for transfers of assets and trusts remain intact for people with disabilities. After reviewing the Commission's recommendations, the exemptions seem to be still intact, but the Commission has not provided a clarification on this issue. The Commission's second report, due December 31, 2006, is intended to provide recommendations to help ensure the long-term sustainability of the Medicaid program. The Commission will begin addressing the Medicaid program's long-term issues at its next meeting in October. Upon receipt of the Commission's report after Labor Day, the House Energy and Commerce Committee and Senate Finance Committee, which have jurisdiction over Medicaid, will begin to mark up their versions of the reconciliation bill some time in September. It is unclear if the Congress will adhere to the Commission's recommendations or if it will extract Medicaid savings in other ways. Thanks to Disability Policy Collaboration # # # -- DISCLAIMER: The JFA Listserv is designed to share information of interest to people with disabilities and promote dialogue in the disability community. Information circulated does not necessarily express the views of AAPD. The JFA Listserv is non-partisan. JOIN AAPD! There's strength in numbers! Be a part of a national coalition of people with disabilities and join AAPD today. http://www.aapd-dc.org JFA ARCHIVES. All JFA postings from 1995 to present are available at: http://www.aapd-dc.org/JFA/JFAabout.html NOTE: Some Internet Providers (including AOL, Earthlink and Juno) may see JFA postings as spam because of the large volume of JFA mail recipients and fail to deliver the posting. If this happens, the JFA system may automatically unsubscribe some email addresses. Should you stop receiving JFA Alerts, please subscribe to JFA again as per the instructions at http://www.aapd-dc.org/JFA/JFAsubscribing.html You may also need to contact your service provider to find out how to prevent JFA postings from being recognized as spam. PLEASE EMPTY YOUR EMAIL INBOX REGULARLY. JFA automatically deletes subscribers that are over their message quota. How If
Re: [QUAD-L] Transfers
Paul, I'm a C-5/6 incomplete and I'm unable to transfer myself. I think before you start trying to transfer yourself first get evaluated by your local rehab. if you are able to transfer yourself to your local rehab will be able to show you the proper way. I don'tthink you wantto end up on the ground in some type of funky position. Jim
[QUAD-L] Transfers
I'm in full agreement with Jim! Transferring a Quad, is not always an easy task. For most, it requires plenty of training and testing. There is only one way to achieve that. The right way! First, the body must be strong enough to effect a transfer. Brittle bones will snap under unnecessary strain. Those bones must be toughen with resistance exercise before they can be considered for performing transfers. Muscles must be tested and trained for lifting and twisting, otherwise, you are facing weeks and months of rest from strained muscles and joints. A certified OT, is trained and certified to evaluate an individual's abilities and help determine the best, least stressful, least harmful way to perform the task of transferring. Best Wishes! W In a message dated 8/23/05 9:25:51 AM, [EMAIL PROTECTED] writes: I'm a C-5/6 incomplete and I'm unable to transfer myself. I think before you start trying to transfer yourself first get evaluated by your local rehab. if you are able to transfer yourself to your local rehab will be able to show you the proper way. I don't think you want to end up on the ground in some type of funky position. Jim
[QUAD-L] Transfers
In a message dated 8/23/2005 10:12:33 AM Central Standard Time, TheOmen723 writes: hey paul can you do a weight shift in your chair or turn yourself at night? if not that would be a good starting point.i'm c-5/6 incomplete, have veryweak tricepts and have been transfering independently (without sliding board) for couple of years. i transfer to the shower chair,stander, and bed. i use the tone in my legs to help me move. when i start to lean forward myspasms automatically kick in to help me lean back.when you first start transfering you'll have atendency to scoot, which if you're in manual chairit willslide away from you. i use my tone to give me a push to lift and move over. i have never ended up on the floor doing a transfer (KNOCK ON WOOD). when my tone is real bad and i don't feel safe doing it i ask for help, though. i'd rather ask for help getting in bed than getting off the floor ---BeginMessage--- hey paul can you do a weight shift in your chair or turn yourself at night? if not that would be a good starting point.i'm c-5/6 incomplete, have veryweak tricepts and have been transfering independently (without sliding board) for couple of years. i transfer to the shower chair,stander, and bed. i use the tone in my legs to help me move. when i start to lean forward myspasms automatically kick in to help me lean back.when you first start transfering you'll have atendency to scoot, which if you're in manual chairit willslide away from you. i use my tone to give me a push to lift and move over. i have never ended up on the floor doing a transfer (KNOCK ON WOOD). when my tone is real bad and i don't feel safe doing it i ask for help, though. i'd rather ask for help getting in bed than getting off the floor luke In a message dated 8/22/2005 7:08:27 PM Central Standard Time, [EMAIL PROTECTED] writes: Hi Everyone, I am a C5/6 complete quad who would like to transfer myself from chair to bed.Anyone able to transfer themselves at my level of injury or any level? Any tips or techniques or equipment to help me? Thanks Paul ---End Message---
Re: [QUAD-L] S--P - Telephones?
