Re: [QUAD-L] Driving

[Oconnelldb]

 
 
I was there 9-67 to 3-68.  Wonder why I never heard about their  driving 
program? I got active with the Muskegon branch of rehab in 69 to  start driving 
and get set up at Wayne State.  One of the SCI's had a sister  in the nursing 
school at St. Mary's there a few blocks away.  She and  her friends sure helped 
us lonesome quads make it thru some very dark  hours.
Dave
 
 
 
In a message dated 1/23/2007 6:03:21 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
Mary Freebed Hospital has one of the best driver's programs in the  Midwest!
They are located in Grand Rapids, MI
W
 
 
In a message dated 1/23/2007 6:41:13 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I was born in Muskegon, raised in Whitehall and left there at age 26 in  
1973.  I tried Florida but that was way to humid for me.  Arizona  is MUCH 
better 
that Fla humidity wise and better than Mich. for both  heat and humidity.  The 
driver training for SCI survivors was through  the U of M teaching hospital.  
I went my freshman year at U of M.   The broken neck forced me down town 
Detroit to Wayne State Univ.
Dave



 




 
Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 

[QUAD-L] Driving

[wheelchair]

 
Mary Freebed Hospital has one of the best driver's programs in the  Midwest!
They are located in Grand Rapids, MI
W
 
 
In a message dated 1/23/2007 6:41:13 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I was born in Muskegon, raised in Whitehall and left there at age 26 in  
1973.  I tried Florida but that was way to humid for me.  Arizona is  MUCH 
better 
that Fla humidity wise and better than Mich. for both heat  and humidity.  The 
driver training for SCI survivors was through the U of  M teaching hospital.  
I went my freshman year at U of M.  The broken  neck forced me down town 
Detroit to Wayne State Univ.
Dave



 

Re: [QUAD-L] Driving

[Oconnelldb]

 
 
I was born in Muskegon, raised in Whitehall and left there at age 26 in  
1973.  I tried Florida but that was way to humid for me.  Arizona is  MUCH 
better 
that Fla humidity wise and better than Mich. for both heat and  humidity.  The 
driver training for SCI survivors was through the U of M  teaching hospital.  
I went my freshman year at U of M.  The broken  neck forced me down town 
Detroit to Wayne State Univ.
Dave
 
 
In a message dated 1/23/2007 3:58:11 P.M. US Mountain Standard Time,  
LadyNotes writes:

Dave,
 
Are you from the Ann Arbor Michigan area or were you just there for your  
driving test?
 
Naomi




 
Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 

[QUAD-L] Texas Medicaid in Perspective Handbook

[David K. Kelmer]

 
  The newest edition of Texas Medicaid in Perspective has been posted to the 
Texas HHSC Web site at:
   
  http://www.hhsc. state.tx. us/medicaid/ reports/PB6/ PinkBookTOC. html. 
  
   
  This reference book includes an extensive overview of the Texas Medicaid 
program and statistics.
   
Dave Kelmer
  Wichita Falls, TX

Re: [QUAD-L] Hello everybody

[David K. Kelmer]

Hi Eddie,
   
  Welcome (again) to the Quad-List.  It sounds like you are doing okay with 
yourself.  I hope we get the chance to share thoughts on life after a SCI, and 
other interests.  I'm 53, a C 4/5, almost 31 years post.  I'm a father and 
grandfather now, too.  You take care and stay strong.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

[EMAIL PROTECTED] wrote:
  Hello group

I have introduced move myself before, but I've kept quiet reading all 
the posts. It is very interesting to see how everybody in this group 
has accomplished to adapt to the new life styles.

It's been fourteen years since my car accident, I was a victim of a 
drunk driver at the age of 19. My injury is C6 level. I was a very 
active person I played sports All my middle school and highschool.
I am now 34 years old. I graduated from college and now live 
independently. My field is film industry. I have a crew of 
employees that go out to and do the filming for me. I use Macintosh 
computers to edit and produce
the final cut. I love what I do. Just recently for the first time I 
developed a pressure sore, it is definitely not a fun experience. I 
have been proud of myself for not having one for fourteen years, but 
there is always a first time for everything.

I have already taken the necessary steps for the healing process. I 
like this group very much, it is informative, constructive, 
inspiring, comforting and above all friendly. I want to address a few 
posts that I have been reading for a few weeks now.

Number one; I used a ROHO cushioned seating system (air cells) it 
works wonders, but five months ago I've changed seat cushions (bad 
choice) I wanted to see if there was Room for improvements, I believe 
that I should have followed the old saying "if it ain't broke don't 
try to fix it"
I went to another seating cushion that had parts that were made out 
of hard foam. that was a really bad choice. so now I am paying for 
it.


