Re: [QUAD-L] Work
That's SSDI not SSI - Original Message - From: tahouston To: |ANGELIC SHARON| Cc: quad-list@eskimo.com Sent: Tuesday, March 21, 2006 6:36 PM Subject: Re: [QUAD-L] Work I was told by someone in the Social Security Administration office that the limit for SSI disability was just less than $800 a month. - Original Message - From: |ANGELIC SHARON| To: "quad-list" Sent: Tuesday, March 21, 2006 5:23 PM Subject: Re: [QUAD-L] Work Lori,Hello,My name is Sharon I am on Public Assistanance SSI, Social Security Disability. But Its not because I Want to be!! I worked for 8 years running a office! One day I received a letter stating that if I made 200.00 a month I could loose my medical insurance. Here in Ohio that's how it is What Choice would you have made? I knows not fair but! If laws ever change I will go back to work if I don't get too old first!!! Not everyone is on public assistance because they want to be!!! There are allot on it that should not be!! But you don't know everyone's situation!!! Do not judge until you're in one shoes!!! Just my opinion!!HugsSharon- Original Message - From: QuadPirateTo: quad-list@eskimo.com ; Lori MichaelsonSent: Tuesday, March 21, 2006 4:14 PMSubject: Re: [QUAD-L] Work What, No answer? ---Original Message--- From: QuadPirate Date: 03/18/06 13:51:31 To: quad-list@eskimo.com; Lori Michaelson Subject: Re: [QUAD-L] Work Hey Lori I have a question. How do you live on $16,500 a year with no help or public assistance? There's a lot people on the list that would like to know your secret. Mark ---Original Message--- From: Lori Michaelson Date: 03/17/06 16:22:52 To: Quad Subject: [QUAD-L] Work Many others can answer this question as well. I got a B.S. in liberal studies and business administration. I wanted to work for IBM as it was a big local firm but all resumes were ignored there and other jobs. I took a job at an ILC and worked as an advocate of kids receiving special-ed. It only required an Associate's degree but I took it. Fool move. It only paid $16,500K. That = about $7.50 ban hour. Nonetheless I stuck with it. Then I began having pain here and there ALL THE TIME. I went to different Drs for 4-5 yrs and finally found out I had Syringomyelia. I resigned from work (foolish move ... shoulda retired on disability). My endurance now sucks along with other secondary problems later and yr after yr. It SUCKS my degree isn't being used RIGHT NOW but I keep plenty busy! Go to work if you can! People whine about women on welfare yet so many quads get exactly that. Call it Medicaid, Public Assistance or whatever ... but it's welfare and I'll get slammed here for not being P.C.! If you know what you want to do ... reach for it! GO FOR IT! TIP: DO NOT put that you are disabled on your resume. I was green as key lime pie when I was doing mine/sending mine and made that mistake. List only your experience, degrees, etc. Lori ---Original Message--- From: Dillon Ewa Date: 03/16/06 12:58:14 To: Lori Michaelson; Quad Subject: Re: [QUAD-L] Irrigants for Sludge and Sediment in FOLEY USERS Lori I want to change subjects and ask you another question. I have not been able to find employment not only because of our problem with sediment in my urine but mainly because of recurrent pressure sores. I want to ask you if you were employed and what you are doing. My repeated attempts to seek employment have been frustrated because of my skin and I wanted to learn what others are done explicit because your entry-level is high and similar to mine. I would appreciate any advice or information you could provide me Dillon C-4/5
[QUAD-L] HAPPY NEW YEAR
I'm sure he will know.DanaIn a message dated 12/30/2005 2:19:36 PM Tonga Standard Time, [EMAIL PROTECTED] writes: In a message dated 12/29/2005 6:58:44 PM Central Standard Time, DiannaL767 writes: I also have a friend named Jesus Jorge Ramirez. By chance, do you know him? W and as usual, answering questions with questionsthe mysterious w! :o) diane I pray to Jesus...for my Jesus Jorge Ramirez. Sometimes I get confused and pray for Jorge. I only hope Jesus, doesn't get too offended when I confuse Jesus Jorge, with Jesus of Heaven. (does that sound right?) W
Re: [QUAD-L] flap surgery
I'm in Maryland and have medicare and medicaid. I also am on the medicaid waiver. I'm approved for 6 hours a day. I don't use them but they are there. I took advantage of more hours while I was having my down time these last couple of months but still didn't use that many hours. I don't need a baby sitter. Shes my friend and lives next door so would come for a little bit in early afternoon and evenings for meals and I have plenty of snacks stashed and a small cooler with drinks. I am also in a pretty rural area but the care here still isn't any good. Stacy - Original Message - From: S. Dial To: Stacy Harim ; quad-list@eskimo.com Sent: Tuesday, December 20, 2005 3:25 PM Subject: Re: [QUAD-L] flap surgery Stacy, What state do you live in? I live in a nursing home myself in Floridaand get really good care it is a rural area and most of the staff are caring, down-home people that have a lot of compassion and heart. I have been very blessed in finding this place. Also, I sleep on a prescription air mattress which eliminates the turning need - have you ever considered this? Are you on Medicare/Medicaid? They should provide HHA care workers for you if you qualify. I hope everything works out for you, Stacy, best of luck. Steph c3-c4 quad 19 yrs post
