Re: [QUAD-L] https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7Vp

[Noel]

When Ride Designs does the pressure mapping, do they come to your home, or
do you have to go to their location?


On Mon, Apr 15, 2024 at 3:21 PM Don Price  wrote:

> Your basic Ride cushion is about the same, or less, than a basic Roho.
> The custom fit Ride cushions are more expensive as there's a fitting
> involved, then the custom fabrication. But definitely worth the cost if
> they prevent you from getting a pressure injury.
>
> From the Ride Website:  Ride Designs does not sell directly to the
> public, rather through Ride® certified providers. Please call the Ride
> Customer Service team at 866-781-1633 for assistance in finding your
> closest Ride supplier.
>
> A sore on your sack? Holy balls--that's nuts! [sorry, couldn't resist]
>
> Don.
>
> On Thursday, April 11, 2024 at 11:34:07 AM MST, Ben Mattlin <
> benmatt...@gmail.com> wrote:
>
>
> Thanks, Paul. So it's basically made of foam? Anyway, my problem seems to
> be on the scrotum, which isn't exactly a bony protuberance.
>
> This sounds expensive, too, but I'll definitely think about.
>
>
>
> *From:* Paul Jacobson 
> *Sent:* Thursday, April 11, 2024 11:28 AM
> *To:* 'Ben Mattlin' ; 'Jeffrey Gaede' <
> jsga...@yahoo.com>; quad-list@eskimo.com; 'Dan G.' ;
> 'Daniel Gove' ; wheel...@centurylink.net; 'Edward
> Tessier' 
> *Subject:* RE: [QUAD-L]
> https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY.
> ..
>
>
>
> RIDE SYSTEM:  You get your butt and hips mapped and wherever there
>
> Aae bony prominences, the areas where wounds occur, the cushion is cut out
> so
>
> there is no pressure, friction or touching.  These bony prominences,  just
> float
>
> and are free from pressure.
>
>
>
> The cushion is individualized to you.  Hope this helps.
>
> Paul
>
>
>
> *From:* Ben Mattlin 
> *Sent:* Thursday, April 11, 2024 10:44 AM
> *To:* 'Jeffrey Gaede' ; quad-list@eskimo.com; 'Dan G.'
> ; 'Daniel Gove' ;
> wheel...@centurylink.net; 'Edward Tessier' 
> *Subject:* RE: [QUAD-L]
> https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY
> ...
>
>
>
> Can anyone explain why the Ride cushion is different/better? I'm currently
> in bed because of a scrotum pressure wound, and I've been using a Roho
> Quadtro for the past several years (after many more years on memory foam
> cushions). Thanks, everyone, for your wisdom and good advice.
>
> -Ben (age 61, quad from spinal muscular atrophy)
>
>
>
> *From:* Jeffrey Gaede 
> *Sent:* Wednesday, April 10, 2024 8:44 PM
> *To:* quad-list@eskimo.com; Dan G. ; Daniel Gove <
> quadz...@optonline.net>; wheel...@centurylink.net; Edward Tessier <
> e...@artecopartners.com>
> *Subject:* Re: [QUAD-L]
> https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY
> ...
>
>
>
> Same here. Roho was fine when younger. Now it's Ride.
>
>
>
> On Wednesday, April 10, 2024 at 01:49:33 PM PDT, Edward Tessier <
> e...@artecopartners.com> wrote:
>
>
>
>
>
> in my younger years as a quad I did fine on rojo  and Jay cushions – –
> pneumatic and gel respectively.
>
>
>
>  At 30 years post my body had had enough and I developed a sore that kept
> me in bed for a year
>
>
>
>  I tried more than 20 different products on the market
>
>
>
>  the only cushion that worked dependably for long hours of sitting in with
> no breakdown were the Ride Cushions.   highly customized and highly durable
> and absolute miracle workers  in that it enabled me to go back to work and
> be more active raising my kids
>
>
>
> https://www.ridedesigns.com/wheelchair-cushions
> --
>
> *From:* Jeffrey Gaede 
> *Sent:* Tuesday, April 9, 2024 10:33 AM
> *To:* quad-list@eskimo.com ; Dan G. <
> dng47...@gmail.com>; Daniel Gove ;
> wheel...@centurylink.net 
> *Subject:* Re: [QUAD-L]
> https://www.amazon.com/Orthopedic-Cushion-Haemorrhoids-Suitable-Wheelchair/dp/B07WWN6933/ref=sr_1_7?dib=eyJ2IjoiMSJ9.1GIYkUexyNJ_5G8FHaBiHpiOKc70Us6r4iV3NYFnV8iOoImDWy0uufcBcD28PWIFy8s7VpJuynUbLzQT0pK9b_ylEuea7JwedZpPM4BSXKifeaAtE-d86HvuMY
> ...
>
>
>
> True
>
>
>
> On Tuesday, April 9, 2024 at 10:26:34 AM PDT, wheel...@centurylink.net <
> wheel...@centurylink.net> wrote:
>
>
>
>
>
> i bought one like this and it made me so unbalance that i could not sit on
> it.
>
> i am thinking of designing and making my own cushion with cutout for groin
> area.
>
> get really thick memory foam or other material and cut out a hole.
>
> or use donut cushion with other material around it.
>
>
>
> there is a cushion made that does have hole in 

Re: [QUAD-L] BONE DENISITY

[Noel]

I was diagnosed with osteoporosis about 10 years ago, high risk of
fracture. I've been taking Fosamax ever since. I had another bone density
test a couple of months ago, to see if the Fosamax was working. She didn't
give me the results of the latest bone density test, just tell me to keep
taking the Fosamax.

When I was first diagnosed, I started using an RT300 FES bike after reading
that it had strengthened bones on many people that have used one (notably
Christopher Reeve). Used it for a couple of years, puts a lot of pressure
on the bones. But, after a couple of years, I developed severe pain in my
knees and had to stop. I've tried everything for the pain in my knees,
prescription and nonprescription, nothing seems to help.

On Wed, Dec 13, 2023 at 1:54 AM Dana  wrote:

> Yes I have taken for several years. I need to get a DEXA scan before I can
> get another injection. This is my third type of treatment for osteoporosis.
> I was injured at 20 and the state would not pay for a standing frame like
> they suggested at rehab, this caused me to get osteoporosis.
>
> I go to a specialist at KU, I have pain in my shoulders and neck and she
> suggested I use Biofreeze. It was a prescription and now the more effective
> Brand over the counter. I order from Amazon.
> Because of the Osteoporosis I have not been able to get surgery on my
> broken hip broken foot or arm. I did have Foote drop surgery and that’s the
> one that gave me gangrene, a wound vac 2 months and then A skin graft. I
> have no meat on the back of my heel and part of the bone is gone, because
> the doctor left the external fixator on seven days without checking.
> leaving it on too long broke my foot. After I get my next DEXA, I will tell
> you my status. I don’t know how well it improves but if you read about it
> online it says that you need to take it. It gives pretty grim prognosis to
> Osteoporosis. I want to hear from everybody on the list who has been
> diagnosed with osteoporosis and what treatment you have been getting and
> the results of the treatment
>  Gratefully yours, Dana C 4-5, complete,ileo-conduit,trach, 49 years post.
> I so enjoy the Quad-List. Thank you Jim for Starting this productive group
> of survivors.I am grateful for this Quad-List. We are a few That contribute
> but United.
>
> On Sun, Dec 10, 2023 at 3:00 PM Paul Jacobson 
> wrote:
>
>> Has anyone taken PROLIA for better bone density? Can you
>>
>> share your results and thoughts? Thank you!
>>
>>
>>
>> Paul c5/6
>>
>> San Diego, CA
>>
>

Re: [QUAD-L] nighttime alert

[Noel]

Surprisingly yes, it even whispers back.

On Tue, Oct 10, 2023 at 11:58 AM Ben Mattlin  wrote:

> You mean Alexa or Echo can hear even a whisper? Definitely have to check
> it out. I haven't made the plunge into "smart" devices yet. Thanks for the
> good ideas, everyone!
>
>
>
> *From:* Jeffrey Gaede 
> *Sent:* Tuesday, October 10, 2023 10:01 AM
> *To:* Noel ; Eric Olson 
> *Cc:* Ben Mattlin ; Quad List 
> *Subject:* Re: [QUAD-L] nighttime alert
>
>
>
> You get a couple of the cheapest Amazon Echos, assuming you have Internet,
> and turn the volume up because that's both the speaker and the microphone,
> and keep it nearby. Should work fine
>
>
>
> On Tuesday, October 10, 2023 at 09:58:35 AM PDT, Eric Olson <
> whee...@wi.rr.com> wrote:
>
>
>
>
>
> I go low tech and just use a baby monitor.
>
>
>
> On Mon, Oct 9, 2023 at 3:11 PM Noel  wrote:
>
> I use an Amazon Echo, it can hear me whisper at night for controlling the
> TV. Can make phone calls, or drop in on other echo devices
>
>
>
> On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin  wrote:
>
> I have basically no muscle or movement and not much voice. Trying to
> figure out how to alert someone who is in another room if I need help at
> night, when I am in bed and not mobile. A baby monitor? A very sensitive
> voice-activated cell phone? Not sure what would work. All suggestions
> welcome!
>
> Thanks.
>
> Ben
>
>
>
>

Re: [QUAD-L] nighttime alert

[Noel]

I use an Amazon Echo, it can hear me whisper at night for controlling the
TV. Can make phone calls, or drop in on other echo devices

On Mon, Oct 9, 2023 at 1:20 PM Ben Mattlin  wrote:

> I have basically no muscle or movement and not much voice. Trying to
> figure out how to alert someone who is in another room if I need help at
> night, when I am in bed and not mobile. A baby monitor? A very sensitive
> voice-activated cell phone? Not sure what would work. All suggestions
> welcome!
>
> Thanks.
>
> Ben
>
>
>

Re: [QUAD-L] EASY TO TRANSFER TO SHOWER CHAIR

[Noel]

 the height of the headrest from the seat is about 30 inches at maximum. It
looks like it can come down about a foot to the top of the backrest. From
the seat to the top of the backrest is about 20 inches. Not real precise,
the only person I could get to take measurements isn't the greatest with
the tape measure.

