Re: FW: [QUAD-L] Fosamax for Osteoporosis

[Dan Tessiatore]

I range and spasm.  Dan T.

[EMAIL PROTECTED] wrote:  I went to school in Detroit where in winter, 
my hands would get very cold and stiffen out like two paddles - they weren't 
worth having for pushing, grabbing or anything - just paddling.  I wouldn't 
give up my spasms for anything.  After a few beers - I'm pretty much a ball of 
jelly.  can't transfer - speak intelligently - or do much of anything.  Mirapex 
(an Alzheimer med) helps slow them down to manageable. 
   
   
  In a message dated 3/8/2007 8:33:28 P.M. US Mountain Standard Time, [EMAIL 
PROTECTED] writes:
  I sent my two cents worth by Reply to Joan’s letter.  Sending mail by 
Reply apparently does not make the Q-List, I felt this important enough to 
repeat here.
   
  In short, I have not met a spinal injured person with spasms who has kept up 
with their range of motion.  Also on range of motion, I have neither met anyone 
with contracted hands who also ranges fingers regularly.  Some people use 
contracted hands to hold things pretty good.  I am too vain, even to hold 
things better, to allow my fingers to contract so I still range fifteen years 
post.
   
  I would like using this forum to take a poll, or not.
1) Who ranges, who spasms, and who have contracted hands?
   
  Merrill
   

-
  
  From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 6:32 PM
To: poajoan; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] Fosamax for Osteoporosis

   
  Yes Joan, I have the same kind of extensor spasms.  I have had a baclofen 
pump for a bout 12 years and it is very effective in reducing the spasticity.  
Dan T.

poajoan <[EMAIL PROTECTED]> wrote: 
I am extremely fortunate in that I do not have severe spasms. I had more 
spasms when I was newly injured than I do now. I have also learned to try and 
relax before anybody tries to move me, because for not having any muscle-I sure 
can tighten up a lot and be extremely hard to move. I don't have the kicking 
type of spasms for the most part, but rather twist my whole torso and 
straighten out arms and legs. Learning to live with our bodies, and knowing 
each idiosyncrasy, is so important as so many others on this list have said in 
the past.

 

Joan, C4 1990

 

  
-
  
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis


 

In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time, [EMAIL 
PROTECTED] writes:


  Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the 
drug, and after the first 18 months, we retested, and there was about 20% 
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990


  I've just been going through a really bad time in the past couple weeks. 
My chest and back feel extremely tight and my leg spasms have increased. This 
morning my husband touched my leg and it went into it's spasm, kicking thing. I 
do have an appt with my doc but it's sooo frustrating being a quad and trying 
to figure out what's going on with the body. Fosamax has joint, muscle, and 
bone pain as a side effect but we also noticed discoloration on the foley when 
it was changed. Don't know what's going on so I guess it's time for ultra 
sounds and such.


  diane


 


-
  

AOL now offers free email to everyone. Find out more about what's free from 
AOL at AOL.com. 


   



  

   
  Dave Visit My Home Page




-
  AOL now offers free email to everyone. Find out more about what's free from 
AOL at AOL.com. 

Re: [QUAD-L] Sleep aids??

[Oconnelldb]

 
 
I've tried about everything, switching around helps the most.  my body  seems 
to figure those things out quickly and render them useless.   benedryl, 
nyquil, otc sleep aids, beer, wine, Tylenol PM. the list goes  on.
Dave
 
 
 
 
In a message dated 3/8/2007 8:37:53 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

Hello  everyone i'm just curious how many of you use sleep aids to get a full 
nights  sleep.
Any input be great thanks Ray c-5 c-6 AZ 6yrs post 17th this  month 
  

 AOL now offers free email to everyone. Find out more about what's free from  
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 .






Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: FW: [QUAD-L] Fosamax for Osteoporosis

[Oconnelldb]

 
 
I went to school in Detroit where in winter, my hands would get very cold  
and stiffen out like two paddles - they weren't worth having for pushing,  
grabbing or anything - just paddling.  I wouldn't give up my spasms for  
anything.  
After a few beers - I'm pretty much a ball of jelly.  can't  transfer - speak 
intelligently - or do much of anything.  Mirapex (an  Alzheimer med) helps 
slow them down to manageable. 
 
 
In a message dated 3/8/2007 8:33:28 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
I sent my two cents  worth by Reply to Joan’s letter.  Sending mail by Reply 
apparently does  not make the Q-List, I felt this important enough to repeat  
here. 
In short, I have not  met a spinal injured person with spasms who has kept up 
with their range of  motion.  Also on range of motion, I have neither met 
anyone with  contracted hands who also ranges fingers regularly.  Some people 
use 
 contracted hands to hold things pretty good.  I am too vain, even to hold  
things better, to allow my fingers to contract so I still range fifteen years  
post. 
I would like using  this forum to take a poll, or not. 
1) Who  ranges, who spasms, and who have contracted  hands? 
Merrill 
 
 
  

 
From: Dan  Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 6:32  PM
To: poajoan;  [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] Fosamax for  Osteoporosis
Yes Joan, I have the same kind of extensor  spasms.  I have had a baclofen 
pump for a bout 12 years and it is very  effective in reducing the spasticity.  
Dan T.

poajoan  <[EMAIL PROTECTED]> wrote:   
 
I am extremely  fortunate in that I do not have severe spasms. I had more 
spasms when I was  newly injured than I do now. I have also learned to try and 
relax before  anybody tries to move me, because for not having any muscle-I 
sure 
can tighten  up a lot and be extremely hard to move. I don't have the kicking 
type of  spasms for the most part, but rather twist my whole torso and 
straighten out  arms and legs. Learning to live with our bodies, and knowing 
each  
idiosyncrasy, is so important as so many others on this list have said in the  
past.
 