Number two; I drive a minivan for five years now, have not had any 
accidents, I am very very careful now more than before. I have driven 
six hours and that is the maximum I will drive per day at a time that 
way I would not get tired and risk it.
I do like the IDea of a new type of vehicle although they are very 
expensive specially the convertible that I want PT cruiser. 
hopefully business will pick up and might just be able to get it.

I would like to someday personally meet all of you. it is great to 
have many friends, I will continue this posts later on today. For 
now this is all I will write, I have a few things that take care of 
and I will be back, you guys rock!



Sincerely,

Eddie

Re: [QUAD-L] Any tricks?

[~LittleQuad~]

my mom and i use cell phones at night.

"David K. Kelmer" <[EMAIL PROTECTED]> wrote:Hi Amy,
   
  Here are a few of what I call 'Cheap Tricks.'  When I'm in bed use the leg of 
a sheer panty hose to put all of my remotes into and then tie the cut end at 
the appropriate length so that I can either hang them off the bed or pull them 
up to use  (remember to point all remotes toward the toe) them.  I also use a 
length of oxygen or fish aquarium plastic tubing to run up to my bedside 
standing lamp, and then down to my half gallon water Thermos.  I don't need 
someone getting me water all the time this way.  At night I just stick the tube 
between my fingers and I'm able to drink at night.  
   
   
  After my Mom moved in with me, she'd wake me up at night to ask if I called 
her.  I bought a cheap doorbell that plugs in an electrical socket, plugged it 
in next to her bed and hung the button on my bed.  Now Mom sleeps great because 
she knows if I DO need her, I can buzz her.  :)
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

Amy Davis <[EMAIL PROTECTED]> wrote:
Hi guys. Just wondering if you guys have any special tips that you use. For 
instance...for my boyfriend..we use velcro strips for EVERYTHING. To hold vent 
tubes in place. As leg straps. And to hold his hands on the chair. We also use 
those plastic ties that slide thru..not sure what they are called. But they 
come in different sizes. Use them to hold wires in place on his chair. We have 
even used them to hold the chair together when it has been broken. Also bungee 
cords...those little elastic straps with hooks on both ends...come in handy to 
keep his control arm in place so it does not fall out of his reach. And keeps 
his vent in place on the back of the chair so it does not swing around and fall 
off. 
  Just looking to see what other ideas you guys have come up with. It always 
helps to learn new things. 
  ThanksAmy

-
  Want to start your own business? Learn how on Yahoo! Small Business.

Re: [QUAD-L] Driving

[LadyNotes]

Dave,
 
Are you from the Ann Arbor Michigan area or were you just there for your  
driving test?
 
Naomi

Re: [QUAD-L] Balloons

[LadyNotes]

Dave,
 
I usually have 10 cc in my balloon also.  On my last visit to the  urologist, 
they only put 6 cc of water into the balloon.  I think my doctor  decreased 
the water to 6 cc because I was having bladder spasms.  The  doctor prescribed 
Detrol for the spasms, but I never took it.  Five days  later, I pulled my 
catheter out by mistake and had to go to the emergency  room.  My husband and I 
were out of town at the time and had to actually  find a hospital.  My 
urologist said I had to get there within two  hours.  Once at the hospital, 
they 
replaced my catheter and put 10 cc of  water in the balloon.  I haven't had any 
problems since. Now I wonder  if they were putting more than 10 cc of water in .
 
Naomi

Re: [QUAD-L] Any tricks?

[David K. Kelmer]

Hi Amy,
   
  Here are a few of what I call 'Cheap Tricks.'  When I'm in bed use the leg of 
a sheer panty hose to put all of my remotes into and then tie the cut end at 
the appropriate length so that I can either hang them off the bed or pull them 
up to use  (remember to point all remotes toward the toe) them.  I also use a 
length of oxygen or fish aquarium plastic tubing to run up to my bedside 
standing lamp, and then down to my half gallon water Thermos.  I don't need 
someone getting me water all the time this way.  At night I just stick the tube 
between my fingers and I'm able to drink at night.  
   
   
  After my Mom moved in with me, she'd wake me up at night to ask if I called 
her.  I bought a cheap doorbell that plugs in an electrical socket, plugged it 
in next to her bed and hung the button on my bed.  Now Mom sleeps great because 
she knows if I DO need her, I can buzz her.  :)
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

Amy Davis <[EMAIL PROTECTED]> wrote:
Hi guys. Just wondering if you guys have any special tips that you use. For 
instance...for my boyfriend..we use velcro strips for EVERYTHING. To hold vent 
tubes in place. As leg straps. And to hold his hands on the chair. We also use 
those plastic ties that slide thru..not sure what they are called. But they 
come in different sizes. Use them to hold wires in place on his chair. We have 
even used them to hold the chair together when it has been broken. Also bungee 
cords...those little elastic straps with hooks on both ends...come in handy to 
keep his control arm in place so it does not fall out of his reach. And keeps 
his vent in place on the back of the chair so it does not swing around and fall 
off. 
  Just looking to see what other ideas you guys have come up with. It always 
helps to learn new things. 
  ThanksAmy

-
  Want to start your own business? Learn how on Yahoo! Small Business.