Michael, I have a remote control ceiling fan and they're very common and cheap at your local home depot. But you need a thumb. Mark ---Original Message--- From: Michael Norville Date: 08/22/05 22:37:34 To: quad-list@eskimo.com Cc: [EMAIL PROTECTED] Subject: [QUAD-L] S--P - Telephones? Good Evening - Anyone on the list have any firsthand eXperience/knowledge with devices which will turn on ceiling fans such as the one directly above my head? You know on the ceiling?Above my head... right above... Uh, OK... Unfortunately, it doesn't have a wall switch and so I'm not certain if any "Environmental Control" applications will be viable. Also, I've bEen using a Sip--Puff telephone system which I purchased sometime in the '80s from a company called: 'InvoTek' - Tom Jakobs, P.E. President - InvoTek, Inc. 1026 Riverview Drive Alma, AR 72921. Theyno longer sell nor service this particular unit. And, it's truly served its purpose, above and beyond... anyway, I just nEed a similar device with an emergency "Puff Switch" that can be utiliZed without spEaking in case of Ventilator disconnecti0n. It works by spEaking into a micr0phone and reQuesting a persons name and the number will be subseQuently dialed aut0matically. But, if by chance you're unable to spEak (Ventilator malfuncti0n) this is where the emergency "Puff Switch" can literally save your life! Especially, if you're alOne at night and the teleph0ne is your only lifeline. So, there yOu have it... Any hElp with theseQ's will be grEatly appreciated! EnjOy yoUr evEning... D0wn by that Highwayside - ~Michael '-/ P.S. BTW - Money's an object, in my particular situation. "Be aware of the time passing by, they say the end it's the wink of an eye" "Do it! Do it! For the love of Mike, just do it!" http://community.webtv.net/hotmail.com/prairiesedge/NewsFromPrairies
Re: [QUAD-L] Re: Home help/health care DD
Hey CtrlAltDel, I think you may well have just solved a mystery here!! My doctors have been sure that something else along side my spinal accident is the result of my paralysis, but nobody have known exactly what... I have a neurological condition called RSD. I also keep having seizures possibly down to a form of epilepsy. You could be onto something here! Thank you!! I've keep you updated Love Smurf xxx In a message dated 23/08/2005 00:23:42 GMT Standard Time, [EMAIL PROTECTED] writes: Hi Smurf, There are different reasons for developmental disorders, but the term generally refers to a condition where the brain has not developed correctly. Here is a Web Site that will explain some of the specific conditions. http://nindssearch.ninds.nih.gov/verity_web/templates/jsp/pages/search/public_graphical_internal_advanced.jsp?AdvQueryText=QuerySubmit=truePage=CollectionSelection=1Coll=NINDS_InternalQueryText=Developmental+Disorders+ I hope this helps. :) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA [EMAIL PROTECTED] wrote: Do you know what it all means? I've never heard of the term before Love Smurf xxx In a message dated 22/08/2005 18:58:13 GMT Standard Time, wheelchair writes: I believe that DD represents the term, Developmental DisAbilityBest WishesWIn a message dated 8/22/05 12:52:58 PM, [EMAIL PROTECTED] writes: Hey all,I know this is going to come across as a stupiud question, but what does it mean to be/or have DD? It's only because I noticed in one of the emails that your considered DD if you was injuried before the age of 21. I was injuried when I was 18.Help me out guys!Love Smurf xxx
Re: [QUAD-L] S--P - Telephones?
