Re: [QUAD-L] Supra pubic or other options?2

2017-12-29 Thread Greg
Part of the reason you don't get as much out is because its not in the 
balloon, its in the tube. Its got to fill the tube before it gets to the 
balloon. If you poked a hole in the balloon for air, you might get it 
all out.

Greg

On 12/29/2017 8:10 AM, Noel wrote:

It might be just the type of catheter used, but the balloon can lose
water over a couple of weeks. I would have 10 cc initially inserted,
three weeks later about 6 cc would come out.  I suspect it's due to
condensation. I've begun using a mixture of sterile water and
glycerin, at the mixture of 9:1.

On Fri, Dec 29, 2017 at 12:45 AM, Danny Espinoza
 wrote:

I'm 13 years post and have had a Supra pubic catheter for 12 years and use a
Bardex hydrogel with bactiguard and silver alloy coating and rarely if ever
get infections since I changed to it. The other change I had made is my
fluid intake after increasing that I'm sure it helped as well. Flushing the
catheter/bladder with saline is fairly easy as well with a S.p. catheter.
The one thing that we had to learn/make adjustments to is how much to fill
the balloon/balloon size. If you fill it too much then it can cause A.D
however not enough and the catheter can move or come out which your
doctor/urologist will/should go over with you.
-Danny

 Original Message --------
Subject: Re: [QUAD-L] Supra pubic or other options?2
From: "Greg" 
Date: Thu, December 28, 2017 7:22 pm
To: 

I use a Bard Foley IC, (Infection Control) silver coated. The clear ones
were too stiff, caused spasms.The yellowish ones cause me no issues.
Greg

On 12/28/2017 6:19 PM, Noel wrote:

John, I had a suprapubic installed about five years ago. Initially, it
was rough, constantly causing autonomic dysreflexia. I switched to a
different type of catheter called the Duette, it has helped somewhat,
but still some discomfort when the tube is moved. It's made of softer
material, every once in a while have trouble getting it to insert and
have to use a catheter with a stiffer tip called a coude. I'm in quite
a bit of pain until I can switch back to the Duette. Haven't had much
trouble with infections.

On Thu, Dec 28, 2017 at 1:01 PM, john owens  wrote:

I would appreciate getting some information about getting a supra pubic
catheter.


I am 27 years old and 11 years post C4C5 SCI and TBI.

I was told by my urologist that I’m not emptying completely with simply a
condom catheter and that my best option will be to set up a surgery date in
January for a supra pubic.

I did not ask him about the option for an ileal conduit urinary diversion
but I would like feedback on which option you think is the best.

Please tell me of your experiences with the Supra pubic.

Have you had less UTI’ after having a Supra pubic?

What complications if any have you had with the Supra pubic?

Thanks for any advice or tips.
John/JR






Re: [QUAD-L] Supra pubic or other options?2

2017-12-29 Thread Noel
It might be just the type of catheter used, but the balloon can lose
water over a couple of weeks. I would have 10 cc initially inserted,
three weeks later about 6 cc would come out.  I suspect it's due to
condensation. I've begun using a mixture of sterile water and
glycerin, at the mixture of 9:1.

On Fri, Dec 29, 2017 at 12:45 AM, Danny Espinoza
 wrote:
> I'm 13 years post and have had a Supra pubic catheter for 12 years and use a
> Bardex hydrogel with bactiguard and silver alloy coating and rarely if ever
> get infections since I changed to it. The other change I had made is my
> fluid intake after increasing that I'm sure it helped as well. Flushing the
> catheter/bladder with saline is fairly easy as well with a S.p. catheter.
> The one thing that we had to learn/make adjustments to is how much to fill
> the balloon/balloon size. If you fill it too much then it can cause A.D
> however not enough and the catheter can move or come out which your
> doctor/urologist will/should go over with you.
> -Danny
>
> ---- Original Message ----
> Subject: Re: [QUAD-L] Supra pubic or other options?2
> From: "Greg" 
> Date: Thu, December 28, 2017 7:22 pm
> To: 
>
> I use a Bard Foley IC, (Infection Control) silver coated. The clear ones
> were too stiff, caused spasms.The yellowish ones cause me no issues.
> Greg
>
> On 12/28/2017 6:19 PM, Noel wrote:
>
> John, I had a suprapubic installed about five years ago. Initially, it
> was rough, constantly causing autonomic dysreflexia. I switched to a
> different type of catheter called the Duette, it has helped somewhat,
> but still some discomfort when the tube is moved. It's made of softer
> material, every once in a while have trouble getting it to insert and
> have to use a catheter with a stiffer tip called a coude. I'm in quite
> a bit of pain until I can switch back to the Duette. Haven't had much
> trouble with infections.
>
> On Thu, Dec 28, 2017 at 1:01 PM, john owens  wrote:
>
> I would appreciate getting some information about getting a supra pubic
> catheter.
>
>
> I am 27 years old and 11 years post C4C5 SCI and TBI.
>
> I was told by my urologist that I’m not emptying completely with simply a
> condom catheter and that my best option will be to set up a surgery date in
> January for a supra pubic.
>
> I did not ask him about the option for an ileal conduit urinary diversion
> but I would like feedback on which option you think is the best.
>
> Please tell me of your experiences with the Supra pubic.
>
> Have you had less UTI’ after having a Supra pubic?
>
> What complications if any have you had with the Supra pubic?
>
> Thanks for any advice or tips.
> John/JR
>
>



