RE: [QUAD-L] Life span
Wow that sucks... guess a mid-life crisis is in order... -Danny "Injured at 23 and 32 now" -Original Message- From: Larry Willis [mailto:lwillis82...@gmail.com] Sent: Saturday, June 13, 2015 7:21 PM To: quad-list@eskimo.com Subject: [QUAD-L] Life span I found a research site the other day that had tables on quad info. The one that struck me was, A C4-5-6 quad injured at age 20 can expect to live another 40 years on average. If that is true, then some of us tough nuts are beating the odds. I'll see if I can find the site again. Larry Willis Retired and proud of it
RE: [QUAD-L] 47th Anniversary - 6/7/68 - Did anyone see my post?
I do not have the yrs that some of you do, but I was much older when I was injured. 51 and as they said at Santa Clara I was very unusual to be so late in life before an injury! At 76 I can hear and feel bone on bone when I exercise-yuck. I have been quite fortunate with my health, but I just found out that I have squamous skin cell cancer, and it usually is quite treatable with surgery. Hoping that all of you who are facing such serious health issues, parents getting older and less able to take care of you as they were once able to get a better place in life. God bless and prayers.
[QUAD-L] Life span
I found a research site the other day that had tables on quad info. The one that struck me was, A C4-5-6 quad injured at age 20 can expect to live another 40 years on average. If that is true, then some of us tough nuts are beating the odds. I'll see if I can find the site again. Larry Willis Retired and proud of it
Re: Fw: [QUAD-L] 47th Anniversary - 6/7/68 - Did anyone see my post?
I hope things will get a little better for you. I myself have been having many health related issues over the last couple years, but I'm pretty confident it's going to get better at least for a while. You are 100% correct about getting old as a quad sucks, but the alternative is much worse for most of us. On Friday, June 12, 2015, Nan wrote: > I posted this on 6/7, but never saw it post to my email. Just wondering > if folks saw it... > > On Jun 7, 2015, at 9:02 PM, Nan > wrote: > > Well, another year down. The last 6 months have been fraught with medical > problems ... 3+ weeks in ICU in December. Spiraled downhill after putting > my dog down. Didn't eat or drink - ended up septic ... vent, pic line, > feeding tube, pull the plug discussions - the whole 9 yards. Don't > remember much which I am very thankful for. Another week in the hospital > in March - my potassium skyrocketed and they called me at 10PM to tell me > to go to ED. Got that under control. Nurse smashed my knee while in > during March, nice sore there now. My legs got so thin from being in bed, > so now I have 3 sore on my left leg, one is down to the bone. The Wound > Care Clinic is beginning to feel like home! Feeling much better now. > Hopefully things will start to look up now. > > Getting to be an old quad sucks ... but, I still think it's better than > the alternative! > > Hope everyone is well. > > Nan > > > >
[QUAD-L] Re: problems with colostomy wafer
Thanks everyone. I really appreciate you taking the time to respond. I also have a urostomy and am perplexed as to why I'm having difficulties right now. We did try using just a little stone and paste and we also decided to use the same method we use for the urostomy. So far it seems to be working considerably better than it was the way they showed us. Unfortunately my nurse friend from down the road is on vacation. She's the one that showed me all the tricks for the urostomy. On Saturday, June 13, 2015, Gmail wrote: > Quadius, I have a Urostomy and had a wound underneath the adhesive part. > That was after playing around with different stoma appliance companies and > brands. > I strongly recommend you talk to, or go see, a stoma nurse. > Every hospital had one and many visiting nursing companies (or > competitors) should have a stoma nurse on staff. > Good luck, Bobbie > > Smile Everyday > > On Jun 12, 2015, at 5:33 PM, Quadius > wrote: > > I hope you guys can help me out. I have had a urostomy for more than three > years now and have no problems with that wafer leaking or urine getting > underneath the wafer. I am, however, having nothing but difficulties with > the colostomy wafer. First thing to note is my urostomy wafer as a small > room on the inside with quite a bit left over to it here to the skin. The > colostomy one, on the other hand, has a lot bigger ring in the middle of > it. I believe it's 57 mm or 2 1/4 inch. > > Have a small indentation at one corner of my stoma and therefore they say > I need stoma paste. We've never had to use this on my urostomy, so were not > sure exactly how much to apply. The last two days we have had the colostomy > wafer leak and it appears like the fecal matter is immediately seeping > under the wafer and compromising the integrity of my skin. Not to mention > it stinks to high heaven. > > Any advice on how you guys do it or suggestions would be welcome. As far > as my urostomy, we basically use two or three skin preps, but they told us > we really didn't need to use them for the colostomy. Last night we decided > to go ahead and use skin prep on the colostomy as well as a little bit of > stoma paste where the intention is on my stoma. > > I want to thank you in advance for the help. Normally I'm able to call on > a nurse friend of mine who lives down the road to help me out, but she's > out of town on vacation right now. > Quadius > >
