Re: [QUAD-L] serious health questions
Some states, Indiana for example has a program in state which allows registered members up to $24,000 a year without losing state benefits. I don't know if that is any help to start . Welcome Back Ayme! W In a message dated 9/9/2008 6:53:32 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: I didn't drop offline, just been lurking.. my doc switched my BP med and 90% of fainting has stopped! tx DARS has new program where you have to be working or actively looking for work or they won't help convert van! after i've been waiting 4 yrs!!! if i work i lose my disability & benfits and don't make enough to cover medical needs..catch 22, god bless america! so i get to continue having someone drive me around till i finish my BA.. well i hope everyone else has great week! --- On Mon, 8/4/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> Subject: [QUAD-L] serious health questions To: quad-list@eskimo.com Cc: [EMAIL PROTECTED] Date: Monday, August 4, 2008, 7:30 AM Hiya Amye! Missed your postings while you were absent. Glad to read you back and hope the family is doing well. 10 years old now?? How time flys or flies Regarding your blood pressure... I wish that I had the answer, but I don't. Besides the binder and morning exercise before getting out of bed in the morning, I am stump'd. Perhaps the guys at the Miami Project and Dr Green or Young may be in a better position to advise you on the research, regarding the blood pressure syndrome of those with spinal cord injuries. I'm hoping for you. Best Wishes In a message dated 8/1/2008 9:08:45 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad Looking for a car that's sporty, fun and fits in your budget? _Read reviews on AOL Autos_ (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000517) . **Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty000514)
Re: [QUAD-L] serious health questions
I didn't drop offline, just been lurking.. my doc switched my BP med and 90% of fainting has stopped! tx DARS has new program where you have to be working or actively looking for work or they won't help convert van! after i've been waiting 4 yrs!!! if i work i lose my disability & benfits and don't make enough to cover medical needs..catch 22, god bless america! so i get to continue having someone drive me around till i finish my BA.. well i hope everyone else has great week! --- On Mon, 8/4/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> Subject: [QUAD-L] serious health questions To: quad-list@eskimo.com Cc: [EMAIL PROTECTED] Date: Monday, August 4, 2008, 7:30 AM Hiya Amye! Missed your postings while you were absent. Glad to read you back and hope the family is doing well. 10 years old now?? How time flys or flies Regarding your blood pressure... I wish that I had the answer, but I don't. Besides the binder and morning exercise before getting out of bed in the morning, I am stump'd. Perhaps the guys at the Miami Project and Dr Green or Young may be in a better position to advise you on the research, regarding the blood pressure syndrome of those with spinal cord injuries. I'm hoping for you. Best Wishes In a message dated 8/1/2008 9:08:45 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos.
[QUAD-L] serious health questions
Hiya Amye! Missed your postings while you were absent. Glad to read you back and hope the family is doing well. 10 years old now?? How time flys or flies Regarding your blood pressure... I wish that I had the answer, but I don't. Besides the binder and morning exercise before getting out of bed in the morning, I am stump'd. Perhaps the guys at the Miami Project and Dr Green or Young may be in a better position to advise you on the research, regarding the blood pressure syndrome of those with spinal cord injuries. I'm hoping for you. Best Wishes In a message dated 8/1/2008 9:08:45 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad **Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000517 )
Re: [QUAD-L] serious health questions
Very good point- low volume and electrolytes will definitely lower your BP. I tend to have low volume; due to what I believe is because of my poor paralyzed bowel. I drink at least one half gallon of water daily; which also flushes electrolytes out, so I periodically drink Gatorade Tiger which has more electrolytes than regular Gatorade. One matter of fact is; people who are thin tend to run a lower BP than heavier people. Orthostatic hypotension is what I am diagnosed with. Good luck Lil'! Tim - Original Message From: Merrill <[EMAIL PROTECTED]> To: quad-list@eskimo.com Sent: Saturday, August 2, 2008 8:21:26 PM Subject: FW: [QUAD-L] serious health questions - heat Lack of enough water is often over looked as lowering BP and major cause for UTIs. Need more in the summer so it is a good reason to push fluids. What bothers me is having low BP and feeling so tired at night. The moment my head hits the pillow I am awake all night. Next day you bet my BP is low. I do not take meds for prostate or bladder so raising my BP is not fighting these. The double espresso in the AM will raise blood pressure in moments. I use the supra pubic so my bladder and prostate can get as tight as they want. Merrill From:~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 5:26 PM To: Tod E. Santee; quad-list@eskimo.com; [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions - heat i've never had it like this before, this summer isn't as hot as last summer and i was literally riding in my chair around tyler last summer "Tod E. Santee" <[EMAIL PROTECTED]> wrote: Hi All, Is there a chance your recently lower-than-"youir"-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... "interesting" to say the least. Best of luck! --Tod Debbie Hamilton wrote: > I have low blood pressure too. I also take midodrine, they are 5 mg tabs I > usually take three per day. Another thing I was given to combat low blood > pressure was Sudafed I can take up to 30 mg four times a day. Ask your > doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much > better when my blood pressure is above a hundred systolic. When I need a > midodrine I know it's about 70 systolic or lower. Good luck. > > Debbie > C4 incomplete/April 2005 > > --- On Sat, 8/2/08, ~LittleQuad~ wrote: > > From: ~LittleQuad~ > Subject: Re: [QUAD-L] serious health questions > To: [EMAIL PROTECTED], quad-list@eskimo.com > Date: Saturday, August 2, 2008, 11:22 AM > > > haha, 84 lbs nowi take 10mg 3 times day. > > t crook wrote: > > > > > > Hey Lil'- > Long time no hear from. I have been going through the same thing (except the > UTI's, I did have a bad one a couple of months ago, it was only my second UTI > in almost 20 yrs) and am now on midodrine also. I am feeling better until the > midodrine wears off after 3 hours. My blood pressure has always been low; but > I have had alot more lows with near passing out with always feeling tired and > light-headed. My lab work came back good, and so did my adrenal gland test. I > am and always have been lean, but I am wondering if the atrophy I have had > has something to do with it.? > Kind of sounds like we are in the same boat, as I recall you are just a > lil'-thing... haha! > How much midodrine are you taking? > > Tim > > > > --- On Fri, 8/1/08, ~LittleQuad~ wrote: > > From: ~LittleQuad~ > Subject: [QUAD-L] serious health questions > To: "Quad-list post" > Date: Friday, August 1, 2008, 9:08 PM > > > i have really low bp, like 50/30s and started med for it but not helping, > plus i'm fainting at least 2 times a days.(i have fainted all my life, when > scared real bad or hurt but never daily unttil last few months) then i'm so > exhausted from that i don't want to do much. my son (10 yrs old) has been > gone while this problem has become so invading and i'm worried what he'll > think we he realizes it, he worries about me a lot anyway, never admit it > though. > my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck > done, all results were normal. so referral to cardiac doc and he ran ekg, > seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 > days. he doubled the midodrine* plus referred me to a > Electrophysiologist (the names are getting weirder). it is really scary cuz i > was the youngest p
FW: [QUAD-L] serious health questions - heat
Lack of enough water is often over looked as lowering BP and major cause for UTIs. Need more in the summer so it is a good reason to push fluids. What bothers me is having low BP and feeling so tired at night. The moment my head hits the pillow I am awake all night. Next day you bet my BP is low. I do not take meds for prostate or bladder so raising my BP is not fighting these. The double espresso in the AM will raise blood pressure in moments. I use the supra pubic so my bladder and prostate can get as tight as they want. Merrill _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 5:26 PM To: Tod E. Santee; quad-list@eskimo.com; [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions - heat i've never had it like this before, this summer isn't as hot as last summer and i was literally riding in my chair around tyler last summer "Tod E. Santee" <[EMAIL PROTECTED]> wrote: Hi All, Is there a chance your recently lower-than-"youir"-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... "interesting" to say the least. Best of luck! --Tod Debbie Hamilton wrote: > I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. > > Debbie > C4 incomplete/April 2005 > > --- On Sat, 8/2/08, ~LittleQuad~ wrote: > > From: ~LittleQuad~ > Subject: Re: [QUAD-L] serious health questions > To: [EMAIL PROTECTED], quad-list@eskimo.com > Date: Saturday, August 2, 2008, 11:22 AM > > > haha, 84 lbs nowi take 10mg 3 times day. > > t crook wrote: > > > > > > Hey Lil'- > Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? > Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! > How much midodrine are you taking? > > Tim > > > > --- On Fri, 8/1/08, ~LittleQuad~ wrote: > > From: ~LittleQuad~ > Subject: [QUAD-L] serious health questions > To: "Quad-list post" > Date: Friday, August 1, 2008, 9:08 PM > > > i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. > my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! > i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. > anyone else have similar probs? > thankslittlequad > >
Re: [QUAD-L] serious health questions - heat