I believe you can find almost everything you need an ECU (environmental control unit). I use Quartet and even though I have the ability to use voice, I still have a sip-n-puff backup, which I use exclusively in bed in lieu of voice. The new ones are rather pricey, but maybe you can find an older model. They are also great for operating televisions, VCRs, and a multitude of other devices. I am not sure, but it should be possible to operate a ceiling fan with some X10 features. I have control of my ceiling fan in my bedroom, however, I have a wall-mounted switch and the fan is also not that powerful. I have tried to get control of the one in my office, using X10, but the fan is to powerful and these devices will not work. I do believe there are some heavy-duty appliance modules, but I have not done extensive research.Billy Michael Norville [EMAIL PROTECTED] wrote: Good Evening - Anyone on the list have any firsthand eXperience/knowledge with devices which will turn on ceiling fans such as the one directly above my head? You know on the ceiling?Above my head... right above... Uh, OK... Unfortunately, it doesn't have a wall switch and so I'm not certain if any "Environmental Control" applications will be viable. Also, I've bEen using a Sip--Puff telephone system which I purchased sometime in the '80s from a company called: 'InvoTek' - Tom Jakobs, P.E. President - InvoTek, Inc. 1026 Riverview Drive Alma, AR 72921. Theyno longer sell nor service this particular unit. And, it's truly served its purpose, above and beyond... anyway, I just nEed a similar device with an emergency "Puff Switch" that can be utiliZed without spEaking in case of Ventilator disconnecti0n. It works by spEaking into a micr0phone and reQuesting a persons name and the number will be subseQuently dialed aut0matically. But, if by chance you're unable to spEak (Ventilator malfuncti0n) this is where the emergency "Puff Switch" can literally save your life! Especially, if you're alOne at night and the teleph0ne is your only lifeline. So, there yOu have it... Any hElp with theseQ's will be grEatly appreciated! EnjOy yoUr evEning... D0wn by that Highwayside - ~Michael '-/ P.S. BTW - Money's an object, in my particular situation. "Be aware of the time passing by, they say the end it's the wink of an eye" "Do it! Do it! For the love of Mike, just do it!" http://community.webtv.net/hotmail.com/prairiesedge/NewsFromPrairies Yahoo! Mail for Mobile Take Yahoo! Mail with you! Check email on your mobile phone.
Re: [QUAD-L] get pressure sore well
Hello Stacy, Is where you're having to sit on it because if that's the case you may have to sacrifice a few day's and stay completely off of it to get it well, plus use Bag Balm on your pressure sore to speed up the healing process. You can get the Bag Balm at any feed and seed store most of the time. Hope it gets better for you and then stays away. Chet ( Cquad7 )Stacy Harim [EMAIL PROTECTED] wrote: Hey guys, I have a pressure sore right on the inside of my thigh at the top. I had a pressure mapping but no pressure shows there so can't get Medicare to cover a different cushion. School starts soon and really can't afford to take off. Has anyone healed a sore while being up between 6-8 hours a day? Would a roho help? Thanks. I am so sick with myself over this. I'm trying to stay off of it in my current situation but it's hard when I live alone. Thanks guys, Stacy__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] pressure sore on butt
I use the same Chet (Cquad7 )[EMAIL PROTECTED] wrote: I use a Jay 2 deep contour gel cushion that is designed for people that are at high risk for pressure sores. So far, knock on wood, I have not even come close to having a pressure soar on my bottom or my thighs. Jim__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Fwd: Fw: HHS Medicaid Commission Adopts Recommendations For $10 Billion In P...
Hi Dana, Thanks for sharing the info. It is appreciated as well as useful. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA [EMAIL PROTECTED] wrote: More info .Dana(C4-5, 31 years post, 51, KC)From: "Stephanie Thomas" [EMAIL PROTECTED]To: "micassa list" [EMAIL PROTECTED]Subject: Fw: HHS Medicaid Commission Adopts Recommendations For $10 Billion In Program SavingDate: Fri, 19 Aug 2005 16:10:32 -0500- Original Message - From: "Justice For All Moderator" <[EMAIL PROTECTED]>To: <[EMAIL PROTECTED]>Sent: Friday, August 19, 2005 1:37 PMSubject: HHS Medicaid Commission Adopts Recommendations For $10 Billion InProgram Savings HHS Medicaid Commission Adopts Recommendations For $10 Billion In Program Savings On August 18, the Medicaid Commission, appointed by U.S. Department of Health and Human Services Secretary Michael Leavitt, unanimously adopted its short-term recommendations for $10 billion in savings in the Medicaid program over the next five years. The recommendati! ons will be sent to Secretary Leavitt in a report by September 1 in order to allow consideration by Congress during the budget reconciliation process this fall. The Commission has 13 voting members and 15 non-voting members. The final recommendations include a provision to allow states to charge beneficiaries increased co-payments for certain non-preferred prescription drugs in order to encourage beneficiaries to use the least costly effective prescriptions. Although several of the non-voting members of the Commission