Re: [QUAD-L] Happy New Year!

[Eric Olson]

What will I be doing?  Continuing my search for relief from my 
neuropathic pain.  In my case, an intense feeling of cold.  Have any of 
you taken neurontin-gabapentin


On 12/31/2015 3:55 PM, Gmail wrote:

I'd like to wish each and every one of my quadets the happiest of New Years!
My it be pain free and eventful free ... of bad things anyway.

My sister from Saratoga, NY will be with me visiting.
What will all of you be doing?

Smile Everyday





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Re: [QUAD-L] Syrinx Cyst?

[RONALD L PRACHT]

I know all about syrinxes. Most neuros wont drain a syrinx on a quad with a 
needle, you have to install a shunt. Its a scary deal. I need it done as well.
Ron  

On Saturday, January 2, 2016 7:24 PM, greg  wrote:
 

 I know Cyrinx Cysts are quite common in quads, I have one that I haven't 
checked on in years.
Have you had one drained?
Could you feel the difference?
I go to the SCI Rehab doc next week, I'm making a list of things I need to talk 
about. A lot of my symptoms could be Cyst related. Or just getting old. More 
pain, spasm, feel weaker, etc.
Is draining a cyst fairly safe? Out patient or admitted over night?

Thanks much, Greg


  

[QUAD-L] Neurontin

[greg]

I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
Disorder. It's got to be the heat lamp kind.
Only relief I get.

Greg



What will I be doing?  Continuing my search for relief from my neuropathic
pain.  In my case, an intense feeling of cold.  Have any of you taken
neurontin-gabapentin

[QUAD-L] Syrinx Cyst?

[greg]

I know Cyrinx Cysts are quite common in quads, I have one that I haven't 
checked on in years.
Have you had one drained?
Could you feel the difference?
I go to the SCI Rehab doc next week, I'm making a list of things I need to talk 
about. A lot of my symptoms could be Cyst related. Or just getting old. More 
pain, spasm, feel weaker, etc.
Is draining a cyst fairly safe? Out patient or admitted over night?

Thanks much, Greg

RE: [QUAD-L] Neurontin

[Gail Overton]

Don't take gabapentin. Totally reduces any motor function you may have and the 
withdrawal is horrible. Physical therapy, acupuncture, and massage is only cure 
for nerve pain.

-Original Message-
From: greg [mailto:g...@eskimo.com] 
Sent: Saturday, January 02, 2016 6:32 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] Neurontin

I did and Lyrica, didn't help much.
My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
Disorder. It's got to be the heat lamp kind.
Only relief I get.

Greg



What will I be doing?  Continuing my search for relief from my neuropathic 
pain.  In my case, an intense feeling of cold.  Have any of you taken 
neurontin-gabapentin

Re: [QUAD-L] Syrinx Cyst?

[Robert Vogel]

Hi Greg,

For what it is worth, I wrote an article about Syrinx’s, and there is another 
excellent article
in New Mobility about an incomplete C5-6 quad that had a syrinx fixed.  Here 
are the links:
Para/Medic: Syrinx and Pain  
http://www.newmobility.com/2011/01/paramedic-syrinx-and-pain/ 


And:  Untethering the Invisible Knot  
http://www.newmobility.com/2009/03/untethering-the-invisible-knot/ 


When I wrote the article back in 2011 the two best (and in my opinion only) 
Doc’s I would go to for
this were/are Dr. Barth Green at the University of Miami School of Medicine and 
Dr. Scott Falci at 
Craig Hospital in Denver.  You can contact Dr. Falci at Craig Hospital at 
303/761-5281  You will speak
with Charlotte his assistant.  She is very knowledgable, and either she, or Dr. 
Falci will follow up with you
via phone within a few business days.  Dr. Falci says that although you can see 
a syrinx on an MRI and 
that is helpful, he treats (does surgery) based on symptoms, meaning worsening 
of pain, worsening of spasticity
and the main reason for doing surgery is additional loss of sensation and/or 
movement.  It is very serious surgery
and Dr. Falci has done well over 1000 surgeries on syrinx’s in people with SCI. 
 He is really amazing at 
being able to listen to your symptoms and tell you exactly what is going on 
with the syrinx including when to
treat and when not to treat.  He is quite conservative—he doesn’t want to do 
surgery unless he has to, meaning
loss of feeling and/or movement or to a lesser degree increase of spasticity 
and/or pain.