Re: [QUAD-L] My first Bladder Stone ;-(

[David K. Kelmer]

Hi Quadius,
   
  Knowledge is power!  I'm glad the info helped you.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

"B. Kimberlin (Quadius)" <[EMAIL PROTECTED]> wrote:
  David,
It helped me.  I now know to check with my doctor to determine when they are 
going to give me a follow-up.
Quadius

"David K. Kelmer" <[EMAIL PROTECTED]> wrote: Hi Danny,
   
  Sorry to hear about the stone.  I don't think they need to make an incision 
to remove it unless it is too hard to break-down.  Here is some good info on 
them.
  Bladder stones  Introduction  Bladder stones are small masses of minerals 
that form in your bladder, the balloon-shaped organ in your pelvis that stores 
urine. Bladder stones, also called bladder calculi, often form when 
concentrated urine sits in your bladder. As urine stagnates, minerals in the 
urine form various crystals that may combine to form "stones." Bladder stones 
usually develop secondary to another condition, such as an enlarged prostate or 
a urinary tract infection.
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=1
  Treatment  Bladder stones usually need to be removed. If the stone is small, 
your doctor may recommend that you drink an increased amount of water each day 
to help the stone pass. If the stone is large or doesn't pass on its own, your 
doctor may need to remove the stone.
   
  Bladder stones are usually removed during a procedure called a 
cystolitholapaxy. During this procedure, your doctor inserts a small tube with 
a camera at the end (cystoscope) through your urethra and into your bladder to 
view the stone. Your doctor uses a laser, ultrasound or mechanical device to 
break the stone into small pieces and then flushes the pieces from your bladder.
   
  You'll likely have regional or general anesthesia prior to the procedure to 
make you comfortable. Complications from a cystolitholapaxy aren't common, but 
urinary tract infections, fever, a tear in your bladder and bleeding can occur. 
Your doctor may give you antibiotics before the procedure to reduce the risk of 
infections. About a month after the cystolitholapaxy, your doctor will likely 
check to make sure that no stone fragments remain in your bladder.
   
  Occasionally, bladder stones that are large or too hard to fragment are 
removed through open surgery. In these cases, your doctor makes an incision in 
your bladder and directly removes the stones. Any underlying condition causing 
the stones, such as an enlarged prostate, may be corrected at the same time the 
stones are removed.  
  http://www.mayoclinic.com/health/bladder-stones/DS00904/DSECTION=8
   
  I hope this helps.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
  Texas, USA
  

Danny Hearn <[EMAIL PROTECTED]> wrote:
   Hi all, I just got home from the hospital after a day & a half stay 
for Bleeding thru my supra pubic catheter . The bleeding has pretty much slowed 
down..it comes and goes. The ER did a CT scan and said I got a bladder stone 
the size of a golf ball. I'm supposed to set an appointment with my urologist 
to get it removed. My question is this..the doctor said they will 
probably make an inscission by surgury to get it out. .  I thought most 
stones were removed by laser or a ( cystomy ) not sure of spelling. A few here 
If i recall correctly, said they even removed them thru their supra pubic hole 
site ?  Anyone know more about how they are usually took out???Dan H.
c-6   9 years post,1st time for a stone.


-
  Be a PS3 game guru.
Get your game face on with the latest PS3 news and previews at Yahoo! Games.

Re: [QUAD-L] Hoyer Ceiling Lift

[David K. Kelmer]

Hi Silas,
   
  I use a Hoyer and because my right leg was removed from the hip in '89, I 
must use my hips to guide me in correctly.  The 'Tilt' on my chair does help a 
lot!
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

Silas <[EMAIL PROTECTED]> wrote:
  I have a ceiling lift, just push on my knees while im coming down. I 
also tilt to help.  
  Silas 
- Original Message - 
  From: Dan Tessiatore 
  To: quad-list@eskimo.com 
  Sent: Monday, January 22, 2007 7:53 AM
  Subject: [QUAD-L] Hoyer Ceiling Lift
  

I am using a Hoyer lift on wheels to get up into my chair and am having trouble 
getting back far enough in the chair.  Is this problem eliminated with a 
ceiling mounted lift system? or is it still difficult to get far back into the 
chair with a ceiling lift because of the sling?  Thanks, Dan T.

Re: [QUAD-L] RE: Driving-The Thrill of....