RE: [QUAD-L] Supra pubic or other options?2

2017-12-28 Thread Danny Espinoza
I'm 13 years post and have had a Supra pubic catheter for 12 years and use a Bardex hydrogel with bactiguard and silver alloy coating and rarely if ever get infections since I changed to it. The other change I had made is my fluid intake after increasing that I'm sure it helped as well. Flushing the catheter/bladder with saline is fairly easy as well with a S.p. catheter. The one thing that we had to learn/make adjustments to is how much to fill the balloon/balloon size. If you fill it too much then it can cause A.D however not enough and the catheter can move or come out which your doctor/urologist will/should go over with you.-Danny


 Original Message 
Subject: Re: [QUAD-L] Supra pubic or other options?2
From: "Greg" <g...@eskimo.com>
Date: Thu, December 28, 2017 7:22 pm
To: <quad-list@eskimo.com>

 I use a Bard Foley IC, (Infection Control) silver coated. The clear ones were too stiff, caused spasms.The yellowish ones cause me no issues. Greg  On 12/28/2017 6:19 PM, Noel wrote:   John, I had a suprapubic installed about five years ago. Initially, it
was rough, constantly causing autonomic dysreflexia. I switched to a
different type of catheter called the Duette, it has helped somewhat,
but still some discomfort when the tube is moved. It's made of softer
material, every once in a while have trouble getting it to insert and
have to use a catheter with a stiffer tip called a coude. I'm in quite
a bit of pain until I can switch back to the Duette. Haven't had much
trouble with infections.

On Thu, Dec 28, 2017 at 1:01 PM, john owens  wrote:
  I would appreciate getting some information about getting a supra pubic
catheter.


I am 27 years old and 11 years post C4C5 SCI and TBI.

I was told by my urologist that I’m not emptying completely with simply a
condom catheter and that my best option will be to set up a surgery date in
January for a supra pubic.

I did not ask him about the option for an ileal conduit urinary diversion
but I would like feedback on which option you think is the best.

Please tell me of your experiences with the Supra pubic.

Have you had less UTI’ after having a Supra pubic?

What complications if any have you had with the Supra pubic?

Thanks for any advice or tips.
John/JR

  





Re: [QUAD-L] Supra pubic or other options?2

2017-12-28 Thread Greg
I use a Bard Foley IC, (Infection Control) silver coated. The clear ones 
were too stiff, caused spasms.The yellowish ones cause me no issues.

Greg

On 12/28/2017 6:19 PM, Noel wrote:

John, I had a suprapubic installed about five years ago. Initially, it
was rough, constantly causing autonomic dysreflexia. I switched to a
different type of catheter called the Duette, it has helped somewhat,
but still some discomfort when the tube is moved. It's made of softer
material, every once in a while have trouble getting it to insert and
have to use a catheter with a stiffer tip called a coude. I'm in quite
a bit of pain until I can switch back to the Duette. Haven't had much
trouble with infections.

On Thu, Dec 28, 2017 at 1:01 PM, john owens  wrote:

I would appreciate getting some information about getting a supra pubic
catheter.


I am 27 years old and 11 years post C4C5 SCI and TBI.

I was told by my urologist that I’m not emptying completely with simply a
condom catheter and that my best option will be to set up a surgery date in
January for a supra pubic.

I did not ask him about the option for an ileal conduit urinary diversion
but I would like feedback on which option you think is the best.

Please tell me of your experiences with the Supra pubic.

Have you had less UTI’ after having a Supra pubic?

What complications if any have you had with the Supra pubic?

Thanks for any advice or tips.
John/JR





Re: [QUAD-L] Supra pubic or other options?2

2017-12-28 Thread Noel
John, I had a suprapubic installed about five years ago. Initially, it
was rough, constantly causing autonomic dysreflexia. I switched to a
different type of catheter called the Duette, it has helped somewhat,
but still some discomfort when the tube is moved. It's made of softer
material, every once in a while have trouble getting it to insert and
have to use a catheter with a stiffer tip called a coude. I'm in quite
a bit of pain until I can switch back to the Duette. Haven't had much
trouble with infections.

On Thu, Dec 28, 2017 at 1:01 PM, john owens  wrote:
> I would appreciate getting some information about getting a supra pubic
> catheter.
>
>
> I am 27 years old and 11 years post C4C5 SCI and TBI.
>
> I was told by my urologist that I’m not emptying completely with simply a
> condom catheter and that my best option will be to set up a surgery date in
> January for a supra pubic.
>
> I did not ask him about the option for an ileal conduit urinary diversion
> but I would like feedback on which option you think is the best.
>
> Please tell me of your experiences with the Supra pubic.
>
> Have you had less UTI’ after having a Supra pubic?
>
> What complications if any have you had with the Supra pubic?
>
> Thanks for any advice or tips.
> John/JR
>



[QUAD-L] Supra pubic or other options?2

2017-12-28 Thread john owens
I would appreciate getting some information about getting a supra pubic 
catheter.


I am 27 years old and 11 years post C4C5 SCI and TBI. 
I was told by my urologist that I’m not emptying completely with simply a 
condom catheter and that my best option will be to set up a surgery date in 
January for a supra pubic. 
I did not ask him about the option for an ileal conduit urinary diversion but I 
would like feedback on which option you think is the best.
Please tell me of your experiences with the Supra pubic.
Have you had less UTI’ after having a Supra pubic?
What complications if any have you had with the Supra pubic?
Thanks for any advice or tips. John/JR