[QUAD-L] not gettig any posts
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[QUAD-L] medicare
Hi, Does anyone use Medicare's home health careyou are supposed to be homebound..how do they check? Carolyn
[QUAD-L] Lisa Ericson's aerobic workout
Hi, Does anyone have an extra copy of Lisa Ericson's Aerobic Workout they can send me or copy the one you have. I had three copies and they are all no good now. I try to do this workout four days a week and I'm lost without it. I will reimburse postage and any cost you might want. If you can I'll send my address. Thanks, Carolyn
[QUAD-L] last e-mail
That laast e-mail was from me...Carolyn D'Andrea C3/4 car accident 1963 age 68 living in Tamarac, FL
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A few of you wondered if I was crooked..I am not..guess I'm just lucky in that regard. I had my bladder removed in 1995 due to bladder cancer and now have a Miami pouch...I love it. I have had my problems with excessive sweating but it turns out the sweating was being caused by an open sore on my foot..I think. This past year I have not had any cold sweats and the sore is closed. I have had about 30 kidney and bladder stones (In my Miami pouch) all removed last year but I will probably get more! In 2005 I had shingles and after being put on the medicine for shingles I had a brain bleed which has affected my short term memory...other then being stuck in this wheelchair life is good! I have been married to my wonderful husband Tony for 47 years, have one sweet daughter Lisa and two incredible grandchildren Ryan and Megan. I will celebrate being alive on my 50th ann, of my car accident which put me in this chair Sunday..I have a great life always busy doing something. I do phone work for AmVets..calling for discards since 1986..brings in a little money. I don't write that much on the quad list but I read all the posts..will try to write more.
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Carolyn D'Andrea C3/4 car accident in Bpt. Ct at age 18 now I'm 68 living in Tamarac, Fl..Sunday will be my 50 year ann...lots of problems over the years but fairly healthy.
Re: [QUAD-L] List
Carolyn D'Andrea C3/4 May 5, 1963 car accident in CT now living in Tamarac, FL Sunday will be my 50th anniversary..oh my god - Original Message - From: ppac...@comcast.net To: quad-list@eskimo.com Sent: Monday, April 29, 2013 12:45:01 PM Subject: Re: [QUAD-L] List NJ DIVING Thank you! Paul - Original Message - From: ppac...@comcast.net To: quad-list@eskimo.com Sent: Monday, April 29, 2013 1:42:53 PM Subject: [QUAD-L] List Paul Pacera C5/6 complete 1991 48yrs. old. Thank you! Paul
Re: [QUAD-L] please help!
Hi, I used to sweat day and night..cold, cold sweats which I hated..everyone thought I was hot! Turns out it was due to an ulcer on the bottom of my foot which was being treated by wouund care drs..but up until the wound closed I would sweat..the wound finally closed I stopped sweating! The sweating is our body's way of telling us something is wrongI believe there's a cause..mu ulcer was so tiny at the end and I would still sweatday and night!!! - Original Message - From: "Patricia Brown-Tulee" To: lwillis...@yahoo.com, quad-list@eskimo.com Sent: Saturday, April 20, 2013 6:18:54 PM Subject: Re: Fwd: [QUAD-L] please help! for my sweatings has been due to discomfit of underwear &/or pants creeping. Or potential syrinx, when on left side more. Patricia L. Brown-Tulee pl...@yahoo.com while adding years to your life, add life to your years From: "lwillis...@yahoo.com" To: quad-list@eskimo.com Sent: Tuesday, April 16, 2013 3:32 PM Subject: Fwd: [QUAD-L] please help! Carla, it is almost certainly dysreflexia. I think about every member of this list including myself has experienced those miserable sweats. The frustrating thing is it can have many different causes, only two of which are bladder and bowel. Absolutely anything that could generate pain can cause it. The two drugs that best calm the sweat glands are ditropan and propantheline. Most of us take one or the other, and usually they are pretty effective. Do you take either of those? If not, talk to the ol' doc. Good luck and God bless. Larry Willis, C-5, 1971 Sent from my iPad Begin forwarded message: Resent-From: quad-list@eskimo.com From: Carla Aarssen < caars...@hotmail.com > Date: April 16, 2013, 6:16:27 PM EDT To: " quad-list@eskimo.com " < quad-list@eskimo.com > Subject: [QUAD-L] please help! i'm a c5 quad female, 33yrs old, 11years post injury and about a yr ago i started sweating profusely 90% of the day, doesn't matter the temp of air, sometimes i feel cold while sweating, i have goose flesh and sweat like i'm running in the desert (i wish,lol) i spent a month in hospital oly to be told i was "full of shit" pardon my french ...i'd have to change my bowel routine from 3x a week to daily and clean outwell, it seemed to me i continued to sweat for quite some time and it just mostly subsided but almost exactly 1yr later it's happening again, sweat is rolling down my neck right nowthe dr's are not taking me seriouslyi am no longer "full of shit"...what else can it be? it's not dysreflexia..in-dwelling foley cath works fineany ideas? anyone ever hear of propantheline bromide?