spoke vigorously against this proposal, Gwen Gillenwater was the only voting Commissioner to oppose this provision. Gillenwater is with the American Association of People with Disabilities and had proposed an amendment to replace this co-payment proposal. Her amendment failed. The co-payment provision is expected to save $2 billion over 5 years. Two a! dditional provisions in the Commission's recommendations will have a direct impact on Medicaid beneficiaries or applicants through increasing penalties for people who transfer assets to qualify for Medicaid long tem care (changing the starting date of the penalty period and increasing the look-back period from 3 to 5 years). Other provisions included in the Commission's final recommendations address complex reimbursement issues: prescription drug reimbursement formula reform; extension of the Medicaid drug rebate program to Medicaid managed care; and reform of the Medicaid managed care organization provider tax requirement. The total package of recommendations would save between $10.3 to 11.1 billion over 5 years (2006-2010). More details on the provisions will be provided when they become available. The Arc and United Cerebral Palsy Disability Policy Collaboration's (DPC) Marty Ford addressed the Commission during the public comment portion of the Commission's two-day meeting. Ford's comments focused on the potential harm that adding co-payment requirements for purchasing drugs would impose on Medicaid beneficiaries, who already have few, if any, financial resources. Ford also asked the commission members to ensure that the special exemptions for transfers of assets and trusts remain intact for people with disabilities. After reviewing the Commission's recommendations, the exemptions seem to be still intact, but the Commission has not provided a clarification on this issue. The Commission's second report, due December 31, 2006, is intended to provide recommendations to help ensure the long-term sustainability of the Medicaid program. The Commission will begin addressing the Medicaid program's long-term issues at its next meeting in October. Upon receipt of the Commission's report after Labor Day, the House Energy and Commerce Committee and Senate Finance Committee, which have jurisdiction over Medicaid, will begin to mark up their versions of the reconciliation bill some time in September. It is unclear if the Congress will adhere to the Commission's recommendations or if it will extract Medicaid savings in other ways. Thanks to Disability Policy Collaboration # # # -- DISCLAIMER: The JFA Listserv is designed to share information of interest to people with disabilities and promote dialogue in the disability community. Information circulated does not necessarily express the views of AAPD. The JFA Listserv is non-partisan. JOIN AAPD! There's strength in numbers! Be a part of a national coalition of people w! ith disabilities and join AAPD today. http://www.aapd-dc.org JFA ARCHIVES. All JFA postings from 1995 to present are available at: http://www.aapd-dc.org/JFA/JFAabout.html NOTE: Some Internet Providers (including AOL, Earthlink and Juno) may see JFA postings as spam because of the large volume of JFA mail recipients and fail to deliver the posting. If this happens, the JFA system may automatically unsubscribe some email addresses. Should you stop receiving JFA Alerts, please subscribe to JFA again as per the instructions at
RE: [QUAD-L] Home help/health care - Gabe
Smurf, DD sometimes refers to Developmental Disabilities. It is a term used by Docs and psychologist to refer to a disability that has been present since birth. Sometimes its just the title of a program. The Feds use it in a variety of ways. One is for eligibility for the DD part of the Protection and Advocacy programs. In that definition you have to have at least three functional lifelong disabilities that occurred before you reached the age of 22. Different states have different definitions for a lot of their non- federal programs. DD can mean a lot of things. It all depends on the situation and who you are working with. Hope this helps. To me its very confusing because every time I run into a different program I see a different definition. Lana, Gabes mom From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, August 22, 2005 11:51 AM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Re: [QUAD-L] Home help/health care - Gabe Hey all, I know this is going to come across as a stupiud question, but what does it mean to be/or have DD? It's only because I noticed in one of the emails that your considered DD if you was injuried before the age of 21. I was injuried when I was 18. Help me out guys! Love Smurf xxx In a message dated 20/08/2005 21:55:07 GMT Standard Time, [EMAIL PROTECTED] writes: Liz, When I worked at the PA and we had to determine eligibility by the fed standards a SCI met the standard of DD. Lana Gabes mom From: Liz [mailto:[EMAIL PROTECTED] Sent: Saturday, August 20, 2005 6:26 AM To: Lana Baugh; 'Lori Michaelson'; quad-list@eskimo.com Subject: Re: [QUAD-L] Home help/health care - Gabe Not sure how true it is but if you were injured before 21 you are considered DD. - Original Message - From: Lana Baugh To: 'Lori Michaelson' ; quad-list@eskimo.com Sent: Friday, August 19, 2005 10:08 PM Subject: RE: [QUAD-L] Home help/health care - Gabe Lori, Its true that individuals