Re: Fwd: [QUAD-L] Infinite things I hate about being a Quad

2013-07-15 Thread Don Price


Playing the what if game is a surefire way to drive yourself crazy. If I 
hadn't had my spinal cord injury... I might've found my dream job, my dream 
girl and my dream house. Or I might've been killed in boating accident two days 
later. 

I've found that peoples' experiences with SCI vary greatly depending on many 
factors (personality, family support, faith, pain, life philosophy, etc.) It's 
kind of like asking people about their high school experience: for some it was 
torture, for others the best days of their lives, and for most it was somewhere 
in between.

Certainly none of us chose this situation. I'm thankful for every day I'm here, 
but I also acknowledge that I don't suffer from chronic pain.

I'm glad we're here to help support each other.

Don.

Fwd: [QUAD-L] Infinite things I hate about being a Quad

2013-07-14 Thread lwillis821
I said in a previous post that Jim Lubin is a hell of a man. Nothing has 
changed that view. I know that if's and but's are a waste of time, but, Jim, 
what would you have accomplished without this senseless, agonizing burden? No, 
they would not be the same accomplishments, but quite likely grander and 
greater things. Given your intelligence, drive, and courage, the sky is the 
limit. In fact, all of us on this list could say the same to varying degrees. 
Anyway, we must play the hand we are dealt. To complete the quote:  If if's and 
but's were candy and nuts, we'd all have a Merry Christmas!

Sent from my iPad

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: jume9...@comcast.net
 Date: July 14, 2013, 7:17:46 PM EDT
 To: quad-list quad-list@eskimo.com
 Subject: Re: [QUAD-L] Infinite things I hate about being a Quad
 
 Jim, 
 You should be very proud with all that you have accomplished. We are grateful 
 for you
 
 Meredith.
 
 From: Jim Lubin jlu...@eskimo.com
 To: lwillis...@yahoo.com
 Cc: quad-list@eskimo.com
 Sent: Sunday, July 14, 2013 2:37:55 PM
 Subject: Re: [QUAD-L] Infinite things I hate about being a Quad
 
 While I do agree with some of the negatives listed, I have done quite a few 
 things in my 24 years of being a quad that I would not have otherwise done.
 
 started support group for quads
 started support group for vent users
 started support group for people with transverse myelitis
 made a disability resources web site 
 made a transverse myelitis web site, with information I found people to 
 translate to many languages, which led to international support groups that 
 didn't exist before
 personally raised more that $30,000 for charities
 Ya, lot of down sides to (besides what has already been listed)
 being worried every time the power goes out that the ventilator might stop 
 working
 worried when the vent tube comes off that someone might not come fast enough 
 to fix it
 never being able to be left completely alone
 
 On Sat, Jul 13, 2013 at 6:24 PM, lwillis...@yahoo.com wrote:
 The list is indeed endless. There is not one damn positive thing about being 
 a quad. We speak out our hats about new doors opening, spiritual growth, 
 inspiration, and all that rot, but I have done nothing in my 43 years of 
 quadom that I could not have done better on two feet. A life of complete 
 dependence, constant pain, depression, dysfunctional body functions, and 
 endless physical breakdowns has nothing to commend it. At present I have 3 
 pressure sores, cellulitis in my left leg, sinus infection, stomach and 
 bladder pain, chronic constipation, and myriad other fun ailments. The 
 positive I always hear? Well, it could be worse.  Sure, and hell could be 
 a little hotter.  Now that I have cheered you all up, good night and God 
 bless, quad buds. Sleep tight. I won't; the arthritis in my neck and 
 shoulders is killing me.
 
 Begin forwarded message:
 
 Resent-From: quad-list@eskimo.com
 From: shirley bell sbell...@cox.net
 Date: July 12, 2013, 12:43:31 PM EDT
 To: donald scott rollingl...@yahoo.com
 Cc: quad-list@eskimo.com
 Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
 
 The list is endless! I agree with everyones complaints. But I try to focus on
 Best,
 Shirley Bell
  
 www.ShirleyBellDesigns.com
 - Original Message -
 From: donald scott
 To: quad-list@eskimo.com
 Sent: Thursday, July 11, 2013 6:50 PM
 Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
 
 My top 5 would be.
  
