Re: Fwd: Re: [QUAD-L] Back, pain, back!!!

2017-01-20 Thread Aaron Mann
More info: "Approximately 3-4% of persons with traumatic SCI develop
clinically symptomatic PTS. A larger percentage of persons have clinically
silent syrinx cavities diagnosed by imaging techniques."

http://emedicine.medscape.com/article/322348-overview
​


Re: Fwd: Re: [QUAD-L] Back, pain, back!!!

2017-01-20 Thread RONALD L PRACHT
Everyone that has a spinal injury has a cyst of some sort at the injury site. 
When that cyst fills with fluid and causes symptoms is when its called post 
traumatic syringomeyelia. Some individuals with syrinxes go their whole injury 
without any sort of medical intervention. An mri will reveal the extent of 
growth of a syrinx and of its existence. The only time surgery is a must is 
when noticeable function is lost, most of the time when this happens the syrinx 
is extending upwards. Pain is common and usually gets worse as time goes by. 
Some paras get relief from draining the syrinx with a needle and sometimes a 
shunt is put in. This is frowned upon by nueros when advising quad patients w/ 
syrinxes because if you lose any function from messing with it from surgery you 
will lose arm function. If you are in a position where surgery is a must 
contact scott falci and charlotte starnes in Englewood colorodo hospital for 
advice and have them take a look at your mri free of charge. Don't do anything 
quick until you understand what you are dealing with.
Ron 

On Friday, January 20, 2017 11:25 AM, Danny Hearn  
wrote:
 

 Larry, it is determined by an MRI...but these days they don't even want to 
operate unless a person is losing movement...the operation to try to help is 
very expensive and dangerous and don't always even help and in some cases can 
make a person worse. The doctors in St. Louis, Mo. told me they won't dare 
touch mine. Dan H** 

On Friday, January 20, 2017 11:08 AM, lwillis82153  
wrote:
 

 How does one know if he has a syrinx?


Sent via my Samsung Galaxy, an AT 4G LTE smartphone
 Original message From: greg  Date: 1/19/17 
4:42 PM (GMT-06:00) To: quad-list  Cc: 
quad-list@eskimo.com Subject: Re: [QUAD-L] Back, pain, back!!! 
I keep a small pillow on my lap at all times. I use it for many things.I put my 
phone or tablet on it when using them. I put a lot of things I eat on it. Like 
I just had a slice of pizza. I set it on a paper towel and set it on the 
pillow. I can then just lift the pillow up to eat it. When I try to hold the 
pizza, I drop it too often.
Greg > I, also, stack towels in front of me to lay my arm to relieve neck> pain 
pain from my syrinx.> Bobbie>> "You must fail in order to succeed">>> On Jan 
18, 2017, at 11:00 PM, Larry Willis>>  wrote: Ok 
guys, things are getting serious. My neck and right shoulder>> hurt so bad I 
want to cry. It seems to start in the back of my>> neck and radiate into my 
right shoulder joint. The only thing>> that helps is to stack some thick towels 
in front of me and lay>> my arm on top of them. Does anyone have a better 
solution? I've>> tried salves and lotions, Percocet and ibuprofen. Nothing.>> 
Btw,one year ago this week, my wife MELISSA, had her harrowing>> experience 
with a pacemaker. Prayers for her and a few miracles>> for all of us! Night 
peeps. Larry Willis>> Retired and proud of it

   

   

Re: Fwd: Re: [QUAD-L] Back, pain, back!!!

2017-01-20 Thread Danny Hearn
Larry, it is determined by an MRI...but these days they don't even want to 
operate unless a person is losing movement...the operation to try to help is 
very expensive and dangerous and don't always even help and in some cases can 
make a person worse. The doctors in St. Louis, Mo. told me they won't dare 
touch mine. Dan H** 

On Friday, January 20, 2017 11:08 AM, lwillis82153  
wrote:
 

 How does one know if he has a syrinx?


Sent via my Samsung Galaxy, an AT 4G LTE smartphone
 Original message From: greg  Date: 1/19/17 
4:42 PM (GMT-06:00) To: quad-list  Cc: 
quad-list@eskimo.com Subject: Re: [QUAD-L] Back, pain, back!!! 
I keep a small pillow on my lap at all times. I use it for many things.I put my 
phone or tablet on it when using them. I put a lot of things I eat on it. Like 
I just had a slice of pizza. I set it on a paper towel and set it on the 
pillow. I can then just lift the pillow up to eat it. When I try to hold the 
pizza, I drop it too often.
Greg > I, also, stack towels in front of me to lay my arm to relieve neck> pain 
pain from my syrinx.> Bobbie>> "You must fail in order to succeed">>> On Jan 
18, 2017, at 11:00 PM, Larry Willis>>  wrote: Ok 
guys, things are getting serious. My neck and right shoulder>> hurt so bad I 
want to cry. It seems to start in the back of my>> neck and radiate into my 
right shoulder joint. The only thing>> that helps is to stack some thick towels 
in front of me and lay>> my arm on top of them. Does anyone have a better 
solution? I've>> tried salves and lotions, Percocet and ibuprofen. Nothing.>> 
Btw,one year ago this week, my wife MELISSA, had her harrowing>> experience 
with a pacemaker. Prayers for her and a few miracles>> for all of us! Night 
peeps. Larry Willis>> Retired and proud of it

   

Fwd: Re: [QUAD-L] Back, pain, back!!!

2017-01-20 Thread lwillis82153
How does one know if he has a syrinx?


Sent via my Samsung Galaxy, an AT 4G LTE smartphone
 Original message From: greg  Date: 1/19/17  
4:42 PM  (GMT-06:00) To: quad-list  Cc: 
quad-list@eskimo.com Subject: Re: [QUAD-L] Back, pain, back!!! 
I keep a small pillow on my lap at all times. I use it for many things.
I put my phone or tablet on it when using them. I put a lot of things I eat on 
it. Like I just had a slice of pizza. I set it on a paper towel and set it on 
the pillow. I can then just lift the pillow up to eat it. When I try to hold 
the pizza, I drop it too often.
Greg
 
> I, also, stack towels in front of me to lay my arm to relieve neck
> pain pain from my syrinx.
> Bobbie
>
> "You must fail in order to succeed"
>
>> On Jan 18, 2017, at 11:00 PM, Larry Willis
>>  wrote:
>>
>> Ok guys, things are getting serious. My neck and right shoulder
>> hurt so bad I want to cry. It seems to start in the back of my
>> neck and radiate into my right shoulder joint. The only thing
>> that helps is to stack some thick towels in front of me and lay
>> my arm on top of them. Does anyone have a better solution? I've
>> tried salves and lotions, Percocet and ibuprofen. Nothing.
>> Btw,one year ago this week, my wife MELISSA, had her harrowing
>> experience with a pacemaker. Prayers for her and a few miracles
>> for all of us! Night peeps.
>>
>> Larry Willis
>> Retired and proud of it