On Wed, Sep 27, 2023 at 4:02 PM Eric Olson  wrote:

> how far above the backrest does the headrest go?
>
> On Wed, Sep 27, 2023 at 1:56 PM Noel  wrote:
>
>> This is what I use
>>
>> https://www.indemedical.com/ActiveAid-285-Tilt-In-Space-Shower-Commode-Chair_p_3849.html
>>
>> On Wed, Sep 27, 2023 at 12:29 PM Eric Olson  wrote:
>>
>>> It wouldn't work for me as I need head support.  Speaking of, anyone
>>> have a recommendation for a commode chair with head support?
>>>
>>> On Tue, Sep 26, 2023 at 5:54 PM Paul Jacobson 
>>> wrote:
>>>
>>>> Hi, wonder if anyone has ever tried this….super interesting!
>>>>
>>>>
>>>>
>>>> Thanks,
>>>>
>>>> Paul  c5/6 complete
>>>>
>>>>
>>>>
>>>> Bedside Commode Lift JT-2020K
>>>>
>>>> https://www.discovermymobility.com/store/bathroomlifts/discover/bedside-commode-lift-jt-2020k/index.html?gclid=CjwKCAjw38SoBhB6EiwA8EQVLoJpATEzS8slo7U87n63xWVjBeP3JZHPuPSk1fWef8l1e30ST3PzkhoCKI0QAvD_Bw
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Sent from my T-Mobile 5G Device
>>>>
>>>>
>>>>
>>>

Re: [QUAD-L] EASY TO TRANSFER TO SHOWER CHAIR

[Noel]

This is what I use
https://www.indemedical.com/ActiveAid-285-Tilt-In-Space-Shower-Commode-Chair_p_3849.html

On Wed, Sep 27, 2023 at 12:29 PM Eric Olson  wrote:

> It wouldn't work for me as I need head support.  Speaking of, anyone have
> a recommendation for a commode chair with head support?
>
> On Tue, Sep 26, 2023 at 5:54 PM Paul Jacobson 
> wrote:
>
>> Hi, wonder if anyone has ever tried this….super interesting!
>>
>>
>>
>> Thanks,
>>
>> Paul  c5/6 complete
>>
>>
>>
>> Bedside Commode Lift JT-2020K
>>
>> https://www.discovermymobility.com/store/bathroomlifts/discover/bedside-commode-lift-jt-2020k/index.html?gclid=CjwKCAjw38SoBhB6EiwA8EQVLoJpATEzS8slo7U87n63xWVjBeP3JZHPuPSk1fWef8l1e30ST3PzkhoCKI0QAvD_Bw
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> Sent from my T-Mobile 5G Device
>>
>>
>>
>

Re: [QUAD-L] Greg Wickenburg

[Noel]

Greg's photos were pretty amazing, I showed them to a couple of
photographers where I live, they were all very inspired.
https://www.gregwickenburg.com/

On Tue, Feb 7, 2023 at 6:35 AM Don Price  wrote:

> I’m really sorry to hear this sad news. Greg was a really nice guy and I
> got to hang out with him a few times at his home. He always beat me in Wii
> tennis. I’m not sure if Greg ever shared his photography with the group,
> but he developed a pretty neat technique of overlapping two photos to
> create this beautiful double-exposure effect. Very creative.
>
> Rest easy, Greg. You are missed.
>
> Don Price
> Tempe, AZ
>
> On Feb 6, 2023, at 12:47 PM, Jim Lubin  wrote:
>
> 
> this posted on facebook
>
> To all the friends, family and supporters of Greg Wickenburg,
> Our hearts are heavy to have to tell you that Greg passed away last night,
> February 5th 2023. He was surrounded by family and died peacefully at home.
> Greg was an amazing, inspiring, creative, generous, determined, funny
> "smartass", and as genuine as they come.
> Even facing his difficult challenges in life, he never failed to stay
> positive. He will forever be in our hearts and now he is free to fly.
> We love you Greg. You will be missed by all.
>
>

Re: [QUAD-L]

[Noel]

 I've been using either senokot or Lactulose

On Sun, Jan 1, 2023 at 4:00 AM Lily Nami  wrote:

> Hello everyone , what are your advice for constipation in quadriplegic
> ppl?? I'll be grateful for your answers
>

[QUAD-L] $20

[Noel]

I did a study where I had to talk with somebody working on a college
dissertation, it was through zoom. Anybody eligible between the ages of 18
and 80, can't be taking any mind altering medication's. She paid me the
money through PayPal when we were done talking, if you're interested she
really needs more participants. Her email address is: rk...@alliant.edu

Re: [QUAD-L] STRONG ABDOMINAL SPASMS

[Noel]

I take diazepam (10 mg) in the morning for muscle spasms.  Lyrica twice a
day for neuropathic pain. I've tried cutting back, stopping altogether, but
it always resulted in increased pain. Side effects, fatigue and dry mouth.

On Wed, Aug 31, 2022 at 1:20 PM Paul Jacobson  wrote:

> I have been having significant abdominal spasms/muscle tightness and am
> considering taking either:
>
> 1. Diazepam
> 2. Gabapentin (Neurontin)
> 3. Pregabalin (Lyrica)
> 4. Quinine
>
> If you have taken any of these, please share your experience (side
> effects, effectiveness, dosage, etc.)
> Thank you!
> Paul c5/6  19 years post
>

Re: [QUAD-L] Finding a Quad Doctor.

[Noel]

I have the same problem. I think maybe a Physiatrist with some kind of
spinal cord injury specialty or experience.

On Wed, Mar 30, 2022 at 11:08 AM DAVID LEWIS  wrote:

> At times being a Quad  when i have something wrong wrong with me that my
> regular Dr. doesnt know what to do he says about me looking into a Quad Dr.
> Who exactly would that be?  A Neurologist  Dr maybe? What do you guys
> think?
> Thanks
>

Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Noel]

Sorry I missed it, I don't know what I was thinking, had it down for this
evening. Even saved the link on Facebook which of course says the 15th.

On Wed, Mar 16, 2022 at 12:55 PM Edward Tessier 
wrote:

> How did the zoom go last night?
>
> Unfortunately I have a funeral to attend.
> --
> *From:* Don Price 
> *Sent:* Tuesday, March 15, 2022 4:29 PM
> *To:* Greg ; quad-list@eskimo.com <
> quad-list@eskimo.com>
> *Subject:* RE: [QUAD-L] Quadlist Zoom Meeting, 3/15
>
>
> Still on…. Starting soon.
>
>
>
> *From: *Greg 
> *Sent: *Tuesday, March 15, 2022 4:09 PM
> *To: *Don Price ; quad-list@eskimo.com
> *Subject: *Re: [QUAD-L] Quadlist Zoom Meeting, 3/15
>
>
>
> I hope the meeting is still on. Did I miss it, or is it an hour later than
> advertised?
>
>
>
> Greg
>
>
>
>
>
> On Mon, Mar 7, 2022 at 4:57 PM Don Price  wrote:
>
> Hey all!
>
>
>
> We did a Quadlist Zoom meeting a few weeks ago, and even though only four
> of us attended it was still very enjoyable. I finally got to see and talk
> to my hero, Jim Lubin, the man who started the Quadlist.
>
>
>
> Anyhow, I want to schedule another meeting, and rather than trying to get
> a consensus on date/time, i'm just going to schedule it for Tuesday, March
> 15th at 5pm AZ time. That's:
>
> 7pm ET
>
> 6pm CT
>
> 5pm MT
>
> 4pm PT
>
>
>
>
>
> Topic: Quad-List Chat
>
> Time: Mar 15, 2022 05:00 PM Arizona
>
>
>
> Join Zoom Meeting
>
> https://us02web.zoom.us/j/85753852801
>
>
>
> One tap mobile
>
> +16699006833,,85753852801# US (San Jose)
>
>
>
> Join if you can!!!
>
>
>
> Don.
>
>
>

Re: [QUAD-L] Quadlist Zoom Meeting, 3/15

[Noel]

Can you verify the time? Clicking on the zoom link indicates 6 PM Mountain
standard Time.