Re: [QUAD-L] ADAPT
thanks for the info---Cheers R -Original Message- From: QuadPirate Sent: Tue, 20 Sep 2005 16:57:26 -0700 To: quad-list@eskimo.com Subject: [QUAD-L] ADAPT For Immediate Release: September 20, 2005 For Information Contact: Bob Kafka 512-431-4085 Marsha Katz 406-544-9504 104 Arrested as ADAPT Occupies House and Senate Leadership Offices Washington, D.C.---Fed up with being the targets of Congressional Medicaid cuts, and being pitted against Katrina survivors for essential services, 500 ADAPT activists occupied the offices of Congressional leaders for 5 hours Monday, resulting in 104 arrests. Low income people with disabilities are hemorrhaging as a result of the continual cuts to Medicaid by the states and Congress, said Barb Toomer, ADAPT Organizer from Utah. The leaders of the House and Senate are obviously in a position to stop the bleeding, so we came directly to them. We feel these cuts very personally, and we wanted the Senators and Representatives to feel it personally, too. Entering the offices of Sen. Bill Frist (R-TN), Sen. Chuck Grassley (R-IA), Sen. Harry Reid ( D-NV), and Rep. Nancy Pelosi (D-CA), Rep. J. Dennis Hastert (R-IL), Rep. Tom Delay (R-TX), Rep. Joe Barton (R-TX), ADAPT presented each with the following demands; 1. Support restoration of the proposed $10 billion Medicaid cuts. 2. No arbitrary caps on Medicaid, or block granting of Medicaid funds. 3. Eliminate the institutional bias in Medicaid by supporting MiCASSA (S .401, H.R. 910 ) and Money Follows the Person (S. 528, H.R. 3063) 4. Fund HUD housing vouchers for all people transitioning from nursing homes and other institutions to integrated community living. 5. Sponsor an initiative to address long term care services, durable medical equipment, assistive technology, support services, service animals and community housing for Katrina evacuees with disabilities. The occupation of the offices in the Hart, Cannon, and Rayburn buildings followed a morning press conference held next to FEMA Headquarters, and attended by FEMA staff. ADAPT Organizers from Louisiana, Mississippi and Alabama called into the press conference from their home states to inform the crowd by speakerphone about the state of affairs for Katrina survivors with disabilities in their respective areas. They spoke of people with disabilities being the last people evacuated, being actually turned away from shelters because of their disabilities or because they had no attendants with them, being separated from family, caregivers and necessary equipment and service animals, and now languishing in nursing homes and other institutions unconnected to the official resources being made available to the majority of Katrina survivors. This really is a matter of our life and death, said Randy Alexander, Tennessee ADAPT Organizer. A few months ago, Tennessee Gov. Bredesen drastically cut back TennCare, including home care services for people who use ventilators. He openly admitted that he was forcing these people into nursing homes. Just today we got word that we have suffered the first death of a ventilator user, the first casualty of Gov. Bredesen's heartless cuts. Unless Congress acts, the deaths will continue. ADAPT is in Washington through Thursday of this week to demand legislation and policy from any corner of the federal government with the power to assure that people with disabilities of all ages have what they need to live lives of dignity and choice in their communities. ### FOR MORE INFORMATION on ADAPT visit our website at http://www.adapt.org/
[QUAD-L] new member-old member
hi group-robert darden from virginia-- polio quad-use vent-power chair--- cheers R -Original Message- From: Aaron Mann Sent: Thu, 15 Sep 2005 13:41:48 -0700 To: Lori Michaelson, Quad Subject: RE: [QUAD-L] Re: sleep pain I've been living with pain so long that I actually feel weird when I have bouts of no pain... _ From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Thursday, September 15, 2005 3:27 PM To: Quad Subject: [QUAD-L] Re: sleep pain Greg wrote: When I wake up hot, it's because the pain or discomfort in my arms is what wakes me. Anyone else get this pain when they feel too hot at night? I never get this feeling in my arms when I'm over heated in the daytime. Greg The pain for me is there overnight cold or warm. Torso pain, arm pins needles. I can even feel it when I'm half-in and half-out of sleeping. Like it WANTS to keep me awake. It depends but it IS better for me daytimes and in the HEAT. When one neurologist looked at my MRIs of my pine ... she commented briefly of seeing arthritis there. Unsure if she was full of it or not. I attribute my pain to syringomyelia and stiffness and JUST BEING A QUAD where pain is arbritrary. Lori Michaelson C4/5 complete quad, 25 years post Tucson, AZ