Re: [QUAD-L] Merry Christmas!
MERRY XMAS TO ALL MY FRIENDS Carolyn - Original Message - From: jume9...@comcast.net To: bobbie...@aol.com, "quad-list" Sent: Sunday, December 23, 2012 5:19:07 PM Subject: Re: [QUAD-L] Merry Christmas! Merry Christmas to you too Bobbie and Merry Christmas to everyone else!!! Meredith - Original Message - From: bobbie...@aol.com To: quad-list@eskimo.com Sent: Sunday, December 23, 2012 1:08:27 PM Subject: [QUAD-L] Merry Christmas! Hi All, I'd like to wish you all a very Merry Christmas! I hope you all are happy and healthy in 2013! I'll be in bed still but my brother in-law (my husbands brother) comes to our place on Christmas Day. We ALWAYS have a blast. What is everybody else doing Christmas? Bobbie
Re: [QUAD-L] 46 years post SCI
my stones are to big for the scope. - Original Message - From: "Quadius" To: "Danny Hearn" Cc: "Dana Wray" , "Nan" , quad-list@eskimo.com Sent: Wednesday, September 12, 2012 5:55:47 PM Subject: Re: [QUAD-L] 46 years post SCI I have had bladder stones removed from my bladder, but I would think it's not much more difficult than that. If you cath from your belly button, they can simply go in with the scope and remove the stones from your makeshift bladder. As far as kidney stones go, that's another story. Quadius On Wed, Sep 12, 2012 at 4:32 PM, Danny Hearn < ddh...@sbcglobal.net > wrote: Thank you Dana and the others that responded, as a quad you just wonder about a lot of things like that or what if you have an appendix burst or a gall bladder go bad..I guess one would get sick or dysreflexia in many cases. Thanks, again, Dan H. ** From: Dana Wray < daa...@aol.com > To: Nan < nlg52...@yahoo.com > Cc: Danny Hearn < ddh...@sbcglobal.net >; " quad-list@eskimo.com " < quad-list@eskimo.com > Sent: Wed, September 12, 2012 3:04:17 PM Subject: Re: [QUAD-L] 46 years post SCI Hi Danny, I found out I had bladder cancer after I went to the urologist with blood in my stool as I was using a catheter I had stage III bladder cancer and my bladder was removed I received made out of the last 6 inches of my small intestine in 1986. Dana Sent from my iPhone On Sep 11, 2012, at 10:26 PM, Nan < nlg52...@yahoo.com > wrote: One of my biggest clues would be sweating (AD). That said, I too have a "continent stoma" (Kock Pouch) and I self cath - I've had it since 1987 and it rocks!!! Nan From: Danny Hearn < ddh...@sbcglobal.net > To: carolyndeand...@comcast.net ; jume9...@comcast.net Cc: quad-list < quad-list@eskimo.com > Sent: Tuesday, September 11, 2012 1:33 PM Subject: Re: [QUAD-L] 46 years post SCI I'm curious to know how a quad can tell if they have something like bladder cancer going on, would there be some noticable problems or just during a urologist check up ? thanks Dan H.** From: " carolyndeand...@comcast.net " < carolyndeand...@comcast.net > To: jume9...@comcast.net Cc: quad-list < quad-list@eskimo.com > Sent: Tue, September 11, 2012 11:40:20 AM Subject: Re: [QUAD-L] 46 years post SCI I had bladder cancer so my bladder was re-made using my intestines and was put just inside my stomach beneath my belly button. I self cath...as my daughter said I now pee through my stomach. Its sometimes called the Miami or Indiana pouch. - Original Message - From: jume9...