Re: [QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc.
Very well put Steve, I had my 23rd back in January of this year. I to was told about the cure in 10 years, but I choose to go on with life and not wait for it because I'm not going to be a giny pig for something that may not help me. Don c5/6 incomplete back inOn May 22, 2011, at 15:15, Steve Oldaker steve.olda...@comcast.net wrote: Today marks my 23rd year as a member of the quad fraternity. Some days it seems longer, other days much shorter. All in all, there have been plenty of bumps along the road, but the journey has been and remains worth taking. I remember clearly being advised by various sources while in rehab nearly 23 years ago that we were likely just 5-10 years away from a cure when I would walk again, as though walking in and of itself defines a cure. Lo and behold 23 years later, in spite of a number of advances, the projection remains the same. And while they are remarkable, noteworthy accomplishments, I don't consider walking by means of electrical implants, exoskeletons or other recent non-biochemical achievements any kind of real cure or even substantially beneficial in their current state, though I suppose if someone is highly invested (ie. physically, emotionally, financially, etc.) in walking by any means, any form of walking may be considered substantial. For whatever reason, I have not shared the overwhelming desire if not obsession with walking that Christopher Reeve and some of my other SCI friends and associates seem to have (or had in Reeve's case). As a C4 quad, even paraplegia would be a remarkable improvement to me. There are a number of incremental cures that I would prioritize over walking including substantial pain reduction and full return of bladder, bowel, and sexual function, to name a few. Don't get me wrong. I would love to walk again, and I hope, pray, and contribute financially regularly to cure research. And while I support cure efforts as the ultimate goal, I do not subscribe to the notion of CURE not care. I believe strongly that we need to work for both if we want to lead long, healthy, productive lives in spite of our conditions. Every morning when I wake up I try to move, and when I find once again that I am unable to do so, I go about the business of living as good and as productive of a life as I can. This has served me well these 23 years. It allowed me to accomplish much post injury including obtaining computer training shortly afterward, a 17 year career with the federal government, and a comfortable early disability retirement a few years ago which frees me up for more of my personal interests and community activities. A cure would be wonderful and I don't think anyone should give up hope, but I also think it is in one's best interest to live and move forward as best they can given the likelihood that a cure is at best several years and most likely many years away. I am grateful for all of the assistance and support I have received from my family, friends, coworkers, hired caregivers, and medical professionals over the years. I hope to have many more good years like Glenn Henry, Arizona Dave, and others who have shared their experiences, knowledge, and opinions on this list. Cheers to all of you! Steve - C4, 23 years
Re: [QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc.
Happy Anniversary! Steve always hold onto your dreams! We will have a cure sometime in the future. I wish for only pain relief. Lindaf
[QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc.
Today marks my 23rd year as a member of the quad fraternity. Some days it seems longer, other days much shorter. All in all, there have been plenty of bumps along the road, but the journey has been and remains worth taking. I remember clearly being advised by various sources while in rehab nearly 23 years ago that we were likely just 5-10 years away from a cure when I would walk again, as though walking in and of itself defines a cure. Lo and behold 23 years later, in spite of a number of advances, the projection remains the same. And while they are remarkable, noteworthy accomplishments, I don't consider walking by means of electrical implants, exoskeletons or other recent non-biochemical achievements any kind of real cure or even substantially beneficial in their current state, though I suppose if someone is highly invested (ie. physically, emotionally, financially, etc.) in walking by any means, any form of walking may be considered substantial. For whatever reason, I have not shared the overwhelming desire if not obsession with walking that Christopher Reeve and some of my other SCI friends and associates seem to have (or had in Reeve's case). As a C4 quad, even paraplegia would be a remarkable improvement to me. There are a number of incremental cures that I would prioritize over walking including substantial pain reduction and full return of bladder, bowel, and sexual function, to name a few. Don't get me wrong. I would love to walk again, and I hope, pray, and contribute financially regularly to cure research. And while I support cure efforts as the ultimate goal, I do not subscribe to the notion of CURE not care. I believe strongly that we need to work for both if we want to lead long, healthy, productive lives in spite of our conditions. Every morning when I wake up I try to move, and when I find once again that I am unable to do so, I go about the business of living as good and as productive of a life as I can. This has served me well these 23 years. It allowed me to accomplish much post injury including obtaining computer training shortly afterward, a 17 year career with the federal government, and a comfortable early disability retirement a few years ago which frees me up for more of my personal interests and community activities. A cure would be wonderful and I don't think anyone should give up hope, but I also think it is in one's best interest to live and move forward as best they can given the likelihood that a cure is at best several years and most likely many years away. I am grateful for all of the assistance and support I have received from my family, friends, coworkers, hired caregivers, and medical professionals over the years. I hope to have many more good years like Glenn Henry, Arizona Dave, and others who have shared their experiences, knowledge, and opinions on this list. Cheers to all of you! Steve - C4, 23 years
RE: [QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc.
