[QUAD-L] new wheelchair!
Just got my new wheelchair yesterday. It's been 8 yrs since my last one. The main parts include: Invacare Torque 3 with Formula CG Tilt/Recline Powered Seating MK6i electronics with sip-n-puff controller The Savant Headrest - http://www.symmetric-designs.com/the-savant-2.html Roho High Profile Quadtro Select Cushion I fairly happy with it but am having a little trouble getting use to new MK6 electronics. It is so different from the old MK4 electronics. The new headrest is much nicer from my old one and supports my head better. Total cost... $31,065! Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
RE: [QUAD-L] Roho
I've been using the quatro since my injury, over 4 years now and have never had a problem with it, not really sure what you guys mean by the stability issues, I feel pretty stable, maybe it has to do with how well inflated it is? or the way your chair holds it in? I don't know but I have no problem with mine, never had a pressure sore either and I stopped doing my tilts a long time ago. Maybe my big butt is what helps lol. Lissette Whitehead www.lissettesgoaltowalk.synthasite.com www.lwgripgloves.com > From: g...@eskimo.com > To: d...@unh.edu; quad-list@eskimo.com > Date: Fri, 30 Apr 2010 17:25:53 -0600 > Subject: Re: [QUAD-L] Roho > > I have the Quadtro, I like it OK. I don't see much extra stability in it. > The lower profile might help, but I tend to sit tilted when watching TV so > that puts more weight on a smaller area so I'm afraid my butt might bottom > out. > There is one that has foam/gel only in the front part of the cushion under > your thighs. Roho balloons under your butt area still. That should give much > better stability. Roho - Hybrid Elite > > Greg > > > > > I've been using a high profile Roho cushion for years and I love > > the way it prevents pressure sores (for me anyway) but it's not > > very good for stability. Have any of you tried the high profile > > Quatro Roho? If so, can you give me some feed back? Dan > > > > Most people don't mind criticism as long as it's > > about someone > > else. -- Suzan L. Wiener > _ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_3
Re: [QUAD-L] Roho
I have the Quadtro, I like it OK. I don't see much extra stability in it. The lower profile might help, but I tend to sit tilted when watching TV so that puts more weight on a smaller area so I'm afraid my butt might bottom out. There is one that has foam/gel only in the front part of the cushion under your thighs. Roho balloons under your butt area still. That should give much better stability. Roho - Hybrid Elite Greg > I've been using a high profile Roho cushion for years and I love > the way it prevents pressure sores (for me anyway) but it's not > very good for stability. Have any of you tried the high profile > Quatro Roho? If so, can you give me some feed back? Dan > > Most people don't mind criticism as long as it's > about someone > else. -- Suzan L. Wiener
Re: [QUAD-L] Roho
Hi Dan, I do sit to one side due to a severe scoliosis. I'm glad you had good results with the Quatro roho. I am definitely going to try it. As it is now, even the slight slope of a sidewalk will start my body tipping the wrong way. My spine is fused so there's not much they can do about that. Hopefully, this cushion will do the trick. Thanks for the help. Dan At 07:03 PM 4/30/2010, Danny Hearn said something that elicited my response: HI , Dan- I was just like you--I only used the regular high profile for most my years, then about a year ago mine got a leak and while my dme was checking it, they gave me a high profile quatro as a loaner--- well I liked it so much that I bought that one and have been on it every since--even after they gave me a new regular high profile to replace my old one. I was afraid to try the quatro because I never had pressure sore on leg or bottombut was asurred that the quatro is much better and safer with 4 compartments-you are protected still if one section loses air, plus if hips or uneven or posture is off---they can let the air out of one side some to correct that my seating specialist told us. I think i'll stay in the quatro for good-- and it seems more stable to me. Ono of the other Dan's on this list---( Dan H* ) From: Dan To: quad-list@eskimo.com Sent: Fri, April 30, 2010 5:39:31 PM Subject: [QUAD-L] Roho I've been using a high profile Roho cushion for years and I love the way it prevents pressure sores (for me anyway) but it's not very good for stability. Have any of you tried the high profile Quatro Roho? If so, can you give me some feed back? Dan Most people don't mind criticism as long as it's about someone else. -- Suzan L. Wiener
