[QUAD-L] UTI Help
In the past I have spent hundreds of dollars looking for over the counter UTI cures. One of my favorites that I believe works is online called ' UTi RELIEF ". It is marketed in tablet as a female item but as a male I find resolve in 24 ours. Acting ingredient is Phenazopyridine Hydrochloride. Urine turns red but has cleared up many a bad times. Colloidal Silver is expensive but has also worked. Much info on google. Merrill
Re: [QUAD-L] Question
Since I switched to 1000mg vitamin C and 2 cranberry pills each day. I've been UTI free. I have some ph strips around here somewhere. I'll test when I find them. AZDAVE In a message dated 5/25/2010 11:28:10 A.M. US Mountain Standard Time, lissw...@hotmail.com writes: My sweats happen only when I'm in my chair, they're pretty mild though and very sporadically and only last for a little while. I'm guessing they are do to bladder stones because my urine has been pretty sandy lately, I'm taking apple cider vinegar and it seems to be helping. I'm wondering about Tom though, he says he had all those tests done and they found nothing. Thanks for the input. Lissette Whitehead _www.lissettesgoaltowalk.synthasite.com_ (http://www.lissettesgoaltowalk.synthasite.com/) _www.lwgripgloves.com_ (http://www.lwgripgloves.com/) Date: Tue, 25 May 2010 11:01:06 -0700 From: thequadl...@yahoo.com Subject: Re: [QUAD-L] Question To: quad-list@eskimo.com Tom, Just curious, but are you experiencing it both in bed and up in your chair? I sometimes have sweating while in bed but pretty much never up in my chair. My first thought of course is either my bladder or bowels. If they are fine then it's something hurting else where. At times it's such a frustrating mystery. Tim _http://thequadlink.com_ (http://thequadlink.com/) --- On Mon, 5/24/10, Thomas E. Cusack wrote: From: Thomas E. Cusack Subject: [QUAD-L] Question To: quad-list@eskimo.com Date: Monday, May 24, 2010, 12:44 PM Hello! I've followed alot of your comments and questions and now I have one of my own. I've been sweating on and off for about five weeks. The sweats are not continous but sporatic and intermittent. I've gone tomy urologist in case it's an UTI and initially it was, I took the antibiotics and things calmed down. Then then came roaring back and more antibiotics. The urine is relatively clean (for me) and I'm still sweating like a dog. The dr.'s are thinking that I should go to a neurologist. The ultrasound and KUB Xray don't show anything/any reason for the sweats. Oh, I only sweat on the right side of my upper torso and head. 39 years post injury C6/7 Tom The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. _Get busy._ (http://www.windowslive.com/campaign/thenewbusy?tile=multicalendar&ocid=PID28326::T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_5) =
[QUAD-L]
Hi GA, I too have suffered from AD for yrs on and off. doing good now. I can never find anything wrong and it only happens when I sit up. Right side as well. I have low blood pressure as a norm but have never checked it while sweating. I take ditropane at night if it comes on and it helps. also,for me it seems air circulation and humidity bring it on. also heat. so I use dehumidifiers in winter and summer and air conditioning in summer, I live in RI on an island (HUMID). but today its very humid and hot and I have no air conditioner and am doing ok. so, go figure,its a strange thing. I am a woman and we heat up more. I am also 50 now so? years back, I had it so bad I went to acupuncturist and it stopped it completely for a year. I went back again and it didn't work. that's when I figured it was humidity.I feel for those of us who have it. I can take pain better than sweating. for me its debilitating. hope this helps. Best, Shirley Bell Best, Shirley Bell www.ShirleyBellDesigns.com
RE: [QUAD-L] autonomic dysreflexia