 
Joan, C4  1990
 

 
  

 
 
From:  [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42  PM
To: [EMAIL PROTECTED];  quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for  Osteoporosis

 

 
 
 
In a message  dated 3/7/2007 2:59:32 PM Eastern Standard Time, 
[EMAIL PROTECTED]  writes:


 
Hi  Diana.
 

 
I have been taking  Fosamax for three years. I had no side effects from the 
drug, and after the  first 18 months, we retested, and there was about 20% 
improvement. The  doctor was very pleased, and so was I..
 

 
Joan, C4  1990


 
 
I've  just been going through a really bad time in the past couple weeks. My 
chest  and back feel extremely tight and my leg spasms have increased. This 
morning  my husband touched my leg and it went into it's spasm, kicking thing. 
I 
do  have an appt with my doc but it's sooo frustrating being a quad and 
trying to  figure out what's going on with the body. Fosamax has joint, muscle, 
and 
bone  pain as a side effect but we also noticed discoloration on the foley 
when it  was changed. Don't know what's going on so I guess it's time for ultra 
sounds  and such.

 
 
diane

 

 
 
  

 

 
AOL now offers free  email to everyone. Find out more about what's free from 
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 .  








Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

[QUAD-L] Sleep aids??

[radnbadatpj]

Hello everyone i'm just curious how many of you use sleep aids to get a full 
nights sleep.
Any input be great thanks Ray c-5 c-6 AZ 6yrs post 17th this month 

AOL now offers free email to everyone.  Find out more about what's free from 
AOL at AOL.com.

FW: [QUAD-L] Fosamax for Osteoporosis

[Merrill Burghardt]

I sent my two cents worth by Reply to Joan's letter.  Sending mail by Reply
apparently does not make the Q-List, I felt this important enough to repeat
here.

 

In short, I have not met a spinal injured person with spasms who has kept up
with their range of motion.  Also on range of motion, I have neither met
anyone with contracted hands who also ranges fingers regularly.  Some people
use contracted hands to hold things pretty good.  I am too vain, even to
hold things better, to allow my fingers to contract so I still range fifteen
years post.

 

I would like using this forum to take a poll, or not.

  1) Who ranges, who spasms, and who have contracted hands?

 

Merrill

 

  _  

From: Dan Tessiatore [mailto:[EMAIL PROTECTED] 
Sent: Thursday, March 08, 2007 6:32 PM
To: poajoan; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: RE: [QUAD-L] Fosamax for Osteoporosis

 

Yes Joan, I have the same kind of extensor spasms.  I have had a baclofen
pump for a bout 12 years and it is very effective in reducing the
spasticity.  Dan T.

poajoan <[EMAIL PROTECTED]> wrote: 

I am extremely fortunate in that I do not have severe spasms. I had more
spasms when I was newly injured than I do now. I have also learned to try
and relax before anybody tries to move me, because for not having any
muscle-I sure can tighten up a lot and be extremely hard to move. I don't
have the kicking type of spasms for the most part, but rather twist my whole
torso and straighten out arms and legs. Learning to live with our bodies,
and knowing each idiosyncrasy, is so important as so many others on this
list have said in the past.

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis

 

In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:

Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990

I've just been going through a really bad time in the past couple weeks. My
chest and back feel extremely tight and my leg spasms have increased. This
morning my husband touched my leg and it went into it's spasm, kicking
thing. I do have an appt with my doc but it's sooo frustrating being a quad
and trying to figure out what's going on with the body. Fosamax has joint,
muscle, and bone pain as a side effect but we also noticed discoloration on
the foley when it was changed. Don't know what's going on so I guess it's
time for ultra sounds and such.

diane

 

  _  

AOL now offers free email to everyone. Find out more about what's free from
AOL at
 AOL.com. 

 

[QUAD-L] SEATING SOLUTION

[Dan Tessiatore]

Hi guys, I am looking for seating suggestions.  I recently healed a pressure 
sore and am having difficulty finding a seating solution.  The most recent 
attempt is with the Ride Designs cushion and I am having trouble with it also.  
I have used Jay, Roho, Aquilla and others.  I do have some seating issues, 
pelvic obliquity and some rotation.  I have been working with seating 
specialists unsuccessfully.  Any input would be appreciated.  Dan T.

RE: [QUAD-L] Fosamax for Osteoporosis

[Dan Tessiatore]

Yes Joan, I have the same kind of extensor spasms.  I have had a baclofen pump 
for a bout 12 years and it is very effective in reducing the spasticity.  Dan T.

