Re: [QUAD-L] Question for everyone! Update on Nancy

[Lori Michaelson]

Hey Ron - they refuse to give me a round of antibiotics until another urine
specimen is done. People are just not doing their job and/or getting the
runaround. When you become a seasoned quad for 36 1/2 years... you get to
know things as you yourself know.

I would go to my "new" primary care physician or call her but she does not
know me very well at all since I just saw her once, she is 45 minutes away
and I told her what I did see her that the only problems I have are
secondary SCI issues and that is what I contact my urologist so I can see
her/hear her doing just that. Now, of course, it is a weekend. And I never
foresaw any of this coming.

On Fri, May 6, 2016 at 7:43 PM, RONALD L PRACHT 
wrote:

> Its really troubling that a doctor cant properly organize getting a urine
> specimen back in a timely manner. I would feel like they were giving me the
> run around or not taking me seriously. Think about it...if a young
> mother brought her little daughter in to get a specimen checkeddo
> you think they would run her around? I would just go in and ask the doc to
> give me around of antibiotics then you could doctor yourself when need me.
>
> Ron
>
>
> On Friday, May 6, 2016 8:22 PM, "wheelch...@aol.com" 
> wrote:
>
>
> 'There are a couple of OTC meds for UTI's.  Call your doctor's office and
> leave a message that if he doesn't get back to you in 12-24 hours, you will
> take several OTC meds .  This way, the ball is in HIS court.
>
> Best Wishes
>
> In a message dated 5/6/2016 4:42:37 P.M. Central Daylight Time,
> quadjkin...@gmail.com writes:
>
> Nothing but competence on their part something
> terrible. Hope you all feel better soon. And God bless!!!
>
> On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson 
> wrote:
>
> I have known Nancy for a couple of decades also and if you get this
> Nancy... you are definitely in my thoughts! Because of a sore I spent that
> many months in bed and then a total of, statistically speaking, 3 years in
> bed by only being able to get up 3 to 5 hours a day because it was a Stage
> III wound and any pressure or bumps or any type of "internal shearing"
> would open it back up.
>
> I thank everyone else who has responded to my inquiry! starting this past
> Monday I began to be UTIs symptomatic and the pain has gotten worse. My
> doctors office keeps claiming they can't get the results from the
> laboratory or the home health agency who took the urine specimen over 3
> weeks ago! I have been calling them every single week but they keep saying
> they can't find the results. My home health agency nurse who got the
> results finally had to call my doctor's office yesterday but now I need to
> wait for my doctors office to call me to get on an antibiotic of some type
> because my bladder pain and my flank pain is so very bad. No fever but I do
> not want it to get to that stage [systemic] which he could easily do if not
> treated. And here we are going into a weekend!
>
> Incompetence is running rampant in this country.
>
> ~Lori
> C4/5 complete quad, 36 1/2 years post
> Tucson Arizona
>
> On Fri, May 6, 2016 at 5:54 AM,  wrote:
>
> Thanks for the update on Nancy.  I've known her since the early 90's when
> we would chat in AOL disAbility Chats.
>
> Best Wishes
>
> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
> daano...@gmail.com writes:
>
>
> [image: https://www.facebook.com/nancy.davisgillen]
> 
> Nancy Davis Gillen  8:06am
> May 5
> I'm feeling much better, but im going on 7 months in bed because of a
> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
> me in your thoughts.
>
> View Conversation on Facebook
> 
> This message was sent to daanoo2...@yahoo.com. If you don't want to
> receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
> from my iPhone
>
> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
> wrote:
>
> Greetings my quad list friends and friends [since 1995 for me],
>
> Sometimes after so much time goes by and either we are kept busy doing
> happy things or are stuck in bed with a wound... we often lose track of
> each other and exactly who is who and what is about that person.
>
> I know we have lost one of the most wonderful contributors here [Dave
> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
> us of his wishes. This was back in 2009.
>
> Having said that, here is what I would like from each one of you to
> 

[QUAD-L] Getting urine specimen C results and then beginning to have real pain

[Lori Michaelson]

Yep  I began taking Pyridium yesterday which makes your urine orange
which I don't like but if the pain is worse... who cares. That along with
ibuprofen every six hours is barely covering the pain.

I finally heard back from the doctor's OFFICE and they either wanted me to
go to the emergency room or to get another catheter change [that I just
changed on schedule this past Tuesday] and a new urine specimen since the
other one is 3 1/2 weeks old which is NOT MY FAULT!

