Re: [TMIC] Flying
I just found this and realized I never responded. I just went to Hilo to visit my daughter, and previously went to the mainland to visit my sister. (I had some free mileage :) The flying itself didn't bother me at all. What was hard, though, was just being away from my own bed and the energy it took to pack everything I needed. Sally
Re: [TMIC] baclofen 30 MG A DAY
I was taking baclofen 20mg twie a day. I recently went down to 10mg twice a day. Now I notice my calf are very tight when I wake up in the morning. But so far the spasms have not increased. Lynn P in RI - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Saturday, August 05, 2006 5:29 PM Subject: Re: [TMIC] baclofen 30 MG A DAY I did not have real bad spasms but wastaking Valium every time I got spasms and it worked.My new neurologist prescribed Dantrolene for stiffness. Firstone 25 mg. per day, now I am up to three per day. It hasn't helped the stiffness but I have only had spasms a couple of times in the almost month I have been on Dantrolene. I hope you find something that helps. Gary in Michigan - Original Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Friday, August 04, 2006 4:07 PM Subject: [TMIC] baclofen 30 MG A DAY HELP NEED SOMETHING FOR SPAZMS.this makes them WORSE what are you guys taking ?? THANKS SOO MUCH
[TMIC] Johns Hopkins
I want to thank you all so much for all the great information and sharing that is done on this site. I do not post very often because I'm don't feel very qualified. But I'm starting to feel a part of this awesome group. I went to Johns Hopkins and saw Dr. Carlos Pardo. He was fantastic. There is an on going debate as to whether I have MS or TM. He gave me a thorough exam, looked thru all my X-rays, compared the ones from 2/07/02 and told me that at this point in time he would diagnosis TM. I am on Lyrica 75mg. 3 x a day. I just started that in May. But at the same time I fell and have stress fracture and have been in a wheelchair for 7 weeks. So tho my legs feel very different from when I was on 2400mg of Neurontin. I don't know if it's the Lyrica or the fact that I have not been allowed to put any weight whatsoever on my right leg. For me unless I can see my legs I have no idea where they are or what they're doing. I use a walker to get around. I also started Lexapro for depression after the fall. I guess it's working but there have been so many dark days. But I have a strong faith and believe with all my heart that I am never alone.. my family, my friends and my God will keep me strong. So I have shared my latest and I hope in some way it might help someone on this list. Trudy In hot, hot, hot Virginia!!
Re: [TMIC] Flying
Sally, That's great you were able to take the trip and it was a pretty good--I know what you mean about being away from your own "domain" and schedule. That was also good that the flying was o.k. Gary in Michigan - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: TMIC-LIST@eskimo.com Sent: Sunday, August 06, 2006 3:18 AM Subject: Re: [TMIC] Flying I just found this and realized I never responded. I just went to Hilo to visit my daughter, and previously went to the mainland to visit my sister. (I had some free mileage :) The flying itself didn't bother me at all. What was hard, though, was just being away from my own bed and the energy it took to pack everything I needed. Sally
[TMIC] Fw: Latest re Dane White.
Hi Everybody, I am copying the latest information on Errol's grandson. Poor little guy needs a lot of help. Saturday, yesterday saw Mavis and myself drive down to see Dane in hospital. Dane is looking reasonably good, having regained his birth weight, he is allowed to breast feed each day at least once but tires after about seven minutes. He thenhas a long sleep. He is still hooked up to monitors, infusers and otherebits and pieces, although his IDC has been removed last week. During aantibiotic via the mouth he responded well and exercised his lungs well whenhaving his lines flushed. The specialists met again with Shaun and Liv Thursday last week and they wish to allow Dane to get a little stronger before his heart operation. It will be quite a procedure. He is now three weeks old, (22 days today, Sunday) and has only been home two days. Thanks again for your prayers and kindwishes. It is all helping our little bloke.More later when we learn more.Love and Kind Regards from Errol Mavis and family, South East Queensland,Australia
[TMIC] Fw: ART OF SPIN
- Original Message - From: Dex Packard To: Dex Packard Sent: Thursday, August 03, 2006 9:25 AM Subject: Fw: ART OF SPIN - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Thursday, August 03, 2006 8:32 AM Subject: ART OF SPIN **ART OF SPIN **Jane, a professional genealogical researcher,discovered that Hillary Clinton's great-great uncle, Remus Rodham, a fellowlacking in character, was hanged for horse stealing and trainrobbery in Montana in 1889. The only known photograph of Remus shows himstanding on the gallows. On the back of the picture is this inscription:"Remus Rodham; horse thief, sent to Montana Territorial Prison 1885,escaped 1887, robbed the Montana Flyer six times. Caught by Pinkertondetectives, convicted and hanged in 1889." Jane emailed Hillary Clinton @NY. Gov for comments.Hillary's staff of professional image adjusters cropped Remus'spicture, scanned it, enlarged the image, and edited it with imageprocessing software so that all that's seen is a head shot. The accompanying biographical sketch is as follows: "Remus Rodham was a famous cowboy in the MontanaTerritory. His business empire grew to include acquisition ofvaluable equestrian assets and intimate dealings with the Montanarailroad. Beginning in 1883, he devoted several years of his life toservice at a government facility, finally taking leave to resume hisdealings with the railroad. In 1887, he was a key player in a vitalinvestigation run by the renowned Pinkerton Detective Agency. In 1889,Remus passed away during an important civic function held in his honorwhen the platform upon which he was standing collapsed."