poajoan <[EMAIL PROTECTED]> wrote:  v\:* {   BEHAVIOR: url(#default#VML)  } 
 o\:* {   BEHAVIOR: url(#default#VML)  }  w\:* {   BEHAVIOR: url(#default#VML)  
}  .shape {   BEHAVIOR: url(#default#VML)  }  @font-face {   font-family: 
Tahoma;  }  @font-face {   font-family: Bell MT;  }  @page Section1 {size: 
8.5in 11.0in; margin: 1.0in 1.25in 1.0in 1.25in; }  P.MsoNormal {   FONT-SIZE: 
12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: "Times New Roman"  }  LI.MsoNormal {   
FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: "Times New Roman"  }  
DIV.MsoNormal {   FONT-SIZE: 12pt; MARGIN: 0in 0in 0pt; FONT-FAMILY: "Times New 
Roman"  }  A:link {   COLOR: blue; TEXT-DECORATION: underline  }  
SPAN.MsoHyperlink {   COLOR: blue; TEXT-DECORATION: underline  }  A:visited {   
COLOR: blue; TEXT-DECORATION: underline  }  SPAN.MsoHyperlinkFollowed {   
COLOR: blue; TEXT-DECORATION: underline  }  SPAN.EmailStyle19 {   COLOR: navy; 
FONT-FAMILY: Arial; mso-style-type: personal-reply  } 
 DIV.Section1 {   page: Section1  }I am extremely fortunate in that I 
do not have severe spasms. I had more spasms when I was newly injured than I do 
now. I have also learned to try and relax before anybody tries to move me, 
because for not having any muscle-I sure can tighten up a lot and be extremely 
hard to move. I don't have the kicking type of spasms for the most part, but 
rather twist my whole torso and straighten out arms and legs. Learning to live 
with our bodies, and knowing each idiosyncrasy, is so important as so many 
others on this list have said in the past.
   
  Joan, C4 1990
   
  
-
  
  From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis

   
  In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time, [EMAIL 
PROTECTED] writes:

Hi Diana.
   
  I have been taking Fosamax for three years. I had no side effects from the 
drug, and after the first 18 months, we retested, and there was about 20% 
improvement. The doctor was very pleased, and so was I..
   
  Joan, C4 1990

I've just been going through a really bad time in the past couple weeks. My 
chest and back feel extremely tight and my leg spasms have increased. This 
morning my husband touched my leg and it went into it's spasm, kicking thing. I 
do have an appt with my doc but it's sooo frustrating being a quad and trying 
to figure out what's going on with the body. Fosamax has joint, muscle, and 
bone pain as a side effect but we also noticed discoloration on the foley when 
it was changed. Don't know what's going on so I guess it's time for ultra 
sounds and such.

diane

  


  
-
  
  AOL now offers free email to everyone. Find out more about what's free from 
AOL at AOL.com. 

RE: [QUAD-L] About Life Insurance for Quads

[poajoan]

Great idea John.

 

I wonder how much the air fare to have that done would be? :-) at least if
we were dead, it wouldn't be so hard to take care of us on the airplane! Our
University of Nevada school of medicine accepts donated bodies. My mother
donated hers to the University of Virginia, and when she died, they came and
picked the body up. About a year later my sister got an invitation to a
ceremony at the University. They gave her the urn of ashes, and they had a
nondenominational ceremony with stories about each of the people that they
honored. I thought that was pretty terrific. Joan

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 4:21 PM
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] About Life Insurance for Quads

 

I was thinking about having my head shrunk to hang over the TV. So folks
could really feel like I'm with them.

 

john

 

 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED];
[EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wed, 7 Mar 2007 4:56 PM
Subject: Re: [QUAD-L] About Life Insurance for Quads

In a message dated 3/7/2007 3:30:40 P.M. Central Standard Time,
[EMAIL PROTECTED]   writes:

When I tried to donate my body they asked "What for? It's broken." 

I told em they could use it as a "things not to do example."

 

john

John, we have a company in Chicago that will take your ashes and make a
diamond from those ashes, for your next of kin.  Just think of yourself as a
"Diamond in the Rough"  If you need info, let me know.

They have a website too.

W





  _  

AOL now offers free email to everyone. Find out more about what's free from
AOL at
 AOL.com. 

  _  

size=2 width="100%" align=center> 

AOL now offers free email to everyone. Find out more about what's free from
AOL at
 AOL.com.

RE: [QUAD-L] Fosamax for Osteoporosis

[poajoan]

I am extremely fortunate in that I do not have severe spasms. I had more
spasms when I was newly injured than I do now. I have also learned to try
and relax before anybody tries to move me, because for not having any
muscle-I sure can tighten up a lot and be extremely hard to move. I don't
have the kicking type of spasms for the most part, but rather twist my whole
torso and straighten out arms and legs. Learning to live with our bodies,
and knowing each idiosyncrasy, is so important as so many others on this
list have said in the past.

 

Joan, C4 1990

 

  _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Wednesday, March 07, 2007 12:42 PM
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] Fosamax for Osteoporosis

 

In a message dated 3/7/2007 2:59:32 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:

Hi Diana.

 

I have been taking Fosamax for three years. I had no side effects from the
drug, and after the first 18 months, we retested, and there was about 20%
improvement. The doctor was very pleased, and so was I..

 

Joan, C4 1990

I've just been going through a really bad time in the past couple weeks. My
chest and back feel extremely tight and my leg spasms have increased. This
morning my husband touched my leg and it went into it's spasm, kicking
thing. I do have an appt with my doc but it's sooo frustrating being a quad
and trying to figure out what's going on with the body. Fosamax has joint,
muscle, and bone pain as a side effect but we also noticed discoloration on
the foley when it was changed. Don't know what's going on so I guess it's
time for ultra sounds and such.

diane





  _  

AOL now offers free email to everyone. Find out more about what's free from
AOL at
 AOL.com. 