I do not have a fever so what is the year are going to do? Rhetorical
question of course. I told the person who was calling me (who acted so
laissez-faire about the whole situation) that I have called every week
trying to get the results and everything has been put upon ME. She didn't
care because she was just getting orders from the doctor on call while my
urologist is on vacation.  See below.

Get this as far as "Lori's timing" - MY urologist is on vacation which be
gone an entire week... all of next week. When I really need her because she
has known me for 10 years. This always happens to me... whenever I really
really really need my primary care physician or a specialist... they are
always out for the day or on vacation or you name it. So many people can
vouch for that.

In the mean time I am in extreme pain but they will not give me an
antibiotic until they get the results from the new urine specimen which
takes time for the nurse to come out and get it, take it to the lab and
wait at least 3 business days to get the results. Look what just happened.
We set in a urine specimen and it took everyone to get 3 1/2 weeks for the
results. I could be dead by now.



On Fri, May 6, 2016 at 7:21 PM,  wrote:

> 'There are a couple of OTC meds for UTI's.  Call your doctor's office and
> leave a message that if he doesn't get back to you in 12-24 hours, you will
> take several OTC meds .  This way, the ball is in HIS court.
>
> Best Wishes
>
> In a message dated 5/6/2016 4:42:37 P.M. Central Daylight Time,
> quadjkin...@gmail.com writes:
>
> Nothing but competence on their part something
> terrible. Hope you all feel better soon. And God bless!!!
>
> On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson 
> wrote:
>
>> I have known Nancy for a couple of decades also and if you get this
>> Nancy... you are definitely in my thoughts! Because of a sore I spent that
>> many months in bed and then a total of, statistically speaking, 3 years in
>> bed by only being able to get up 3 to 5 hours a day because it was a Stage
>> III wound and any pressure or bumps or any type of "internal shearing"
>> would open it back up.
>>
>> I thank everyone else who has responded to my inquiry! starting this past
>> Monday I began to be UTIs symptomatic and the pain has gotten worse. My
>> doctors office keeps claiming they can't get the results from the
>> laboratory or the home health agency who took the urine specimen over 3
>> weeks ago! I have been calling them every single week but they keep saying
>> they can't find the results. My home health agency nurse who got the
>> results finally had to call my doctor's office yesterday but now I need to
>> wait for my doctors office to call me to get on an antibiotic of some type
>> because my bladder pain and my flank pain is so very bad. No fever but I do
>> not want it to get to that stage [systemic] which he could easily do if not
>> treated. And here we are going into a weekend!
>>
>> Incompetence is running rampant in this country.
>>
>> ~Lori
>> C4/5 complete quad, 36 1/2 years post
>> Tucson Arizona
>>
>> On Fri, May 6, 2016 at 5:54 AM,  wrote:
>>
>>> Thanks for the update on Nancy.  I've known her since the early 90's
>>> when we would chat in AOL disAbility Chats.
>>>
>>> Best Wishes
>>>
>>> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
>>> daano...@gmail.com writes:
>>>
>>>
>>> [image: https://www.facebook.com/nancy.davisgillen]
>>> 
>>> Nancy Davis Gillen  8:06am
>>> May 5
>>> I'm feeling much better, but im going on 7 months in bed because of a
>>> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
>>> me in your thoughts.
>>>
>>> View Conversation on Facebook
>>> 
>>> This message was sent to daanoo2...@yahoo.com. If you don't want to
>>> receive these emails from Facebook in the future, please unsubscribe
>>> 
>>> .
>>> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
>>> from my iPhone
>>>
>>> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
>>> wrote:
>>>
>>> Greetings my quad list friends and 

Re: [QUAD-L] Question for everyone! Update on Nancy

[RONALD L PRACHT]

Its really troubling that a doctor cant properly organize getting a urine 
specimen back in a timely manner. I would feel like they were giving me the run 
around or not taking me seriously. Think about it...if a young mother 
brought her little daughter in to get a specimen checkeddo you think 
they would run her around? I would just go in and ask the doc to give me around 
of antibiotics then you could doctor yourself when need me.
Ron  

On Friday, May 6, 2016 8:22 PM, "wheelch...@aol.com"  
wrote:
 

