[QUAD-L] Finally got my chair
I finally got my wheelchair. Wheel chairs are more comfortable than regular chairs for me because they do not let my feet dangle. I'm on the shorter side so I have that problem. This chair is better suited to me because it doesn't put pressure on my tailbone which causes me a lot of problems. The bottom that I sit on doesn't go all the way to the bad of the chair, it is about an inch shorter and it makes such a difference. I'm not sure if they ordered it that way because of how the doctor wrote the prescription or what, but I am thankful for that. It is a Invacare Tracer and has a nylon type fabric seat covers instead of the leather/leather like and so my back doesn't sweat. The legs of my old chair used to have a weird bolt like appendage that would hit my legs a couple of inches below my knee which caused a callous and this one doesn't have that so hopefully the callous will go away. Candle "Scars remind of us where we’ve been, they don’t have to dictate where we are going." ~David Rossi of Criminal Minds ***
Re: [QUAD-L] I need a friend
Hi Bobby, Is there anyway for you to find a support group in your area for spinal cord injury people? I have dealt with a wound that won't heal for over two years. I'm supposed to be on bed rest, but the doctor is now worried that the sore won't go away so I am on light activity which means that I can get out of bed and into my wheel chair on my good days. I'm not supposed to spend a lot of time on my feet. So I try not to. I did cheat and go Christmas shopping last winter. I do go on errands for groceries if my body is willing and I am going somewhere I can ride an electric cart. Otherwise, I'm in the home. You have gone through a great deal. Your burning out and showing signs of depression, but I'm sure you know that by your post. The best way to fight depression is to get something to motivate or interest you. That can be anything from a hobby, to a club, to a pet, to a good book. I do a lot of reading. We have five pets. I also sew and craft when I can. Socializing can help, but sometimes when I place my faith in people, they can let me down. I hate hearing how I'm such an "inspiration" by people who are able to fully function and have no idea what I go through. I also have people who like to use me because I care. I hate being manipulated by those type of people. I had to go to a social gathering where one of the biggest users of my life appeared. The topic of discussion was about our favorite characters in books, shows, and movies. I listed some evil and selfish characters. The user said how she was surprised that I would list those type of characters because I am so sweet. I was very blunt and said that I am trying to be more like them so that I wouldn't have bitchy selfish people treat me like crap. I explained how I would have had to deal with so much less stress and abuse if I had not been so nice. She knew I was talking about her, everyone in the room did. No one knew what to say. I kept my eyes on her a bit longer and then turned to one of the quieter ones in the room that often get overlooked. I smiled at her and asked who her favorites were and why. The conversation continued and everyone fell back into the conversation, but I got my message out and that made me feel better. So for me, socializing isn't a big one, but that is because I have no one who knows or has had to deal with an SCI in my off-line world so sometimes, the stress is less if I am by myself. Once my wound is better or the doctor gives me the okay. I'll go back to my sewing clubs, church groups, and volunteer opportunities (sewing for charities). They don't know about my SCI or what I have to deal with, but I feel a sense of accomplishments sewing for others. My favorite is sewing pet quilts and blankets for the animal shelter. Animals aren't gossipy and are very behavior oriented and I need that. WIth our pets, they are spoiled and have their own personalities, but they don't back stab. They love attention and love treats and I can deal with that one my worst days. It is nice having someone (I really personify my little ones) thrilled to see me or spend time with me. I hope that you can find a solution. If you have a crisis line in your area, maybe you can call them to vent to have a safe person to talk to. They might even know of services or how to contact other quads in your area. I used to work on a crisis line and often people would call because they didn't know who to talk to or they had no one. Sometimes, it was easier for them to talk to a stranger that they didn't know than to talk to a friend or relative that they would have to continuously see. Candle "Scars remind of us where we’ve been, they don’t have to dictate where we are going." ~David Rossi of Criminal