[QUAD-L] Air Travel - pressurized

[Oconnelldb]

 
 
yupper - pressurized to about 10k feet.  they feel just like a rock if  u 
don't open the valve - definitely too much goofing around with to be useful on  
a 
plane ride.  the low pressure gives booze an extra kick too.
 
 
 
 
In a message dated 3/8/2007 2:29:59 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
In a message dated 3/8/2007 10:48:26 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

When  flying on a commercial jet airliner and sitting on a Roho, remember the 
air  inside the Roho will expand and be problematic to sit on.  Dan  T.




I thought the cabins are pressurized?
W



 

 AOL now offers free email to everyone. Find out more about what's free from  
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 . 




 
Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

[QUAD-L] Public Guide to SCI Clinical Trials

[Kim Anderson]

The following document has been released by a multi-national group of 
experts in the field of spinal cord injury research.  This has 
excellent information about what you should know and ask if your are 
ever considering participation in clinical trials.  There is also 
information regarding past, current, and potential future clinical trials.


http://www.icord.org/iccp.html

Best wishes,
Kim



Kim Anderson, Ph.D.
Adjunct Assistant Professor
Reeve-Irvine Research Center
Dept. of Neurological Surgery
843 Medical Sciences Court
Hewitt Hall, Room 1113
University of California, Irvine
Irvine, CA 92697-1385
Ph. 949-824-0056
Fax. 949-824-0057
[EMAIL PROTECTED]
www.reeve.uci.edu
www.worldspine.org/spineresources/wss_spineresources.cfm

Re: [QUAD-L] Warrior Wins Purdue University Focus Award- Mark Zupan Attends

[David K. Kelmer]

Hi Warrior,
   
  Way to go!  You can be proud of all that you have done to assist others.  You 
are a True Warrior in every sense of the word!
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

[EMAIL PROTECTED] wrote:
  Funny thing happened on the way to Lafayette, Indiana today.  Warrior, 
was named winner of a Purdue University, Focus Achievement Award and was 
presented it during a special ceremony today.  A bunch of her friends, 
associates and teachers went down to Lafayette, to see her receive it.
  Upon arrival, we didn't realize that Mark Zupan of "Murderball" was the 
keynote speaker of the event.
  Kewl Beans! 
   
  Warrior, got her picture taken with Mark and I'm sure that she will have it 
at her website, and try to post it here for all to see.
   
  Mark has been at Purdue University all week and meeting with the students 
while promoting his movie.
   
  W




-
  AOL now offers free email to everyone. Find out more about what's free from 
AOL at AOL.com. 

Re: [QUAD-L] Sick

[David K. Kelmer]

Hi Q,
   
  I hope you are feeling better by now.  I know what you mean about catching up 
on e-mails.  I got out of the hospital March 24th, and had over 1200 posts to 
read.  I'm down to less than 200 now.  Kick that URI and get feeling better.  
Stay strong.
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

"B. Kimberlin (Quadius)" <[EMAIL PROTECTED]> wrote:
Hey guys and gals,
I have been suffering with an upper respiratory infection that invaded my 
lungs, but I am slowly but surely coming out of it.  To say it has been a 
struggle is a bit of an understatement; it's more of a battle.  Anyway, I hope 
I didn't miss too much while I was away (three weeks and counting), but I have 
not had the energy or the ability to dictate.  Right now my voice is still in 
and out and there is really no hope that I will be able to get through the 340 
e-mails on the quad list alone.
   
Hopefully I will be back to read every e-mail very shortly.
Quadius
PS I haven't had an illness which has infected my lungs since 2000.  Almost 7 
years without no problems. 
-
  Need Mail bonding?
Go to the Yahoo! Mail Q&A for great tips from Yahoo! Answers users.

[QUAD-L] Air Travel

[wheelchair]

 
True.  I would love to see the look on the flight attendant's face as  she 
scraped your head from the ceiling as the cushion expanded.
W
 
 
 
In a message dated 3/8/2007 3:58:21 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

Maybe  the cushion expanded from being up in the mountains?  Dan  T.

[EMAIL PROTECTED] wrote:  
 
In a message dated 3/8/2007 10:48:26 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

When flying on a commercial jet airliner and sitting on a Roho,  remember the 
air inside the Roho will expand and be problematic to sit  on.  Dan T.




I thought the cabins are  pressurized?




 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: [QUAD-L] Air Travel

[Dan Tessiatore]

Maybe the cushion expanded from being up in the mountains?  Dan T.

[EMAIL PROTECTED] wrote:In a message dated 3/8/2007 10:48:26 A.M. 
Central Standard Time, [EMAIL PROTECTED] writes:
  When flying on a commercial jet airliner and sitting on a Roho, remember the 
air inside the Roho will expand and be problematic to sit on.  Dan T.


  
  I thought the cabins are pressurized?
  W




-
  AOL now offers free email to everyone. Find out more about what's free from 
AOL at AOL.com. 

[QUAD-L] Re: Warrior Wins Purdue University Focus Award- Mark Zupan Attends

[Tim Thompson]

Opened up today!
Damn, and finally "tomorrow" the service guy will be here to fix my airbed.
If he'd been here last week??
Will be spending the week-end in bed going through computer withdrawls.
Stunt

On 3/7/07, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:


Take Care, Stunt.  Remember your butt.  Its the only one you have and there
is no transplanting of new ones at the present.  Be good to your butt and
your butt will be good to you.
W


In a message dated 3/7/2007 1:37:19 P.M. Central Standard Time,
[EMAIL PROTECTED] writes:
GREAT!
Lokk fwd to the details and pics.
I wanted to attend, but it's been very crazy around here. (between
personal and family probs)
My sister joined the titanium plate and pin club (shattered her wrist)
and I spent 2 days sitting wrong in my chair (new aid) which has left
me with a red spot.
Oh well, spring is almost here.
Hope April brings better luck with the showers washing the winter blues
away.
Stunt





AOL now offers free email to everyone. Find out more about what's free from
AOL at AOL.com.