On Tue, Mar 15, 2022 at 5:29 PM Don Price  wrote:

> Still on…. Starting soon.
>
>
>
> *From: *Greg 
> *Sent: *Tuesday, March 15, 2022 4:09 PM
> *To: *Don Price ; quad-list@eskimo.com
> *Subject: *Re: [QUAD-L] Quadlist Zoom Meeting, 3/15
>
>
>
> I hope the meeting is still on. Did I miss it, or is it an hour later than
> advertised?
>
>
>
> Greg
>
>
>
>
>
> On Mon, Mar 7, 2022 at 4:57 PM Don Price  wrote:
>
> Hey all!
>
>
>
> We did a Quadlist Zoom meeting a few weeks ago, and even though only four
> of us attended it was still very enjoyable. I finally got to see and talk
> to my hero, Jim Lubin, the man who started the Quadlist.
>
>
>
> Anyhow, I want to schedule another meeting, and rather than trying to get
> a consensus on date/time, i'm just going to schedule it for Tuesday, March
> 15th at 5pm AZ time. That's:
>
> 7pm ET
>
> 6pm CT
>
> 5pm MT
>
> 4pm PT
>
>
>
>
>
> Topic: Quad-List Chat
>
> Time: Mar 15, 2022 05:00 PM Arizona
>
>
>
> Join Zoom Meeting
>
> https://us02web.zoom.us/j/85753852801
>
>
>
> One tap mobile
>
> +16699006833,,85753852801# US (San Jose)
>
>
>
> Join if you can!!!
>
>
>
> Don.
>
>
>

Re: [QUAD-L] Re: Testing my email

[Noel]

Think I've been here since the late 1990's, remember when we used to get
together and chat on mIRC

On Sat, Jan 15, 2022 at 2:00 PM radnbada...@aol.com 
wrote:

> Ray (radnbadatpj) Still here  c/5 Prescott Valley AZ 20yrs post, miss all
> the old timers:( Jim who started this site, I think he’s still here,  W
> (Wheelchair who’s son was a quad) and he always gave awesome advice and
> just knew a bunch of stuff. Eric who’s still here, Dave from Phoenix
> injured during gymnastics meet (I think), Jim ( he did donkey trails
> little inspirational quotes on here.) Mark who was Quad Pirate, Silas,
> the farmer, Houston the gangster, who was going to college, Little Quad
> can’t remember her name, Lori who just recently passed away,  Dave from
> Texas, Boyd who at the time was the oldest member on the quad list, I think
> he was a pilot,  Joan can’t remember if it was her or Nancy who raised
> miniature horses. Greg he also lives in Arizona. These are just a few of
> the names that come to mind:-) I found this site a couple years after my
> accident and have followed it through the years. Sorry for rambling on,
> anyway I pray everyone is off to a great New Year and good health keep the
> post’s coming
>
>
>
> Sent from the all new AOL app for iOS
> 
>
> On Saturday, January 15, 2022, 11:07 AM, Carla Aarssen <
> caars...@hotmail.com> wrote:
>
> I am still here. 42yr old female C5 quadriplegic from Ontario, Canada 
>
> Get Outlook for Android 
> --
> *From:* Eric Olson 
> *Sent:* Saturday, January 15, 2022 12:41:59 PM
> *To:* Jeffrey Gaede 
> *Cc:* Edward Tessier ; quad-list@eskimo.com <
> quad-list@eskimo.com>
> *Subject:* Re: [QUAD-L] Re: Testing my email
>
> I just meant how many people are actually subscribed to the list.  I think
> most of the people that were on the list at one time have moved on to
> social media.  Shame.
>
> On Fri, Jan 14, 2022 at 11:22 AM Jeffrey Gaede  wrote:
>
> As in? Quadriplegics? Tetraplegics?
>
> On Friday, January 14, 2022, 09:18:05 AM PST, Eric Olson <
> whee...@wi.rr.com> wrote:
>
>
> I often wonder how many of us there are.
>
> On Thu, Jan 13, 2022 at 10:03 PM Edward Tessier 
> wrote:
>
> My message got through.
>
>  Thanks everybody!
> --
> *From:* Edward Tessier
> *Sent:* Thursday, January 13, 2022 7:52 PM
> *To:* quad-list@eskimo.com 
> *Subject:* Testing my email
>
> I haven't posted in a long time that I want to make sure it still works
> with my current email.   If anybody sees this, just give me a quick howdy.
>
>  Thanks
>
>

Re: [QUAD-L] Tap Water Enema

[Noel]

Bob, does it trigger A D? How hard was it to find a
Coloplast representative? Does Medicaid or Medicare cover any of it? Sorry
for so many questions, I'm 27 years post and my program has been a
nightmare lately.

On Fri, Oct 8, 2021 at 3:52 PM Robert Vogel  wrote:

> Hi Nicki,
>
> I will start by saying it is always a good idea to consult with your
> physician on these matters.
>
> That said, I’m a T10 para, 36 years post injury and about 15 years ago my
> system started to slow
> down a lot, to the point where yearly urology X-rays of my abdomen always
> mentioned “much of
> the area is occluded by stool” meaning I was chronically constipated, this
> despite drinking plenty
> of water, eating right and getting lots of exercise. I had tried lots of
> options for bowel program with
> minimal results.
>
> Around 2012-2013 my urology/bowel nurse practitioner suggested trying the
> Peristeen system
> by Coloplast—it uses a ‘rectal foley’ catheter and hand pump system to
> introduce body temp
> tap water into the bowel. I found it works fantastic for me. Studies show
> it empties about 1/2 or
> more of the colon, which is about 24-inches on average. Compared to a
> standard bowel program
> that empties about 6-inches of colon. I’ve been using it for close to 10
> years and have been accident
> free. As a bonus, it empties me so completely I find I feel much better in
> general.
>
> Caveat is that you do need a prescription, need a 45-minute training
> session, the key is finding out
> how much water is optimal for your system, too little and you don’t empty
> enough, too much and you
> keep emptying and emptying. Also and insurance coverage is spotty. Here is
> a link to the website:
>
> https://products.coloplast.us/coloplast/continence-care/peristeen/peristeen-tai/peristeen-balloon-catheter/peristeen-anal-irrigation-system/
>
> Hope this helps,
> Bob V
>
> On Oct 8, 2021, at 3:02 PM, Nichole Rohling 
> wrote:
>
> Has anyone or does anyone use a Tap Water Enema?
> I had one once in the hospital.
> My bowel program has been terrible and
> basically my caregiver has to push and pull on
> my rear to even get poop to come out.
> Curious if anyone has experience doing a
> tap water enema and could you share your thoughts.
>
> Nicki
> C5/6
>
>
>

Re: [QUAD-L] Bed/Mattress Question

[Noel]

I've been sleeping on a purple mattress for about 5 years, it is
surprisingly firm. I got it because of pain from a bulging disc in my
lower back. Despite It's firmness, I haven't had any problems with
skin breakdown. Unfortunately it hasn't helped any with lower back
pain. At the time, it was the only firmness available, but they now
have other options available that look softer.

On Fri, Mar 19, 2021 at 12:28 PM Nancy  wrote:
>
> What bed/mattress do you use to prevent skin breakdowns? I'm looking for info 
> and recommendations - comfort, durability, reliability...
>
> I currently use a Drive Medical Lateral Rotation Mattress with Low Air Loss. 
> I don't use the turning feature because it never returned me to the correct 
> position. I got this bed in 2015 and I'm now having a lot of problems wit it. 
> I can no longer get comfortable, it bulges and makes hard lumps under my 
> injury site, bones and muscles. I can't sleep through the night anymore and 
> I'm getting headaches frequently. I hurt all the time. On the plus side, it 
> continues to prevent pressure sores. I've tried to get insurance (MLTC 
> Medicare/Medicaid) to cover a new mattress but have been denied. After nearly 
> 53 years, I have two chronic sores so I spend most of my time in bed. This is 
> killing me both physically and mentally! Any suggestions will be appreciated.
> Nan

Re: [QUAD-L] SCI-COG Study

[Noel]

Did the phone interview, they told me I'm not eligible and not allowed
to tell me why not.

On Sun, Mar 7, 2021 at 12:17 PM Jim Lubin  wrote:
>
> SCI-COG Study
>
> The purpose of this study is to test the effectiveness of a cognitive 
> screening test in a SCI population. We are doing this research to improve how 
> well a person’s medical team can identify whether a patient needs to see a 
> specialist about memory, attention, and other thinking skills.  If you are 
> eligible and choose to participate, we will set up a Zoom visit to complete 
> hands-free testing that will examine your thinking skills. We will test 
> things like language skills, how fast you can process information, your 
> ability to remember new information, and pay attention for long periods of 
> time. At the end of these tests, you will be asked to complete some 
> questionnaires. All the testing takes about 2.5 hours to complete, and you 
> will be compensated $75.00 for your participation. No in-person visits 
> required.  CONTACT US: Call 206-744-5196  or email sci...@uw.edu

Re: [QUAD-L] Voice Operated TV Google, Alexa, others?

[Noel]

Hello Randy, I have a Toshiba fire TV that I control with Alexa
/Amazon echo. Good for opening and closing different apps, watching
anything streaming. I also use a Broadlink RM pro in combination with
the echo to change channels on dish network. The Broadlink RM pro took
a while to figure out, but once past the initial set up and
frustration, it's pretty useful.

On Tue, Feb 23, 2021 at 3:14 PM Randy Anderson
 wrote:
>
> Hello
>
> I have a SCI 4/5, no movement from the neck down using a sip and puff power 
> wheelchair.
> The picture on our TV went out yesterday morning so I'm looking for another 
> one.
>
> I'm seeing that some TVs they come with an option of using your voice with 
> Google or Alexa, and maybe others.
> I do have Alexa now, mostly lights, a phone call now and then, etc.
> Do any of you have a TV with these functions?
> How well does it work for you, do you prefer Alexa or Google?
> Is Alexa or Google more user-friendly for a hands-free operation?
> Are there other options I should be aware of?
>
> If anybody has a TV with the Alexa and Google function, which TV do you own?
> Do or don't you like it?
>
> Any suggestions would be appreciated.
> Thank you, Randy
>
>

Re: [QUAD-L] Vaccines for Covid-19

[Noel]

I've registered, but for some reason I'm not eligible yet.


