Re: [QUAD-L] foleys

[Quadius]

I had a supra pubic for about 17 years. I had to have my bladder diverted
into a urostomy due to bladder atrophy, pain from the catheter rubbing
against the bladder and terrible bladder spasms. I was having three or four
battles with A.D. every week.

Unfortunately the urostomy hasn't been the fix everyone thought it would be
for me. I still have significant trouble with pain, but it is much better
than the last couple of years with the SP.

Like Bob said, a suprapubic is easily reversed. You can simply let the hole
close and go back to a normal catheter if necessary.

I wish you the best of luck
Q

On Mon, Mar 28, 2016 at 3:19 PM, Fragile  wrote:

> When I 1st switched over to a suprapubic, it caused Autonomic
> dysreflexia. After about 6 months, I started using a Duette instead of
> the standard catheter, made a big difference.
>
> On 3/28/16, diannal...@aol.com  wrote:
> >
> > i'm going to a urologist in april to discuss getting a suprapubic foley.
> > I've been a quad for 25 yrs. can I get some feedback on pros and cons
> before
> > I go?
> > dianna
> >
>
>

Re: [QUAD-L] foleys

[Fragile]

When I 1st switched over to a suprapubic, it caused Autonomic
dysreflexia. After about 6 months, I started using a Duette instead of
the standard catheter, made a big difference.

On 3/28/16, diannal...@aol.com  wrote:
>
> i'm going to a urologist in april to discuss getting a suprapubic foley.
> I've been a quad for 25 yrs. can I get some feedback on pros and cons before
> I go?
> dianna
>

Re: [QUAD-L] foleys

[Robert Vogel]

Hi Diana,

Bob Vogel here—I write and/or wrote columns on health management with SCI for 
New Mobility magazine, the retired
“Bladder Matters” column as well as the current Para/Medic.  To view the many 
Bladder Matters columns go to
www.newmobility.com   and on the right hand side 
of the page in the “search” area type Bladder Matters.

How have you been managing your bladder up to this point?  Has it been a 
regular Foley?  Or  a regular schedule of
intermittent internal catheterization or???

The real key to your question is good communication with your urologist, and 
hopefully you have a urologist that takes the time to listen to you, and 
carefully consider options.

That said, and understand there are no “absolutes”—in general a superpubic 
Foley works better over the long term than a regular indwelling Foley catheter. 
 Among the problems that long term use (many months and/or years) of *regular* 
Foley use 
include irritation and/or eroding the urethra.  Another problem that can occur 
from long-term Foley use is irritation of the bladder
wall caused by the Foley balloon sitting against the Foley wall, this 
irritation can cause autonomic dysreflexia (sudden, life threatening
spike in blood pressure).  Also, years of long term chronic irritation can 
increase the odds of bladder cancer—one of the reasons it is
important for anybody with neurogenic bladder (a bladder that doesn’t receive 
*normal* signals from the brain) should have a yearly urological checkup 
including kidney and bladder ultrasound to check for stones.

The good thing about “trying” a suprapubic Foley is that it is a simple 
procedure for the urologist to do AND if you don’t like it, it is very easy to 
reverse—under a doctors advice and care—simply remove the Foley, and the stoma 
(hole) will heal over in a short period of time.

An important thing to discuss with your urologist is how to keep your bladder 
from shrinking (if it hasn’t already done so).  Long term
use of any Foley, combined with a spastic bladder will result in bladder 
shrinkage.  Urologists report that in some cases the
bladder shrinks so small that it isn’t much bigger than the foley balloon (this 
is over a period of years).  There are ways to
prevent this.  One option is using a catheter valve—something that must be used 
very carefully and again, only with with
approval and instruction from your urologist—link below.

Hope the columns help.

Cheers,
Bob V

Suprapubic Revisited 
http://www.newmobility.com/2010/06/suprapubic-revisited/ 


Para/Medic: BioFlo, a New Option for Indwelling Foley Users
http://www.newmobility.com/2015/03/bioflo-indwelling-catheter/ 



> On Mar 28, 2016, at 10:27 AM, diannal...@aol.com wrote:
> 
> i'm going to a urologist in april to discuss getting a suprapubic foley. I've 
> been a quad for 25 yrs. can I get some feedback on pros and cons before I go?
> dianna

[QUAD-L] foleys

[diannal767]

i'm going to a urologist in april to discuss getting a suprapubic foley. I've 
been a quad for 25 yrs. can I get some feedback on pros and cons before I go?
dianna