Re: [QUAD-L] Air Travel

[wheelchair]

 
In a message dated 3/8/2007 10:48:26 A.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

When  flying on a commercial jet airliner and sitting on a Roho, remember the 
air  inside the Roho will expand and be problematic to sit on.  Dan  T.




I thought the cabins are pressurized?
W
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

[QUAD-L] Check out Mobility Air Transport

[wheelchair]

 
You are most correct, my friend.  Those 12 passengers turbo props were  so 
fun to ride thru the clouds rather than over them, lol.  The co-pilot as  
packed 
your luggage in the back of the plane too.  You have to be careful  when 
going down the small aisle so that you didn't trip over the hump of the  belly 
light.  No food or drink service either.  Also no partitions  between the 
passenger and pilots compartment.  You leaned out into the row  and could see 
everything going on the radar system.  And you didn't talk to  the pilot as 
they were 
too busy.
W
 
In a message dated 3/8/2007 2:26:06 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

The Blue Goose used to fly over lake Michigan years ago.  They used  a turbo 
prop - dual engine rattle box that shook like a bucket full of loose  rivets 
when taking off.  By the way in the middle of lake Mich, you  can't see either 
side - those little 'puddle jumpers' are exciting for  sure.
Dave



 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: FW: [QUAD-L] Check out Mobility Air Transport

[Oconnelldb]

 
 
i would think a single lockdown 'area' close to the door wouldn't be out of  
the question.  have they replaced the cardboard cockpit doors with steel  
yet???  another example of too hard, and costs too much.   (like  one ticket 
cross 
country)  they have an excuse for everything.
 
 
 
 
In a message dated 3/7/2007 2:40:49 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
The isles in planes  require a specific thin chair to get you on, AND HAVE 
STEWARDESS CALL AHEAD  FOR ON THER!  I am shouting because I once held up 
take-off an hour  waiting to get off.  The isle chair never showed up so two 
burley  
attendants fireman style carried me off.  It was particularly  embarrassing 
as the lifted me, my gas was left  behind. 
All in all,  redesigning jets and planes is not reasonable.  These airport 
people  really try hard.  It is just not that often t accommodate a  
wheelchair. 
Merrill 
 
 
  

 
From:  [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, March 06, 2007 11:15  PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Check out Mobility Air  Transport
 
It's about  time.  I'd be willing to try this. I've always thought it was  
against ADA  wishes for us to have to get out of our chairs to fly.  If the  
buses tried to do that to us, they'd get sued.  I wonder what the prices  would 
be like.  In the picture, did they just pick the whole chair up? I  would think 
they would need a ramp...
 

 
Sean
 
former helicopter  crewchief 
 

 
_Click  here: Mobility Air Transport_ (http://www.emtlaser.com/mat/)  



  

 
AOL now  offers free email to everyone. Find out more about what's free from 
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 .  







Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: [QUAD-L] About Life Insurance for Quads

[Oconnelldb]

 
 
yeah, right.   what fools.   point to an 80 year old  that isn't broken 
somewhere.  they frown on donating newborns who aren't  damaged yet.
 
 
 
In a message dated 3/7/2007 2:30:40 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

When I tried to donate my  body they asked "What for? It's broken." 
I told em they could use it as a "things  not to do example."
 
john

 

-Original Message-
From:  [EMAIL PROTECTED]
To: [EMAIL PROTECTED];  [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Wed, 7 Mar 2007 3:27  PM
Subject: Re: [QUAD-L] About Life Insurance for Quads


Hi Bobbie,
 
I've donated my body to Texas Tech University.   They will pick  my body up 
from the local funeral home because I live less than 100 miles from  there.  
Maybe t5hey will find something to help other SCI by using my  body!
 
With Love,

CtrlAltDel aka  Dave
C4/5 Complete - 30 Years Post
 
Texas, USA


[EMAIL PROTECTED] (javascript:parent.ComposeTo("[EMAIL PROTECTED]", "");)   
wrote: 


What happens when we die what about burial or funeral expenses,  I hear it 
costs a lot these days.
 Well, what I did, is since I can't get life insurance, I  went to my local 
funeral home and set up an account. Basically, I picked out  everything and 
made my own arrangements and I'm making  payments. You  could make payments as 
often as you'd like and as much as you'd like till  you pay the bill off. This 
way, you know you will get the funeral YOU want  and your family won't get 
stuck with a very large bill. It can cost between  $6,000 and $12,000 and even 
more depending on a lot of your  choice's.
  Bobbie




 

 AOL now offers free email to everyone. Find out more about what's free from  
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 .  



**
AOL now  offers free email to everyone. Find out more about what's free from 
AOL at  _http://www.aol.com_ (http://www.aol.com/) . 


 

 AOL now offers free email to everyone. Find out more about what's free from  
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 .






Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: FW: [QUAD-L] Check out Mobility Air Transport

[Oconnelldb]

 
 
The Blue Goose used to fly over lake Michigan years ago.  They used a  turbo 
prop - dual engine rattle box that shook like a bucket full of loose  rivets 
when taking off.  By the way in the middle of lake Mich, you  can't see either 
side - those little 'puddle jumpers' are exciting for  sure.
Dave
 
 
In a message dated 3/7/2007 2:26:28 P.M. US Mountain Standard Time,  
[EMAIL PROTECTED] writes:

 
In a message dated 3/7/2007 3:23:28 P.M. Central Standard Time,  
[EMAIL PROTECTED] writes:

I’ve been up those  steep stairs into the plane many times.  Prop jets are my 
 favorite.  Being carried on I am first on, last off, and carry that  ROHO. 
Merrill


Did you get the feeling that you were riding in a Volkswagon Beetle, with  a 
6 volt battery?
I wonder what altitude they fly at.
W



 

 AOL now offers free email to everyone. Find out more about what's free from  
AOL at _AOL.com_ 
(http://pr.atwola.com/promoclk/1615326657x4311227241x4298082137/aol?redir=http://www.aol.com)
 . 




 
Dave  _Visit My Home  Page_ (http://www.users.qwest.net/~daveoc/index.html) 
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: [QUAD-L] I'm new to the list!

[David K. Kelmer]

Hi Debbie,
   
  Welcome to the Quad-'List.  I'm sure you will find the Group to be quite 
knowledgeable about SCI issues.  Feel free to ask questions, share ideas, or 
just look for support.  The members will be able t5o help in many ways.  Stay 
strong.
   
  With Love,
  
CtrlAltDel aka Dave
C4/5 Complete - 30 Years Post
   
  Texas, USA
  

Bruce and Debbie Hamilton <[EMAIL PROTECTED]> wrote:
  Hi my name is Debbie. I am almost 2 years postaccident. I was diagnosed as 
a C4, my function level now is C6 on the right C5 on the left. The first 
year postaccident was absolutely horrendous! During the second year, I've 
worked on accepting the new me. I am 47 years old, married, and have three 
boys one still at home. I am now living in Colorado after going to Craig 
hospital and have found there aren't very many resources after being 
discharged. Such as rehab for SCI. I look forward to asking questions in 
this group. I need the support! Will post questions soon.

_
Win a Zune™—make MSN® your homepage for your chance to win! 
http://homepage.msn.com/zune?icid=hmetagline

[QUAD-L] ADAPT

[Mark Jackson]

To better reflect what the bill really does and to alleviate some of the
misconceptions that led to previous negative cost scorings, ADAPT and other
other groups (including NCIL and CCD) worked with Congressional leaders and
named the bill the Community Choice Act.  The Community Choice Act builds on
Money Follows the Person, which is after all only a step (though an
important one) on the road to Real Choice in long term care.  The bill will
allow people who are eligible for nursing homes or other Medicaid funded
institutions to have the choice of living in the community with consumer
directed services and supports.

 

Details to follow soon!

 

The ADAPT Community

***

From: Harkin, HarkinPress (Harkin)

Sent: Wednesday, March 07, 2007 4:10 PM

Subject: HARKIN INTRODUCES BILL TO SUPPORT COMMUNITY-BASED SERVICES

 

 

 

FOR IMMEDIATE RELEASE

March 7, 2007

 

Contact:  Maureen Knightly / Tom Reynolds

202-224-3254

 

HARKIN INTRODUCES BILL TO SUPPORT COMMUNITY-BASED SERVICES Legislation would
increase access for people with disabilities and older Americans

 

Washington, D.C. - Senator Tom Harkin (D-IA) today introduced the Community
Choice Act of 2007.  The legislation, co-sponsored by Senator Arlen Specter
(R-PA), would increase access to community-based services and other supports
for Americans with disabilities and older Americans.

 

"I strongly believe that it is important to level the playing field and give
eligible individuals equal access to community-based services and supports,"


Harkin said.  "This legislation is needed to truly bring people with
disabilities into the mainstream of society and provide equal opportunity
for employment and community activities."

 

Specifically, the Community Choice Act of 2007 gives individuals who are
eligible for nursing home services or other institutional care equal access
to community-based services and supports. The legislation also provides
enhanced federal matching funds to help states develop their long-term care
infrastructure and grant funds to help states increase their ability to
provide home and community-based services. Finally, this bill creates a
demonstration project to evaluate service coordination and cost sharing
approaches for those eligible for both Medicaid and Medicare services.

 

"This vital legislation will open the door to full participation by people
with disabilities in our neighborhoods, workplaces, economy, and our
American Dream," Harkin said.

 

The following Senators co-sponsored the Harkin-Specter legislation: Edward
Kennedy (D-MA), Daniel Inouye (D-HI), Ken Salazar (D-CO), Joseph Biden
(D-DE), Joseph Lieberman (ID-CT), Hillary Clinton (D-NY), Charles Schumer
(D-NY), and Christopher Dodd (D-CT).

 

#  #  #

 

NATIONAL ADAPT MAILING LIST - Adapt MiCASA List HYPERLINK
"http://www.adapt.org/"http://www.adapt.org

 

--

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.446 / Virus Database: 268.18.8/714 - Release Date: 3/8/2007
10:58 AM

 

 

 

 

Mark Jackson

   RollinOn

 

 


-- 
No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.446 / Virus Database: 268.18.8/714 - Release Date: 3/8/2007
10:58 AM
 

Re: [QUAD-L] powerchairs-space age and Flying

[DiannaL767]

 
In a message dated 3/7/2007 11:15:17 PM Eastern Standard Time,  
[EMAIL PROTECTED] writes:

I hate traveling.


