Re: [QUAD-L] makeup, probably just the girls ha ha

[LadyNotes]

Dianna,
Please do send a picture.  I cannot visualize what you're  saying.  I haven't 
worn make up since I got out of the hospital, and I am  very interested in 
knowing how other women apply theirs.


Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [QUAD-L] makeup

[LadyNotes]

When you have tattooed eyebrows, what do you do about your  real eyebrows?  
Won't they still need waxing or plucking?
 
 
Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



**Create a Home Theater Like the Pros. Watch the video on AOL 
Home.  
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Re: [QUAD-L] makeup, probably just the girls ha ha

[LadyNotes]

Are you one of those who spend their profits on their own  products?  LOL
 


Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



**Create a Home Theater Like the Pros. Watch the video on AOL 
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Re: [QUAD-L] Gays

[LadyNotes]

PQ,
I heard about the Word of God by attending church on Sundays  and Bible 
studies on Wednesdays.  Now that I don't attend church as much as  I used to, I 
use 
the audio Bible website to read the Bible.
 
 
Naomi


C4  quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [QUAD-L] Doctors, a perfect example

[wheelchair]

Pass the snake oil and burn the PDR !
W
 
 
In a message dated 3/18/2008 6:27:10 P.M. Central Daylight Time, DiannaL767  
writes:

In a message dated 3/18/2008 6:41:51 PM Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

Today, with all the meds and new meds being advertised on television, before  
doc's see it... patients are telling their doctors "I want those purple  
pills."  And it make take 5-10 years to get a new drug on to the  market.  
Scary... ain't it, lol.
yep, what's worse is listening to the side effects!

 





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Re: [QUAD-L] Doctors, a perfect example

[DiannaL767]

In a message dated 3/18/2008 6:41:51 PM Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

Today, with all the meds and new meds being advertised on television, before  
doc's see it... patients are telling their doctors "I want those purple  
pills."  And it make take 5-10 years to get a new drug on to the  market.  
Scary... ain't it, lol.
yep, what's worse is listening to the side effects!

 



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Home.  
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[QUAD-L] Fwd: Deadline extended to 3/31 for 10 BEST/WORST of 2008 -- YOUR input reque...

[DAANOO]

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--- Begin Message ---
You input is needed, and the deadline for submission is extended to 3/31. 
Please share your thoughts and experiences.  It will only take about 10 
mins. max!
- Original Message - 
From: "ADAPT [EMAIL PROTECTED]" <[EMAIL PROTECTED]>

To: "commchoice-list" <[EMAIL PROTECTED]>
Sent: Thursday, March 06, 2008 11:17 AM
Subject: 10 BEST/WORST of 2008 -- YOUR input requested by March 15!


Dear Advocate for Home and Community Services:

During the week of April 27th-May 1st The ADAPT Community will be
announcing the "2008 TEN BEST/TEN WORST STATES" for Home and Community 
Services.


We would like your input in making these decisions.  Below please find a 
short

informal survey asking your opinions on the home and community programs your
State provides to people with disabilities, old and young.  This includes
all
Medicaid waiver programs, Medicaid State Plan programs as well as all other
federally and State funded programs that allow people to remain in the
community.

THIS SURVEY SHOULD ONLY TAKE <30 MINUTES OF YOUR TIME!
(There are only 11 questions!)

PLEASE RETURN BY MARCH 15TH to:

ADAPT
1640A E. 2nd St
Austin, Tx 78702
[EMAIL PROTECTED]
512/442-0522 fax

We will also be looking at statistical data that has been developed by
other
advocacy/research groups as well as data developed by academic institutions
to
make our final determinations.

Please distribute this survey as widely as possible.  The more input we get
from y'all the more accurate our results will be.

Thank you for your support.