@comcast.net To: "quad-list" < quad-list@eskimo.com > Sent: Tuesday, September 11, 2012 11:35:04 AM Subject: Re: [QUAD-L] 46 years post SCI What is the miami pouch? Meredith - Original Message - From: carolyndeand...@comcast.net To: daa...@aol.com Cc: quad...@gmail.com , gah17...@aol.com , quad-list@eskimo.com Sent: Tuesday, September 11, 2012 9:24:16 AM Subject: Re: [QUAD-L] 46 years post SCI I'm 49 years post..may 5th will be 50 years omg..its hard to believe its been such a long time. I will be 68 next month, I was 18 when I was in a car accident. I have had many, many problems but I'm still hanging in. Like Lori who just lost her husband my husband is my care giver and hes 72 now..I hate to think about what would happen if he dies but I'm trying to be realistic and have some plans in place. My biggest problem right now is kidney and bladder stones and I have a Miami pouch due to bladder cancer..has anyone on the list had stones removed from a pouch? Carolyn - Original Message - From: daa...@aol.com To: quad...@gmail.com , gah17...@aol.com , quad-list@eskimo.com Sent: Tuesday, September 11, 2012 3:26:11 AM Subject: Re: [QUAD-L] 46 years post SCI Sorry you are not feeling too young, I know how you feel. Dana congratulations Quadius on 17 years. God bless all of us as we struggle each year with our different problems with SCI. In a message dated 9/10/2012 8:22:18 P.M. Central Daylight Time, quad...@gmail.com writes: today I'm not feeling too young myself. However, I am only 17 years into this life of quadriplegia. Congratulations on making to 46. Q On Fri, Sep 7, 2012 at 6:23 PM, < gah17...@aol.com > wrote: 63 years old, feel 110 today. Glenn Henry
[QUAD-L] Re: Stones removed from a pouch
Hi, I've had my pouch since 1999 and I have around 9 stones the size of marbles. My procedure will be invasive as the Dr. has to make about an inch incision and will literally pull them out...I have had kidney stones removed recently also but this procedure scares me because the Dr. is cutting into the pouch! I will be in the hospital one to two days. - Original Message - From: "Nan" To: carolyndeand...@comcast.net, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 10:52:27 PM Subject: Stones removed from a pouch Hi, I have a Kock Pouch ( http://en.wikipedia.org/wiki/Kock_pouch or http://medical-dictionary.thefreedictionary.com/Kock+pouch ). I've had it since 1987. I had a Calcium Oxalate stone a few years ago. The doc used Flomax to help the stone pass and after I was discharged they set up a procedure to remove the stone from my pouch. It was a fairly uninvasive, outpatient procedure. They gave me something IV to sleep and when I woke up it was done. I felt great in Recovery and "blew that pop stand" about an hour later. I have had no problems since! Nan
Re: [QUAD-L] 46 years post SCI