ME TOO!
** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: [QUAD-L] Fosamax for Osteoporosis

[DiannaL767]

In a message dated 3/8/2007 12:19:38 AM Eastern Standard Time,  
[EMAIL PROTECTED] writes:

Yes only  because my doctor prescribed it.
the side effects are bone, muscle and joint pain which we as  quads can not 
pinpoint where our pain stems from, (or most) so that's why i was  asking. if a 
drug is having a side effect it should/probably acts at the  beginningi 
think. i'll be seeing my doc and it will be 1 of many questions  i'll have for 
him. i've just been having a lot more pain and spasms than  usual.
diane





** AOL now offers free 
email to everyone.  Find out more about what's free from AOL at 
http://www.aol.com.

Re: [QUAD-L] Air Travel

[Dan Tessiatore]

When flying on a commercial jet airliner and sitting on a Roho, remember the 
air inside the Roho will expand and be problematic to sit on.  Dan T.

[EMAIL PROTECTED] wrote:All airlines seem to try to do their best which is 
probably why I can't recomend one. It is important to crate your chair right 
and be sure it can survive a few critically stupid moments. Definitely 
disconnect your "gell cell" batteries and have someone at the other end to 
reconnect them. This only sounds simple. Always call ahead to be sure you can 
rent a chair in case your chair wins a free trip around the world. If you can 
sit in a non customized chair I highly recommend doing so and just have a chair 
waiting. Take your roho in the overhead. If you somehow turn up on skidrow you 
have made a major mistake in chosing a travel agent. 
   
   
  john
  
   
 
-Original Message-
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; 
quad-list@eskimo.com
Cc: [EMAIL PROTECTED]
Sent: Tue, 6 Mar 2007 10:22 PM
Subject: RE: [QUAD-L] Air Travel

  .AOLPlainTextBody {   FONT-SIZE: 12px; MARGIN: 0px; COLOR: #000; FONT-FAMILY: 
Tahoma, Verdana, Arial, Sans-Serif; BACKGROUND-COLOR: #fff  }  
.AOLPlainTextBody PRE {   FONT-SIZE: 9pt  }  .AOLInlineAttachment {   MARGIN: 
10px  }  .AOLAttachmentHeader {   BORDER-RIGHT: #7da8d4 1px solid; BORDER-TOP: 
#7da8d4 1px solid; BACKGROUND: #f9f9f9; FONT: 11px arial; BORDER-LEFT: #7da8d4 
1px solid; BORDER-BOTTOM: #7da8d4 1px solid  }  .AOLAttachmentHeader .Title {   
PADDING-RIGHT: 3px; PADDING-LEFT: 3px; BACKGROUND: #b5ddfa; PADDING-BOTTOM: 
3px; FONT: 11px arial; PADDING-TOP: 3px  }  .AOLAttachmentHeader .FieldLabel {  
 PADDING-RIGHT: 10px; PADDING-LEFT: 9px; BACKGROUND: #f9f9f9; PADDING-BOTTOM: 
1px; FONT: 11px arial; COLOR: #00; PADDING-TOP: 1px  }  
.AOLAttachmentHeader .FieldValue {   BACKGROUND: #f9f9f9; FONT: 11px arial; 
COLOR: #00  }  .AOLAttachmentHeader A {   COLOR: #2864b4; TEXT-DECORATION: 
none  }  .AOLImage A {   COLOR: #2864b4; TEXT-DECORATION: none  } 
 .AOLAttachmentHeader A:hover {   COLOR: #2864b4; TEXT-DECORATION: underline  } 
 .AOLImage A:hover {   COLOR: #2864b4; TEXT-DECORATION: underline  }  
.AOLWebSuiteCompose .AOLPicturesFullSizeLink {   OVERFLOW: hidden; WIDTH: 1px; 
HEIGHT: 1px  }  .AOLWebSuite .AOLPicturesFullSizeLink {   OVERFLOW: hidden; 
WIDTH: 1px; HEIGHT: 1px  }  BODY {   BORDER-RIGHT: 0px; BORDER-TOP: 0px; 
FONT-SIZE: 10pt; BORDER-LEFT: 0px; BORDER-BOTTOM: 0px; FONT-FAMILY: "Verdana"; 
BACKGROUND-COLOR: white  }  .AOLWebSuiteCompose P {   PADDING-RIGHT: 0px; 
PADDING-LEFT: 0px; PADDING-BOTTOM: 0px; MARGIN: 0px; PADDING-TOP: 0px  }  
IMG.managedImg {   WIDTH: 0px; HEIGHT: 0px  }  IMG.placeholder {   
BORDER-RIGHT: #dadad6 1px solid; BORDER-TOP: #dadad6 1px solid; BACKGROUND: 
#f4f4f4 no-repeat center center; BORDER-LEFT: #dadad6 1px solid; WIDTH: 275px; 
BORDER-BOTTOM: #dadad6 1px solid; HEIGHT: 206px  }wow
   
   

  Kevin M. Rudolph
Louisville, Kentucky 40214
E-Mail:  [EMAIL PROTECTED]
Web site:  http://www.turbokev.com
Instant Messengers:
 AOL:  kyprincecharming   ICQ:  28414413
 MSN:  [EMAIL PROTECTED]   Yahoo:  turbokev 

  -Original Message-
From: Jim Lubin [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, March 06, 2007 3:13 PM
To: Paul Jacobson; [EMAIL PROTECTED]; quad-list@eskimo.com
Cc: Kristen Manecke
Subject: Re: [QUAD-L] Air Travel


This air service isn't available yet for your trip in April but it looks 
promising

http://www.mobilityairtransport.org/


At 05:29 PM 3/5/2007, Paul Jacobson wrote:
  Hi,
 
Would you guys mind sharing which airlines you have had success with and which 
ones you have not and why
 
I am traveling to Fort Myers from San Diego in April with my wife.  I'm a c5/6 
quad and our flight has one stop requiring  a change of planes.
 