with developmental disabilities have different needs and different programs. Working through the DD maze is just as difficult and problematic. Ive worked through both in our state. We had to fight to get Gabes programs and prove that we and our insurance were capable of providing time and $$. Gabe is one individual in our state that is fortunate enough to receive 24/7 in his home. 3 -8 hour shifts. However, to be eligible he has to be very very ill all the time as well as having parents and insurance that provide time and $. I really wish he had a world of opportunities open to him. Individuals with a SCI as a single diagnosis are very unlikely to receive 24/7 in our state. However, I know a lot of people with and parents of individuals with developmental disabilities that are fighting to get better services for all, including people with SCI. They do not put down people with SCI. They work side by side with them. We have a great coalition of people and agencies that are banding together to resolve services for everyone. Its not us and them. We call ourselves the Coalition of Idahoans with Disabilities. We are a large group, about 25 agencies, non-profit and for profit. We have come along way, made a lot of changes and we have a long way to go. We all suffer when we have losses and we are all sure we will have success. We will have 24/7 for everyone. Lana Gabes mom From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Friday, August 19, 2005 6:07 PM To: Quad Subject: Re: [QUAD-L] Home help/health care - Gabe Yeah. Lana mentioned DD was involved and THAT is a whole other ball game! Anyone with developmental disabilities has a world of opportunities open to them. Again, life isn't fair and the government is NOT here to help you. LOL Lori Michaelson C4/5 complete quad, 25 years post Tucson, AZ ---Original Message--- From: [EMAIL PROTECTED] Date: 08/19/05 16:53:38 To: quad-list@eskimo.com Subject: Re: [QUAD-L] Home help/health care - Gabe I'm never surprised anymore. I know 2 brothers with birth defects that live in their own home and their father GETS PAID to manage their 24/7 help. These are guys that wouldn't know if they were in a nursing home or pigeon coop. john In a message dated 8/19/2005 3:48:42 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Lana, You've mentioned before that Gabe gets home help via a waiver (and maybe some other source as well?) 24/7. I am shocked by that as probably many here on the list are. That would be three 8-hr shifts, or bywhichever arrangement, and I know
Re: [QUAD-L] Re: Home help/health care DD
Hi Smurf, I'm always happy to help my Goth Smurf friends across the 'Pond.' Good luck and stay strong. With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA [EMAIL PROTECTED] wrote: Hey CtrlAltDel, I think you may well have just solved a mystery here!! My doctors have been sure that something else along side my spinal accident is the result of my paralysis, but nobody have known exactly what... I have a neurological condition called RSD. I also keep having seizures possibly down to a form of epilepsy. You could be onto something here! Thank you!! I've keep you updated Love Smurf xxx In a message dated 23/08/2005 00:23:42 GMT Standard Time, [EMAIL PROTECTED] writes: Hi Smurf, There are different reasons for developmental disorders, but the term generally refers to a condition where the brain has not developed correctly. Here is a Web Site that will explain some of the specific conditions. http://nindssearch.ninds.nih.gov/verity_web/templates/jsp/pages/search/public_graphical_internal_advanced.jsp?AdvQueryText=QuerySubmit=truePage=CollectionSelection=1Coll=NINDS_InternalQueryText=Developmental+Disorders+ I hope this helps. :) With Love, CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA [EMAIL PROTECTED] wrote: Do you know what it all means? I've never heard of the term before Love Smurf xxx In a message dated 22/08/2005 18:58:13 GMT Standard Time, wheelchair writes: I believe that DD represents the term, Developmental DisAbilityBest WishesWIn a message dated 8/22/05 12:52:58 PM, [EMAIL PROTECTED] writes: Hey all,I know this is going to come across as a stupiud question, but what does it mean to be/or have DD? It's only because I noticed in one of the emails that your considered DD if you was injuried before the age of 21. I was injuried when I was 18.Help me out guys!Love Smurf xxx
Re: [QUAD-L] Transfers
Title: Re: [QUAD-L] Transfers Im a C6 C7 I do sliding board transfers. I can get my legs onto bed myself or rather could a few yrs ago. Ive been letting my aids ut my feet up onto bed after I slide over. On 8/22/05 9:46 PM, Stacy Harim [EMAIL PROTECTED] wrote: I saw a video of a quad transferring himself once but can't remember where. He had an L shaped transfer board and it had straps somehow. I think he slid his hands in the straps, transferred himself and picked his legs up w/the board. The video didn't show how he took his hands out of the straps or anything. It was a long time ago. Good luck Paul, Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, August 22, 2005 8:07 PM Subject: [QUAD-L] Transfers Hi Everyone, I am a C5/6 complete quad who would like to transfer myself from chair to bed.Anyone able to transfer themselves at my level of injury or any level? Any tips or techniques or equipment to help me? Thanks Paul
Re: [QUAD-L] S--P - Telephones?