Bob KafkaFrank WulleCassie
James-Holdsworth
Austin, TX   Salt Lake City, UT   Philadelphia, PA

* The ADAPT COMMUNITYHOME AND COMMUNITY SERVICES STATE SURVEY2008ADVOCATE  ASSESSMENTThis is an informal survey to get advocates assessment of how your stateranks  in providing home and community services and supports.Your answers will giveus an advocates view of what is really going on inyour state.All answers willbe kept confidential.Most of the questions are multiple choice however if you want to writeadditional information please attach the extra pages.Thankyou! Your NAME:ADDRESS:CITY:STATE:ZIP:e-mail:PHONE:ORGANIZATION: STATE:If you are on a Home and Community Service Program what is the name?1.  From your perspective would rank your state as: a)  in the top 10states providing services and supports b)  in the top 20c)  in the top 30 d)  in the top 40 e)  one of the 10 worst2.  Would you rate your state's ongoing response to the Olmstead decisionas:a)  excellent   
  b)  goodc)fair d)  poor e)  bad3.  Would you rate your state's involvement of advocates and advocateorganizations in the development and evaluation of community serviceprograms as:a)  excellent b)  good c)  faird)  poor e)  bad4. Does your state have waiting lists for home andcommunity services programs? No___   Yes__If yes:1.. What programs? ___2.. How many people waiting?3.. How long?__5.  Would you describe the amount of consumer direction inyour communityservices programs as:a)  excellent b)  good c) faird)  poor e)  bad6.  If someone needs 20-30 hours of personal attendant services (pas)and would like to move to your state, would you:a)  encourage them to comeb)  warn them to go to another statec)  tell them about your long waiting lists7.  Does your state Nurse Practices Act allow delegation or assignmentof traditional health/nursing tasks?:  a)  yesb)  no c)  other (please describe) 


NATIONAL ADAPT MAILING LIST - Adapt Community Choice Act List 
http://www.adapt.org
--- End Message ---

Re: [QUAD-L] Doctors, a perfect example

[wheelchair]

Enemeeze, I could see, even after 5 years on the market.  But it  follows a 
very similar product that preceded it by more than 10 years called  Therevac 
and Therevac SB.
 
Keep in mind that about 100 years ago there were no RXs like there is  today. 
 Just 50 years ago, the doctor told you what to take and how to take  it.  
Today, with all the meds and new meds being advertised on television,  before 
doc's see it... patients are telling their doctors "I want those  purple 
pills."  And it make take 5-10 years to get a new drug on to the  market.  
Scary... ain't it, lol.
 
Best Wishes
 
 
In a message dated 3/18/2008 4:58:15 P.M. Central Daylight Time,  
[EMAIL PROTECTED] writes:

When I was discussing with the doctor whom is planning my colonoscopy and  
which method would be best for me, I asked him about enemeeze and he laughed  
at 
me saying "You mean enemas, enemeeze is something you have about people."  
I'm not making this up guys! I had the folder with me that came with the free  
trial. his response was, "Something new? I've never heard of it."
Dianna





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Re: [QUAD-L] Hospitals and Quads

[DAANOO]

That is a great idea.
Behind your bed or somewhere on the wall they can  see.
My bed I had respiratory equipment, but I can find another place to the  
right depending on what kind of room you have.  A private room is almost  
necessary for quadriplegic.
I'd know a lot of them must not read your charge  this would give them no 
excuse.
Thank you.




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[QUAD-L] Doctors, a perfect example

[DiannaL767]

When I was discussing with the doctor whom is planning my colonoscopy and  
which method would be best for me, I asked him about enemeeze and he laughed at 
 
me saying "You mean enemas, enemeeze is something you have about people." I'm 
 not making this up guys! I had the folder with me that came with the free 
trial.  his response was, "Something new? I've never heard of it."
Dianna



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Re: [QUAD-L] Hospitals and Quads

[MikeyBird3]

Probably like he needs a gallon of Listerine.
 
 
In a message dated 3/18/2008 2:01:40 P.M. Eastern Daylight Time,  
[EMAIL PROTECTED] writes:

(Now  I'm wondering what death's breath might smell like.)  

Bill
C6 Incomplete since 7/20/68
Age 57
Leesburg,  FL
Very funny, Scotty. Now beam up my  clothes.





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Fwd: [QUAD-L] Hospitals and Quads

[wheelchair]

 
  

 From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: 3/18/2008  10:55:42 A.M. Central Daylight Time
Subj: Re: Fwd: [QUAD-L] Hospitals and  Quads



yes It defenitely helps to give them medication list,daily check list  so  
they know the routine that needs to be fallowed
.also tell  them to make  sure to to put  on the the wall behind your head  
the the times you need to be turned despite the air mattress it does  help 
prevent bed sores  
after repeated hospitalizations the people at the hospital have  become more 
comfortable , familiar & more educated about my husbands  care If you cant 
feed yourself It is moral responsibility for hospital  to provide a person to 
feed you 
at the end of it  EDUCATION EDUCATION &EDUCATION IS THE  THING TO DO 
SARLA 