[wheelchair]

 
Did they also add the counterbalance weight for easier steering or  cornering?
W
 
 
In a message dated 1/23/2007 2:54:02 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I obviously need the  lowered floor, etc. Then I need the gas/break handle on 
my left hand, then a  mini wheel on my right hand. A computer screen is used 
for all other stuff.  Signals, etc. I can’t reach to turn the real steering 
wheel. Plus I need  lockdowns. No idea of the cost of all this stuff. 
Anyone try a single  system where you turn and gas/break with 1  control? 
Greg


 

[QUAD-L] Re: Driving-The Thrill of....

[wheelchair]

 
I that the EMC-Gold Series Jpystick driving unit?
W
 
 
In a message dated 1/23/2007 2:52:36 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I obviously need the  lowered floor, etc. Then I need the gas/break handle on 
my left hand, then a  mini wheel on my right hand. A computer screen is used 
for all other stuff.  Signals, etc. I can’t reach to turn the real steering 
wheel. Plus I need  lockdowns. No idea of the cost of all this stuff. 
Anyone try a single  system where you turn and gas/break with 1  control? 
Greg


 

[QUAD-L] RE: Driving-The Thrill of....

[Greg]

I obviously need the lowered floor, etc. Then I need the gas/break handle on
my left hand, then a mini wheel on my right hand. A computer screen is used
for all other stuff. Signals, etc. I can't reach to turn the real steering
wheel. Plus I need lockdowns. No idea of the cost of all this stuff.

 

Anyone try a single system where you turn and gas/break with 1 control?

 

Greg

 

  _  

 

You are now realizing why strength and conditioning is so important before
the drivers training begins.

Stamina is the next part of that cycle.  How long will you be able to drive
before fatigue kicks in.  Only time and practice will tell.  That is where
strength training comes in handy.

 

What type of equipment will you actually need to drive a vehicle, by
yourself?

Best Wishes

W

 

Re: [QUAD-L] Any tricks?

[Dan]

Duct tape works for many minor repairs and attachments also. One problem I've 
had for years is arm rest pads cracking and wearing out in no time! It seems 
like I just have them replaced and 4 months later they start to crack and it's 
down hill from there. I tried Duct tape, Duck tape, Gorilla tape nothing worked 
as they all started to move or came off in no time - until I tried wide 
electrical tape. I've had it on for at least 6 months and it's still like new. 
Nice and smooth and easy to keep clean. I know the wheelchair manufactures 
could make an arm rest pad that would last a long, long time but they would 
rather you purchase new ones every 6 months.

Dan V 


At 07:25 PM 1/22/2007 -0800, Amy Davis said something that elicited my response:
  
>Hi guys. Just wondering if you guys have any special tips that you use. For 
>instance...for my boyfriend..we use velcro strips for EVERYTHING. To hold vent 
>tubes in place. As leg straps. And to hold his hands on the chair. We also use 
>those plastic ties that slide thru..not sure what they are called. But they 
>come in different sizes. Use them to hold wires in place on his chair. We have 
>even used them to hold the chair together when it has been broken. Also bungee 
>cords...those little elastic straps with hooks on both ends...come in handy to 
>keep his control arm in place so it does not fall out of his reach. And keeps 
>his vent in place on the back of the chair so it does not swing around and 
>fall off. 
>Just looking to see what other ideas you guys have come up with. It always 
>helps to learn new things. 
>ThanksAmy
>
>
>Want to start your own business? Learn how on 
>Yahoo!
> Small Business. 

Re: [QUAD-L] Hello everybody

[Angie Novak]

Hi Eddie-

I'm sorry to hear that you have a pressure sore.  That sucks.  My name is 
Angie, I'm 25, was injured when I was 13 at the levels of C1 and C2.  I was 
crossing the street on my bike and was hit by a negligent driver, who wasn't 
watching the road.  I'm ventilator dependent, also.

I had my first pressure sores, (that became one after débridement), in 2002.  
Spent 125 consecutive days in bed so it would heal.  Had some side effects 
afterwards, i.e. a stag horn kidney stone that developed while I was in bed for 
the four months, not from diet, from not being vertical, like in my chair.  
Took four surgeries to get rid of it.  If I can be in any help in the healing 
of yours, I would like to be.

What you do sounds very interesting.  Especially living on your own and driving.

Welcome to the group-
Angie Novak

[EMAIL PROTECTED] wrote:  Hello group

I have introduced move myself before, but I've kept quiet reading all 
the posts. It is very interesting to see how everybody in this group 
has accomplished to adapt to the new life styles.

It's been fourteen years since my car accident, I was a victim of a 
drunk driver at the age of 19. My injury is C6 level. I was a very 
active person I played sports All my middle school and highschool.
I am now 34 years old. I graduated from college and now live 
independently. My field is film industry. I have a crew of 
employees that go out to and do the filming for me. I use Macintosh 
computers to edit and produce
the final cut. I love what I do. Just recently for the first time I 
developed a pressure sore, it is definitely not a fun experience. I 
have been proud of myself for not having one for fourteen years, but 
there is always a first time for everything.