Title: Re: [QUAD-L] S--P - Telephones? Ill talk 2 my neighbor she has all the things youre asking about. On 8/22/05 10:36 PM, Michael Norville [EMAIL PROTECTED] wrote: Good Evening - Anyone on the list have any firsthand eXperience/knowledge with devices which will turn on ceiling fans such as the one directly above my head? You know on the ceiling? Above my head... right above... Uh, OK... Unfortunately, it doesn't have a wall switch and so I'm not certain if any Environmental Control applications will be viable. Also, I've bEen using a Sip--Puff telephone system which I purchased sometime in the '80s from a company called: 'InvoTek' - Tom Jakobs, P.E. President - InvoTek, Inc. 1026 Riverview Drive Alma, AR 72921. They no longer sell nor service this particular unit. And, it's truly served its purpose, above and beyond... anyway, I just nEed a similar device with an emergency Puff Switch that can be utiliZed without spEaking in case of Ventilator disconnecti0n. It works by spEaking into a micr0phone and reQuesting a persons name and the number will be subseQuently dialed aut0matically. But, if by chance you're unable to spEak (Ventilator malfuncti0n) this is where the emergency Puff Switch can literally save your life! Especially, if you're alOne at night and the teleph0ne is your only lifeline. So, there yOu have it... Any hElp with these Q's will be grEatly appreciated! EnjOy yoUr evEning... D0wn by that Highwayside - ~ Michael '-/ P.S. BTW - Money's an object, in my particular situation. Be aware of the time passing by, they say the end it's the wink of an eye Do it! Do it! For the love of Mike, just do it! http://community.webtv.net/hotmail.com/prairiesedge/NewsFromPrairies http://www.wine-advocate.com/ http://community-2.webtv.net/hotmail.com/prairiesedge/NewsFromPrairies/index.html http://community-2.webtv.net/hotmail.com/prairiesedge/NewsFromPrairies/index.html
Re: [QUAD-L] get pressure sore well
Hey Chet, Can you use the bag balm right in a open wound? Silas - Original Message - From: Chet Smith To: Stacy Harim ; Quad_List Sent: Tuesday, August 23, 2005 10:58 AM Subject: Re: [QUAD-L] get pressure sore well Hello Stacy, Is where you're having to sit on it because if that's the case you may have to sacrifice a few day's and stay completely off of it to get it well, plus use Bag Balm on your pressure sore to speed up the healing process. You can get the Bag Balm at any feed and seed store most of the time. Hope it gets better for you and then stays away. Chet ( Cquad7 )Stacy Harim [EMAIL PROTECTED] wrote: Hey guys, I have a pressure sore right on the inside of my thigh at the top. I had a pressure mapping but no pressure shows there so can't get Medicare to cover a different cushion. School starts soon and really can't afford to take off. Has anyone healed a sore while being up between 6-8 hours a day? Would a roho help? Thanks. I am so sick with myself over this. I'm trying to stay off of it in my current situation but it's hard when I live alone. Thanks guys, Stacy __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] pressure sore on butt miracle mist link
Hello Dan, lm using DermaWound, my Doctor totally freaked out but after 2 weeks he omited that it was making a big difference. I ordered the miracle mist Saturday, maybe it with the Dermawound ill get these buggers healed. The Dr won'ts me to stay in bed, maybe this winter. Silas - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Tuesday, August 23, 2005 10:43 AM Subject: Re: [QUAD-L] pressure sore on butt miracle mist link I read that story.sounds great...I also read a bunch of testimonials on another product called DermaWound, it sounds very good also.has anyone tried that ? Dan
[QUAD-L] Check out Write Your Representative - Contact your Congressperson in the U.S.
Click here: Write Your Representative - Contact your Congressperson in the U.S. House of Representatives.