 'There are a couple of OTC meds for UTI's.  Call your doctor's office and 
leave a message that if he doesn't get back to you in 12-24 hours, you will 
take several OTC meds .  This way, the ball is in HIS court. Best Wishes In a 
message dated 5/6/2016 4:42:37 P.M. Central Daylight Time, 
quadjkin...@gmail.com writes:
 Nothing but competence on their part something 
terrible. Hope you all feel better soon. And God bless!!!  
 On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson  wrote:
 
  I have known Nancy for a couple of decades also and if you get this Nancy... 
you are definitely in my thoughts! Because of a sore I spent that many months 
in bed and then a total of, statistically speaking, 3 years in bed by only 
being able to get up 3 to 5 hours a day because it was a Stage III wound and 
any pressure or bumps or any type of "internal shearing" would open it back up. 
 I thank everyone else who has responded to my inquiry! starting this past 
Monday I began to be UTIs symptomatic and the pain has gotten worse. My doctors 
office keeps claiming they can't get the results from the laboratory or the 
home health agency who took the urine specimen over 3 weeks ago! I have been 
calling them every single week but they keep saying they can't find the 
results. My home health agency nurse who got the results finally had to call my 
doctor's office yesterday but now I need to wait for my doctors office to call 
me to get on an antibiotic of some type because my bladder pain and my flank 
pain is so very bad. No fever but I do not want it to get to that stage 
[systemic] which he could easily do if not treated. And here we are going into 
a weekend! 
 Incompetence is running rampant in this country. 
 ~Lori C4/5 complete quad, 36 1/2 years post Tucson Arizona   
 On Fri, May 6, 2016 at 5:54 AM,  wrote:
 
  Thanks for the update on Nancy.  I've known her since the early 90's when we 
would chat in AOL disAbility Chats.   Best Wishes    In a message dated 
5/5/2016 10:29:40 P.M. Central Daylight Time, daano...@gmail.com writes: 
 
 
|  
|  
|   
|  |  
| Nancy Davis Gillen | 8:06am May 5  |

 I'm feeling much better, but im going on 7 months in bed because of a sore. 
I'm going crazy! Please pass on to the quad list. Thanks for keeping me in your 
thoughts.  |

 |


 |
| View Conversation on Facebook
This message was sent to daanoo2...@yahoo.com. If you don't want to receive 
these emails from Facebook in the future, please unsubscribe.
Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025 |

 |

Sent from my iPhone   
On Apr 30, 2016, at 4:33 PM, Lori Michaelson  wrote:

 
   Greetings my quad list friends and friends [since 1995 for me], 
 Sometimes after so much time goes by and either we are kept busy doing happy 
things or are stuck in bed with a wound... we often lose track of each other 
and exactly who is who and what is about that person. 
 I know we have lost one of the most wonderful contributors here [Dave Kelmer] 
and I believe that Bill Jenkins (in Florida) was the one who told us of his 
wishes. This was back in 2009. 
 Having said that, here is what I would like from each one of you to refresh my 
old lady mind.  I feel like I have aged a lifetime over the last 4 years after 
losing my husband and unable to live with family any longer. 
 * Name  
 * Age
 
 * Date of injury 
 * Town and state where you are from (unless you would just like to state the 
state you are living in). 
 * Are you a quad or a para? If you are a quad ... what level of injury are 
you?  
 * Complete or incomplete injury?  
 And any other information you would like to offer. Thanks a bunch in advance! 
 Best to you all! 
 Lori Michaelson - age 51. How did that happen?!?!!! C4/5 complete quad, 36 1/2 
years post. Unable to drive. 
 I can feed myself if prepared and placed in front of me. Food needs to be cut 
up if necessary. 
 Grew up in a small town in New York State and lived there for 36 years but 
after meeting my husband he got transferred a couple times which first took us 
to Virginia and then to Tucson Arizona. I was devastated with his unexpected 
passing at only 63 years old on June 11, 2012 and over 90% of me went with him. 
Went to live with sister and brother-in-law in northeastern Pennsylvania for 3 
years but, despite hiring morning and evening caregivers ... my sister 

Re: [QUAD-L] Question for everyone! Update on Nancy

[wheelchair]

'There are a couple of OTC meds for UTI's.  Call your doctor's office  and 
leave a message that if he doesn't get back to you in 12-24 hours, you will  
take several OTC meds .  This way, the ball is in HIS court.
 