Happy Anniversary! Very well said. I was told in 1998 in 5 years there would be a cureliving good just the way I am and agree paraplegia would be a great improvement for me. Nicki c5./6 -Original Message- From: Steve Oldaker [mailto:steve.olda...@comcast.net] Sent: Sunday, May 22, 2011 2:15 PM To: quad-list@eskimo.com Subject: [QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc. Today marks my 23rd year as a member of the quad fraternity. Some days it seems longer, other days much shorter. All in all, there have been plenty of bumps along the road, but the journey has been and remains worth taking. I remember clearly being advised by various sources while in rehab nearly 23 years ago that we were likely just 5-10 years away from a cure when I would walk again, as though walking in and of itself defines a cure. Lo and behold 23 years later, in spite of a number of advances, the projection remains the same. And while they are remarkable, noteworthy accomplishments, I don't consider walking by means of electrical implants, exoskeletons or other recent non-biochemical achievements any kind of real cure or even substantially beneficial in their current state, though I suppose if someone is highly invested (ie. physically, emotionally, financially, etc.) in walking by any means, any form of walking may be considered substantial. For whatever reason, I have not shared the overwhelming desire if not obsession with walking that Christopher Reeve and some of my other SCI friends and associates seem to have (or had in Reeve's case). As a C4 quad, even paraplegia would be a remarkable improvement to me. There are a number of incremental cures that I would prioritize over walking including substantial pain reduction and full return of bladder, bowel, and sexual function, to name a few. Don't get me wrong. I would love to walk again, and I hope, pray, and contribute financially regularly to cure research. And while I support cure efforts as the ultimate goal, I do not subscribe to the notion of CURE not care. I believe strongly that we need to work for both if we want to lead long, healthy, productive lives in spite of our conditions. Every morning when I wake up I try to move, and when I find once again that I am unable to do so, I go about the business of living as good and as productive of a life as I can. This has served me well these 23 years. It allowed me to accomplish much post injury including obtaining computer training shortly afterward, a 17 year career with the federal government, and a comfortable early disability retirement a few years ago which frees me up for more of my personal interests and community activities. A cure would be wonderful and I don't think anyone should give up hope, but I also think it is in one's best interest to live and move forward as best they can given the likelihood that a cure is at best several years and most likely many years away. I am grateful for all of the assistance and support I have received from my family, friends, coworkers, hired caregivers, and medical professionals over the years. I hope to have many more good years like Glenn Henry, Arizona Dave, and others who have shared their experiences, knowledge, and opinions on this list. Cheers to all of you! Steve - C4, 23 years
Re: [QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc.