Minds *** From: Bobbie Humphreys To: "Quad-list@eskimo.com" Sent: Wednesday, May 16, 2012 10:09 PM Subject: [QUAD-L] I need a friend Everybody, I use to have a few friends how were quads, about 5 near me. We could talk to each other good or bad ~ we were there for each other. Today all have either moved away or died. Dose anybody have any ideas as to how I can find another quad friend? I REALLY need to talk to a fellow quad, and soon. I just can't stop crying. I've been stuck in bed since February and am now starting to get up, but as strange as it may sound, I find it easier to stay in bed … I get into a routine. But once I start getting up it's in drubs and drabs. When I'm up and the weather is nice, I see everyday normal people doing all the things I can't. Or hearing about where they've been or where there going to be doing. I can't make plans. Every time I make plans for the near future, the rug can be pulled out from under me at a movements notice because of a goddam sore on my butt that is super fiscal but enough to ground me. I can only ride in my van once
Re: [QUAD-L] YOU are all my quad friends
That is a lot of responsibility they placed on you. It is also a great honor. I hope everything goes well. I think it woud be so stressful to deal with that kind of thing. Candle "Scars remind of us where we’ve been, they don’t have to dictate where we are going." ~David Rossi of Criminal Minds *** From: Bobbie Humphreys To: "Quad-list@eskimo.com" Sent: Thursday, May 17, 2012 9:29 PM Subject: [QUAD-L] YOU are all my quad friends Hi All, I could't be luckier to have ALL of you to "vent" of my frustrations. Today I met with a pastor who is going to be leading the memorial service's for my Dad on June 2nd. My family has put me in charge of the entire "event." the guest list, contacting them, catering, picking the menu, ordering and getting someone to pick it up, shop for all the plate's, cups and plastic wear. Bobbie Sent from my iPad
Re: [QUAD-L] YOU are all my quad friends
I think it's stress she doesn't need & doesn't have the health to do so if she's trying to heal a wound from bed. Dianna Bobbie, it looks like you will be quite busy for a while. And that is good. May you continue to do well. Best Wishes -Original Message- From: wheelchair To: bobbie299 ; quad-list Sent: Thu, May 17, 2012 10:19 pm Subject: Re: [QUAD-L] YOU are all my quad friends Bobbie, it looks like you will be quite busy for a while. And that is good. May you continue to do well. Best Wishes In a message dated 5/17/2012 9:17:23 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, I could't be luckier to have ALL of you to "vent" of my frustrations. Today I met with a pastor who is going to be leading the memorial service's for my Dad on June 2nd. My family has put me in charge of the entire "event." the guest list, contacting them, catering, picking the menu, ordering and getting someone to pick it up, shop for all the plate's, cups and plastic wear. Bobbie Sent from my iPad
Re: [QUAD-L] YOU are all my quad friends
Bobbie, it looks like you will be quite busy for a while. And that is good. May you continue to do well. Best Wishes In a message dated 5/17/2012 9:17:23 P.M. Central Daylight Time, bobbie...@aol.com writes: Hi All, I could't be luckier to have ALL of you to "vent" of my frustrations. Today I met with a pastor who is going to be leading the memorial service's for my Dad on June 2nd. My family has put me in charge of the entire "event." the guest list, contacting them, catering, picking the menu, ordering and getting someone to pick it up, shop for all the plate's, cups and plastic wear. Bobbie Sent from my iPad
[QUAD-L] YOU are all my quad friends
Hi All, I could't be luckier to have ALL of you to "vent" of my frustrations. Today I met with a pastor who is going to be leading the memorial service's for my Dad on June 2nd. My family has put me in charge of the entire "event." the guest list, contacting them, catering, picking the menu, ordering and getting someone to pick it up, shop for all the plate's, cups and plastic wear. Bobbie Sent from my iPad
RE: [QUAD-L] Natural Remedies for ED for Us
Best answer I can imagine! J Now for the girls = slow music, champagne, someone-oh well, you get my drift. Joan From: Greg [mailto:mongrelti...@gmail.com] Sent: Thursday, May 17, 2012 2:48 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] Natural Remedies for ED for Us Closing my eyes and picturing the cover of the 09 February 1987 issue of Sports Illustrated always worked for me. If you're careful with the magazine, it could serve as a lifetime prescription. Greg On Thu, May 17, 2012 at 2:56 PM, wrote: Hey, Any guys use or heard of a natural remedy for erectile dysfunction? Viagra, Levitra, etc are expensive plus they come with side effects. Thanks Larry