Re: [QUAD-L] Roho
HI , Dan- I was just like you--I only used the regular high profile for most my years, then about a year ago mine got a leak and while my dme was checking it, they gave me a high profile quatro as a loaner--- well I liked it so much that I bought that one and have been on it every since--even after they gave me a new regular high profile to replace my old one. I was afraid to try the quatro because I never had pressure sore on leg or bottombut was asurred that the quatro is much better and safer with 4 compartments-you are protected still if one section loses air, plus if hips or uneven or posture is off---they can let the air out of one side some to correct that my seating specialist told us. I think i'll stay in the quatro for good-- and it seems more stable to me. Ono of the other Dan's on this list---( Dan H* ) From: Dan To: quad-list@eskimo.com Sent: Fri, April 30, 2010 5:39:31 PM Subject: [QUAD-L] Roho I've been using a high profile Roho cushion for years and I love the way it prevents pressure sores (for me anyway) but it's not very good for stability. Have any of you tried the high profile Quatro Roho? If so, can you give me some feed back? Dan Most people don't mind criticism as long as it's about someone else. -- Suzan L. Wiener
[QUAD-L] Roho
I've been using a high profile Roho cushion for years and I love the way it prevents pressure sores (for me anyway) but it's not very good for stability. Have any of you tried the high profile Quatro Roho? If so, can you give me some feed back? Dan Most people don't mind criticism as long as it's about someone else. -- Suzan L. Wiener
Re: [QUAD-L] Unidentified subject!
I didn't use my chest strap, except in my van, for many years. On one particular occasion I was daydreaming as I crossed a wooden bridge and then it donned on me that I was going out into a busy sidewalk. So I sidled over to the left and accidentally hooked my left rear tire on the corner of the bridge. Since I was driving a Peachtree, it naturally through me to the left and I ended up barely off the sidewalk with my face all the way down at my knees and my rear wheels spinning hopelessly in the air. Thankfully it was a busy road and some wonderful gentleman who ride around in a golf cart doing work for the community came by and helped me out. What's truly sad is for 20 minutes cars drove by and did nothing. Thank goodness my image care at a bar that protected the actuator on the bottom of the wheelchair. That particular thing hooked a segment of the sidewalk as I was heading toward the ditch that I ended up dangling over. Then again there's that time I went off the sidewalk on the side of my house. I kept thinking I could get back up on the sidewalk in all I succeeded in doing was sliding further down the incline until I was wedged up against my neighbors wouldn't fence. Some of my neighbors came by about 20 minutes later and after getting more help from more neighbors, they were able to pull me out. Thankfully I was in the shade. That would've been a whole different story if I would've ended up in the sun down here in the middle of summer. It's 80° today and that's not even bad. Quadius PS I live in the Tampa area. On Wed, Apr 28, 2010 at 10:05 AM, greg wrote: > The other day I mentioned that I never go out by myself without my chest > strap on, or without my phone. That night I took my dog for a quick pee > check before bed. My chair is in the shop, so I'm in my backup. It has no > chest strap. Usually when I go out alone, I put a strap around my headrest > and my head and one arm. Since I was just going around the block... I > didn't... nor did I take my phone. > I'm part way around and my dog pees, so I turn around because it's shorter. > My rear wheel slips off the sidewalk into the gravel and is stuck just a > bit. My error was I was sitting with my back to far upright. So when my > chair jerks when it gets unstuck, I start to fall/tip forward. I've done > this before and my reflex is to gun the chair forward to help me sit back. I > stop myself / the chair, before I get to the edge, the the fast stop makes > me fall forward even more. I hit the joystick with my arm and off I go, > right off the curb. Good thing was I was going forward not sideways so no > tipping over. Plus my legrest hit the street and stopped my chair from going > further into the street. Bad news was my legrest hits the street and I make > a dead stop. No momentum to help me sit back up. > So I'm stuck half off the curb, tipped