I had bladder cancer so my bladder was re-made using my intestines and was put just inside my stomach beneath my belly button. I self cath...as my daughter said I now pee through my stomach. Its sometimes called the Miami or Indiana pouch. - Original Message - From: jume9...@comcast.net To: "quad-list" Sent: Tuesday, September 11, 2012 11:35:04 AM Subject: Re: [QUAD-L] 46 years post SCI What is the miami pouch? Meredith - Original Message - From: carolyndeand...@comcast.net To: daa...@aol.com Cc: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 9:24:16 AM Subject: Re: [QUAD-L] 46 years post SCI I'm 49 years post..may 5th will be 50 years omg..its hard to believe its been such a long time. I will be 68 next month, I was 18 when I was in a car accident. I have had many, many problems but I'm still hanging in. Like Lori who just lost her husband my husband is my care giver and hes 72 now..I hate to think about what would happen if he dies but I'm trying to be realistic and have some plans in place. My biggest problem right now is kidney and bladder stones and I have a Miami pouch due to bladder cancer..has anyone on the list had stones removed from a pouch? Carolyn - Original Message - From: daa...@aol.com To: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 3:26:11 AM Subject: Re: [QUAD-L] 46 years post SCI Sorry you are not feeling too young, I know how you feel. Dana congratulations Quadius on 17 years. God bless all of us as we struggle each year with our different problems with SCI. In a message dated 9/10/2012 8:22:18 P.M. Central Daylight Time, quad...@gmail.com writes: today I'm not feeling too young myself. However, I am only 17 years into this life of quadriplegia. Congratulations on making to 46. Q On Fri, Sep 7, 2012 at 6:23 PM, < gah17...@aol.com > wrote: 63 years old, feel 110 today. Glenn Henry
Re: [QUAD-L] 46 years post SCI
I'm 49 years post..may 5th will be 50 years omg..its hard to believe its been such a long time. I will be 68 next month, I was 18 when I was in a car accident. I have had many, many problems but I'm still hanging in. Like Lori who just lost her husband my husband is my care giver and hes 72 now..I hate to think about what would happen if he dies but I'm trying to be realistic and have some plans in place. My biggest problem right now is kidney and bladder stones and I have a Miami pouch due to bladder cancer..has anyone on the list had stones removed from a pouch? Carolyn - Original Message - From: daa...@aol.com To: quad...@gmail.com, gah17...@aol.com, quad-list@eskimo.com Sent: Tuesday, September 11, 2012 3:26:11 AM Subject: Re: [QUAD-L] 46 years post SCI Sorry you are not feeling too young, I know how you feel. Dana congratulations Quadius on 17 years. God bless all of us as we struggle each year with our different problems with SCI. In a message dated 9/10/2012 8:22:18 P.M. Central Daylight Time, quad...@gmail.com writes: today I'm not feeling too young myself. However, I am only 17 years into this life of quadriplegia. Congratulations on making to 46. Q On Fri, Sep 7, 2012 at 6:23 PM, < gah17...@aol.com > wrote: 63 years old, feel 110 today. Glenn Henry
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Does anyone have the phone # for the sci nurse..I recall a # that you could call and ask a question.
Re: [QUAD-L] 21st anniversary!