Re: [QUAD-L] I need a friend
I'm sorry your feeling so down Bobbie. I know you've gone through al ot. Your Dad & a never ending sore. I can't relate to being in bed from a sore (not yet). I think, like others have suggested that you need to talk to your dr. for anti-depressants. In the mean time have some BEERS and play the MUSIC loud!!! Dianna From: Bobbie Humphreys Date: 5/16/2012 7:58:04 PM To: Quad-list@eskimo.com Subject: [QUAD-L] I need a friend Everybody, I use to have a few friends how were quads, about 5 near me. We could talk to each other good or bad ~ we were there for each other. Today all have either moved away or died. Dose anybody have any ideas as to how I can find another quad friend? I REALLY need to talk to a fellow quad, and soon. I just can't stop crying. I've been stuck in bed since February and am now starting to get up, but as strange as it may sound, I find it easier to stay in bed I get into a routine. But once I start getting up it's in drubs and drabs. When I'm up and the weather is nice, I see everyday normal people doing all the things I can't. Or hearing about where they've been or where there going to be doing. I can't make plans. Every time I make plans for the near future, the rug can be pulled out from under me at a movements notice because of a goddam sore on my butt that is super fiscal but enough to ground me. I can only ride in my van once a week because the bumps in the road cause irritation on my butt. I use to drive but now I can't same reason as I just mentioned. Pete is doing more and I'm doing less. I'm just existing, not LIVING. I want to die! Bobbie Sent from my iPad -Original Message- From: kwig5 To: quad-list ; Bobbie Humphreys Sent: Wed, May 16, 2012 11:37 pm Subject: Re: [QUAD-L] I need a friend Oh my god Bobbie, your message made me cry. I'm so sorry you feel this way. I can totally relate to how you feel. I've been in bed for 1 1/2 years with a pressure sore. I just started getting up a few weeks ago. I get the frustration of not being able to make plans due to the unpredictability of my body. I've felt at times it's easier to stay in bed. My attendant will be here any minute so I can't spend as much time today talking with you. But I wanted you to know your not alone. Please try and hang in there and I'll get back in touch with you tomorrow. Your in my prayers. If I can help you, I will. Kathy Ludwig C4-5 ---Original Message--- From: Bobbie Humphreys Date: 5/16/2012 7:58:04 PM To: Quad-list@eskimo.com Subject: [QUAD-L] I need a friend Everybody, I use to have a few friends how were quads, about 5 near me. We could talk to each other good or bad ~ we were there for each other. Today all have either moved away or died. Dose anybody have any ideas as to how I can find another quad friend? I REALLY need to talk to a fellow quad, and soon. I just can't stop crying. I've been stuck in bed since February and am now starting to get up, but as strange as it may sound, I find it easier to stay in bed I get into a routine. But once I start getting up it's in drubs and drabs. When I'm up and the weather is nice, I see everyday normal people doing all the things I can't. Or hearing about where they've been or where there going to be doing. I can't make plans. Every time I make plans for the near future, the rug can be pulled out from under me at a movements notice because of a goddam sore on my butt that is super fiscal but enough to ground me. I can only ride in my van once a week because the bumps in the road cause irritation on my butt. I use to drive but now I can't same reason as I just mentioned. Pete is doing more and I'm doing less. I'm just existing, not LIVING. I want to die! Bobbie Sent from my iPad
Re: [QUAD-L] Natural Remedies for ED for Us
Closing my eyes and picturing the cover of the 09 February 1987 issue of Sports Illustrated always worked for me. If you're careful with the magazine, it could serve as a lifetime prescription. Greg On Thu, May 17, 2012 at 2:56 PM, wrote: > Hey, > > Any guys use or heard of a natural remedy for erectile dysfunction? > Viagra, Levitra, etc are expensive plus they come with side effects. > > Thanks > Larry >
Re: [QUAD-L] I need a friend