I have already taken the necessary steps for the healing process. I 
like this group very much, it is informative, constructive, 
inspiring, comforting and above all friendly. I want to address a few 
posts that I have been reading for a few weeks now.

Number one; I used a ROHO cushioned seating system (air cells) it 
works wonders, but five months ago I've changed seat cushions (bad 
choice) I wanted to see if there was Room for improvements, I believe 
that I should have followed the old saying "if it ain't broke don't 
try to fix it"
I went to another seating cushion that had parts that were made out 
of hard foam. that was a really bad choice. so now I am paying for 
it.


Number two; I drive a minivan for five years now, have not had any 
accidents, I am very very careful now more than before. I have driven 
six hours and that is the maximum I will drive per day at a time that 
way I would not get tired and risk it.
I do like the IDea of a new type of vehicle although they are very 
expensive specially the convertible that I want PT cruiser. 
hopefully business will pick up and might just be able to get it.

I would like to someday personally meet all of you. it is great to 
have many friends, I will continue this posts later on today. For 
now this is all I will write, I have a few things that take care of 
and I will be back, you guys rock!



Sincerely,

Eddie



 
-
It's here! Your new message!
Get new email alerts with the free Yahoo! Toolbar.

Re: [QUAD-L] Balloons

[Dan]

2 years for me. I had a Foley for a year before that. I much prefer the SP - my 
Peter is much too good looking to have a tube stuck down his throat! My PCAs 
change the SP every 3 weeks and it's very easy. It's about as difficult as 
changing a belly button ring. The only cleaning I do is wipe around the opening 
once a day with an antibacterial wet one and put a dab of triple antibiotic 
cream on it. 

Dan V 


At 06:34 PM 1/22/2007 -0800, Dillon Ewa said something that elicited my 
response:
  
>Hello,
>
>I am curious and would like to know how long you have had your suprapubic?  I 
>may have to have one in the near future because of seven problems and want to 
>know how difficult they are to maintain, keep clean and so on.  I hope your 
>problems will resolve themselves and that your catheter performs well.  I now 
>have an indwelling Foley and am just out of the hospital for a bladder 
>infection, it was terrible.
> 
>Take care, Dillon
>"B. Kimberlin (Quadius)" <[EMAIL PROTECTED]> wrote:  
>I usually use around 8 cc, however, I think this is more experimental and 
>depends on every individual's needs. 
>Quadius
>
>Dan <[EMAIL PROTECTED]> wrote: 
>I have had periods of bleeding through my Supra Pubic. I decided to reduce the 
>inflation of the balloon from 10ccs to 5ccs. Since then - so far - no bleeding 
>and 
>it is more comfortable. Anyone else done this?
>
>Dan V
>
>
>
>
>
>Get
> your own web address.
>Have a HUGE year through 
>Yahoo!
> Small Business.
>

Re: [QUAD-L] Pressure mapping

[David K. Kelmer]

Hi Joan,
   
  This is from the ROHO Site for the XSENSOR® X3 pressure imaging systems .  I 
hope it helps.
  http://www.therohogroup.com/medical/ipms.jsp
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

poajoan <[EMAIL PROTECTED]> wrote:
st1\:*{behavior:url(#default#ieooui) }I have followed 
this thread on pressure mapping for a while, and I am very interested in 
finding a place that does pressure mapping. I bought a new seat cushion, which 
was recommended by Santa Clara medical center, a J2 deep contour, which I 
really liked for the stabilizing, but believe that it has contributed to the 
groin wound. I am not finding a lot on pressure mapping on the Internet, so I 
am going to contact Santa Clara SCI and see if there is a pressure mapping 
dealer in that area. I live in Reno Nevada, and you would think that there are 
plenty of wheelchair places here, but that is not the case. I made an 
appointment with rehabilitation to be fitted for the new cushion, and one of 
the two medical supply companies representatives met with us. Neither one of 
them could say anything about the way I sit, other than I had good posture and 
was not putting any pressure on the ischium. I have never had a
 decubitus on the ischium, my wound in back is on the sacrum, probably caused 
from bed, as I sleep on my back all the time. So I am sandwiched front and 
back! I hope that pressure mapping, and then having some expert advice on 
correct seating I should use will help to eliminate any recurrence of these 
wounds. I realize that as I get older, my skin becomes more fragile, and since 
I will be 68 shortly and 16 1/2 years post-injury that skin breakdowns may 
become more the norm than not.
   