 1. Worrying about current and future cuts in caregiver hours and 
 Medicare/MediCal.
  
 2. Not being able to make enough money to be comfortable.
  
 3. Having to depending on others for life's routine crap.
  
 4. Knowing how to do things like mechanical, electrical, construction, 
 engineering, etc. and not being physically able to do it alone.
  
 5. No more normal SEX...Along with other fun activities like off roading, 
 camping, hiking, hunting, rollercoasters, etc..
 From: Gmail bobbiehumphre...@gmail.com
 To: quad-list@eskimo.com 
 Sent: Thursday, July 11, 2013 10:58 AM
 Subject: [QUAD-L] Top 5 things I hate about being a Quad
 
 
 
 
 These are my top 5 things I hate about being a Quad.
 
 
 1. Having someone else prepare food for YOU their way.
 
 2. Getting up and in bed when your aid can make it, not when you wish to.
 
 3. People telling me ... how lucky you are not to have to work.
 
 4. Limited selection of clothing.
 
 5. Aging and Quadrum.
 
 
 Bobbie
 
 
 Sent from my iPad
 


Fwd: [QUAD-L] Infinite things I hate about being a Quad

2013-07-13 Thread lwillis821
The list is indeed endless. There is not one damn positive thing about being a 
quad. We speak out our hats about new doors opening, spiritual growth, 
inspiration, and all that rot, but I have done nothing in my 43 years of quadom 
that I could not have done better on two feet. A life of complete dependence, 
constant pain, depression, dysfunctional body functions, and endless physical 
breakdowns has nothing to commend it. At present I have 3 pressure sores, 
cellulitis in my left leg, sinus infection, stomach and bladder pain, chronic 
constipation, and myriad other fun ailments. The positive I always hear? Well, 
it could be worse.  Sure, and hell could be a little hotter.  Now that I have 
cheered you all up, good night and God bless, quad buds. Sleep tight. I won't; 
the arthritis in my neck and shoulders is killing me.

Begin forwarded message:

 Resent-From: quad-list@eskimo.com
 From: shirley bell sbell...@cox.net
 Date: July 12, 2013, 12:43:31 PM EDT
 To: donald scott rollingl...@yahoo.com
 Cc: quad-list@eskimo.com
 Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
 
 The list is endless! I agree with everyones complaints. But I try to focus on
 Best,
 Shirley Bell
  
 www.ShirleyBellDesigns.com
 - Original Message -
 From: donald scott
 To: quad-list@eskimo.com
 Sent: Thursday, July 11, 2013 6:50 PM
 Subject: Re: [QUAD-L] Top 5 things I hate about being a Quad
 
 My top 5 would be.
  
 1. Worrying about current and future cuts in caregiver hours and 
 Medicare/MediCal.
  
 2. Not being able to make enough money to be comfortable.
  
 3. Having to depending on others for life's routine crap.
  
 4. Knowing how to do things like mechanical, electrical, construction, 
 engineering, etc. and not being physically able to do it alone.
  
 5. No more normal SEX...Along with other fun activities like off roading, 
 camping, hiking, hunting, rollercoasters, etc..
 From: Gmail bobbiehumphre...@gmail.com
 To: quad-list@eskimo.com 
 Sent: Thursday, July 11, 2013 10:58 AM
 Subject: [QUAD-L] Top 5 things I hate about being a Quad
 
 
 
 
 These are my top 5 things I hate about being a Quad.
 
 
 1. Having someone else prepare food for YOU their way.
 
 2. Getting up and in bed when your aid can make it, not when you wish to.
 
 3. People telling me ... how lucky you are not to have to work.
 
 4. Limited selection of clothing.
 
 5. Aging and Quadrum.
 
 
 Bobbie
 
 
 Sent from my iPad