Hi, Does anyone know of a company in the Ft lauderdale FL area that sells overhead ceiling lifts and would come out to measure the area? Carolyn - Original Message - From: "Billy Lang" To: "Jim Lubin" , "t crook" , quad-list@eskimo.com Sent: Monday, June 28, 2010 5:59:44 PM GMT -06:00 US/Canada Central Subject: RE: [QUAD-L] 21st anniversary! Jim, I will be 21 years as a c5/6 on July 8. You have made the time useful, helping many along the way. • Whoever destroys a soul, it is considered as if he destroyed an entire world. And whoever saves a life, it is considered as if he saved an entire world. - Babylonian Talmud , Sanhedrin 4:8 (37a) I have been enriched by your efforts, Jim. Live peacefully. Don't let what you cannot do interfere with what you can do! Bill Lang www.langfoundation.org From: Jim Lubin [mailto:jlu...@eskimo.com] Sent: Monday, May 31, 2010 2:51 PM To: t crook; quad-list@eskimo.com Subject: Re: [QUAD-L] 21st anniversary! I'm pretty sure it was May '96. I was stuck in bed for 2 months waiting for my wheelchair to get fixed when I started the list. At 06:38 AM 5/31/2010, t crook wrote: You have accomplished so much with so little function, it is nothing short of amazing. Wishing you all of the health and happiness one could have. Tim c5-c5, 21 yrs. post P.S. How long have you had the q-list? I have been on here since 92' or 93'. http://www.whoopiekat.com/crockscrib/index.htm --- On Mon, 5/17/10, Jim Lubin wrote: From: Jim Lubin Subject: [QUAD-L] 21st anniversary! To: quad-list@eskimo.com, tmic-l...@eskimo.com, vent-us...@eskimo.com Date: Monday, May 17, 2010, 4:13 PM Today, May 17th, makes 21 years since I became a ventilator dependent quadriplegic due to acute transverse myelitis. I was 21 when it happened so it has now been half my life. I woke up that morning with a sore shoulder. Thinking I just slept in a wrong position I went to work. After about 30 minutes the pain in my shoulder increased and I started feeling dizzy. I tried to stand up but could not. Someone helped me lay down. In a short amount of time I remember a paramedic asking me my age, I tried to answer but could not talk. I found out I had stopped breathing. The next memory I have is waking up in the hospital unable to move or speak. Transverse Myelitis is an inflammatory attack in the spinal cord. It is an auto immune disorder where a persons own immune system mistakenly attacks and destroys myelin, the insulating material that surrounds nerves. There is no known cause or cure. It can happen to anyone at any age. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org http://www.makoa.org/jlubin/charitybadge
Re: [QUAD-L] Cutest Pet
Hi Greg, Just voted for your adorable dog..Carolyn - Original Message - From: "Greg" To: quad-list@eskimo.com Sent: Saturday, December 5, 2009 8:06:04 PM GMT -06:00 US/Canada Central Subject: [QUAD-L] Cutest Pet Hi all, I sent a photo of my dog Roo to my paper’s “Cutest Pets Contest” and he made the List of pets for voting. It’s a photo of him with his broken leg wearing his football jersey. He is a Papillon who I’m training to be a Service Dog. He can pick up my pencil/cuff, take a card or cash out of my shirt pocket and put it on the counter, etc. I was hoping you guys could help vote for him… http://santansun.com/pets Thanks much, Greg and Roo
Re: [QUAD-L] question about bladder stones
Thank you so much W. - Original Message - From: wheelch...@aol.com To: carolyndeand...@comcast.net, quad-list@eskimo.com Sent: Monday, July 27, 2009 3:34:39 PM GMT -06:00 US/Canada Central Subject: Re: [QUAD-L] question about bladder stones I don't have an answer for you but I did forward a copy of your email to the Executive Director of the Illinois Chapter of the NSCIA in Chicago for some information and advice. As soon as she response to me I will forward an answer to you. Best Wishes W In a message dated 7/27/2009 2:27:04 P.M. Central Daylight Time, carolyndeand...@comcast.net writes: I had an ostomy in 1997 due to bladder cancer and now I have stones in the bladder/pouch as the Dr.'s call it. I also have kidney stones again, about 4 in each kidney and 4 in the bladder/pouch. My Dr. wants to remove the stones from the bladder but this would be his first surgery on a bladdetr/pouch. Has anyone had stones removed from bladder/pouch or know where I can get information about this type of surgery? Thanks, Carolyn C3/4 post 46 years A bad credit score is 600 & below. Checking won't affect your score. See now!
[QUAD-L] question about bladder stones
I had an ostomy in 1997 due to bladder cancer and now I have stones in the bladder/pouch as the Dr.'s call it. I also have kidney stones again, about 4 in each kidney and 4 in the bladder/pouch. My Dr. wants to remove the stones from the bladder but this would be his first surgery on a bladdetr/pouch. Has anyone had stones removed from bladder/pouch or know where I can get information about this type of surgery? Thanks, Carolyn C3/4 post 46 years