Best Wishes
 
 
In a message dated 5/6/2016 4:42:37 P.M. Central Daylight Time,  
quadjkin...@gmail.com writes:

Nothing but competence on their part  something 
terrible. Hope you all feel better soon. And God  bless!!! 

On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson <_lorilivingon@gmail.com_ 
(mailto:lorilivin...@gmail.com) > wrote:


I have known Nancy for a  couple of decades also and if you get this 
Nancy... you are definitely in my  thoughts! Because of a sore I spent that 
many 
months in bed and then a total  of, statistically speaking, 3 years in bed by 
only being able to get up 3 to  5 hours a day because it was a Stage III 
wound and any pressure or bumps or  any type of "internal shearing" would open 
it back up.


I thank everyone else who  has responded to my inquiry! starting this past 
Monday I began to be UTIs  symptomatic and the pain has gotten worse. My 
doctors office keeps claiming  they can't get the results from the laboratory 
or the home health agency who  took the urine specimen over 3 weeks ago! I 
have been calling them every  single week but they keep saying they can't find 
the results. My home health  agency nurse who got the results finally had 
to call my doctor's office  yesterday but now I need to wait for my doctors 
office to call me to get on  an antibiotic of some type because my bladder 
pain and my flank pain is so  very bad. No fever but I do not want it to get 
to that stage [systemic]  which he could easily do if not treated. And here 
we are going into a  weekend!


Incompetence is running  rampant in this country.


~Lori
C4/5 complete quad, 36 1/2  years post
Tucson Arizona

 
 

On Fri, May 6, 2016 at 5:54 AM, <_wheelchair@aol.com_ 
(mailto:wheelch...@aol.com) > wrote:


Thanks for the update on Nancy.  I've known her since the early  90's when 
we would chat in AOL disAbility Chats.
 
Best Wishes
 
 
In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time, 
_daanoo53@gmail.com_ (mailto:daano...@gmail.com)  writes:


(https://www.facebook.com/nancy.davisgillen)  _Nancy Davis  Gillen_ 
(https://www.facebook.com/nancy.davisgillen)  8:06am May  5  
I'm feeling  much better, but im going on 7 months in bed  because of a 
sore. I'm going crazy! Please pass  on to the quad list. Thanks for keeping me 
in  your thoughts.



_View Conversation on Facebook_ 
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b17=1.1462455392.AbmMgfHXUzxks3eU_m=daanoo2...@yahoo.com) 
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Facebook, Inc., Attention:  Community Support, Menlo Park, CA  94025Sent  
from my iPhone
 
 

On Apr 30, 2016, at 4:33 PM, Lori Michaelson <_lorilivingon@gmail.com_ 
(mailto:lorilivin...@gmail.com) > wrote:




 
Greetings my quad  list friends and friends [since 1995 for me],


Sometimes after so  much time goes by and either we are kept busy doing 
happy things or  are stuck in bed with a wound... we often lose track of each 
other and  exactly who is who and what is about that person.


I know we have lost  one of the most wonderful contributors here [Dave 
Kelmer] and I  believe that Bill Jenkins (in Florida) was the one who told us 
of 
his  wishes. This was back in 2009.


Having said that,  here is what I would like from each one of you to 
refresh my old lady  mind.  I feel like I have aged a lifetime over the last 4 
years  after losing my husband and unable to live with family any  longer.


* Name 


* Age



* Date of injury


* Town and state where you are from (unless you would  just like to state 
the state you are living in).


* Are you a quad or a para? If you are a quad ...  what level of injury are 
you? 


* Complete or incomplete  injury? 


And any other information you would like to offer.  Thanks a bunch in 
advance!


Best to you  all!


Lori Michaelson -  age 51. How did that happen?!?!!!
C4/5 complete quad,  36 1/2 years post. Unable to drive.


I can feed myself if  prepared and placed in front of me. Food needs to be 
cut up if  necessary.


Grew up in a small  town in New York State and lived there for 36 years but 
after meeting  my husband he got transferred a couple times which first 
took us to  Virginia and then to Tucson Arizona.
I was devastated  with his unexpected passing at only 63 years old on June 
11, 2012 and  over 90% of me went with him.
Went to live with  sister and brother-in-law in northeastern Pennsylvania 
for 3 years  but, despite hiring morning and evening caregivers 

Re: [QUAD-L] Question for everyone! Update on Nancy

[Johnny Cammon]

Nothing but competence on their part something
terrible. Hope you all feel better soon. And God bless!!!