On Thu, Jan 14, 2021 at 4:01 PM Danny Hearn  wrote:
>
> Hello Group.I was Wondering how everyone Feels about the Covid-19 
> Vaccines. Yes-No  Or going to wait a while and see ? I'm not sure I Trust 
> Them Myself.  Thanks !Hope Your All Doing Okay as we head into A New Year 
> !Dan H***

Re: [QUAD-L] foley catheters

[Noel]

I believe Silver is supposed to have antibiotic properties. I use a
silicone catheter called Duette, they claim it is less susceptible to
infections.


On Fri, Jan 15, 2021 at 12:18 PM Eric Olson  wrote:
>
> I've never tried them.  In theory, it might help with uti's, but what does 
> the silver do to the lining of your bladder?
>
> On Thu, Jan 14, 2021 at 6:00 PM  wrote:
>>
>> to those who use foleys.
>>
>> I am going to use some foley until sore heals up due to condom catheter.
>>
>> is the more expensive foleys made with silver worth buying? compared to
>> silicone or latex? i have no allergy's.
>>
>> thank you,
>>
>> derrick w in pa c/5
>>
>>

Re: [QUAD-L] Bad Spasms are back... What do u guys take?

[Noel]

I take a small dose of diazepam every morning, it seems to work pretty
well for me.

On Fri, May 8, 2020 at 4:19 PM DAVID LEWIS  wrote:
>
> I have been taking Baclofen 20 mg 3 times a day..
> Now i take a Mustle relaxer 3 times a day with it for 2 weeks.
> Its working great.
> Can u fellow Quads tell me what you take for Spasms?
> Thank you guys,, Stay safe..
> Johnny
>

[QUAD-L] Stimulus

[Noel]

Posted by Jim on Facebook, scroll down to the paragraph about Social Security

https://www.washingtonpost.com/graphics/business/coronavirus-stimulus-check-calculator/?fbclid=IwAR3Pf64gqYS4g1drTej1buVL4SI7-BbSK1TkYb3Ls0QD-6o789O_cKXlJjU

Re: [QUAD-L] Magic Bullet Suppositories

[Noel]

Placed an order on eBay, received a message a few days later they
don't have them either.

On Sat, Mar 21, 2020 at 7:09 AM Noel  wrote:
>
> Do you have an eBay account?
>
> https://www.ebay.com/itm/Magic-Bullet-Suppository-Box-of-100/232225443847?hash=item3611b71007:g:4L4AAOSw~AVYvZHO
>
>
> On Fri, Mar 20, 2020 at 8:07 PM  wrote:
> >
> > Hello.  Does anyone know where I can get the Magic Bullet Suppositories?  I 
> > went to the Allegro website and it said they were out of stock.

Re: [QUAD-L] Magic Bullet Suppositories

[Noel]

Do you have an eBay account?

https://www.ebay.com/itm/Magic-Bullet-Suppository-Box-of-100/232225443847?hash=item3611b71007:g:4L4AAOSw~AVYvZHO


On Fri, Mar 20, 2020 at 8:07 PM  wrote:
>
> Hello.  Does anyone know where I can get the Magic Bullet Suppositories?  I 
> went to the Allegro website and it said they were out of stock.

[QUAD-L] Bowel program

[Noel]

Does anybody use a suppository applicator? If so, which one?

Re: [QUAD-L] Wondering

[Noel]

Television, controlled with Amazon echo in combination with a Broad link RM Pro.
Telephone, can place calls with Amazon echo. Receive calls with a cell
phone that has speech recognition to answer and place calls.
Window unit, I use Broadlink for that as well, but I have to press a
button on my cell phone. When I set it up, I didn't have the remote
anymore, so I couldn't program the RF. Not positive, but it may be
possible if you have a remote that works with your window unit, record
the RF for the air conditioner and label it as a fan. For some reason
Broadlink won't let you set up the app for voice access to control an
air-conditioner.  I control a fan with Amazon echo along with the
Broadlink.

On Mon, Sep 23, 2019 at 5:09 PM  wrote:
>
> Hello guys I was wondering if you are paralyzed from the neck down how do you 
> control your television house phone and window unit from your bed thank you 
> and God bless you
>
>

Re: [QUAD-L] What is the best marijuana to help calm spasms at night?

[Noel]

A few years ago I decided to try marijuana for pain. Went to a doctor
to have it prescribed, applied to the state of New Mexico for a
medical marijuana card, tried a dozen different strains. Some high in
THC, others with very little. All of them helped with insomnia, but
none of them did anything for pain. As for spasms, the effect I felt
was much stronger than any of the prescription medications I've tried,
baclofen and Valium. It wasn't something I could take in the morning
and still function in any way. If you do decide to give it a try,
strongly suggest a small dose at first. I used a battery-powered
vaporizer.

On Sat, Aug 31, 2019 at 9:22 AM Paul Jacobson  wrote:
>
> Hi, my spasms are getting stronger and really interfering with my sleep.
> Let me know what you think.
>
> Thanks
> Paul c5/6

Re: [QUAD-L] get a free google mini (free shipping too!)

[Noel]

Received mine today, so far working good placing phone calls.

On Fri, Jul 26, 2019 at 12:50 PM Jim Lubin  wrote:
>
> https://googlenest.reevefoundation.org/
>

[QUAD-L] smart phone

[Noel]

I received a Samsung Galaxy S7 yesterday, it has the ability to make
calls completely hands-free. To wake it up, just have to say "Hi
Galaxy," then tell it who in your contacts, or the number to call.

On Thu, May 30, 2019 at 8:12 AM Annette Storesund  wrote:
>
> I am thinking of getting a smart phone. I need to be able to use it be
> talking to it.  Which isbest Google or Siri?

Re: [QUAD-L] smart phone

[Noel]

I use a Samsung, mostly because you can answer hands-free with certain
models. I'm not sure if you still can with the latest ones (After the
S7 model) as they now have voice control called bixby that I'm not
familiar with.

On Thu, May 30, 2019 at 8:12 AM Annette Storesund  wrote:
>
> I am thinking of getting a smart phone. I need to be able to use it be 
> talking to it.  Which isbest Google or Siri?

Re: [QUAD-L] information needed about which tablet to order

[Noel]

When I ordered my most recent Permobil, they included a RAM X-grip
holder for a cell phone. I ordered another attachment so that it would
hold a tablet as well. I have a Samsung Tab S2, but it's not voice
controlled.
https://permobilus.com/product/ram-x-grip-tablet-holder/

On Thu, Jan 31, 2019 at 6:11 PM DEBRA DEW  wrote:
>
> Vocational rehabilitation is going to buy me another PerMobile power chair, 
> and in order for me to do my work, they are going to get me any tablet my 
> little heart desires… But the rub is, I have to tell them what to order.
>
> I have spent 2 days trying to educate myself about tablets because I have 
> never owned one before and only use laptops, but I don't think a laptop would 
> be very practical to be carrying around on a power wheelchair all the time.
>
>
> Below is a 2 minute video showing Stephen Hawking's PerMobile, so you can see 
> what I am aiming for.
>
> I do not even know what the arms that attach to the wheelchair to hold the 
> tablet are called.it is hard to search things without knowing the proper 
> vocabulary.
>
> If anyone can give me advice and tell me all the peripherals and goodies I 
> should order, it would be so greatly appreciated. Because this will be my 
> one-time opportunity, probably for a decade or 2, to acquire what I need to 
> be able to get out of bed where I am currently stuck 24 7.
>
> I am paralyzed from the neck down from multiple sclerosis, so I have to use 
> Dragon NaturallySpeaking for absolutely everything; and I need to make 
> certain the tablet I order can accommodate the Dragon software, because it 
> needs at a minimum, 28 megs of RAM.
>
> I am a bit fearful because from what I have read and can understand and I 
> could be way off base, a tablet is nothing but an overgrown smart phone… That 
> is worrying me if it is true..
>
> https://www.youtube.com/watch?v=kZ1LO_O6r4k
>
>
> Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot
> Currently: tetrapeligic due to advanced MS and living in a nursing home hell 
> 18 years
> Phone: 561-58 6-9399
> SC student 20yrs  … can not brag about my love for YHVH God because I fail 
> Him daily, but I can brag about His love for me because He never fails me.
> ROMANS 8:28… Kindness is the language the deaf can hear and the blind can see 
> – Mark Twain
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
> THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS A 
> LOT ABOUT ANTICIPATED TRAFFIC NUMBERS
> Jesus is the living word
>
>
> Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot
> Currently: tetrapeligic due to advanced MS and living in a nursing home hell 
> 18 years
> Phone: 561-58 6-9399
> SC student 20yrs  … can not brag about my love for YHVH God because I fail 
> Him daily, but I can brag about His love for me because He never fails me.
> ROMANS 8:28… Kindness is the language the deaf can hear and the blind can see 
> – Mark Twain
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
> THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS A 
> LOT ABOUT ANTICIPATED TRAFFIC NUMBERS
> Jesus is the living word

Re: [QUAD-L] completely hands-free nurse call bell

[Noel]

I received an Amazon echo a few weeks ago, can make phone calls
completely hands-free. I suppose you could use it to call the nurse's
station, or the front desk.  I only wish it could be used to receive
phone calls.