forward on my lap, with no phone. At > night not many cars drive by. Luckily I was there only about 3-4 minutes > when I heard loud taking in the school parking lot across the street. I > start yelling "CAN SOMEONE HELP ME" It took a minute of yelling before I > heard them yelling back that they were on there way over. A man and lady out > jogging. They were so nice, he was trying to sit me back up first, but was > so careful. Like he was going to break me. Then they were able to lift my > front wheels back up on the sidewalk. Then they asked if I needed them to > walk home with me :-) > > After 28 years, that was the first time going off a curb. Once my 5/6 year > old niece was on my lap driving and we went off our curb going fast, but it > is the curved/slopped kind. I go up/down them all the time, but I have to > tilt my back to go down it, then tilt all the way up to go up the curb, but > I do it very slow. > > Greg > >
Re: [QUAD-L] new to group with lots of questions
That's the same exact advice I got from my doctor. I have my spasms under control and he refused to even consider the pump unless I have some sort of problems with the medication. On Tue, Apr 27, 2010 at 1:23 PM, Aaron Mann wrote: > Welcome, Karan! While each of our disabilities affect each of us > differently, none of us are alone in this new adventure. > > My Uncle is a Dr. who studied the effects of indwelling medicinal pumps. > His advice: "Only as a very last resort." I took 20mg Baclofen 4x a day > for 20 years, then switched to 600mg Neurotin 3x a day. > > If you talk with a Dr. who really understands muscle spasms as the > neurological level AND understands what each of the receptor inhibitor drugs > do, then you will find the right option for your specific needs. > > I, too, have a son. He is a great motivator for me. I've been considering > writing a book on my experiences being a Dad in a chair. There are many > tricks I had to learn on my own in raising him. > > God bless and welcome. > > Aaron Mann > C4-5, 9/8/88 > > -Original Message- > From: karan alexander [mailto:kabea...@optonline.net] > Sent: Monday, April 26, 2010 6:59 PM > To: quad-list@eskimo.com > Subject: [QUAD-L] new to group with lots of questions > > Hi, I was walking with my children 2 yrs ago & was struck by a teen who > went off the road & struck me as I was bent over. I am c4, 5 & 6 > incomplete with feeling to the toes, just very altered sensation. I was > in the hospital for almost 1 yr. I use a manual chair & to amazement, I > have bladder sensation & bowels. Although I have my share of spasms (I > take 10mg ditropn b.i.d), leakages at night and my bowels respond every > 2-3 days with no added help. Pre-accident was normally every day. I > have lots of tone/spasticity in L. leg & am considering baclofen pump. > I only take 20mg now of baclofen which does nothing. Any higher dose > tires me & liver function tests go abnormal. I am hooked on 25mcg > fentanyl patches q48 hrs and still have pain. I refuse to add more > meds. I do not ever sleep for more than an hr. every night. Waking in > the a.m. is horrible - never used to be. I want to wean off fentanyl. > Since I transfer to toilet with the transfer board (lots of work), I > would love to find pants that help b/c I can't pull them up under me. > This injury has caused our world to turn upside down & some days it is > so overwhelming. My kids keep me going & God's healing. I feel like > I'm the only mom in the world going thru this. At the time of the > accident, I was 5wks from grad. college (RN). Since then, I graduated & > passed boards. Now what I LOVE nursing & it's not easy to find it > from a w/c. If I am assisted to stand, I can hold a walker for 5-10 > mins & a few steps - left leg hinders advancing it so dr. wants me to > consider pump. I have great use of my dominant hand & arm, left fingers > are closed. Anyway, I could go on forever, so thanks for listening. > >
Re: [QUAD-L] Health Aides, sicker then their clients........
mine's more like a piano - or a harmonica even. :( In a message dated 4/30/2010 12:32:50 P.M. US Mountain Standard Time, diannal...@aol.com writes: In a message dated 4/30/2010 3:23:50 PM Eastern Daylight Time, wheelch...@aol.com writes: Where has your organ come from? My Mommy & Daddy...so far. Fortunately!
Re: [QUAD-L] Health Aides, sicker then their clients........
In a message dated 4/30/2010 3:23:50 PM Eastern Daylight Time, wheelch...@aol.com writes: Where has your organ come from? My Mommy & Daddy...so far. Fortunately!
[QUAD-L] Health Aides, sicker then their clients........