i've never had it like this before, this summer isn't as hot as last summer and i was literally riding in my chair around tyler last summer "Tod E. Santee" <[EMAIL PROTECTED]> wrote: Hi All, Is there a chance your recently lower-than-"youir"-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... "interesting" to say the least. Best of luck! --Tod Debbie Hamilton wrote: > I have low blood pressure too. I also take midodrine, they are 5 mg tabs I > usually take three per day. Another thing I was given to combat low blood > pressure was Sudafed I can take up to 30 mg four times a day. Ask your > doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much > better when my blood pressure is above a hundred systolic. When I need a > midodrine I know it's about 70 systolic or lower. Good luck. > > Debbie > C4 incomplete/April 2005 > > --- On Sat, 8/2/08, ~LittleQuad~ wrote: > > From: ~LittleQuad~ > Subject: Re: [QUAD-L] serious health questions > To: [EMAIL PROTECTED], quad-list@eskimo.com > Date: Saturday, August 2, 2008, 11:22 AM > > > haha, 84 lbs nowi take 10mg 3 times day. > > t crook wrote: > > > > > > Hey Lil'- > Long time no hear from. I have been going through the same thing (except the > UTI's, I did have a bad one a couple of months ago, it was only my second UTI > in almost 20 yrs) and am now on midodrine also. I am feeling better until the > midodrine wears off after 3 hours. My blood pressure has always been low; but > I have had alot more lows with near passing out with always feeling tired and > light-headed. My lab work came back good, and so did my adrenal gland test. I > am and always have been lean, but I am wondering if the atrophy I have had > has something to do with it.? > Kind of sounds like we are in the same boat, as I recall you are just a > lil'-thing... haha! > How much midodrine are you taking? > > Tim > > > > --- On Fri, 8/1/08, ~LittleQuad~ wrote: > > From: ~LittleQuad~ > Subject: [QUAD-L] serious health questions > To: "Quad-list post" > Date: Friday, August 1, 2008, 9:08 PM > > > i have really low bp, like 50/30s and started med for it but not helping, > plus i'm fainting at least 2 times a days.(i have fainted all my life, when > scared real bad or hurt but never daily unttil last few months) then i'm so > exhausted from that i don't want to do much. my son (10 yrs old) has been > gone while this problem has become so invading and i'm worried what he'll > think we he realizes it, he worries about me a lot anyway, never admit it > though. > my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck > done, all results were normal. so referral to cardiac doc and he ran ekg, > seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 > days. he doubled the midodrine* plus referred me to a Electrophysiologist > (the names are getting weirder). it is really scary cuz i was the youngest > patient in 4 story building by 20 years i'm only 28! > i keep getting uti's, will cure one 2 weeks later its on the way back. > my urologist and rehab doc don't like each other or agree on what to do and i > don't know which to go with. the rehab doc wants to fight the uti's by > inserting some bacteria, he says iss new procedure, my uro says the rehab doc > is young dodo for nice terms. ugh so i'm going to go see uro again to see > what to do. > anyone else have similar probs? > thankslittlequad > >
RE: [QUAD-L] serious health questions
The tightest fitting TED hose might help the low bp. Check the stoma as the cause. Near everything in those pumps will lower bp so countering with a med might not have desirable affects where you are lowering. Fine line between raising bp and hyper tension. Merrill _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 10:24 AM To: Merrill Subject: RE: [QUAD-L] serious health questions with my stoma & pump binder not possible Merrill <[EMAIL PROTECTED]> wrote: My bp is on someday better than yours but not all days. I must wear an abdominal binder or I will pass out. On marginal days I drink a double espresso Merrill _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Friday, August 01, 2008 7:08 PM To: Quad-list post Subject: [QUAD-L] serious health questions i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
RE: [QUAD-L] serious health questions
All good advice. Also check your meds. Baclophin (spelling) and some other bladder pills lower BP as do anti spasmodic and pain meds. I would always pass out in the shower after removing the binder. Have someone hold a fist into the abdomen helps if you can not bend forwards or way back. Merrill -Original Message- From: Tod E. Santee [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 11:51 AM To: quad-list@eskimo.com; [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions Hi All, Is there a chance your recently lower-than-"youir"-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... "interesting" to say the least. Best of luck! --Tod Debbie Hamilton <[EMAIL PROTECTED]> wrote: > I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. > > Debbie > C4 incomplete/April 2005 > > --- On Sat, 8/2/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: > > From: ~LittleQuad~ <[EMAIL PROTECTED]> > Subject: Re: [QUAD-L] serious health questions > To: [EMAIL PROTECTED], quad-list@eskimo.com > Date: Saturday, August 2, 2008, 11:22 AM > > > haha, 84 lbs nowi take 10mg 3 times day. > > t crook <[EMAIL PROTECTED]> wrote: > > > > > > Hey Lil'- > Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? > Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! > How much midodrine are you taking? > > Tim > > > > --- On Fri, 8/1/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: > > From: ~LittleQuad~ <[EMAIL PROTECTED]> > Subject: [QUAD-L] serious health questions > To: "Quad-list post" > Date: Friday, August 1, 2008, 9:08 PM > > > i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. > my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! > i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. > anyone else have similar probs? > thankslittlequad > >
Re: [QUAD-L] serious health questions
When you go from sitting to standing your blood pressure drops 15 points. My kids would pass out at school & their teachers would call me all upset demanding I do something. Doctor said just change positions slowly. That seems to have stopped it for my kids.
