Re: Fwd: [QUAD-L] Hey Don
This is me exactly. Lots of nights I am shaking, feels like shivering cold. But if I uncover I get better. When I am too hot or too cold, my arms feel exactly the same. I have to guess which one I am. I keep a room thermometer near my bed to help me decide. If I get really hot, I have to get up. I feel like a panic attack. I just don't know why if I get overheated during the day, I don't shiver cold. I think an apartment just for quads would be cool. With aides working their. Greg Same problem here. Always cold at first, then wake up smothering. Sometimes I can't tell if I am cold or too hot. Cover on is too hot, cover off is cold. Then it gets hard to breathe and I have to get up. It happened to me this morning and I still feel like manure...weak, headache, lifeless, groggy. God I despise quad life.
Fwd: [QUAD-L] Hey Don
Same problem here. Always cold at first, then wake up smothering. Sometimes I can't tell if I am cold or too hot. Cover on is too hot, cover off is cold. Then it gets hard to breathe and I have to get up. It happened to me this morning and I still feel like manure...weak, headache, lifeless, groggy. God I despise quad life. Larry Willis Retired and proud of it Begin forwarded message: Resent-From: quad-list@eskimo.com From: Derrick wheel...@centurylink.net Date: April 26, 2015 at 2:17:57 PM EDT To: quad-list@eskimo.com Subject: Re: [QUAD-L] Hey Don I have same issue cold when 1st in bed, then 2 hours later iI'm hot. I just went thru this last night. I used remote to turn on fan and able to move covers off me. I cooled down to fall asleep, then I wake up cold and sore throat from fan. No win situation. all while, I am suppose to wear sleep apnea mask. That's not happening. It is the small things that wear you down more than people think he just can't walk. Windows 10 is coming out with voice control so maybe there will be more voice control home automation coming soon. I hard others make pulling system with clothes pins to hold blanket. Lets hope, Derrick W in PA On 4/25/2015 4:51 PM, Joan Anglin wrote: I can’t move myself at all, unless I spasm which often sends me into an uncomfortable position. It takes a good 10 to 15 minutes a night to get me positioned so that I think I’ll be comfortable all night long. I sleep on a memory foam mattress with the head and a foot slightly elevated. Because I sleep on my back my hands and arms have always been a problem because they will get wedged against my legs during the night. And then they’d would push up my shoulders and in the morning I would be a very sore. It looks ridiculous, but we found a way to keep my shoulders relaxed. We just take the bottom of my nightshirt and fold it back over my arms and pin it securely with my hand side by side on my stomach. It has also lessened the spasms which I think were caused by my fingers dating into my legs. Amazing what we have to go through to just get a night’s sleep! I have my cell phone plugged in on the table which has my Sicare turn on so I can watch TV. The phone will wake up to a voice command and I can call somebody to come over if I absolutely need to. Thank goodness it doesn’t happen very often. The worst part is knowing I’m going to get too warm a couple of hours after going to bed and adjusting everything so that I am warm enough to go to sleep but not too warm so that I wake up hot and can’t do anything about it!! I really need to design a pulley system to raise and lower my blanket LOL. I can reach the water tube without moving so I don’t get too thirsty, but the alternating too hot and too cold is very frustrating. Anybody have any ideas? I’m open for suggestions. I guess I could blame my temperature changes on living in Reno, today the high is 46°with snow this morning, and Wednesday is suppose to be a 82°record! Maybe I’ve lived here too long? Have a great day everyone. Joan From: Don Smith [mailto:scamper2...@gmail.com] Sent: Saturday, April 25, 2015 11:42 AM To: greg Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Hey Don I'm able to move myself around some, I sleep on a low loss air mattress and I have a phone by my bed incase of any issues I can't deal with. We change my foley every two weeks which help cut down on problems. As with most of us, I have had to call pca or a friend in the middle of the night though. On Sat, Apr 25, 2015 at 9:02 AM, greg g...@eskimo.com wrote: I could not do it. I go most nights with no trouble, but now and then I start sweating really bad at night. I either need moved around a bit, or my cath is kinked somewhere. I would probably lay there all night worrying that I would start sweating any minute. Greg Good for you, Don. I would not have the onions to live by myself. I can imagine my night as one long panic attack. It is almost that way now. You are more man than I am my friend.