  Joan C/4 1990
   

[QUAD-L] Hello everybody

[Hecedman]

 Hello group

I have introduced move myself before, but I've kept quiet reading all  
the posts. It is very interesting to see how everybody in this group  
has  accomplished to adapt to  the new life styles.


It's been fourteen years since my car accident, I was a victim of a  
drunk driver at the age of 19. My injury is C6  level. I was a very  
active person I played sports All my middle school and highschool.
I am now 34 years old. I graduated from college and now live  
independently. My field  is  film industry. I have  a crew of   
employees that go out to and do the filming for me. I use Macintosh  
computers to edit and produce
the final cut. I love  what I do. Just recently for the first time I  
developed a pressure sore, it is definitely not a fun experience. I  
have been proud of myself for not having one for fourteen years, but  
there is always a first time for everything.


I have already taken the necessary steps for the healing process. I  
like this group very much, it is informative, constructive,  
inspiring, comforting and above all friendly. I want to address a few  
posts that I have been reading for a few weeks now.


Number one; I used a ROHO  cushioned seating system (air cells) it  
works wonders, but five months ago I've changed seat cushions (bad  
choice) I wanted to see if there was Room for improvements, I believe  
that I should have followed the old saying "if it ain't broke don't  
try to fix it"
I went to another seating  cushion that had parts that were made out  
of hard foam. that was a really bad  choice. so now  I am paying for   
it.



Number two; I drive a minivan  for five years  now, have not had  any  
accidents, I am very very careful now more than before. I have driven  
six hours and that is the maximum I will drive per day at a time that  
way I would not get tired and risk it.
 I do like the IDea of a new type of vehicle although they are very  
expensive  specially the convertible that I want PT cruiser.  
hopefully business will pick up and might just be able to get  it.


 I would like to someday personally meet all of you. it is great to  
have many friends,  I will continue this posts later on today. For  
now this is all I will write, I have a few things that take care of  
and I will be back, you guys rock!




Sincerely,

Eddie

Re: [QUAD-L] unsubscribe

[David K. Kelmer]

Hi Glenn,
   
  I hope you are well and re-sub soon!
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

[EMAIL PROTECTED] wrote:
  Glenn

Re: [QUAD-L] Hoyer Lift/Sling

[David K. Kelmer]

Hi Dan,
   
  Have you tried leaning forward just as you're released into the chair?  It 
helps me to get my hips/butt back on my cushion.  With  only one leg it seems 
that my butt wants to twist just as I release my Hoyer to sit.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

Dan Tessiatore <[EMAIL PROTECTED]> wrote:
I have been using a Hoyer lift to get into my chair with a sling that has a 
cut out for the behind. I am having trouble getting back far enough in the 
chair. Any suggestions for getting back far enough into my chair with the sling 
and Hoyer lift? I have tried adjusting the chains/straps to the sling but it 
hasn't helped a great deal. Any input would be appreciated. Thanks, Dan T.

Re: [QUAD-L] Doctoral Research

[StubanRN]

Is your research and survey for spinal cord injury survivors only or does  it 
also include quadriplegics from other causes? 

Re: [QUAD-L] Fw: Adoption

[David K. Kelmer]

Hi Dan,
   
  She is using the WWW to raise awareness about her concerns.  Sometimes it 
only takes the right person doing the right thing to get a situation resolved.  
Some times it takes a lot of people to solve a problem this heartbreaking, so 
the WWW sounds like the place to be.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

Dan <[EMAIL PROTECTED]> wrote:
  Hey Guys,

I got this off another list. Any suggestions for her?

Dan V


  At 10:38 PM 1/19/2007 -0500, [EMAIL PROTECTED] said:

Question:  You stated that you testified in the state legislature, how does one 
go about that?  I am an adoptive parent and have adopted 2 ventilator dependent 
children (did not have them both at home at the same time).  One of them came 
from an institution in California.  It took us two years to get him out of the 
institution.  The institution did not want to let him go.  We were very 
fortunate that he had a great lawyer and judge or he would still be living 
there.  He was 3 1/2 when we brought him home and had never been outside the 
institution except to go to dr/hospital.  Now he is 7, in a regular 
kindergarten class.  Runs in and out all day (in his great electric chair).  He 
is doing great.  

As an advocate for waiting adoptive children I am very concerned about 
medically fragile children living in institutions.  I am talking about the kids 
that are available for adoption.  The institutions have alot of authority about 
wether a child can leave or not.  For example, we have been fighting New York 
for 5 years trying to get a legally free now 13 year old boy out of an 
institution.  The institution will not allow him to leave.  I have written 
everyboby I can think of, including Hillary Clinton and have gotten nowhere.  
Does anyone have any ideas on where to advocate for these precious children?  
Also, I would like to write my masters thesis on this issue but have been 
having an awful time getting statistics on numbers of children living in 
institutions throughout the country.  My best guess is thousands, and most of 
these children will live their entire life in an institution.  We are putting 
babies in institutions.  No matter how good an institution is,  I do not
 believe it is the answer if there are other options.  
If anyone here has any ideas on how to collect data regarding numbers I would 
love to hear from you.  Also, if anyone has any ideas on who to contact that 
may be interested in this issue I am willing to try talking/writing to anyone.