I, too, have experienced the sweats. I sweat on my left shoulder and forehead (primarily left side there too). My sweats have occurred due to any type of pain I'm experiencing. Like when urinating with a UTI or seat cushion being too flat. I actually rely on this reaction for telling me there's something up that I need to take care of. Aaron Mann C4-5, 1988 From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Tuesday, May 25, 2010 9:32 AM To: steve.olda...@comcast.net; gah17...@aol.com; quad-list@eskimo.com Subject: Re: [QUAD-L] autonomic dysreflexia I agree, and could not have said it better. So I didn't. Best Wishes In a message dated 5/25/2010 9:30:58 A.M. Central Daylight Time, steve.olda...@comcast.net writes: The symptoms that you, Lissette and Tom have described do in fact seem to indicate autonomic dysreflexia. This dysreflexia is usually triggered by some form of trauma within the body. UTIs and bowel issues have already been mentioned. Kidney stones, pressure sores and even ingrown toenails are also common triggers. If antibiotics seem to reduce the dysreflexia, infections are most likely the cause. I hope you all find relief ASAP. Steve - C4, 22 years From: gah17...@aol.com [mailto:gah17...@aol.com] Sent: Tuesday, May 25, 2010 7:42 AM To: quad-list@eskimo.com Subject: [QUAD-L] autonomic dysreflexia I appear to have a classic case of AD, except my blood pressure can be high ex:195/114, and 20 minutes later 95/65. Over the past 30 years I have experienced this numerous times numerous doctors and tests. When BP is high I am clammy and sweaty, washed out, weak when it is low. Staying on normal meds, ditropan, Bactrim, etc. it will usually start to lessen in a few weeks and begone by 3-4 weeks. Urine is clear, bowel normal, just feel like ... I am once again seeing another doctor this week. It would be nice to put this issue to bed. Anyone wish to share stories and treatments? Thanks, GA
[QUAD-L] Stem Cells
Hi My Friends I want To Ask,If Anybody Of You Took a stem cells treatmentAnd What you Think about it ?I know some people who took this treatment in china,Germany and Russiaand they have some progress.So I want To Know What You Think about This Treatment?any informations,centers... God Bless You Hotmail: Powerful Free email with security by Microsoft. Get it now. _ Hotmail: Trusted email with Microsoft’s powerful SPAM protection. https://signup.live.com/signup.aspx?id=60969
RE: [QUAD-L] Question
My sweats happen only when I'm in my chair, they're pretty mild though and very sporadically and only last for a little while. I'm guessing they are do to bladder stones because my urine has been pretty sandy lately, I'm taking apple cider vinegar and it seems to be helping. I'm wondering about Tom though, he says he had all those tests done and they found nothing. Thanks for the input. Lissette Whitehead www.lissettesgoaltowalk.synthasite.com www.lwgripgloves.com Date: Tue, 25 May 2010 11:01:06 -0700 From: thequadl...@yahoo.com Subject: Re: [QUAD-L] Question To: quad-list@eskimo.com Tom, Just curious, but are you experiencing it both in bed and up in your chair? I sometimes have sweating while in bed but pretty much never up in my chair. My first thought of course is either my bladder or bowels. If they are fine then it's something hurting else where. At times it's such a frustrating mystery. Tim http://thequadlink.com --- On Mon, 5/24/10, Thomas E. Cusack wrote: From: Thomas E. Cusack Subject: [QUAD-L] Question To: quad-list@eskimo.com Date: Monday, May 24, 2010, 12:44 PM Hello! I've followed alot of your comments and questions and now I have one of my own. I've been sweating on and off for about five weeks. The sweats are not continous but sporatic and intermittent. I've gone tomy urologist in case it's an UTI and initially it was, I took the antibiotics and things calmed down. Then then came roaring back and more antibiotics. The urine is relatively clean (for me) and I'm still sweating like a dog. The dr.'s are thinking that I should go to a neurologist. The ultrasound and KUB Xray don't show anything/any reason for the sweats. Oh, I only sweat on the right side of my upper torso and head. 39 years post injury C6/7 Tom _ The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. http://www.windowslive.com/campaign/thenewbusy?tile=multicalendar&ocid=PID28326::T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_5
Re: [QUAD-L] Question