Re: [QUAD-L] pressure sore on butt miracle mist link
Good luck getting well Silas, I got a pink spot that has been worrying me some, I figured I better look at these medicines just in case it gets worse. Dan
Re: [QUAD-L] Transfers
Wow, that is impressive to transfer without a board. I'm paraplegic and cannot in anyway do that. I have to have my board and I'm paraplegic. My torso is way too long to get shoulder depression b/c I am way strong enough. My tone doesn't work with me like yours does with you as well. I'm not mad about it but I am very impressed by you. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, August 23, 2005 11:24 AM Subject: [QUAD-L] Transfers In a message dated 8/23/2005 10:12:33 AM Central Standard Time, TheOmen723 writes: hey paul can you do a weight shift in your chair or turn yourself at night? if not that would be a good starting point.i'm c-5/6 incomplete, have veryweak tricepts and have been transfering independently (without sliding board) for couple of years. i transfer to the shower chair,stander, and bed. i use the tone in my legs to help me move. when i start to lean forward myspasms automatically kick in to help me lean back.when you first start transfering you'll have atendency to scoot, which if you're in manual chairit willslide away from you. i use my tone to give me a push to lift and move over. i have never ended up on the floor doing a transfer (KNOCK ON WOOD). when my tone is real bad and i don't feel safe doing it i ask for help, though. i'd rather ask for help getting in bed than getting off the floor
Re: [QUAD-L] Transfers
when i was at Wayne state univ in 1970 we had a few walking quads - we called them super-quads. they walked with short arm braces - it was very laborious and not completely functional out in the real world but still, they were impressive. I'm aincomplete c3 from a trampoline and i used to stand to put my w/c into the back seat of my 2 door cars. my legs are now not trustworthy enough for such activity so i have switched to a power chair and a van with a ramp. i have lived alone before and still can but prefer to have an a/b around in case i fall. getting up is outside my abilities. i drag my butt in and out of bed and get some help from triggered leg spasms to get there. i use back and leg muscles to get onto the raised jon. i really would like to offer more help to you on the list but it's evident we don't have all that much in common. i do suffer from many of the ills and dep! ressions described on here and of course am just as helpless as any quad in many public situations. heavy doors, curbs, narrow jon stalls, high drinking fountains, all are just as unusable to me as they are you. i do however, frequently ask for and get cheerful help from anyone around women seem particularly drawn to my helpless situations. not my first idea for meeting chicks tho. the winning combo is - never give up - persistence wins in the end. DaveStacy Harim [EMAIL PROTECTED] wrote: Wow, that is impressive to transfer without a board. I'm paraplegic and cannot in anyway do that. I have to have my board and I'm paraplegic. My torso is way too long to get shoulder depression b/c I am way strong enough. My tone doesn't work with me like yours does with you as well. I'm not mad about it but I am very impressed by you. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, August 23, 2005 11:24 AM Subject: [QUAD-L] Transfers In a message dated 8/23/2005 10:12:33 AM Central Standard Time, TheOmen723 writes: hey paul can you do a weight shift in your chair or turn yourself at night? if not that would be a good starting point.I'm c-5/6 incomplete, have veryweak tricepts and have been transfering independently (without sliding board) for couple of years. i transfer to the shower chair,stander, and bed. i use the tone in my legs to help me move. when i start to lean forward myspasms automatically kick in to help me lean back.when you first start transfering you'll have atendency to scoot, which if you're in manual chairit willslide away from you. i use my tone to give me a push to lift and move over. i have never ended up on the floor doing a transfer (KNOCK ON WOOD). when my tone is real bad and i don't feel safe doing it i ask for help, though. i'd rather ask for help getting in bed than getting off the floor Dave - C3, 1967, Phoenix AZ__Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] Transfers
I LET MY SPASMS HELP ME WITH MY FEET. ONCE I HAVE MY BUTT ON THE BED I LEAN BACK AND MY LEGS NATURALLY FOLLOW. THEN I USE MY TRAPESE BAR TO HELP MYSELF STRAIGHTEN OUT. I USE TO TRANSFER TO A REGULAR MATTRESS WHICH WAS EASY BUT NOW I HAVE A PRODIGY AIR MATTRESS WHICH MAKES MOVING WHILE I'M IN THE BEDAND IN/OUT OF BED MORE DIFFICULT. LUKE In a message dated 8/23/2005 2:22:50 PM Central Standard Time, [EMAIL PROTECTED] writes: I’m a C6 C7 I do sliding board transfers. I can get my legs onto bed myself or rather could a few yrs ago. I’ve been letting my aids ut my feet up onto bed after I slide over.