On Sun, Jan 13, 2019 at 6:09 PM DEBRA DEW  wrote:
>
> please assist if you have information – desperate –
>
>
> I need a completely hands-free nurse call bell.
>
>
> And are there any groups for paralyzed people from the neck down on Facebook
>
> ?
>
>
> Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot
> Currently: tetrapeligic due to advanced MS and living in a nursing home hell 
> 18 years
> Phone: 561-58 6-9399
> SC student 20yrs  … can not brag about my love for YHVH God because I fail 
> Him daily, but I can brag about His love for me because He never fails me.
> ROMANS 8:28… Kindness is the language the deaf can hear and the blind can see 
> – Mark Twain
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
> THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS A 
> LOT ABOUT ANTICIPATED TRAFFIC NUMBERS
> Jesus is the living word

Re: [QUAD-L] Movie title?

[Noel]

The theory of everything

On Mon, Dec 17, 2018 at 9:03 PM Bobbie Humphreys
 wrote:
>
> What is the name of the movie about Steven Hawkings?
> Bobbie
>

Re: [QUAD-L] Whats the best bowell routine laxatives

[Noel]

I've been eating some prunes every morning with breakfast, enzymes
during the day after a meal. I've had to go to every night because of
some pain issues, I use Enemeez.
On Mon, Nov 26, 2018 at 2:38 PM RONALD L PRACHT  wrote:
>
> Hey guys,
>
> Im a c7 quad coming up on 21 years post. Ive done the every other day bowell 
> routine on a bowell chair. I use majic bullets with bisacodyl and miralax the 
> night b4. im on a bunch of pain meds and its slowing my system to a crawl. 
> Whats the best laxatives to take to combat this?How much miralax should I 
> take and when?
>
> Wheelchair has blocked me on the list and gotten others to do so as well. I 
> never knew what I had said in the past was offensive to him. I think its 
> wrong to hide behind a name and do things to people without letting them know 
> you are offended. Anything I said was in good humor. Thats the problem with 
> our country today. Ive been on this list many years and have lots of 
> knowledge to share, its a shame wheelchair feels he is god of the quadlist.
>
> Ron

Re: [QUAD-L] TV control

[Noel]

I control my television by voice using an Amazon fire TV cube in
combination with a Broadlink RM Pro. With the fire TV cube, I can turn
the TV on and off, increase and decrease the volume, and change
inputs. I can control my satellite box (dish network) using the fire
TV cube as well. To change the channel on the television for over the
air channels, I had to get the Broadlink RM Pro. My TV isn't a smart
TV, so I use the fire TV cube for all the streaming services. Using
the Broadlink RM Pro required it learning all of the remote control's
infrared buttons one at a time. Was fairly simple, just a little
time-consuming. The fire TV cube already knew the codes it needed.
On Wed, Nov 21, 2018 at 2:13 PM Raymond Kelly  wrote:
>
> I am looking for a device that will control a smart TV by voice. I believe 
> Apple has something out there but I can't figure out exactly what I need. 
> Does the device already know the IR codes for the different televisions or do 
> they have to be trained into the device? Any information somebody could give 
> me about this I would really appreciate.
>
> Thank you very much in advance.
>
> Raymond

Re: [QUAD-L] Do you know of a good way to send and receive text messages ?

[Noel]

Dave, I use the Google hangouts app to send and receive text messages. When
you sign up with Google voice, you receive a phone number that you can use
not only for text messages but for free phone calls as well.

On Fri, Nov 9, 2018 at 7:39 AM Dave Krehbiel 
wrote:

> I'm using Dragon NaturallySpeaking, and I do most of my communication by
> email. But there are lots of people who prefer text messages.
>
>
>
> Do you have a favorite way of sending and receiving text messages?
>
>
>
> Thanks so much, and take care,
>
>
>
> Dave Krehbiel
>
> Olney, MD
>
>
> 
>  Virus-free.
> www.avast.com
> 
> <#m_-6339371267737799664_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>

Re: [QUAD-L] Wheelchair cushin

[Noel]

I received a new wheelchair a couple months ago, it came with a Roho
cushion and a smart check device.

https://permobilus.com/product/smart-checkby-roho/
On Wed, Oct 31, 2018 at 9:10 PM Greg  wrote:
>
> I had a Roho go flat and cause a sore, so I now have a 1 inch thick, firm, 
> memory foam, pad under my Roho. Just incase. They make a pressure pad with an 
> alarm. If it goes flat it goes off. A OT gave me one years ago, but never 
> worked right.
> Greg
>
>
>
> On 10/31/2018 12:23 PM, Lori Michaelson wrote:
>
> Hi Glenn,
>
> Ever since I had my  Stage III wound [actually two of them] in 2010 and I 
> told my story of what happened on the Care Cure Community... the president of 
> the  ROHO contacted me and suggested their cushion would work the best for me 
> BECAUSE OF MY CONDITION. So, since then, I have been using a Roho Quadtro 
> Select High Profile cushion but I also have a  Roho Quadtro Select Low 
> Profile  cushion. But, this is all based on my compromised skin.
>
> The only thing I don't like about these cushions is they have to be 
> constantly checked (maintenance) to make sure they are not going flat but the 
> owner is great to work with.  I have not had to add or take out any air in a 
> long long time but that is because my skin is now doing great. Every other 
> part of me is falling apart (especially the bladder) and so many other things 
> but that is because I am living alone for the first time in my life and don't 
> get much help with anything except for my care.
>
> Here are photos of the different cushions (which come with washable covers): 
> https://www.pressuresorecushions.com/collections/roho-cushions?utm_campaign=ROHO%20Cushions_content=ROHO%20Cushions%20-%20Shop_medium=cpc_source=bing_term=roho%20wheelchair%20cushion
>
> But if you are not having any problems with any wounds... a Varilite cushion 
> is what I was using before and liked.
>
> Best, ~Lori
>
> On Wed, Oct 31, 2018 at 12:10 PM glenn henry  wrote:
>>
>> Hello all,
>>
>> I have been using the same style of wheelchair cushion over the past 48 
>> years. The company seems to be in limbo after a fire at the factory. They 
>> claim that they will be in business again, but I'm beginning to doubt after 
>> five months.
>>
>> What I would like people to comment on is the type of wheelchair cushion you 
>> are using and your experiences.
>>
>> The pad that I used was made by Hudson medical. It was called a Jobst 
>> hydrofloat pad.
>>
>> Thanks for your concern and your comments, hopefully I can find a new type 
>> of pad case they do not come back in business.
>>
>>
>> Glenn
>
>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and 
> heart and deep meditation and almost as good for the soul as prayer." ~Dean 
> Koontz
>
>

Re: [QUAD-L] 1st cell phone

[Noel]

Don't know if you're interested in a used phone, but I purchased my
smart phone from https://www.upwardmobile.com/

Looks like the newest iPhone they have is the I6

I went with a TracFone (A Samsung Galaxy S5) that uses Verizon towers
because it has the best coverage where I live. They do have a
selection of iPhones from various carriers including TracFone that use
either AT or Verizon towers. Their technical support was pretty good
in my case. They should be able to help you with getting the correct
Sim card for whatever phone/carrier you decide on.
On Wed, Oct 17, 2018 at 7:29 PM Bobbie Humphreys
 wrote:
>
> Hi ALL,
>  I'm buying my very first smart phone soon. I'm planning on getting 
> an iPhone.
> Where and how is the best way to get a good deal.
> Right now I have a trac phone and an iPad. BTW ~ I'm also getting the latest 
> iPad too.
>
> I'm a C-4,5,6,7 45 years post
> Stuck in bed most of the time, about 80% of the time.
> What are do's and don't's?
>
> I have no other computer.
>
> Thanks in advance, Bobbie
>
>
>
>
>
> "Be the change you want to see in the world". Gandhi

Re: [QUAD-L] iPhone holder to pick up and hold

[Noel]

Bobbie, I know this isn't what you're looking for, and I don't know if
it will help, but when I'm in bed somebody places my cell phone in a
holder that is glued to the wall. I can push the buttons I need to
using my wrist. Usually just the power button on the bottom of the
phone followed by a button on the screen for the app that turns on its
speech recognition.
https://smile.amazon.com/gp/product/B004Z88WSK/ref=oh_aui_search_detailpage?ie=UTF8=1
On Thu, Oct 4, 2018 at 2:04 PM Bobbie Humphreys
 wrote:
>
> Sorry I wasn't more clear about my situation.
> I'm a C-5,6,7 45 years post
> I spend a lot of time in bed
> My arms are getting much weaker
>
> I want to be able to pick up the iPhone, hold it with one hand using my thumb.
> I'm looking into buying the largest iPhone or the next one down ... screen 
> size wise.
>
> What could you guys suggest?
> Bobbie
>
>
>
> "Be the change you want to see in the world". Gandhi

Re: [QUAD-L] Phone holders

[Noel]

Lori, that is true, it would ( and did initially) get in the way of going
under my computer desk. I had to rearrange it so that I go underneath at an
angle and the corner of the desk is pointing straight at my stomach and the
phone holder attached to the armrest fits just to the side of the desk. I
place my trackball on the corner so that it is above my lap. Situated this
way, it's hard to reach my keyboard, so I use Naturally Speaking and a
keyboard app on my tablet. The same app also let's me control the mouse, it
turns the tablet into a touchpad.  But, it's still easier to use the
trackball. You're right, I do have to have it moved out of the way a couple
times a day, it gets in the way eating for instance. Also going through
some of the doorways in the house I live in. I'm curious if there's a cell
phone holder available that can be easily swung out of the way.