Thanks,
Nora in Michigan 

[QUAD-L] Doctoral Research

[Timothy Cox]

My name is Timothy Cox and I am a SCI survivor.  I am currently a Doctoral 
Candidate completing my dissertation at the California School of Professional 
Psychology. I am being supervised by  Siobhan O'toole Ph.D.

My dissertation is directly related to how SCI survivors cope after their 
injury.  My dissertation consist of an online survey through ("survey monkey") 
that is anonymous and the results maintain no identifying information from the 
individuals that complete it.  It takes about 20 min to complete.

The de-identified results will be kept secure and used only for the purposes of 
my research, which will hopefully benefit and/or affect the curriculum for 
rehabilitation centers and SCI survivors and their families.

I am asking for your assistance in completing this survey, The link below 
provides access to the survey as well as contact information for the 
participants should they have concerns.

http://www.surveymonkey.com/s.asp?u=438992603332


Timothy Cox, M.A.
Doctoral Candidate

California School of Professional Psychology

Re: [QUAD-L] Pain on lower left side

[David K. Kelmer]

Hi Bill,
   
  If one of my kidney's hurt, I seem to feel it on both sides of my back, not 
on my side.  My side will hurt if I'm up in my chair quite awhile, but the pain 
goes away after awhile.  I'd say if the pain continues, get the kidneys checked.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
   

Bill_J <[EMAIL PROTECTED]> wrote:
  I've felt that pain when I had a kidney stone and when I had a bad 
UTI.
   
  Bill age 56
C6 Incomplete since 7/20/68
Leesburg, FL
  Life should NOT be a journey to the grave with the intention of
  arriving safely in an attractive and well preserved body, but rather to
  skid in sideways, chocolate in one hand, martini in the other, body
  thoroughly used up, totally worn out, hair on fire and screaming "WOO
  HOO!  What a ride!"
- Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Saturday, January 20, 2007 5:49 PM
  Subject: [QUAD-L] Pain on lower left side
  

   Hey everyone, i've been experiencing a pain on my lower left side that i 
havn't felt in the past, just curious if anyone else has felt sharp pain there, 
i'm currently taking Cipro for uti and did blood and urine test yesterday, and 
had ultrasound my urologist ultrasound looked good still waiting on blood work 
and urine test, been on cipro for a week he just put me on another week, they 
don't act like I should be concerned  but my side has never hurt like this 
before,any info would be much appreciated. Thank you Ray c-5 c-6 almost 6yrs 
post

-
  Check out the new AOL. Most comprehensive set of free safety and security 
tools, free access to millions of high-quality videos from across the web, free 
AOL Mail and more.

Re: [QUAD-L] Hoyer Lift/Sling

[wheelchair]

 
In a message dated 1/23/2007 11:31:04 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

W, your perspective is as a caregiver rather than as a quad, right?  
Sandy 



You could say they. but I wouldn't.
W

Re: [QUAD-L] Hoyer Lift/Sling

[StubanRN]

W, your perspective is as a caregiver rather than as a quad, right?  
Sandy 

Re: [QUAD-L] PT Crusiers

[David K. Kelmer]

Hi LQ,
   
  I've always had a lot of 8 year old in me.  A lot!  The Spring is when I get 
my physical tests run, so I'll be needing the extra energy.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

~LittleQuad~ <[EMAIL PROTECTED]> wrote:
  that is swt...my 8 yr old uses that word a lot...

"David K. Kelmer" <[EMAIL PROTECTED]> wrote: Hi Dianna,
   
  That PT looks sweet.  Do you know how it rides?
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

[EMAIL PROTECTED] wrote: 
  http://www.fminow.com/pt/PT_Conversions.htm

Re: [QUAD-L] Driving

[Oconnelldb]

 
 
Way to go Greg.  I did my 1st post SCI driving in Ann Arbor  Mich.  We went 
down town and parallel parked and everything.  Just  like riding a bike - you 
just never forget - only need to get back in the  saddle.  Best of luck to you.
Dave
 
In a message dated 1/23/2007 9:56:02 A.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

congrats greg, deid it in october - it was s  exciting.  i'm still waiting to 
hear if i got approval to modify my van -  cost was goingto be about 35,000.
 
good luck
nicki

- Original Message - 
From:  _Greg_ (mailto:[EMAIL PROTECTED])  
To: [EMAIL PROTECTED] (mailto:quad-list@eskimo.com)  
Sent: Monday, January 22, 2007 9:46  PM
Subject: [QUAD-L] Driving