On Fri, May 6, 2016 at 1:42 PM, Lori Michaelson 
wrote:

> I have known Nancy for a couple of decades also and if you get this
> Nancy... you are definitely in my thoughts! Because of a sore I spent that
> many months in bed and then a total of, statistically speaking, 3 years in
> bed by only being able to get up 3 to 5 hours a day because it was a Stage
> III wound and any pressure or bumps or any type of "internal shearing"
> would open it back up.
>
> I thank everyone else who has responded to my inquiry! starting this past
> Monday I began to be UTIs symptomatic and the pain has gotten worse. My
> doctors office keeps claiming they can't get the results from the
> laboratory or the home health agency who took the urine specimen over 3
> weeks ago! I have been calling them every single week but they keep saying
> they can't find the results. My home health agency nurse who got the
> results finally had to call my doctor's office yesterday but now I need to
> wait for my doctors office to call me to get on an antibiotic of some type
> because my bladder pain and my flank pain is so very bad. No fever but I do
> not want it to get to that stage [systemic] which he could easily do if not
> treated. And here we are going into a weekend!
>
> Incompetence is running rampant in this country.
>
> ~Lori
> C4/5 complete quad, 36 1/2 years post
> Tucson Arizona
>
> On Fri, May 6, 2016 at 5:54 AM,  wrote:
>
>> Thanks for the update on Nancy.  I've known her since the early 90's when
>> we would chat in AOL disAbility Chats.
>>
>> Best Wishes
>>
>> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
>> daano...@gmail.com writes:
>>
>>
>> [image: https://www.facebook.com/nancy.davisgillen]
>> 
>> Nancy Davis Gillen  8:06am
>> May 5
>> I'm feeling much better, but im going on 7 months in bed because of a
>> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
>> me in your thoughts.
>>
>> View Conversation on Facebook
>> 
>> This message was sent to daanoo2...@yahoo.com. If you don't want to
>> receive these emails from Facebook in the future, please unsubscribe
>> 
>> .
>> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
>> from my iPhone
>>
>> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
>> wrote:
>>
>> Greetings my quad list friends and friends [since 1995 for me],
>>
>> Sometimes after so much time goes by and either we are kept busy doing
>> happy things or are stuck in bed with a wound... we often lose track of
>> each other and exactly who is who and what is about that person.
>>
>> I know we have lost one of the most wonderful contributors here [Dave
>> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
>> us of his wishes. This was back in 2009.
>>
>> Having said that, here is what I would like from each one of you to
>> refresh my old lady mind.  I feel like I have aged a lifetime over the last
>> 4 years after losing my husband and unable to live with family any longer.
>>
>> ** Name *
>>
>>
>> ** Age*
>>
>> ** Date of injury*
>>
>> ** Town and state where you are from (unless you would just like to state
>> the state you are living in).*
>>
>> ** Are you a quad or a para? If you are a quad ... what level of injury
>> are you? *
>>
>> ** Complete or incomplete injury? *
>>
>> *And any other information you would like to offer. Thanks a bunch in
>> advance!*
>>
>> Best to you all!
>>
>> Lori Michaelson - age 51. How did that happen?!?!!!
>> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>>
>> I can feed myself if prepared and placed in front of me. Food needs to be
>> cut up if necessary.
>>
>> Grew up in a small town in New York State and lived there for 36 years
>> but after meeting my husband he got transferred a couple times which first
>> took us to Virginia and then to Tucson Arizona.
>> I was devastated with his unexpected passing at only 63 years old on June
>> 11, 2012 and over 90% of me went with him.
>> Went to live with sister and brother-in-law in northeastern Pennsylvania
>> for 3 years but, despite hiring morning and evening caregivers ... my
>> sister and brother-in-law wanted me to move on for a myriad of reasons but
>> primarily because my sister began having venous stasis and my
>> brother-in-law wanted his house back without people coming and going.
>>
>> Needless to say I am very disappointed in them because they very well
>> could have taken me on longer. I had 

Re: [QUAD-L] Question for everyone! Update on Nancy

[Lori Michaelson]

I have known Nancy for a couple of decades also and if you get this
Nancy... you are definitely in my thoughts! Because of a sore I spent that
many months in bed and then a total of, statistically speaking, 3 years in
bed by only being able to get up 3 to 5 hours a day because it was a Stage
III wound and any pressure or bumps or any type of "internal shearing"
would open it back up.