Is it me or have I noticed that in far too many cases with healthcare aids and workers that they are often in worse health then the people who they take care of? The also applies to Doctors, Nurses and home aids. By Law, they don't have to disclose any health conditions or if they have or carry any infections while taking care of you. Has anyone else noticed this too? On a side note, organ donors and receivers More then 1/2 of our organ donations come from abroad. No, not women but rather from other countries. Where has your organ come from? Best Wishes
[QUAD-L] Fwd: 2010 Conference for People with Disabilities Call for Proposals
From: g...@subscriptions.in.gov To: wheelch...@aol.com Sent: 4/26/2010 1:47:31 P.M. Central Daylight Time Subj: 2010 Conference for People with Disabilities Call for Proposals The Governor's Council for People with Disabilities invites workshop proposals for the 2010 Annual Conference for People with Disabilities in Indianapolis, Indiana. Conference Theme: "Going Places" Conference Dates: Monday, December 6 and Tuesday, December 7 Conference Location: Hyatt Regency Indianapolis (Downtown) 1 South Capitol Avenue Indianapolis, IN 46204 Proposal Deadline: Completed proposals must be received by June 1, 2010. Proposals may be submitted using the _online proposal submission form_ (http://links.govdelivery.com/track?type=click&enid=bWFpbGluZ2lkPTgwMDUwMiZtZXNz YWdlaWQ9UFJELUJVTC04MDA1MDImZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0xMjE1NzU1NjY5JmVt YWlsaWQ9d2hlZWxjaGFpckBhb2wuY29tJnVzZXJpZD13aGVlbGNoYWlyQGFvbC5jb20mZXh0cmE9 JiYm&&&100&&&http://www.surveygizmo.com/s3/250299/proposals) or by email to _ccr...@gpcpd.org_ (mailto:ccr...@gpcpd.org) Update your subscriptions, modify your password or e-mail address, or stop subscriptions at any time on your _Subscriber Preferences Page_ (http://links.govdelivery.com/track?type=click&enid=bWFpbGluZ2lkPTgwMDUwMiZtZXNzYWdlaWQ 9UFJELUJVTC04MDA1MDImZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0xMjE1NzU1NjY5JmVtYWlsaWQ 9d2hlZWxjaGFpckBhb2wuY29tJnVzZXJpZD13aGVlbGNoYWlyQGFvbC5jb20mZXh0cmE9JiYm&&& 101&&&https://service.govdelivery.com/service/user.html?code=INSTATE) . You will need to use your e-mail address to log in. If you have questions or problems with the subscription service, please contact _supp...@subscriptions.in.gov_ (mailto:supp...@govdelivery.com) . This service is provided to you at no charge by the _State of Indiana_ (http://links.govdelivery.com/track?type=click&enid=bWFpbGluZ2lkPTg wMDUwMiZtZXNzYWdlaWQ9UFJELUJVTC04MDA1MDImZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0xMjE1NzU1NjY5JmVt YWlsaWQ9d2hlZWxjaGFpckBhb2wuY29tJnVzZXJpZD13aGVlbGNoYWlyQGFvbC5jb20mZXh0cmE9 JiYm&&&102&&&http://www.in.gov/) . _Click here_ (http://links.govdelivery.com/track?type=click&enid=bWFpbGluZ2lkPTgwMDUwMiZtZXNzYWdlaWQ9UFJELUJVTC04MDA1MDImZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0 xMjE1NzU1NjY5JmVtYWlsaWQ9d2hlZWxjaGFpckBhb2wuY29tJnVzZXJpZD13aGVlbGNoYWlyQGF vbC5jb20mZXh0cmE9JiYm&&&103&&&http://www.in.gov/silveralert/) to receive Silver Alerts. (http://links.govdelivery.com/track?type=click&enid=bWFpbGluZ2lkPTgwMDUwMiZtZXNzYWdlaWQ9UFJELUJVTC04MDA1MDImZGF0YWJhc2VpZD0xMDAxJnNlcmlhbD0xMjE1NzU1NjY 5JmVtYWlsaWQ9d2hlZWxjaGFpckBhb2wuY29tJnVzZXJpZD13aGVlbGNoYWlyQGFvbC5jb20mZXh 0cmE9JiYm&&&104&&&http://www.addthis.com/bookmark.php?pub=govdelivery&url=ht tp://sharing.govdelivery.com/bulletins/GD/INSTATE-C36F6&title= Bookmark+and+Share) GovDelivery, Inc. sending on behalf of State of Indiana · 200 West Washington Street · Indianapolis IN 46204 · 800-457-8283