On Thu, Oct 4, 2018, 1:00 PM Lori Michaelson  wrote:

> Pardon my ignorance and I guess the bottom line is that we are all
> different as to if we can't move our arms or hands that all or have a
> little bit of movement for our differing needs and the huge variety of
> different cell phone usage that works for each and every one of us.
>
> Noel this would be a silly/stupid question but if I were to purchase
> something like you have and mount it to your Permobil wheelchair. I also
> have a Permobil (M300) but if I were to mount the RAM x-grip to my
> wheelchair it would get in the way of me getting my only usable right hand
> (but no finger movement) to operate my joystick to drive my chair.  I would
> not be able to drive under my desk whereby my Large Desktop PC and monitors
> sit; not to mention fitting under a dining room table.
>
> I also do not have anyone around every single minute of every day if I
> wanted it taken off.
>
> I just looked it up on Amazon and it is also pricey. If it works for
> someone that uses it every day or needed every day... it would be worth it.
> When you say that you also use it to control your desktop computer and then
> move the mouse around to use it as a keyboard... I would love to see
> exactly how you do that. Of course that is not going to happen unless you
> were able to put it up on YouTube or something.
>
> I do not own my own house because my life took a different turn. Therefore
> I am "assuming" that you live in your own home and own your own satellite
> dish, etc.
>
> I also would need help from a caregiver with so many other things that it
> would be superfluous to purchase something like this.
>
> I thank you for making me aware of this particular phone holder and there
> might be a YouTube video out there. I wish my circumstances were that I
> lived in my own home, lived with family, was eligible for Medicaid and so
> on and so forth but I'm not  or I do not.
>
> Happy autumn to you and every other member who reads this!
>
> ~Lori
>
> On Thu, Oct 4, 2018 at 6:01 AM Noel  wrote:
>
>> I also use TracFone, a Samsung that I can answer calls by voice and
>> place calls by pressing one button followed by giving it a voice
>> command.
>>
>> Recently purchased another RAM x-grip that will hold a Samsung tablet.
>> It's nice because I can also use it to control many things in my home
>> that use infrared remotes (TV, satellite, a fan). I also use it to
>> control my desktop computer, can move the mouse around use it as a
>> keyboard.
>> On Wed, Oct 3, 2018 at 8:44 PM Bobbie Humphreys
>>  wrote:
>> >
>> > What do you guys use to hold a smart phone?
>> > I'm looking into getting an iPhone, never had one.
>> > I use a track phone
>> > Bobbie
>> >
>> >
>> >
>> >
>> > "Be the change you want to see in the world". Gandhi
>> >
>>
>>
>
> --
> "Petting, scratching and cuddling a dog could be soothing to the mind and
> heart and deep meditation and almost as good for the soul as prayer." ~Dean
> Koontz
>

Re: [QUAD-L] Phone holders

[Noel]

I also use TracFone, a Samsung that I can answer calls by voice and
place calls by pressing one button followed by giving it a voice
command.

Recently purchased another RAM x-grip that will hold a Samsung tablet.
It's nice because I can also use it to control many things in my home
that use infrared remotes (TV, satellite, a fan). I also use it to
control my desktop computer, can move the mouse around use it as a
keyboard.
On Wed, Oct 3, 2018 at 8:44 PM Bobbie Humphreys
 wrote:
>
> What do you guys use to hold a smart phone?
> I'm looking into getting an iPhone, never had one.
> I use a track phone
> Bobbie
>
>
>
>
> "Be the change you want to see in the world". Gandhi
>

Re: [QUAD-L] Phone holders

[Noel]

I use a Ram X-Grip, I was able to get the adapter to mount it to my
wheelchair from Permobil.
On Wed, Oct 3, 2018 at 8:44 PM Bobbie Humphreys
 wrote:
>
> What do you guys use to hold a smart phone?
> I'm looking into getting an iPhone, never had one.
> I use a track phone
> Bobbie
>
>
>
>
> "Be the change you want to see in the world". Gandhi
>

Re: [QUAD-L] Severe back pain question

[Noel]

I've developed severe back pain over the past year. X-ray, CT scan
indicate arthritis, but anti-inflammatory painkillers, narcotics, have
no effect.
On Tue, Oct 2, 2018 at 11:43 PM Danny Espinoza  wrote:
>
> Hey everyone …
> Does anyone else get unbearable back pain/spasms. Right now I feel like I 
> would rather be in coma than deal with such a high intensity pain. My “our” 
> constant battle between not mot being in a lot pain and struggling is rough 
> for sure.
> -Danny
>

Re: [QUAD-L] Wondering

[Noel]

I don't know if they are small enough, but here are some pediatric
wheelchairs: https://www.1800wheelchair.com/category/pediatric-wheelchairs/
On Sun, Sep 30, 2018 at 5:14 AM Ismael Cavazos  wrote:
>
> Hello guys October 8 is going to be 37 years that I've been a quadriplegic 
> paralyzed from the neck down and connected to a respirator I was 18 years old 
> I was 18 days away that I was going to turn 19 when the doctors told my 
> mother at that time that I was going only survive 72 hours beside before my 
> accident I was already legally blind but when I was born I was completely 
> blind after 6 surgeries on my eyes I started seeing a little I started seeing 
> when I was 11 years old doctors consider me legally blind I could see a 
> little better than nothing most of my life since I been a quadriplegic I was 
> in the nursing home 2001 I got out I was scared to get out because like I 
> said most of my life I was in the nursing home I thought it wasn't possible 
> for person in my condition to be out from the nursing home and connected to a 
> respirator I knew it that I did not need to prove to no one that I was able 
> to do it outside the nursing home that I needed to prove only to myself it 
> was hard and scary in the beginning with God help I continued being outside 
> the nursing home and I was the right choice I did for myself since I been a 
> quadriplegic only one time bed sore and I was in the nursing home since then 
> I haven't had one until now my body is 100% better than any quadriplegic that 
> is in the nursing home no rashes no bed sores at all I used to get more sick 
> when I was in the nursing home I used to go more often to the hospital when I 
> was in the nursing home when I was there out of the ear I used to go to the 
> hospital 5 times out of the year it wasn't one thing was another but I was 
> getting more sick now that I'm out sometimes I go one time out of the year to 
> the hospital or sometimes to years passed by and I don't go to the hospital 
> at all I been blessed many times different ways several times and I've been 
> lucky the only thing I'm not getting any younger like I said I'm blessed and 
> I am continually being bless by Jesus let me tell you guys something else on 
> Friday I met this couple they have a little boy that is 4 years old he is 
> paralyzed from the neck down and also connected to a respirator's he is very 
> alert the sad thing about it is not able to talk and also he has a tooling 
> inside his nose so he can eat his mother and father was telling me they were 
> trying to get him a wheelchair but according medicate they told his mother 
> and father medicate doesn't cover his wheelchair because there's no 
> wheelchair for his age because she's too small that I have to wait until he 
> gets older so he can get a wheelchair I do not agree on that and mother and 
> father doesn't know too much about programs out there they don't know 
> anything about people with disability they got other kids but there are 
> walking but the different from me and you guys yes we were young when our 
> accident happened by we had a chance to walk to run to play we know how it 
> feels to do that this little boy never had a chance to run to plate to enjoy 
> to be a child that is sad every 1 of us we been blessed different ways sense 
> are accidents happen some of us we had her mother and father like him we grew 
> up and some of us we don't have our mother or father anymore by one way 
> another we got bless by got put us somebody special and our life to be part 
> of our life to help us and to understand this like I said we were young and 
> we had a lot of dreams about those dreams went down the drain when we end up 
> being a quadriplegic whenever going to have a chance to catch up what we miss 
> we are able to defend ourselves to fight for our rights and say what hurts or 
> doesn't hurt what we don't like and what we like some of us been a 
> quadriplegic longer than others now going back about this little boy she is 
> going to grow up like us his parents not going to be there when he gets old 
> is not able to talk you not able to say what hurts or doesn't hurt cannot 
> express herself his feelings that is very sad is not able to fight for his 
> right if in the future is not able to talk like he cannot talk right now now 
> in the future if he's able to talk that will help them a little we had a 
> chance to go to school and we learn how to read and spell in the future for 
> this little boy if you continue the way is wet out communicating is going to 
> be very bad in the future brother and sisters probably not going to be there 
> for him he probably going to end up in the nursing home like I did in the 
> nursing home is terrible's that's why I say we been blessed compare to him 
> yes we got problems in life this and that but this little boy 80% more 
> problems what we have when his mother and father told me about his condition 
> they put me 

Re: [QUAD-L] Dragon NaturallySpeaking help needed please

[Noel]

I'm not sure if this is what you mean, but if it's the dictation box,
my version of NaturallySpeaking has a checkbox in the bottom left
corner labeled "Use automatic dictation box for this application." It
usually comes up if NaturallySpeaking isn't compatible with the
program you're trying to type into (Outlook in your case). You can
uncheck the automatic dictation box, but naturally speaking might not
work quite as well.
On Sun, Sep 16, 2018 at 5:38 PM DEBRA DEW  wrote:
>
> Dragon NaturallySpeaking the box with CTRL pops up when I am trying to write 
> an email, and it covers what I am trying to write. No matter what I do I 
> cannot get rid of it or move up and down to read what is directly underneath 
> it. I have right and left clicked on it trying to get rid of it to no avail. 
> Please if you can tell me how to stop this problem.
>
> In only pops up when I'm writing in my Outlook email program.
>
> Please please please tell me how to eradicate it.
>
>
> Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot
> Currently: tetrapeligic due to advanced MS and living in a nursing home hell 
> 18 years
> Phone: 561-58 6-9399
> SC student 20yrs  … can not brag about my love for YHVH God because I fail 
> Him daily, but I can brag about His love for me because He never fails me.
> ROMANS 8:28… Kindness is the language the deaf can hear and the blind can see 
> – Mark Twain
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
> THE FACT THAT THERE IS A HIGHWAY TO HELL AND ONLY A STAIRWAY TO HEAVEN SAYS A 
> LOT ABOUT ANTICIPATED TRAFFIC NUMBERS
> Jesus is the living word

[QUAD-L] Hands-free television control

[Noel]

This was talked about while ago, but I purchased the fire TV cube on
Amazon prime day to control my television by voice. Also purchased a
broadlink RM Pro (because it was much cheaper than the Logitech
Harmony hub). The 2 working together are working pretty good at
letting me control my TV, and dish network completely by voice. So far
the only big problem I have is adjusting the volume. For some reason,
asking it to increase the volume increases the volume from 5 to over
50, even though it is set to increase in increments of 1. By chance if
anybody has the problem with volume and has a solution, I'd appreciate
letting me know.
If you don't use over the air antenna on your television, the
broadlink RM Pro isn't necessary.