Fwd: [QUAD-L] Hey Don
Well, it is small comfort but a bit of relief to know we share the same symptoms. Doesn't make it any easier though. Greg, you nailed it exactly. Larry Willis Retired and proud of it Begin forwarded message: Resent-From: quad-list@eskimo.com From: greg g...@eskimo.com Date: April 26, 2015 at 7:14:36 PM EDT To: quad-list@eskimo.com Subject: Re: Fwd: [QUAD-L] Hey Don This is me exactly. Lots of nights I am shaking, feels like shivering cold. But if I uncover I get better. When I am too hot or too cold, my arms feel exactly the same. I have to guess which one I am. I keep a room thermometer near my bed to help me decide. If I get really hot, I have to get up. I feel like a panic attack. I just don't know why if I get overheated during the day, I don't shiver cold. I think an apartment just for quads would be cool. With aides working their. Greg Same problem here. Always cold at first, then wake up smothering. Sometimes I can't tell if I am cold or too hot. Cover on is too hot, cover off is cold. Then it gets hard to breathe and I have to get up. It happened to me this morning and I still feel like manure...weak, headache, lifeless, groggy. God I despise quad life.
Fwd: [QUAD-L] Hey Don
I use a ceiling fan too. Year round. But my wife sleeps beside me. Larry Willis Retired and proud of it Begin forwarded message: Resent-From: quad-list@eskimo.com From: shirley bell sbell...@cox.net Date: April 25, 2015 at 5:52:31 PM EDT To: Joan Anglin poaj...@sbcglobal.net Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Hey Don Joan, I NEED my ceiling fan when I get to hot in middle of night, saves me! You can get them with remotes so you can turn off and on when needed,.its so hard for us. I Best, Shirley Bell www.ShirleyBellDesigns.com - Original Message - From: Joan Anglin To: quad-list@eskimo.com Sent: Saturday, April 25, 2015 4:51 PM Subject: RE: [QUAD-L] Hey Don I can’t move myself at all, unless I spasm which often sends me into an uncomfortable position. It takes a good 10 to 15 minutes a night to get me positioned so that I think I’ll be comfortable all night long. I sleep on a memory foam mattress with the head and a foot slightly elevated. Because I sleep on my back my hands and arms have always been a problem because they will get wedged against my legs during the night. And then they’d would push up my shoulders and in the morning I would be a very sore. It looks ridiculous, but we found a way to keep my shoulders relaxed. We just take the bottom of my nightshirt and fold it back over my arms and pin it securely with my hand side by side on my stomach. It has also lessened the spasms which I think were caused by my fingers dating into my legs. Amazing what we have to go through to just get a night’s sleep! I have my cell phone plugged in on the table which has my Sicare turn on so I can watch TV. The phone will wake up to a voice command and I can call somebody to come over if I absolutely need to. Thank goodness it doesn’t happen very often. The worst part is knowing I’m going to get too warm a couple of hours after going to bed and adjusting everything so that I am warm enough to go to sleep but not too warm so that I wake up hot and can’t do anything about it!! I really need to design a pulley system to raise and lower my blanket LOL. I can reach the water tube without moving so I don’t get too thirsty, but the alternating too hot and too cold is very frustrating. Anybody have any ideas? I’m open for suggestions. I guess I could blame my temperature changes on living in Reno, today the high is 46°with snow this morning, and Wednesday is suppose to be a 82°record! Maybe I’ve lived here too long? Have a great day everyone. Joan From: Don Smith [mailto:scamper2...@gmail.com] Sent: Saturday, April 25, 2015 11:42 AM To: greg Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] Hey Don I'm able to move myself around some, I sleep on a low loss air mattress and I have a phone by my bed incase of any issues I can't deal with. We change my foley every two weeks which help cut down on problems. As with most of us, I have had to call pca or a friend in the middle of the night though. On Sat, Apr 25, 2015 at 9:02 AM, greg g...@eskimo.com wrote: I could not do it. I go most nights with no trouble, but now and then I start sweating really bad at night. I either need moved around a bit, or my cath is kinked somewhere. I would probably lay there all night worrying that I would start sweating any minute. Greg Good for you, Don. I would not have the onions to live by myself. I can imagine my night as one long panic attack. It is almost that way now. You are more man than I am my friend.