--- On Mon, 3/17/08, [EMAIL PROTECTED]  <[EMAIL PROTECTED]> wrote:

From:  [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: Fwd:  [QUAD-L] Hospitals and Quads
To: [EMAIL PROTECTED]
Date:  Monday, March 17, 2008, 4:54 PM




 
  

 From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent:  3/17/2008 2:50:28 P.M. Central Daylight Time
Subj: Re: [QUAD-L]  Hospitals and Quads


Okay, enough already! I know we all  have had bad experiences with hospitals, 
but you're all starting to  sound like they are death camps. There are many 
of us that don't  have a close relative to stay with us in a hospital - myself 
being  one. And frankly, you are scaring the shit out of me. 

Being  in the hospital for many people is not a pleasant experience but you  
have to do what you have to do. I always have a typed list of: my  medical 
history, surgical history, current meds regimen, and  prescriptions I am 
allergic 
to and those I'm not allergic to. This  is given to them upon registration. 
So I feel at least they are  aware of the basics.

Please give those of us - and I can't be  the only one - who will be entering 
the fray alone some hope,  encouragement and peace of mind.

Dan  










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Re: [QUAD-L] Hospitals and Quads

[John S.]

Oh yea! WELCOME HOME!

Do I miss the obvious or what?

I look at it more like, I'm playing Crazy 8's with Death rather than him 
breathing over my shoulder. (Now I'm wondering what death's breath might smell 
like.)  I'm real sorry if it chills you and I can forego another rendition of 
my hospital experiences. 
Most of my visits are outpatient and completely boring with the exception of 
some jokes and running into people I haven't seen in years.
Like Elizabeth said, write stuff out ahead of time in case they can read and be 
prepared. Have your Meds written next to your doctors favorite golf course. A 
bogus insurance card is great for a private room and fast care in the ER. Don't 
lie to them, but if they happen across it and don't ask you, well, it can't be 
your fault they thought you had anthem platinum. If you hurl chunks on the 
floor of your private room then you've marked your territory and changing rooms 
is too much effort for the 3 nurses watching 46 patients.
I'm truly thankful you're out of the hospital and feeling better. 
All my very best Wishes,
john


- Original Message 
From: Elizabeth Treston <[EMAIL PROTECTED]>
To: Dan <[EMAIL PROTECTED]>; Quad List 
Sent: Tuesday, March 18, 2008 11:10:52 AM
Subject: RE: [QUAD-L] Hospitals and Quads

 It still is up to us Dan to be our own advocate in our 
care.  I had to go via ambulance as I was very ill.  I insured about 
an egg crate mattress, booties, skin care etc.  It's that we know our 
bodies best and explaining sometimes for the 50th time when you feel like Death 
is breathing on your shoulder is physically and mentally draining.  If 
you're ill and need medical assistance, of course, you should go to the 
doctor.  Be prepared.  Have the plastic coated AD card.  Ensure 
your primary dr. or a general intern in your area knows YOU.
 
I am grateful to be home but still the effects of the stay 
are with me.

From: Dan [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 17, 2008 3:44 PM
To: Quad List
Subject: Re: [QUAD-L] Hospitals and Quads



Okay, enough already! I know we all have had bad experiences with hospitals, 
but you're all starting to sound like they are death camps. There are many of 
us that don't have a close relative to stay with us in a hospital - myself 
being one. And frankly, you are scaring the shit out of me. 

Being in the hospital for many people is not a pleasant experience but you have 
to do what you have to do. I always have a typed list of: my medical history, 
surgical history, current meds regimen, and prescriptions I am allergic to and 
those I'm not allergic to. This is given to them upon registration. So I feel 
at least they are aware of the basics.

Please give those of us - and I can't be the only one - who will be entering 
the fray alone some hope, encouragement and peace of mind.

Dan 



At 05:39 PM 3/16/2008 -0700, Lori Michaelson said something that elicited my 
response:
  
I have ALWAYS had a family member 
  (mostly my significant other or my husband) present during any hospital 
  procedure or stay.  Because they simply do not have a clue about spinal 
  cord injuries.  In fact, it's pretty scary how much they don't have a 
  clue about anything!  
 
A very high 
  percentage of folks die in hospitals because of negligence or malpractice 
that 
  gets swept under the carpet.  They explain it away somehow and there is 
  nothing one can do after the damage is done especially if it is 
  death.
 