Re: [QUAD-L] Cold Hands??

[Noel]

Yes, I have that problem as well. I also put on gloves, it doesn't
warm them up, but at least I don't feel the ice cold skin if I touch
my face. Same problem with my feet, put on heavy socks, sit by the
fireplace. It doesn't necessarily have to be cold in my house at the
time.

On Sun, Jul 8, 2018 at 9:20 PM, Amy Elizabeth Baldwin
 wrote:
> Quick Question...
> Do  any of you ever get cold hands?
> For the last few months, I have noticed that my right hand will get
> extremely cold!?
> It gets to the point where I have to put on a glove!
> Not that it really helps, but I feel better with it being on.
> Sometimes I wonder if it's from the spine being out of line?
> My neck was broken in a car accident back in 1998,
> I'm now a C--4 5,7 Incomplete Quadriplegic.
> The accident was a really hard blow to my poor little body!
> I only weighed about 105 pounds of solid muscle.
>
> So, if you have any suggestions, please email me!
>
> •~•♤•~•  LittleQuad •~•♡•~•
>
>
> Sent from Yahoo Mail on Android

[QUAD-L] Re: [QUAD-L] Electronic Visit Verification (EVV) – Protect Our Medicaid

[Noel]

My home health company started using it a couple months ago. It can be
an annoyance, but it's nice to have people show up on time.

On Mon, Jun 4, 2018 at 8:13 PM, Jim Lubin  wrote:
> "EVV is a tracking system that requires electronic verification of when a
> person receives Medicaid-funded personal care services. States are required
> to put EVV systems in place by January 1, 2019. As states are beginning to
> put in place EVV systems, people with disabilities are very concerned that
> EVV systems will violate their privacy and limit their independence.
>
> On May 16, 2018, the Centers for Medicaid & Medicare Services (CMS) issued
> guidance about EVV.  Many questions and concerns remain. On May 22, 2018, a
> bipartisan bill on EVV were introduced in Congress – H.R. 5912 in the House,
> S. 2897 in the Senate. These bills would extend the deadline for
> implementing EVV for personal care services for a year, and require EVV
> regulations to be published.  The proposed delay is an important step and
> will give advocates more time to work with Congress, CMS and states to
> address the significant concerns with EVV and its potential impact on people
> with disabilities.  Learn more about the bill and what you can do."
>
> https://medicaid.publicrep.org/feature/electronic-visit-verification-evv/

Re: [QUAD-L] anyone have The Purple Mattress

[Noel]

The one I bought is the original purple mattress, apparently the new purple
mattress has different depth options. Not sure how long the new purple
mattress has been available, even though mine is working out fine, I wish
I'd had the option when I purchased mine.

On Mon, Apr 30, 2018 at 9:02 AM, Annette Storesund <atsxn...@gmail.com>
wrote:

> I was looking at it and they offer 3 depths 2, 3 and 4 inches.  Which do
> you have?
>
>
> On Mon, Apr 30, 2018 at 9:54 AM, Noel <swl...@gmail.com> wrote:
>
>> I bought a purple mattress a couple months ago, so far it's been good. No
>> red spots or other signs of skin breakdown.
>>
>> On Mon, Apr 30, 2018 at 7:55 AM, Annette Storesund <atsxn...@gmail.com>
>> wrote:
>>
>>> I was wondering if anyone has tried that new Purple mattress.  It looks
>>> interesting.  I am wondering if it is good for Quads.
>>>
>>>
>>> <http://www.avg.com/email-signature?utm_medium=email_source=link_campaign=sig-email_content=webmail>
>>>  Virus-free.
>>> www.avg.com
>>> <http://www.avg.com/email-signature?utm_medium=email_source=link_campaign=sig-email_content=webmail>
>>> <#m_266530634329880967_m_-7755346853076594784_m_-8759632748634814229_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>>>
>>
>>
>

Re: [QUAD-L] anyone have The Purple Mattress

[Noel]

I'm not sure, on the receipt all it says is: 1x The Purple Mattress - Twin
XL

On the webpage,:
Top Layer: 2” Hyper-Elastic Polymer™ material in Smart Comfort Grid™
Non-toxic polyethylene copolymer powder coating
Middle Layer: 3.5” 1.8 lbs density polyurethane foam
Base Layer: 4” 2.0 lbs density polyurethane foam

On Mon, Apr 30, 2018 at 9:02 AM, Annette Storesund <atsxn...@gmail.com>
wrote:

> I was looking at it and they offer 3 depths 2, 3 and 4 inches.  Which do
> you have?
>
>
> On Mon, Apr 30, 2018 at 9:54 AM, Noel <swl...@gmail.com> wrote:
>
>> I bought a purple mattress a couple months ago, so far it's been good. No
>> red spots or other signs of skin breakdown.
>>
>> On Mon, Apr 30, 2018 at 7:55 AM, Annette Storesund <atsxn...@gmail.com>
>> wrote:
>>
>>> I was wondering if anyone has tried that new Purple mattress.  It looks
>>> interesting.  I am wondering if it is good for Quads.
>>>
>>>
>>> <http://www.avg.com/email-signature?utm_medium=email_source=link_campaign=sig-email_content=webmail>
>>>  Virus-free.
>>> www.avg.com
>>> <http://www.avg.com/email-signature?utm_medium=email_source=link_campaign=sig-email_content=webmail>
>>> <#m_266530634329880967_m_-7755346853076594784_m_-8759632748634814229_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>>>
>>
>>
>

Re: [QUAD-L] anyone have The Purple Mattress

[Noel]

 I bought a purple mattress a couple months ago, so far it's been good. No
red spots or other signs of skin breakdown.

On Mon, Apr 30, 2018 at 7:55 AM, Annette Storesund 
wrote:

> I was wondering if anyone has tried that new Purple mattress.  It looks
> interesting.  I am wondering if it is good for Quads.
>
>
> 
>  Virus-free.
> www.avg.com
> 
> <#m_-8759632748634814229_DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>
>

Re: [QUAD-L] Wondering

[Noel]

Ismael, no it is not a scam, it is legit.

On Tue, Mar 6, 2018 at 5:10 PM, Ismael Cavazos  wrote:
> Hello my friends I have a question for you guys do you think this is a scan
> check it out http://ablenrc.org/

Re: [QUAD-L] Belly binders

[Noel]

I have in the past, usually get them from Amazon

https://smile.amazon.com/gp/product/B52XSM/ref=oh_aui_search_detailpage?ie=UTF8=1

On Sat, Feb 24, 2018 at 7:47 PM, Bobbie Humphreys
 wrote:
> Do any of you guys wear belly binders?
> Do you know where I can get one?
> Bobbie
>
> "Be the change you want to see in the world". Gandhi
>

[QUAD-L] Tablet holder

[Noel]

Does anybody use, or can recommend a wheelchair tablet holder? One
that can hold an iPad?

Re: [QUAD-L] Chair Back Prob.

[Noel]

I applied for a new power chair, still in the process, decided to try
the Mid-Contour Agility back from Roho. It seemed to be the closest to
what I currently have on a Permobil M300.  Roho also has a max
contour.

Has anybody tried the M5 yet? I applied for it because it is supposed
to have smoother suspension.

On Sat, Jan 20, 2018 at 7:51 PM, Greg  wrote:
> After a few days in my new chair, this back is not cutting it. I am curving
> a bit after 35 years post. I had lateral supports before, but they kept
> breaking. So I got a curved back, that wraps around a bit. But it does not
> curve enough. If I tip forward just a bit, I tip sideways in front of the
> curved sides. The curved sides need to extend a few inches.
>
> Has anyone tried a back like this? Can you get extenders?
>
> I’ll call the dealer Mon. but thought I’d look for options instead of a
> whole new back.
>
> Greg

Re: [QUAD-L] Supra pubic or other options?2

[Noel]

It might be just the type of catheter used, but the balloon can lose
water over a couple of weeks. I would have 10 cc initially inserted,
three weeks later about 6 cc would come out.  I suspect it's due to
condensation. I've begun using a mixture of sterile water and
glycerin, at the mixture of 9:1.