Tom, Just curious, but are you experiencing it both in bed and up in your chair? I sometimes have sweating while in bed but pretty much never up in my chair. My first thought of course is either my bladder or bowels. If they are fine then it's something hurting else where. At times it's such a frustrating mystery. Tim http://thequadlink.com --- On Mon, 5/24/10, Thomas E. Cusack wrote: From: Thomas E. Cusack Subject: [QUAD-L] Question To: quad-list@eskimo.com Date: Monday, May 24, 2010, 12:44 PM Hello! I've followed alot of your comments and questions and now I have one of my own. I've been sweating on and off for about five weeks. The sweats are not continous but sporatic and intermittent. I've gone tomy urologist in case it's an UTI and initially it was, I took the antibiotics and things calmed down. Then then came roaring back and more antibiotics. The urine is relatively clean (for me) and I'm still sweating like a dog. The dr.'s are thinking that I should go to a neurologist. The ultrasound and KUB Xray don't show anything/any reason for the sweats. Oh, I only sweat on the right side of my upper torso and head. 39 years post injury C6/7 Tom
Re: [QUAD-L] My Dilemma
Hi, I had a urostomy 3 years ago. Surgery is quite big and was not easy to recover but I made it ! I still have bladder in place just not used at all. It took 3 weeks in hospital but no problems re urostomy leaks or skin since at all. You need someone to change every 2-4 days though. I needed urostomy as I had kidney reflux so supra pubic catheta was no longer viable. An SP catheta might be a better as a first try ? Regards, Mark Age 45 C3/4 Complete since 1986 http://www.markbb.co.uk On 18 May 2010, at 20:40, bob quinn wrote: > Hi Naomi, > > I have a Urostomy, as you describe. It is also known as an Ilial Loop. > > Its a long story why I had one. Originally, I had a Suprapubic Tube (which > was no picnic and resulted in a number of trips to the ER). They didn't > discover my bladder stones until after countless back-to-back UTIs, but by > then my bladder was a breeding ground. I did get multiple opinions from > different urologists in different hospitals --that all agreed-- before I > proceeded. > > I've had the Urostomy for about 7 years now, with relatively good success. > It took a while to find a way to get the Urostomy bags to adhere (i.e., not > leak). I now use Torbot Bonding Cement, which allows me to keep a bag on for > up to about 4 days w/o changing (just doing a water rinse of the bag each > morning) ...though it still will spring a leak once in a while. > > The great thing about the Urostomy is that I haven't had a UTI since I got > it. Other than the occasional leak, I haven't had any other problems with it. > > The surgery itself is major. Even without complications, it required a > two-week+ stay in the hospital, since it involved the intestinal tract. > Hasn't required any follow-ups after the initial one or two in the weeks and > months after the surgery, however. In that regard, its been > maintenance-free. > > As for how you will fare having Crohn's disease, I couldn't even guess. That > is an unfortunate wildcard. Speaking as one who has spent a day in > urine-soaked pants on a number of occasions (after Urostomy bag leaks), I can > say I would not recommend using diapers. Between just being wet and the > urine's acidity, its brutal on the skin, causing rashes. I have never had > any sores from it, though it would not surprise me to see it cause them or > some other skin condition if you had to do it every day. > > I hope that helps, Naomi. If you have other questions, feel free to ask > anytime. > > Regards, > bob quinn > > At 07:31 PM 5/17/2010, ladyno...@aol.com wrote: >> I am a C-4 quad with an indwelling Foley catheter. My urologist says that my >> urethra is eroding, and suggests I have a procedure called a urostomy. He >> performed a procedure called Urodynamic, which measures the amount of urine >> your bladder can hold. Mine is holding less than an ounce of urine. So now >> he wants to remove my bladder, and make me a new one using part of my small >> intestine. During this procedure, both ureters are relocated, a new bladder >> is made, and urine as directed from the body through a stoma in the abdomen, >> which connects to a bag that adheres to the skin. I am going to the hospital >> on Tuesday to have an MRI, to make sure that it's safe for me to have this >> procedure because I also have Crohn's disease and disturbing my small >> intestine, may cause my Crohn's to flareup (which is a very terrible >> thing).