Re: [QUAD-L] serious health questions
Hi All, Is there a chance your recently lower-than-"youir"-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... "interesting" to say the least. Best of luck! --Tod Debbie Hamilton <[EMAIL PROTECTED]> wrote: > I have low blood pressure too. I also take midodrine, they are 5 mg tabs I > usually take three per day. Another thing I was given to combat low blood > pressure was Sudafed I can take up to 30 mg four times a day. Ask your > doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much > better when my blood pressure is above a hundred systolic. When I need a > midodrine I know it's about 70 systolic or lower. Good luck. > > Debbie > C4 incomplete/April 2005 > > --- On Sat, 8/2/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: > > From: ~LittleQuad~ <[EMAIL PROTECTED]> > Subject: Re: [QUAD-L] serious health questions > To: [EMAIL PROTECTED], quad-list@eskimo.com > Date: Saturday, August 2, 2008, 11:22 AM > > > haha, 84 lbs nowi take 10mg 3 times day. > > t crook <[EMAIL PROTECTED]> wrote: > > > > > > Hey Lil'- > Long time no hear from. I have been going through the same thing (except the > UTI's, I did have a bad one a couple of months ago, it was only my second UTI > in almost 20 yrs) and am now on midodrine also. I am feeling better until the > midodrine wears off after 3 hours. My blood pressure has always been low; but > I have had alot more lows with near passing out with always feeling tired and > light-headed. My lab work came back good, and so did my adrenal gland test. I > am and always have been lean, but I am wondering if the atrophy I have had > has something to do with it.? > Kind of sounds like we are in the same boat, as I recall you are just a > lil'-thing... haha! > How much midodrine are you taking? > > Tim > > > > --- On Fri, 8/1/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: > > From: ~LittleQuad~ <[EMAIL PROTECTED]> > Subject: [QUAD-L] serious health questions > To: "Quad-list post" > Date: Friday, August 1, 2008, 9:08 PM > > > i have really low bp, like 50/30s and started med for it but not helping, > plus i'm fainting at least 2 times a days.(i have fainted all my life, when > scared real bad or hurt but never daily unttil last few months) then i'm so > exhausted from that i don't want to do much. my son (10 yrs old) has been > gone while this problem has become so invading and i'm worried what he'll > think we he realizes it, he worries about me a lot anyway, never admit it > though. > my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck > done, all results were normal. so referral to cardiac doc and he ran ekg, > seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 > days. he doubled the midodrine* plus referred me to a > Electrophysiologist (the names are getting weirder). it is really scary cuz i > was the youngest patient in 4 story building by 20 years i'm only 28! > i keep getting uti's, will cure one 2 weeks later its on the way back. > my urologist and rehab doc don't like each other or agree on what to do and i > don't know which to go with. the rehab doc wants to fight the uti's by > inserting some bacteria, he says iss new procedure, my uro says the rehab doc > is young dodo for nice terms. ugh so i'm going to go see uro again to see > what to do. > anyone else have similar probs? > thankslittlequad > >
Re: [QUAD-L] serious health questions
I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. Debbie C4 incomplete/April 2005 --- On Sat, 8/2/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: From: ~LittleQuad~ <[EMAIL PROTECTED]> Subject: Re: [QUAD-L] serious health questions To: [EMAIL PROTECTED], quad-list@eskimo.com Date: Saturday, August 2, 2008, 11:22 AM haha, 84 lbs nowi take 10mg 3 times day. t crook <[EMAIL PROTECTED]> wrote: Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: From: ~LittleQuad~ <[EMAIL PROTECTED]> Subject: [QUAD-L] serious health questions To: "Quad-list post" Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] serious health questions
haha, 84 lbs nowi take 10mg 3 times day. t crook <[EMAIL PROTECTED]> wrote:Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: From: ~LittleQuad~ <[EMAIL PROTECTED]> Subject: [QUAD-L] serious health questions To: "Quad-list post" Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] serious health questions
Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ <[EMAIL PROTECTED]> wrote: From: ~LittleQuad~ <[EMAIL PROTECTED]> Subject: [QUAD-L] serious health questions To: "Quad-list post" Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] serious health questions
Hi, little quad, I have had problems with uti's for a long time-when they get real bad or become septic and get into your blood, it can get pretty bad increasing-- pain, weakness, fatigue, dizziness and so on. As far as the passing out part---i'm not sure,, my bllod pressure is always low too---about 80/50 or so but not as low as yours-that is really low... because my doc's say a normal person with my low blood pressure would pass out. Perhaps some medication you take is making it worse??? anyway you will be in our prayers---hope it all works out soon. Dan H. ~LittleQuad~ <[EMAIL PROTECTED]> wrote: i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
[QUAD-L] serious health questions
i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