Re: [QUAD-L] problems with colostomy wafer
Quadius, I have a Urostomy and had a wound underneath the adhesive part. That was after playing around with different stoma appliance companies and brands. I strongly recommend you talk to, or go see, a stoma nurse. Every hospital had one and many visiting nursing companies (or competitors) should have a stoma nurse on staff. Good luck, Bobbie Smile Everyday > On Jun 12, 2015, at 5:33 PM, Quadius wrote: > > I hope you guys can help me out. I have had a urostomy for more than three > years now and have no problems with that wafer leaking or urine getting > underneath the wafer. I am, however, having nothing but difficulties with the > colostomy wafer. First thing to note is my urostomy wafer as a small room on > the inside with quite a bit left over to it here to the skin. The colostomy > one, on the other hand, has a lot bigger ring in the middle of it. I believe > it's 57 mm or 2 1/4 inch. > > Have a small indentation at one corner of my stoma and therefore they say I > need stoma paste. We've never had to use this on my urostomy, so were not > sure exactly how much to apply. The last two days we have had the colostomy > wafer leak and it appears like the fecal matter is immediately seeping under > the wafer and compromising the integrity of my skin. Not to mention it stinks > to high heaven. > > Any advice on how you guys do it or suggestions would be welcome. As far as > my urostomy, we basically use two or three skin preps, but they told us we > really didn't need to use them for the colostomy. Last night we decided to go > ahead and use skin prep on the colostomy as well as a little bit of stoma > paste where the intention is on my stoma. > > I want to thank you in advance for the help. Normally I'm able to call on a > nurse friend of mine who lives down the road to help me out, but she's out of > town on vacation right now. > Quadius
Re: [QUAD-L] Have no fear Ron is still here.............
Ron, so sorry about the troubles your Dad is going through. I hate to hear when a family caregiver, who steps up to the plate, goes through such crap ... not fair. I'm thinking if you and your Dad. Bobbie Smile Everyday > On Jun 12, 2015, at 11:29 PM, RONALD L PRACHT wrote: > > Hey everybody just wanted to let those that care know Im still here and > fighting for myself as well as my father. He contracted spinal meningitis > from a cortisone shot to the sacral area of the back 14 days ago. My mother > comes every other morning to help with the ol bowell routine, everything else > can be rigged, put off or done later. I was scared at first, but Im getting > tougher and figuring out more things I can done on my own. I have to make > sure there are no mistakes made on my part, like a slip or something of that > nature. Im hoping my dad will make at least 80 percent recovery at the month > mark, but we had a setback and his kidneys stopped worked from the pic line > antibiotics (vacamyacin). From what I speculate when your body goes from tons > of antibiotics from a pic to nothing, your body has to send its own cells to > fight whats left of the infection and in turn the body looks more tired. I > should see him get better or worse in the next few days. We as quads are > unrecognized warriors, and the battle is survival. I always wondered why > disabled persons looked weathered and beaten when they reach the 20, 30, 40 > year mark.now I totally understand. like someone on the list said, > who wants to go into the grave with a perfect beautiful body anyway? > > Ron
Fwd: [QUAD-L] Have no fear Ron is still here.............
Hang in there, Ron. I am so glad you are finding a routine that works for you. I pray that you and Dad find the strength to carry on. Absolutely nothing is easy in the quad world. It goes from hard to harder, never easier. Hang tough, my friend. -- Forwarded message -- From: *RONALD L PRACHT* Date: Friday, June 12, 2015 Subject: [QUAD-L] Have no fear Ron is still here. To: Quad-list Post Hey everybody just wanted to let those that care know Im still here and fighting for myself as well as my father. He contracted spinal meningitis from a cortisone shot to the sacral area of the back 14 days ago. My mother comes every other morning to help with the ol bowell routine, everything else can be rigged, put off or done later. I was scared at first, but Im getting tougher and figuring out more things I can done on my own. I have to make sure there are no mistakes made on my part, like a slip or something of that nature. Im hoping my dad will make at least 80 percent recovery at the month mark, but we had a setback and his kidneys stopped worked from the pic line antibiotics (vacamyacin). From what I speculate when your body goes from tons of antibiotics from a pic to nothing, your body has to send its own cells to fight whats left of the infection and in turn the body looks more tired. I should see him get better or worse in the next few days. We as quads are unrecognized warriors, and the battle is survival. I always wondered why disabled persons looked weathered and beaten when they reach the 20, 30, 40 year mark.now I totally understand. like someone on the list said, who wants to go into the grave with a perfect beautiful body anyway? Ron