Also, we need to rent a 6ft ramp, anyone have any ideas?
 
Thanks!
Paul  
Jim Lubin   
[EMAIL PROTECTED]
http://makoa.org/jim 
disAbility Resources: http://www.makoa.org






-
  AOL now offers free email to everyone. Find out more about what's free from 
AOL at AOL.com.

[QUAD-L] ADA Technical Bulletin: March 2007

[MissLiz]

 

 

 

DBTAC- Northeast ADA Technical Bulletin:  March 2007 

The DBTAC- Northeast ADA Center at Cornell University provides training,
technical assistance and materials on the ADA and accessible information
technology throughout New York, New Jersey, Puerto Rico and the U.S. Virgin
Islands. This monthly technical bulletin is part of our dissemination
efforts and if you do not want to receive this document or would like others
from your organization added to our list, please call 1-800-949-4232 or
reply to this message. Thank you. 


Please Join us for the March Distance Learning Program-- National EEOC ADA
Research Project: What does the data tell us about Title I complaints and
resolutions?

Date:  March 20, 2007 
Time:  2:00 pm - 3:30 pm EST 

The EEOC has entered into a cooperative agreement with researchers at
Virginia Commonwealth University to mine the data collected by the EEOC
since the implementation of the employment provisions of the ADA. Some of
the questions that the researchers hope to answer through this effort
include: 

1.  What is the specific nature and scope of workplace discrimination
against people with disabilities? 
2.  To the extent that employers perpetrate workplace discrimination,
does it vary as a function of the employers industry, location or size? 
3.  Does workplace discrimination affect Americans with disabilities in
different ways as a function of personal characteristics such as type of
impairment, gender, age, race or ethnicity? 

Join us as these questions along with others are discussed by the
individuals involved in this project and learn what they have found to date.
Explore how this information can be used to inform policymakers and shape
the way that employers may respond to their obligations under the ADA.
 
Speaker: 
Dr.
  Brian T. McMahon 
CRC Professor, VCU Dept. of Rehabilitation Counseling Research Professor,
VCU Dept of Rehab Medicine
Credits: 
CRC, SHRM

Pricing:  http://www.ada-audio.org/ProgramInformation/prices.php 
  
Registration: https://ada-audioorg.secure.powweb.com/WebForms/Login/ 
Deadline for Registration:  Monday March 19, 2007 


Two New Documents from Department of Justice 

ADA Best Practices Tool Kit for State and Local Governments
http://www.ada.gov/pcatoolkit/toolkitmain.htm

Expanding Your Market: Gathering Input from Customers with Disabilities for
Businesses http://www.ada.gov/custinfo.htm


Free Assistive Technology

Visit http://www.onlineconferencingsystems.com/at.htm for an extensive,
annotated list (200+ products) of free assistive technology devices and
products.  The list was developed with the support of The Ohio Governor's
Council on People with Disabilities and the Nisonger Center at Ohio State
University.


New Document from Equal Employment Opportunity Commission (EEOC) for Health
Care Workers with Disabilities

EEOC has produced a new document regarding employment of people with
disabilities in the health care field.  This includes such places as
hospitals, laboratories and nursing homes and covers issues as reasonable
accommodation, safety and medical examinations.  There are numerous examples
given and a question and answer section as part of this document.  For a
copy of the document, please go to EEOC's website at
http://www.eeoc.gov/facts/health_care_workers.html.


New Jersey Assistive Technology Recycling Program

The Assistive Technology Advocacy Center (ATAC) of NJP&A, Inc. has announced
the launch of an upgraded, online system for Back In Action, New Jerseys
assistive device recycling exchange program.  Since Back In Action has
started, the program has helped thousands of New Jersey residents find
alternative homes for assistive technology.  The Back In Action website
provides an opportunity for individuals to list AT devices they want to sell
or donate, or post an inquiry about AT they are interested in acquiring.  

Individuals can visit Back in Action website at
http://backinaction.njpanda.org  .

Individuals without computer access may contact ATAC at 1-800-922-7233 for
assistance in navigating up-to-date Back In Action listings without a
computer.  For further assistance or to send comments, feel free to contact
Back In Action at [EMAIL PROTECTED]
 
The Assistive Technology Advocacy Center (ATAC) serves as New Jersey's
federally funded assistive technology project through a sub-contract with
New Jersey's Department of Labor and Workforce Development. Its purpose is
to assist individuals in overcoming barriers in the system and making
assistive technology more accessible to individuals with disabilities
throughout the state.
 

New York State IDEA 2004 Public Comments Period
(from NY State Education) 

New York State's Annual State Application under Part B of the Individuals
with Disabilities Education Act as Amended in 2004 for Federa