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years 
  post
Tucson, 
  AZ
 
 
---Original 
  Message---
 
From: Merrill Burghardt
Date:   3/16/2008 5:02:17 PM
To: quad-list@eskimo.com
Subject:   [QUAD-L] Hospitals and Quads
 

Are you suggesting to have caregiver present at a procedure?  In   scrubs?

Merrill

 

From: RONALD L   PRACHT [mailto:[EMAIL PROTECTED] 
Sent: Sunday,   March 16, 2008 4:51 PM
To: quad-list@eskimo.com
Subject:   [QUAD-L] Hospitals and Quads

 

Anytime a quad gets any procedure done at the   hospital I think it is wise to 
have someone there as your backup. Someone that   knows your disability and the 
in and outs. Many of these people at the   hospital have no clue about spinal 
injuries and have a deaf ear when you   explain anything. When your life is at 
stake you cant be to   careful.

 

ron c7
 





  

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RE: [QUAD-L] Hospitals and Quads

[Elizabeth Treston]

It still is up to us Dan to be our own advocate in our care.  I had to go
via ambulance as I was very ill.  I insured about an egg crate mattress,
booties, skin care etc.  It's that we know our bodies best and explaining
sometimes for the 50th time when you feel like Death is breathing on your
shoulder is physically and mentally draining.  If you're ill and need
medical assistance, of course, you should go to the doctor.  Be prepared.
Have the plastic coated AD card.  Ensure your primary dr. or a general
intern in your area knows YOU.
 
I am grateful to be home but still the effects of the stay are with me.

  _  

From: Dan [mailto:[EMAIL PROTECTED] 
Sent: Monday, March 17, 2008 3:44 PM
To: Quad List
Subject: Re: [QUAD-L] Hospitals and Quads


Okay, enough already! I know we all have had bad experiences with hospitals,
but you're all starting to sound like they are death camps. There are many
of us that don't have a close relative to stay with us in a hospital -
myself being one. And frankly, you are scaring the shit out of me. 

Being in the hospital for many people is not a pleasant experience but you
have to do what you have to do. I always have a typed list of: my medical
history, surgical history, current meds regimen, and prescriptions I am
allergic to and those I'm not allergic to. This is given to them upon
registration. So I feel at least they are aware of the basics.

Please give those of us - and I can't be the only one - who will be entering
the fray alone some hope, encouragement and peace of mind.

Dan 



At 05:39 PM 3/16/2008 -0700, Lori Michaelson said something that elicited my
response:
  


I have ALWAYS had a family member (mostly my significant other or my
husband) present during any hospital procedure or stay.  Because they simply
do not have a clue about spinal cord injuries.  In fact, it's pretty scary
how much they don't have a clue about anything!  
 
A very high percentage of folks die in hospitals because of negligence or
malpractice that gets swept under the carpet.  They explain it away somehow
and there is nothing one can do after the damage is done especially if it is
death.
 
Lori Michaelson
Age - 43
C4/5 complete quad, 28 years post
Tucson, AZ
 
 
---Original Message---
 
From: Merrill Burghardt  
Date: 3/16/2008 5:02:17 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hospitals and Quads
 

Are you suggesting to have caregiver present at a procedure?  In scrubs?

Merrill

 

  _  

From: RONALD L PRACHT [mailto:[EMAIL PROTECTED] 
Sent: Sunday, March 16, 2008 4:51 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Hospitals and Quads

 

Anytime a quad gets any procedure done at the hospital I think it is wise to
have someone there as your backup. Someone that knows your disability and
the in and outs. Many of these people at the hospital have no clue about
spinal injuries and have a deaf ear when you explain anything. When your
life is at stake you cant be to careful.

 

ron c7
 

RE: [QUAD-L] quads and hospitals

[Elizabeth Treston]

I just returned from a hospital stay...it was truly frightening.

  _  

From: RONALD L PRACHT [mailto:[EMAIL PROTECTED] 
Sent: Sunday, March 16, 2008 8:13 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] quads and hospitals


People have a right to do what they want. I was just saying I would make
sure you have someone close by that has your interests at heart because most
people that work at the hospital dont. They will let ya stroke out and never
tell the cause and go home to their loved ones. We only get one life quad or
not, Im not going to let my existence be up to a stranger. 
 
 
ron c7