On Fri, Dec 29, 2017 at 12:45 AM, Danny Espinoza
<da...@immortaldesigns.co> wrote:
> I'm 13 years post and have had a Supra pubic catheter for 12 years and use a
> Bardex hydrogel with bactiguard and silver alloy coating and rarely if ever
> get infections since I changed to it. The other change I had made is my
> fluid intake after increasing that I'm sure it helped as well. Flushing the
> catheter/bladder with saline is fairly easy as well with a S.p. catheter.
> The one thing that we had to learn/make adjustments to is how much to fill
> the balloon/balloon size. If you fill it too much then it can cause A.D
> however not enough and the catheter can move or come out which your
> doctor/urologist will/should go over with you.
> -Danny
>
>  Original Message 
> Subject: Re: [QUAD-L] Supra pubic or other options?2
> From: "Greg" <g...@eskimo.com>
> Date: Thu, December 28, 2017 7:22 pm
> To: <quad-list@eskimo.com>
>
> I use a Bard Foley IC, (Infection Control) silver coated. The clear ones
> were too stiff, caused spasms.The yellowish ones cause me no issues.
> Greg
>
> On 12/28/2017 6:19 PM, Noel wrote:
>
> John, I had a suprapubic installed about five years ago. Initially, it
> was rough, constantly causing autonomic dysreflexia. I switched to a
> different type of catheter called the Duette, it has helped somewhat,
> but still some discomfort when the tube is moved. It's made of softer
> material, every once in a while have trouble getting it to insert and
> have to use a catheter with a stiffer tip called a coude. I'm in quite
> a bit of pain until I can switch back to the Duette. Haven't had much
> trouble with infections.
>
> On Thu, Dec 28, 2017 at 1:01 PM, john owens <jrowen...@yahoo.com> wrote:
>
> I would appreciate getting some information about getting a supra pubic
> catheter.
>
>
> I am 27 years old and 11 years post C4C5 SCI and TBI.
>
> I was told by my urologist that I’m not emptying completely with simply a
> condom catheter and that my best option will be to set up a surgery date in
> January for a supra pubic.
>
> I did not ask him about the option for an ileal conduit urinary diversion
> but I would like feedback on which option you think is the best.
>
> Please tell me of your experiences with the Supra pubic.
>
> Have you had less UTI’ after having a Supra pubic?
>
> What complications if any have you had with the Supra pubic?
>
> Thanks for any advice or tips.
> John/JR
>
>

Re: [QUAD-L] Supra pubic or other options?2

[Noel]

John, I had a suprapubic installed about five years ago. Initially, it
was rough, constantly causing autonomic dysreflexia. I switched to a
different type of catheter called the Duette, it has helped somewhat,
but still some discomfort when the tube is moved. It's made of softer
material, every once in a while have trouble getting it to insert and
have to use a catheter with a stiffer tip called a coude. I'm in quite
a bit of pain until I can switch back to the Duette. Haven't had much
trouble with infections.

On Thu, Dec 28, 2017 at 1:01 PM, john owens  wrote:
> I would appreciate getting some information about getting a supra pubic
> catheter.
>
>
> I am 27 years old and 11 years post C4C5 SCI and TBI.
>
> I was told by my urologist that I’m not emptying completely with simply a
> condom catheter and that my best option will be to set up a surgery date in
> January for a supra pubic.
>
> I did not ask him about the option for an ileal conduit urinary diversion
> but I would like feedback on which option you think is the best.
>
> Please tell me of your experiences with the Supra pubic.
>
> Have you had less UTI’ after having a Supra pubic?
>
> What complications if any have you had with the Supra pubic?
>
> Thanks for any advice or tips.
> John/JR
>

[QUAD-L] Re: [QUAD-L] Book  sets

[Noel]

There's a series called Millennium that I enjoyed reading, The Girl
with the Dragon Tattoo,
The Girl Who Played with Fire, and
The Girl Who Kicked the Hornets' Nest.

There's a Hollywood movie about the 1st one, and foreign films about all 3.

On Fri, Nov 24, 2017 at 2:49 PM, Bobbie Humphreys
 wrote:
> Dose anybody know of a good author that has a book  set or series I can get 
> for my 30 year old niece who is a nurse that eats books
> Bobbie
>
> "Be the change you want to see in the world". Gandhi

[QUAD-L] Re: [QUAD-L] Dictation box copying everything in Dragon NaturallySpeaking… Please, how to make it stop

[Noel]

Does version 12.5 use the dictation box? If so, unfortunately that's the
way it works.  When you transfer the text from the dictation box, it pastes
it when you click the transfer button. I'm using version 14, with it you
can choose not to use the dictation box, but you would have to experiment.

On Tue, Nov 21, 2017 at 9:09 AM, DEBRA DEW  wrote:

> On both my lap tops I've had to go back to Dragon 12.5, because Dragon 13
> drove me crazy crashing etc.
>
>
> I have beat the bushes trying to figure out how to stop it from copying
> everything without success for months and is driving me crazy because I
> lose whatever I had copied previously.
>
>
> If anyone can tell me how to make Dragon stop copying the dictation box
> contents, please tell me.
>
>
>
>
>
> *Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9*
>
>
>
>
> *Formerly: Homeschooling mom of 9 and pvt. pilot Currently: tetrapeligic
> due to advanced MS and living in a nursing home hell 18 years Phone: 561-58
> 6-9399 SC student 20yrs  ROMANS 8:28… Kindness is the language the deaf can
> hear and the blind can see – Mark Twain*
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
>

Re: [QUAD-L] Sennheiser PC 31-11

[Noel]

I don't know if this is an option, but when I used to be alone all day,
instead of placing the microphone on my head, I would hook it over the back
of my bed, or whatever chair (usually a recliner) I would be sitting in all
day. I was somehow able to place the boom of the microphone a couple of
inches from my cheek. I never had to use the speaker on the headset,
luckily the computer speakers always seemed to work just as well.

Now I use a desktop microphone that sits on a small table.
NaturallySpeaking isn't quite as accurate, and it picks up more background
noise.

On Tue, Nov 7, 2017 at 4:55 PM, DEBRA DEW  wrote:

> I'm looking for advice about headset comfort.
>
>
> I googled and searched this thoroughly and cannot find what I need,Earphone
> Sennheiser "PC 31-II" cushion.
>
>
> I am paralyzed from the neck down and so I keep my headset on 24 seven and
> even though I bought the most recommended headset for comfort, it has made
> a sore in my right ear that bleeds. Under no circumstances do I want to be
> without the headset because it is my only way to contact the outside world,
> and I am in a nursing home and with strangers, not family; to be helpless
> and not be with family but strangers is a very insecure way to be, if you
> are absolutely as helpless as a baby. Absolutely scary.
>
> Bleeding is a small price to pay for security, and not to be fearful.
>
>
> if anyone has a suggestion for a solution please tell me because I'm
> absolutely unable to figure out what to do myself aside from stick a piece
> of foam between the earphone and my ear and then I probably would not be
> able to hear. Currently I have them pushed forward in front of my ear,
> which is not ideal but it does keep the earphone off of the sore except
> that somehow it manages to wiggle back onto the sore spot every now and
> then. Very unpleasant. And being in a nursing facility, I could wait an
> hour or 2 for a nurse to come move it off the sore.
>
>
>
>
>
>
>
>
> *Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot Currently: Quadrapeligic
> due to advanced MS and living in a nursing home Phone: 561-588-4333
> <(561)%20588-4333> SC student 20yrs  ROMANS 8:28*
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
>

[QUAD-L] Re: [QUAD-L] Problems with Dragon NaturallySpeaking 13… I just had to reinstall 12.5

[Noel]

Has anybody tried knowbrainer's software? Here's a page that says persons
with a disability can get a free copy, wonder if it's too good to be true,
usually somewhat expensive.

http://www.knowbrainer.com/core/pages/freeKB.cfm

On Thu, Nov 2, 2017 at 9:42 AM, DEBRA DEW  wrote:

> I bought the fastest Dell computer I could about six months ago to be able
> to run Dragon naturally speaking 13 optimally, and at least once a month it
> was crashing so badly I had to have a computer guy come fix it will.  Aside
> from the fact that I could've bought another computer for the money I spent
> on repairs, I finally got the brilliant idea after reinstalling Windows and
> everything else repeatedly that that was not the problem and I suspected
> something was wrong with the Dragon 13 program.  So although they had my
> computer for over a week, I finally got it back last week with 12.5
> reinstalled and so far no crashes.  The only difference I can tell in the
> two programs is that with Dragon 13 trading the profile was not required,
> but that only took me a few minutes anyway so that's really not an issue to
> me.  I never had recognition issues with either program unless the profile
> was becoming corrupted and then all I did was make a new profile.  Not a
> big deal.
>
>
> I just wanted to share this with you guys in case you were not aware of
> it.  Obviously Dragon has a monopoly and they do not care about their
> customers satisfaction any longer.  It would've been very graciously polite
> they would share the news about their newest release not being so hot, and
> saved us a lot of difficulties figuring out what was going on.
>
>
> http://www.knowbrainer.com/forums/forum/messageview.cfm?
> FTVAR_FORUMVIEWTMP=Linear=4=23784=true
>
>
>
>
>
>
>
> *Debra Scruggs-Scruggs phalanx-dragon slayers -PRISONER OF HOPE ZECH. 9
> Formerly: Homeschooling mom of 9 and pvt. pilot Currently: Quadrapeligic
> due to advanced MS and living in a nursing home Phone: 561-588-4333
> <(561)%20588-4333> SC student 20yrs  ROMANS 8:28*
> B.I.B.L.E.-BASIC INSTRUCTIONS BEFORE LEAVING EARTH
>

[QUAD-L] Mattress question

[Noel]

Any chance somebody has tried a Purple Mattress? Good, bad?
https://onpurple.com/