I agree with Meredith! I've been here a long time and the Q-List is an
invaluable assert. Thank you so much Jim!!
Nan
From: jume9...@comcast.net jume9...@comcast.net
To: quad-list quad-list@eskimo.com
Sent: Sunday, July 14, 2013 7:17 PM
Subject: Re: [QUAD-L] Infinite things I hate about being a Quad
Jim,
You should be very proud with all that you have accomplished. We are grateful
for you
Meredith.
From: Jim Lubin jlu...@eskimo.com
To: lwillis...@yahoo.com
Cc: quad-list@eskimo.com
Sent: Sunday, July 14, 2013 2:37:55 PM
Subject: Re: [QUAD-L] Infinite things I hate about being a Quad
While I do agree with some of the negatives listed, I have done quite a few
things in my 24 years of being a quad that I would not have otherwise done.
* started support group for quads
* started support group for vent users
* started support group for people with transverse myelitis
* made a disability resources web site
* made a transverse myelitis web site, with information I found people
to translate to many languages, which led to international support groups that
didn't exist before
* personally raised more that $30,000 for charities
Ya, lot of down sides to (besides what has already been listed)
* being worried every time the power goes out that the ventilator might
stop working
* worried when the vent tube comes off that someone might not come fast
enough to fix it
* never being able to be left completely alone
On Sat, Jul 13, 2013 at 6:24 PM, lwillis...@yahoo.com wrote:
The list is indeed endless. There is not one damn positive thing about being a
quad. We speak out our hats about new doors opening, spiritual growth,
inspiration, and all that rot, but I have done nothing in my 43 years of quadom
that I could not have done better on two feet. A life of complete dependence,
constant pain, depression, dysfunctional body functions, and endless physical
breakdowns has nothing to commend it. At present I have 3 pressure sores,
cellulitis in my left leg, sinus infection, stomach and bladder pain, chronic
constipation, and myriad other fun ailments. The positive I always hear? Well,
it could be worse. Sure, and hell could be a little hotter. Now that I have
cheered you all up, good night and God bless, quad buds. Sleep tight. I won't;
the arthritis in my neck and shoulders is killing me.
Begin forwarded message:
Resent-From: quad-list@eskimo.com
From: shirley bell sbell...@cox.net
Date: July 12, 2013, 12:43:31 PM EDT
To: donald scott rollingl...@yahoo.com
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
The list is endless! I agree with everyones
complaints. But I try to focus on
Best,
Shirley Bell
www.ShirleyBellDesigns.com
- Original Message -
From: donald scott
To: quad-list@eskimo.com
Sent: Thursday, July 11, 2013 6:50 PM
Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
My top 5 would be.
1. Worrying about current and future cuts in caregiver hours and
Medicare/MediCal.
2. Not being able to make enough money to be comfortable.
3. Having to depending on others for life's routine crap.
4. Knowing how to do things like mechanical, electrical, construction,
engineering, etc. and not being physically able to do it alone.
5. No more normal SEX...Along with other fun activities like off roading,
camping, hiking, hunting, rollercoasters, etc..
From: Gmail bobbiehumphre...@gmail.com
To: quad-list@eskimo.com
Sent: Thursday, July 11, 2013 10:58 AM
Subject: [QUAD-L] Top 5 things I hate about being a Quad
These are my top 5 things I hate
about being a Quad.
1. Having someone else prepare food for YOU
their way.
2. Getting up and in bed when your aid can make it, not when
you wish to.
3. People telling me ... how lucky you are not to have to
work.
4. Limited selection of clothing.
5. Aging and
Quadrum.
Bobbie
Sent from my
iPad