Hiya Bobby, I can't imagine what you are experiencing. I never will. You are most fortunate to have Pete, but I'm sure that you know already. I would normally suggest that you contact your doctor, about the depression and a local CIL, but if I remember... you are presently a member of your local CIL. What I can offer you is support when ever you email or are in need of someone to talk with. I'm a great listener. Make sure that your Primary Doctor is aware of your physical and mental issues.. Best Wishes In a message dated 5/16/2012 9:57:59 P.M. Central Daylight Time, bobbie...@aol.com writes: Everybody, I use to have a few friends how were quads, about 5 near me. We could talk to each other good or bad ~ we were there for each other. Today all have either moved away or died. Dose anybody have any ideas as to how I can find another quad friend? I REALLY need to talk to a fellow quad, and soon. I just can't stop crying. I've been stuck in bed since February and am now starting to get up, but as strange as it may sound, I find it easier to stay in bed … I get into a routine. But once I start getting up it's in drubs and drabs. When I'm up and the weather is nice, I see everyday normal people doing all the things I can't. Or hearing about where they've been or where there going to be doing. I can't make plans. Every time I make plans for the near future, the rug can be pulled out from under me at a movements notice because of a goddam sore on my butt that is super fiscal but enough to ground me. I can only ride in my van once a week because the bumps in the road cause irritation on my butt. I use to drive but now I can't … same reason as I just mentioned. Pete is doing more and I'm doing less. I'm just existing, not LIVING. I want to die! Bobbie Sent from my iPad
[QUAD-L] Natural Remedies for ED for Us
Hey, Any guys use or heard of a natural remedy for erectile dysfunction? Viagra, Levitra, etc are expensive plus they come with side effects. Thanks Larry
Re: [QUAD-L] I need a friend
Call NSCIA http://www.spinalcord.org/ They will assist you with a mentor in your area or the Reeve Foundation On May 16, 2012, at 11:09 PM, Bobbie Humphreys wrote: > Everybody, > I use to have a few friends how were quads, about 5 near me. We > could talk to each other good or bad ~ we were there for each other. Today > all have either moved away or died. Dose anybody have any ideas as to how I > can find another quad friend? I REALLY need to talk to a fellow quad, and > soon. I just can't stop crying. I've been stuck in bed since February and am > now starting to get up, but as strange as it may sound, I find it easier to > stay in bed … I get into a routine. But once I start getting up it's in drubs > and drabs. When I'm up and the weather is nice, I see everyday normal people > doing all the things I can't. Or hearing about where they've been or where > there going to be doing. I can't make plans. Every time I make plans for the > near future, the rug can be pulled out from under me at a movements notice > because of a goddam sore on my butt that is super fiscal but enough to ground > me. > I can only ride in my van once a week because the bumps in the road cause > irritation on my butt. I use to drive but now I can't … same reason as I just > mentioned. > Pete is doing more and I'm doing less. I'm just existing, not LIVING. I > want to die! Bobbie > > Sent from my iPad
Re: Fwd: [QUAD-L] I need a friend
Hi Bobbie, Perhaps you have a local ILC - Independent Living Center who can connect you to quad friends in your area? I also concur with Larry and take Lexipro and Ativan to deal with anxiety and depression. Best to you, Patrick From: Larry Willis To: quad-list@eskimo.com Sent: Thu, May 17, 2012 7:00:38 AM Subject: Fwd: [QUAD-L] I need a friend Bobbie, obviously you are seriously depressed with good reason. Life has been a bitch to you as it has to most of us quads. I have a sore about 3 x 4 on my butt right now that refuses to heal. It has been that way for 7 years! But As long as it remains stable, I refuse to stay in bed. I dress it morning and night, sit on a Roho, and go on my merry way. If fate nabs me with an ugly bacteria, so be it. At least I went down on my own terms. I also take an antidepressant. That helps a great deal. I highly recommend it. I take Paxil and Xanax to keep me steady. I am a firm believer that if there is a chemical that will make my life more tolerable, bring it on. None of this "purity and nobility of suffering" for me. Pointless. Hang in there, Bobbie. I know these are just empty words that change nothing, but try not to dwell on what "might have been". Those thoughts will throw you in a hole and shovel dirt over you. God bless you. Chin up, my friend. Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com >From: "kw...