Re: [QUAD-L] pressure sore on butt miracle mist link
I always ask the doctor if I get covered psych visits if I do bed rest. I go crazy after about 10 days. I get my days and nights messed up. I start having anxiety attacks and swimming in self-pity. I slather any skin tear of reddened area with pure aloe. I'm not going to brag as my butt seems to get cut and torn more often as i get older. I'd like to find something that toughens skin that is not yet damaged. Even when I have a sore I still get up every day. I don't care if it takes longer to heal, I just can't stay in this room. I sure hope you can get some help without the bed rest, Silas. All my best, john P.S. C5 29 years post. If I ever seem offensive or say something that hurts anyone I want to apologize. At times I rant and don't think. I am, after all, a traumatic brain injury, too. Don't hesitate to tell me if I am rude. In a message dated 8/23/2005 3:54:58 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Hello Dan, lm using DermaWound, my Doctor totally freaked out but after 2 weeks he omited that it was making a big difference. I ordered the miracle mist Saturday, maybe it with the Dermawound ill get these buggers healed. The Dr won'ts me to stay in bed, maybe this winter. Silas - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Tuesday, August 23, 2005 10:43 AM Subject: Re: [QUAD-L] pressure sore on butt miracle mist link I read that story.sounds great...I also read a bunch of testimonials on another product called DermaWound, it sounds very good also.has anyone tried that ? Dan
Re: [QUAD-L] Transfers
Dave is right, Never give up, and always ask a pretty girl for help..unless you prefer guys. lol, john In a message dated 8/23/2005 5:27:30 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: when i was at Wayne state univ in 1970 we had a few walking quads - we called them super-quads. they walked with short arm braces - it was very laborious and not completely functional out in the real world but still, they were impressive. I'm aincomplete c3 from a trampoline and i used to stand to put my w/c into the back seat of my 2 door cars. my legs are now not trustworthy enough for such activity so i have switched to a power chair and a van with a ramp. i have lived alone before and still can but prefer to have an a/b around in case i fall. getting up is outside my abilities. i drag my butt in and out of bed and get some help from triggered leg spasms to get there. i use back and leg muscles to get onto the raised jon. i really would like to offer more help to you on the list but it's evident we don't have all that much in common. i do suffer from many of the ills and dep! ressions described on here and of course am just as helpless as any quad in many public situations. heavy doors, curbs, narrow jon stalls, high drinking fountains, all are just as unusable to me as they are you. i do however, frequently ask for and get cheerful help from anyone around women seem particularly drawn to my helpless situations. not my first idea for meeting chicks tho. the winning combo is - never give up - persistence wins in the end. DaveStacy Harim [EMAIL PROTECTED] wrote: Wow, that is impressive to transfer without a board. I'm paraplegic and cannot in anyway do that. I have to have my board and I'm paraplegic. My torso is way too long to get shoulder depression b/c I am way strong enough. My tone doesn't work with me like yours does with you as well. I'm not mad about it but I am very impressed by you. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, August 23, 2005 11:24 AM Subject: [QUAD-L] Transfers In a message dated 8/23/2005 10:12:33 AM Central Standard Time, TheOmen723 writes: hey paul can you do a weight shift in your chair or turn yourself at night? if not that would be a good starting point.I'm c-5/6 incomplete, have veryweak tricepts and have been transfering independently (without sliding board) for couple of years. i transfer to the shower chair,stander, and bed. i use the tone in my legs to help me move. when i start to lean forward myspasms automatically kick in to help me lean back.when you first start transfering you'll have atendency to scoot, which if you're in manual chairit willslide away from you. i use my tone to give me a push to lift and move over. i have never ended up on the floor doing a transfer (KNOCK ON WOOD). when my tone is real bad and i don't feel safe doing it i ask for help, though. i'd rather ask for help getting in bed than getting off the floor Dave - C3, 1967, Phoenix AZ __Do You Yahoo!?Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
Re: [QUAD-L] pressure sore on butt miracle mist link
I'm like you John as well as I live alone so if I have to stay in bed, nothing gets done around here. I have to get upto eat, do laundry, pay bills, etc. It takes longer to do stuff so by the time I'm done, it's time to eat or take a shower. Its always something. I do stay down as much as possible but I go stir crazy. Stacy - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Tuesday, August 23, 2005 7:31 PM Subject: Re: [QUAD-L] pressure sore on butt miracle mist link I always ask the doctor if I get covered psych visits if I do bed rest. I go crazy after about 10 days. I get my days and nights messed up. I start having anxiety attacks and swimming in self-pity. I slather any skin tear of reddened area with pure aloe. I'm not going to brag as my butt seems to get cut and torn more often as i get older. I'd like to find something that toughens skin that is not yet damaged. Even when I have a sore I still get up every day. I don't care if it takes longer to heal, I just can't stay in this room. I sure hope you can get some help without the bed rest, Silas. All my best, john P.S. C5 29 years post. If I ever seem offensive or say something that hurts anyone I want to apologize. At times I rant and don't think. I am, after all, a traumatic brain injury, too. Don't hesitate to tell me if I am rude. In a message dated 8/23/2005 3:54:58 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Hello Dan, lm using DermaWound, my Doctor totally freaked out but after 2 weeks he omited that it was making a big difference. I ordered the miracle mist Saturday, maybe it with the Dermawound ill get these buggers healed. The Dr won'ts me to stay in bed, maybe this winter. Silas - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Tuesday, August 23, 2005 10:43 AM Subject: Re: [QUAD-L] pressure sore on butt miracle mist link I read that story.sounds great...I also read a bunch of testimonials on another product called DermaWound, it sounds very good also.has anyone tried that ? Dan
[QUAD-L] HEALIX sores, uti's, colds, etc..
Hey Guys and Gals, After doing a search on the internet about pressure sores, I came across this site. It's called healix and is supposed to do wonders for all sorts of ailments. Here is the website if you want to check it out. http://www.heallix.com/testimonials/bedsores.htmI'm thinking of o ordering some. STacy