I thank everyone else who has responded to my inquiry! starting this past
Monday I began to be UTIs symptomatic and the pain has gotten worse. My
doctors office keeps claiming they can't get the results from the
laboratory or the home health agency who took the urine specimen over 3
weeks ago! I have been calling them every single week but they keep saying
they can't find the results. My home health agency nurse who got the
results finally had to call my doctor's office yesterday but now I need to
wait for my doctors office to call me to get on an antibiotic of some type
because my bladder pain and my flank pain is so very bad. No fever but I do
not want it to get to that stage [systemic] which he could easily do if not
treated. And here we are going into a weekend!

Incompetence is running rampant in this country.

~Lori
C4/5 complete quad, 36 1/2 years post
Tucson Arizona

On Fri, May 6, 2016 at 5:54 AM,  wrote:

> Thanks for the update on Nancy.  I've known her since the early 90's when
> we would chat in AOL disAbility Chats.
>
> Best Wishes
>
> In a message dated 5/5/2016 10:29:40 P.M. Central Daylight Time,
> daano...@gmail.com writes:
>
>
> [image: https://www.facebook.com/nancy.davisgillen]
> 
> Nancy Davis Gillen  8:06am
> May 5
> I'm feeling much better, but im going on 7 months in bed because of a
> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
> me in your thoughts.
>
> View Conversation on Facebook
> 
> This message was sent to daanoo2...@yahoo.com. If you don't want to
> receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
> from my iPhone
>
> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
> wrote:
>
> Greetings my quad list friends and friends [since 1995 for me],
>
> Sometimes after so much time goes by and either we are kept busy doing
> happy things or are stuck in bed with a wound... we often lose track of
> each other and exactly who is who and what is about that person.
>
> I know we have lost one of the most wonderful contributors here [Dave
> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
> us of his wishes. This was back in 2009.
>
> Having said that, here is what I would like from each one of you to
> refresh my old lady mind.  I feel like I have aged a lifetime over the last
> 4 years after losing my husband and unable to live with family any longer.
>
> ** Name *
>
>
> ** Age*
>
> ** Date of injury*
>
> ** Town and state where you are from (unless you would just like to state
> the state you are living in).*
>
> ** Are you a quad or a para? If you are a quad ... what level of injury
> are you? *
>
> ** Complete or incomplete injury? *
>
> *And any other information you would like to offer. Thanks a bunch in
> advance!*
>
> Best to you all!
>
> Lori Michaelson - age 51. How did that happen?!?!!!
> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>
> I can feed myself if prepared and placed in front of me. Food needs to be
> cut up if necessary.
>
> Grew up in a small town in New York State and lived there for 36 years but
> after meeting my husband he got transferred a couple times which first took
> us to Virginia and then to Tucson Arizona.
> I was devastated with his unexpected passing at only 63 years old on June
> 11, 2012 and over 90% of me went with him.
> Went to live with sister and brother-in-law in northeastern Pennsylvania
> for 3 years but, despite hiring morning and evening caregivers ... my
> sister and brother-in-law wanted me to move on for a myriad of reasons but
> primarily because my sister began having venous stasis and my
> brother-in-law wanted his house back without people coming and going.
>
> Needless to say I am very disappointed in them because they very well
> could have taken me on longer. I had I known it was only going to be for 3
> years (even though was an emergency situation as I had nowhere to go) I
> wish I had found a live-in caregiver in Tucson where my husband and I have
> been living for 11 years.
>
> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
>
> My story is a long one but I will stop there.
>

Re: [QUAD-L] One Comment and Two Questions Needing Advice On

[wheelchair]

Hi Carol.   Have you considered your State's Assistive Techology  
Department?  There are cool vest for Quads that will keep you cool during  
those hot 
humid days.
 
Best Wishes
 
 
In a message dated 5/5/2016 9:04:04 P.M. Central Daylight Time,  
cboy...@swbell.net writes:

First, thanks to all of you. I have learned so much I didn't know since  
joining the loop. 
Second, both my husband and myself have medical conditions. We are on  
prescription medications. In the job he has just started he has to drive  
himself all over the state unlike his previous job where there was always an  
investigator with him. Also, we aren't getting any younger. We know it is  
possible that a situation might arise for either one of us where we have to  
call 
for an ambulance but might not be able to communicate what is the  
immediate concern, our medical histories, and what prescription drugs we are  
on. I 
know there are companies in the US that make a variety of products for  this 
purpose. I have seen an ad for Road ID. We tried medic alert bracelets  for 
just basic information, but they just don't hold up over time (but for  
that matter, neither have we:-)). I am looking for recommendations  of 
products/services in the US for something we can carry with us to  communicate 
necessary information. 
Third, before my injury, I sweated like a pig. Since the injury unless I'm  
about to go into autonomic dysreflexia, I don't sweat. I live in a hot, 
humid  Southern state in the US. I am looking for recommendations on gear I can 
buy  to keep me cool. I have a baseball cap that holds water in it, but 
it's not  enough. Please advise. 
Thanks. 
Carolyn

Re: [QUAD-L] Question for everyone! Update on Nancy

[Johnny Cammon]

Johnny Cammon, 41 years old date of injury May 24, 1991 quadriplegic
C45/from a gunshot wound

On Thu, May 5, 2016 at 11:23 PM,  wrote:

> Dana Wray 62 years old, date of injury July 26, 1974, C4-5 come plate I
> have a tracheostomy that requires suctioning throughout my days and
> currently has been going through chemotherapy after colon cancer and
> frequent UTIs. I have been in ER twice this week. The first antibiotic gave
> me diarrhea and now they have me on a different one. I had to get Bloodwork
> and and cultures for my Elio conduit . There was some little spot and my
> long for the second time that they don't know what it means.
>
> Sent from my iPhone
>
> On May 5, 2016, at 10:29 PM, daano...@gmail.com wrote:
>
>
> [image: Nancy Davis Gillen] 
> Nancy Davis Gillen  8:06am
> May 5
> I'm feeling much better, but im going on 7 months in bed because of a
> sore. I'm going crazy! Please pass on to the quad list. Thanks for keeping
> me in your thoughts.
>
> View Conversation on Facebook
> 
> This message was sent to daanoo2...@yahoo.com. If you don't want to
> receive these emails from Facebook in the future, please unsubscribe
> 
> .
> Facebook, Inc., Attention: Community Support, Menlo Park, CA 94025Sent
> from my iPhone
>
> On Apr 30, 2016, at 4:33 PM, Lori Michaelson 
> wrote:
>
> Greetings my quad list friends and friends [since 1995 for me],
>
> Sometimes after so much time goes by and either we are kept busy doing
> happy things or are stuck in bed with a wound... we often lose track of
> each other and exactly who is who and what is about that person.
>
> I know we have lost one of the most wonderful contributors here [Dave
> Kelmer] and I believe that Bill Jenkins (in Florida) was the one who told
> us of his wishes. This was back in 2009.
>
> Having said that, here is what I would like from each one of you to
> refresh my old lady mind.  I feel like I have aged a lifetime over the last
> 4 years after losing my husband and unable to live with family any longer.
>
> ** Name *
>
>
> ** Age*
>
> ** Date of injury*
>
> ** Town and state where you are from (unless you would just like to state
> the state you are living in).*
>
> ** Are you a quad or a para? If you are a quad ... what level of injury
> are you? *
>
> ** Complete or incomplete injury? *
>
> *And any other information you would like to offer. Thanks a bunch in
> advance!*
>
> Best to you all!
>
> Lori Michaelson - age 51. How did that happen?!?!!!
> C4/5 complete quad, 36 1/2 years post. Unable to drive.
>
> I can feed myself if prepared and placed in front of me. Food needs to be
> cut up if necessary.
>
> Grew up in a small town in New York State and lived there for 36 years but
> after meeting my husband he got transferred a couple times which first took
> us to Virginia and then to Tucson Arizona.
> I was devastated with his unexpected passing at only 63 years old on June
> 11, 2012 and over 90% of me went with him.
> Went to live with sister and brother-in-law in northeastern Pennsylvania
> for 3 years but, despite hiring morning and evening caregivers ... my
> sister and brother-in-law wanted me to move on for a myriad of reasons but
> primarily because my sister began having venous stasis and my
> brother-in-law wanted his house back without people coming and going.
>
> Needless to say I am very disappointed in them because they very well
> could have taken me on longer. I had I known it was only going to be for 3
> years (even though was an emergency situation as I had nowhere to go) I
> wish I had found a live-in caregiver in Tucson where my husband and I have
> been living for 11 years.
>
> Landed back in Tucson Arizona with a live-in caregiver in January 2016.
>
> My story is a long one but I will stop there.
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>
>