Steve, I just LOVED your note you wrote to us all, it was very heart felt. Happy Anniversary! Bobbie 36 years post Sent from my iPad On May 22, 2011, at 15:15, Steve Oldaker steve.olda...@comcast.net wrote: Today marks my 23rd year as a member of the quad fraternity. Some days it seems longer, other days much shorter. All in all, there have been plenty of bumps along the road, but the journey has been and remains worth taking. I remember clearly being advised by various sources while in rehab nearly 23 years ago that we were likely just 5-10 years away from a cure when I would walk again, as though walking in and of itself defines a cure. Lo and behold 23 years later, in spite of a number of advances, the projection remains the same. And while they are remarkable, noteworthy accomplishments, I don't consider walking by means of electrical implants, exoskeletons or other recent non-biochemical achievements any kind of real cure or even substantially beneficial in their current state, though I suppose if someone is highly invested (ie. physically, emotionally, financially, etc.) in walking by any means, any form of walking may be considered substantial. For whatever reason, I have not shared the overwhelming desire if not obsession with walking that Christopher Reeve and some of my other SCI friends and associates seem to have (or had in Reeve's case). As a C4 quad, even paraplegia would be a remarkable improvement to me. There are a number of incremental cures that I would prioritize over walking including substantial pain reduction and full return of bladder, bowel, and sexual function, to name a few. Don't get me wrong. I would love to walk again, and I hope, pray, and contribute financially regularly to cure research. And while I support cure efforts as the ultimate goal, I do not subscribe to the notion of CURE not care. I believe strongly that we need to work for both if we want to lead long, healthy, productive lives in spite of our conditions. Every morning when I wake up I try to move, and when I find once again that I am unable to do so, I go about the business of living as good and as productive of a life as I can. This has served me well these 23 years. It allowed me to accomplish much post injury including obtaining computer training shortly afterward, a 17 year career with the federal government, and a comfortable early disability retirement a few years ago which frees me up for more of my personal interests and community activities. A cure would be wonderful and I don't think anyone should give up hope, but I also think it is in one's best interest to live and move forward as best they can given the likelihood that a cure is at best several years and most likely many years away. I am grateful for all of the assistance and support I have received from my family, friends, coworkers, hired caregivers, and medical professionals over the years. I hope to have many more good years like Glenn Henry, Arizona Dave, and others who have shared their experiences, knowledge, and opinions on this list. Cheers to all of you! Steve - C4, 23 years
Re: [QUAD-L] Anniversary and Thoughts on Walking, Cure, Etc.
Happy Anniversary Steve! Your message was so hopeful, sincere and true. I totally agree that the remarkable cures that would help us besides walking. Dana C4-5, 36 years post In a message dated 5/22/2011 7:31:05 P.M. Central Daylight Time, bobbie...@aol.com writes: Steve, I LOVED your note you wrote to us all, it was very heart felt. Happy Anniversary! Bobbie 36 years post Sent from my iPad On May 22, 2011, at 15:15, Steve Oldaker steve.olda...@comcast.net wrote: Today marks my 23rd year as a member of the quad fraternity. Some days it seems longer, other days much shorter. All in all, there have been plenty of bumps along the road, but the journey has been and remains worth taking. I remember clearly being advised by various sources while in rehab nearly 23 years ago that we were likely just 5-10 years away from a cure when I would walk again, as though walking in and of itself defines a cure. Lo and behold 23 years later, in spite of a number of advances, the projection remains the same. And while they are remarkable, noteworthy accomplishments, I don't consider walking by means of electrical implants, exoskeletons or other recent non-biochemical achievements any kind of real cure or even substantially beneficial in their current state, though I suppose if someone is highly invested (ie. physically, emotionally, financially, etc.) in walking by any means, any form of walking may be considered substantial. For whatever reason, I have not shared the overwhelming desire if not obsession with walking that Christopher Reeve and some of my other SCI friends and associates seem to have (or had in Reeve's case). As a C4 quad, even paraplegia would be a remarkable improvement to me. There are a number of incremental cures that I would prioritize over walking including substantial pain reduction and full return of bladder, bowel, and sexual function, to name a few. Don't get me wrong. I would love to walk again, and I hope, pray, and contribute financially regularly to cure research. And while I support cure efforts as the ultimate goal, I do not subscribe to the notion of CURE not care. I believe strongly that we need to work for both if we want to lead long, healthy, productive lives in spite of our conditions. Every morning when I wake up I try to move, and when I find once again that I am unable to do so, I go about the business of living as good and as productive of a life as I can. This has served me well these 23 years. It allowed me to accomplish much post injury including obtaining computer training shortly afterward, a 17 year career with the federal government, and a comfortable early disability retirement a few years ago which frees me up for more of my personal interests and community activities. A cure would be wonderful and I don't think anyone should give up hope, but I also think it is in one's best interest to live and move forward as best they can given the likelihood that a cure is at best several years and most likely many years away. I am grateful for all of the assistance and support I have received from my family, friends, coworkers, hired caregivers, and medical professionals over the years. I hope to have many more good years like Glenn Henry, Arizona Dave, and others who have shared their experiences, knowledge, and opinions on this list. Cheers to all of you! Steve - C4, 23 years