Well, I stared my driving today.  A few months ago I went in and was tested 
to see what equipment I would need  and drove a bit in the parking lot for a 
bit, but it took this long to get  the ok that the lessons would be paid for. 
Today I stared my 2 day a week  lessons. I drove around the lot for awhile, 
then 
actually started going  around the neighborhood. My first full day and 
already was driving around a  school while 100s of kids were getting out and 
running 
around the streets.  Got up over 20 mph. Quite strange after 20 years. It’s 
tricky to push your  left hand forward and back for gas/break, and be turning 
an 8 inch wheel  with your right hard in circles to turn. It’s fun  though, 
Greg





 
Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 

Re: [QUAD-L] Hoyer Lift/Sling

[wheelchair]

 
Thanks Sandy.  I'm not opposed to the knee push, just caution aides  when 
using that technique.  Actually, I like that technique.  It was  the quads that 
had both knee and shoulder problems which prevented the knee  push.  Plus they 
were both heavy and sat firmly on their no-skid  cushions.  With them, I just 
leaned them forward and grabbed the wide side  of their jeans or trousers and 
tug'd.  For them it worked better.
 
I also agree with you that most people know what is best for them or what  
works best for them, and that is why I usually ask first.  Did I also fail  to 
mention the old Quad bar for leveraging?
Best Wishes
W
 
In a message dated 1/23/2007 10:53:01 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

All techniques don't work for all people. Two techniques were described  here 
that work for us - using your clothing to push you back in the chair and  
pushing your knees. I've used both and find pushing the knees infinitely more  
comfortable and much easier for my aides. But both work. Simply use what  
you're 
comfortable with. Who had knee and shoulder problems, W, the aide or  quad? 
What have you used, W? You seem so opposed to the knee technique.  
Sandy 



 

Re: [QUAD-L] Driving

[Nichole Rohling]

congrats greg, deid it in october - it was s exciting.  i'm still waiting to 
hear if i got approval to modify my van - cost was goingto be about 35,000.

good luck
nicki
  - Original Message - 
  From: Greg 
  To: quad-list@eskimo.com 
  Sent: Monday, January 22, 2007 9:46 PM
  Subject: [QUAD-L] Driving


  Well, I stared my driving today. A few months ago I went in and was tested to 
see what equipment I would need and drove a bit in the parking lot for a bit, 
but it took this long to get the ok that the lessons would be paid for. Today I 
stared my 2 day a week lessons. I drove around the lot for awhile, then 
actually started going around the neighborhood. My first full day and already 
was driving around a school while 100s of kids were getting out and running 
around the streets. Got up over 20 mph. Quite strange after 20 years. It's 
tricky to push your left hand forward and back for gas/break, and be turning an 
8 inch wheel with your right hard in circles to turn. It's fun though,

  Greg

Re: [QUAD-L] Hoyer Lift/Sling

[StubanRN]

All techniques don't work for all people. Two techniques were described  here 
that work for us - using your clothing to push you back in the chair and  
pushing your knees. I've used both and find pushing the knees infinitely more  
comfortable and much easier for my aides. But both work. Simply use what you're 
 
comfortable with. Who had knee and shoulder problems, W, the aide or quad? 
What  have you used, W? You seem so opposed to the knee technique. 
Sandy 

[QUAD-L] Driving-The Thrill of....

[wheelchair]

 
Congrats Greg,
 
Exciting... ain't  it?
 
 
You are now realizing why strength and conditioning is so important before  
the drivers training begins.
Stamina is the next part of that cycle.  How long will you be able to  drive 
before fatigue kicks in.  Only time and practice will tell.   That is where 
strength training comes in handy.
 
What type of equipment will you actually need to drive a vehicle, by  
yourself?
Best Wishes
W
 
 
 
 
 
In a message dated 1/22/2007 9:47:36 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

 
Well, I stared my driving today. A  few months ago I went in and was tested 
to see what equipment I would need and  drove a bit in the parking lot for a 
bit, but it took this long to get the ok  that the lessons would be paid for. 
Today I stared my 2 day a week lessons. I  drove around the lot for awhile, 
then 
actually started going around the  neighborhood. My first full day and 
already was driving around a school while  100s of kids were getting out and 
running 
around the streets. Got up over 20  mph. Quite strange after 20 years. It’s 
tricky to push your left hand forward  and back for gas/break, and be turning 
an 8 inch wheel with your right hard in  circles to turn. It’s fun though, 
Greg



 

[QUAD-L] SSDI TAXES

[Oconnelldb]

Do you guys have federal income taxes taken out of your SSDI checks?
I'm  new to this SSDI thing and don't know all the rules yet.
Do you even claim  them on your federal tax return?
 
Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html)