> "urn:schemas-microsoft-com:office:office" /> >> >> My dilemma is this: I have to choose between having this very invasive >> surgery, and all of that may come after it including infection from many >> sources, including the new bladder, ureter relocation, the stoma, and skin >> irritation from the adhesive for the bag, and not to mention the Crohn's >> flareup >> >> Or. >> >> I can wear incontinent briefs which I don't have anyone to change them, >> because there's just me and my 80 year old mother, living together. She >> won't be able to change them throughout the day. I have an aide comes in the >> morning and gives me a bed bath and get me in my wheelchair. The rest of the >> day, there's just me and my mom here until bedtime (around 9:00 PM) when my >> nighttime aide comes to put me to bed. My catheter bag is usually not >> emptied from morning to night. My mom cannot handle me to change briefs, and >> if they're left on, I would have all types of sores. >> >> Does anyone on this list have a urostomy? If so, how is it working for you? >> I would love to hear what others have to say regarding my dilemma. >> >> Naomi. >> C-4 quadriplegic due to Transverse Myelitis >> since July 2, 2005 >> >> Have a Blessed Day, Naomi
Re: [QUAD-L] autonomic dysreflexia
I agree, and could not have said it better. So I didn't. Best Wishes In a message dated 5/25/2010 9:30:58 A.M. Central Daylight Time, steve.olda...@comcast.net writes: The symptoms that you, Lissette and Tom have described do in fact seem to indicate autonomic dysreflexia. This dysreflexia is usually triggered by some form of trauma within the body. UTIs and bowel issues have already been mentioned. Kidney stones, pressure sores and even ingrown toenails are also common triggers. If antibiotics seem to reduce the dysreflexia, infections are most likely the cause. I hope you all find relief ASAP. Steve - C4, 22 years From: gah17...@aol.com [mailto:gah17...@aol.com] Sent: Tuesday, May 25, 2010 7:42 AM To: quad-list@eskimo.com Subject: [QUAD-L] autonomic dysreflexia I appear to have a classic case of AD, except my blood pressure can be high ex:195/114, and 20 minutes later 95/65. Over the past 30 years I have experienced this numerous times numerous doctors and tests. When BP is high I am clammy and sweaty, washed out, weak when it is low. Staying on normal meds, ditropan, Bactrim, etc. it will usually start to lessen in a few weeks and begone by 3-4 weeks. Urine is clear, bowel normal, just feel like ... I am once again seeing another doctor this week. It would be nice to put this issue to bed. Anyone wish to share stories and treatments? Thanks, GA
RE: [QUAD-L] autonomic dysreflexia
The symptoms that you, Lissette and Tom have described do in fact seem to indicate autonomic dysreflexia. This dysreflexia is usually triggered by some form of trauma within the body. UTIs and bowel issues have already been mentioned. Kidney stones, pressure sores and even ingrown toenails are also common triggers. If antibiotics seem to reduce the dysreflexia, infections are most likely the cause. I hope you all find relief ASAP. Steve - C4, 22 years From: gah17...@aol.com [mailto:gah17...@aol.com] Sent: Tuesday, May 25, 2010 7:42 AM To: quad-list@eskimo.com Subject: [QUAD-L] autonomic dysreflexia I appear to have a classic case of AD, except my blood pressure can be high ex:195/114, and 20 minutes later 95/65. Over the past 30 years I have experienced this numerous times numerous doctors and tests. When BP is high I am clammy and sweaty, washed out, weak when it is low. Staying on normal meds, ditropan, Bactrim, etc. it will usually start to lessen in a few weeks and begone by 3-4 weeks. Urine is clear, bowel normal, just feel like ... I am once again seeing another doctor this week. It would be nice to put this issue to bed. Anyone wish to share stories and treatments? Thanks, GA
[QUAD-L] autonomic dysreflexia
I appear to have a classic case of AD, except my blood pressure can be high ex:195/114, and 20 minutes later 95/65. Over the past 30 years I have experienced this numerous times numerous doctors and tests. When BP is high I am clammy and sweaty, washed out, weak when it is low. Staying on normal meds, ditropan, Bactrim, etc. it will usually start to lessen in a few weeks and begone by 3-4 weeks. Urine is clear, bowel normal, just feel like ... I am once again seeing another doctor this week. It would be nice to put this issue to bed. Anyone wish to share stories and treatments? Thanks, GA