I know quite a few people that have been treated by Dr. Falci both for syrinx’s 
as well as with DREZ (stopping bring leg pain by computer assisted targeting of 
burning the nerves that are causing the problem.

Hope this helps.

Cheers,
Bob Vogel

> On Jan 2, 2016, at 5:24 PM, greg  wrote:
> 
> I know Cyrinx Cysts are quite common in quads, I have one that I haven't 
> checked on in years.
> Have you had one drained?
> Could you feel the difference?
> I go to the SCI Rehab doc next week, I'm making a list of things I need to 
> talk about. A lot of my symptoms could be Cyst related. Or just getting old. 
> More pain, spasm, feel weaker, etc.
> Is draining a cyst fairly safe? Out patient or admitted over night?
> 
> Thanks much, Greg
> 

Re: [QUAD-L] Neurontin

[Robert Vogel]

Hi Greg,

I am in my 30th year as a T10 complete para. I get bad neuropathic leg pain, 
like icy hot pain.
It comes and goes, seems to be worse in cold weather, also worse if I am 
getting sick, or getting
a UTI.

I take 200 mg of neurontin-gabapentin three times a day.  My PM (spinal cord 
injury doc) doc 
says I can take at least three times that much, but 200 mg seems to help just a 
bit and I don’t want
to take more because I’ve heard it can cause weakness in limbs.  I’ve also 
read/heard it is VERY difficult
to get off of, as in as difficult as it is to stop taking valium (diazapam) 
because it replaces the same
substance in the brain (gaba) and it takes the brain a long time to start 
making it again.

This makes sense because I also take 10mg of valium at night to stop leg 
spasticity when I’m trying to
sleep.  The neuropathic icy/burning goes away when the valium kicks in—but 
taking more valium would
set off a chain reaction of tolerance so I stay away from taking any additional 
valium and/or gabapentin.

Bob V

> On Jan 2, 2016, at 5:31 PM, greg  wrote:
> 
> I did and Lyrica, didn't help much.
> My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
> Disorder. It's got to be the heat lamp kind.
> Only relief I get.
> 
> Greg
> 
> 
> 
> What will I be doing?  Continuing my search for relief from my neuropathic
> pain.  In my case, an intense feeling of cold.  Have any of you taken
> neurontin-gabapentin
> 

Re: [QUAD-L] Neurontin

[Gmail]

I take neurontin and get a massage twice a month.
I'd love to get off it. But I need to sleep, really sleep I take extra ones ... 
and I'm OUT.

Smile Everyday

> On Jan 2, 2016, at 9:19 PM, Gail Overton  wrote:
> 
> Don't take gabapentin. Totally reduces any motor function you may have and 
> the withdrawal is horrible. Physical therapy, acupuncture, and massage is 
> only cure for nerve pain.
> 
> -Original Message-
> From: greg [mailto:g...@eskimo.com] 
> Sent: Saturday, January 02, 2016 6:32 PM
> To: quad-list@eskimo.com
> Subject: [QUAD-L] Neurontin
> 
> I did and Lyrica, didn't help much.
> My only relief is sun or sun lamp. Not the sun box for Seasonal Affective 
> Disorder. It's got to be the heat lamp kind.
> Only relief I get.
> 
> Greg
> 
> 
> 
> What will I be doing?  Continuing my search for relief from my neuropathic 
> pain.  In my case, an intense feeling of cold.  Have any of you taken 
> neurontin-gabapentin
>