@comcast.net" >Date: May 16, 2012 23:37:12 EDT >To: , "Bobbie Humphreys" >Subject: Re: [QUAD-L] I need a friend > > > >Oh my god Bobbie, your message made me cry. I'm so sorry you feel this way. I >can totally relate to how you feel. I've been in bed for 1 1/2 years with a >pressure sore. I just started getting up a few weeks ago. I get the >frustration >of not being able to make plans due to the unpredictability of my body. I've >felt at times it's easier to stay in bed. My attendant will be here any minute >so I can't spend as much time today talking with you. But I wanted you to know >your not alone. Please try and hang in there and I'll get back in touch with >you >tomorrow. Your in my prayers. If I can help you, I will. >Kathy Ludwig >C4-5 > > >---Original Message--- > >From: Bobbie Humphreys >Date: 5/16/2012 7:58:04 PM >To: Quad-list@eskimo.com >Subject: [QUAD-L] I need a friend > >Everybody, > I use to have a few friends how were quads, about 5 near me. We >could talk to each other good or bad ~ we were there for each other. Today all >have either moved away or died. Dose anybody have any ideas as to how I can >find >another quad friend? I REALLY need to talk to a fellow quad, and soon. I just >can't stop crying. I've been stuck in bed since February and am now starting >to >get up, but as strange as it may sound, I find it easier to stay in bed … I >get >into a routine. But once I start getting up it's in drubs and drabs. When I'm >up >and the weather is nice, I see everyday normal people doing all the things I >can't. Or hearing about where they've been or where there going to be doing. I >can't make plans. Every time I make plans for the near future, the rug can be >pulled out from under me at a movements notice because of a goddam sore on my >butt that is super fiscal but enough to ground me. > I can only ride in my van once a week because the bumps in the road cause >irritation on my butt. I use to drive but now I can't … same reason as I just >mentioned. > Pete is doing more and I'm doing less. I'm just existing, not LIVING. I > want >to die! Bobbie > >Sent from my iPad > > > >
Fwd: [QUAD-L] I need a friend
Bobbie, obviously you are seriously depressed with good reason. Life has been a bitch to you as it has to most of us quads. I have a sore about 3 x 4 on my butt right now that refuses to heal. It has been that way for 7 years! But As long as it remains stable, I refuse to stay in bed. I dress it morning and night, sit on a Roho, and go on my merry way. If fate nabs me with an ugly bacteria, so be it. At least I went down on my own terms. I also take an antidepressant. That helps a great deal. I highly recommend it. I take Paxil and Xanax to keep me steady. I am a firm believer that if there is a chemical that will make my life more tolerable, bring it on. None of this "purity and nobility of suffering" for me. Pointless. Hang in there, Bobbie. I know these are just empty words that change nothing, but try not to dwell on what "might have been". Those thoughts will throw you in a hole and shovel dirt over you. God bless you. Chin up, my friend. Sent from my iPad Begin forwarded message: > Resent-From: quad-list@eskimo.com > From: "kw...@comcast.net" > Date: May 16, 2012 23:37:12 EDT > To: , "Bobbie Humphreys" > Subject: Re: [QUAD-L] I need a friend > > > > Oh my god Bobbie, your message made me cry. I'm so sorry you feel this way. I > can totally relate to how you feel. I've been in bed for 1 1/2 years with a > pressure sore. I just started getting up a few weeks ago. I get the > frustration of not being able to make plans due to the unpredictability of my > body. I've felt at times it's easier to stay in bed. My attendant will be > here any minute so I can't spend as much time today talking with you. But I > wanted you to know your not alone. Please try and hang in there and I'll get > back in touch with you tomorrow. Your in my prayers. If I can help you, I > will. > Kathy Ludwig > C4-5 > > > ---Original Message--- > > From: Bobbie Humphreys > Date: 5/16/2012 7:58:04 PM > To: Quad-list@eskimo.com > Subject: [QUAD-L] I need a friend > > Everybody, > I use to have a few friends how were quads, about 5 near me. We > could talk to each other good or bad ~ we were there for each other. Today > all have either moved away or died. Dose anybody have any ideas as to how I > can find another quad friend? I REALLY need to talk to a fellow quad, and > soon. I just can't stop crying. I've been stuck in bed since February and am > now starting to get up, but as strange as it may sound, I find it easier to > stay in bed … I get into a routine. But once I start getting up it's in drubs > and drabs. When I'm up and the weather is nice, I see everyday normal people > doing all the things I can't. Or hearing about where they've been or where > there going to be doing. I can't make plans. Every time I make plans for the > near future, the rug can be pulled out from under me at a movements notice > because of a goddam sore on my butt that is super fiscal but enough to ground > me. > I can only ride in my van once a week because the bumps in the road cause > irritation on my butt. I use to drive but now I can't … same reason as I just > mentioned. >Pete is doing more and I'm doing less. I'm just existing, not LIVING. I > want to die! Bobbie > > Sent from my iPad >