[TMIC] Lyrica
There have been extensive discussions about Lyrica on this list and I didn't pay much attention because it didn't concern me personally. My neuro has now started me on it and I have a couple of questions about dosage and side-effects. If some of you who are on Lyrica could write me directly, we won't fill everybody's mailbox. Thanks. Diane in Canada
Re: [TMIC] ACCEPTANCE/MAYBE EVEN GIVING UP
As I read your letter, it sounded like one I could have written word for word. I am going nuts not knowing what is wrong with me. My TM started in 1975 with terribly painful spasms in the large muscles in my thigh and my bladder was beginning to 'not work'. I walked, very weakly, into the hospital on a Saturday night and when they finally cathed me the next day, I filled up two bags. Dangerous!! I believe it was on that Sunday that a neurosurgeon came to do the spinal tap. I remember by then my legs were becoming paralyzed and it was difficult to roll up into a ball. The NS diagnosed it as MS but I never saw him again and my neurologist who followed me for the next five months always said it was TM and not MS. I saw the neurologist a couple of times after I got out of the hospital. I think the last time was after the birth of my son in 1979. Shortly after that we moved to NC and I am sure he retired. I was fine for 30 years until several years ago. I had a job as a medical transcriptionist and sat at a computer 10 hours a day. I started falling and couldn't walk up the one step it took to get into my apt. Finally one of those falls resulted in a spiral fracture to my right leg and the falls and strains and sprains continued. Lots of reasons to stay off of my feet and stay in bed. Somewhere along the way I remember having an open MRI of my spinal cord which was clear but I continued to worsen. I had seen a neuro here in Charlotte before the falls, etc because of some weird pain, etc and by the time April of 2005 came and I couldn't walk, the neuro wouldn't admit me because I hadn't seen him in two years or so. Finally, my husband's MD agreed to admit me and while in the hospital, some neuro was sent in on consult but he just said I wouldn't fit in his MRI or CT so come back when I had lost a bunch of weight. He basically blew me off. With the help of a very strong 'industrial' walker I was able to take 7 steps in the hospital which qualified me to go to rehab. After about 3 weeks in rehab I was able to take maybe 30 steps but then I come home and only get a chance to walk twice a week with PT at home and I lose everything quickly. After a short trip to Myrtle Beach with my husband going to a conference I came home to a high temp, throwing up, a UTI, I guess, etc, I was back in the hospital. This was less than a month after getting out of rehab. Come to find out I had blood clots and my blood sugar (I am not a diabetic) was way high. I was a sick puppy. This time I couldn't take any steps and rehab wouldn't take me back so I got shipped off to anursing home about 1 1/2 hours away. There were a bunch of young kids running the rehab there and their hot topic every day was where they were going for lunch. When I left there in August, I could barely take 10 steps. Again, I came home and lost all of my strength. My feet have not touched the floor now since Sept of 2005. I am stuck in bed, stuck in my room (wheelchair won't fit thru the door) and stuck in the house. I called some neuros but the wide wheelchair prevented me from getting an appointment with any of them. I have had two suicide attempts recently but only one admission. They don't have staffing on the psych ward for a patient needing so much medical attention. I do have a couple of things I am cautiously optimistic about. Supposedly a motorized wheelchair has been approved and ordered and would be able to ride a special bus to appts and a transfer system that will help me slide from one place to the other. My doctor doesn't know what to do with me. I can't really go to him - he is a bariatric specialist - yet my old wheelchair didn't fit through his door and my ins co won't pay the 800.00 round trip fee to see him anymore. Thank goodness he finally RX'd Flexeril after months and months of pain pills that didn't help. I was in constant pain even sitting on the side of the bed but the Flexeril seems to have kicked it. Unfortunately, he will only give me a minimal amount as I am a 'suicide risk.' I also seem to be still getting Hydrocodone, by the Grace of God, and Ambien and Clonazepam which my psych started me on about 5 years ago. I can't go a day without them. So that is my story, I don't know where I am,I don't know where I am going but I know I am tired of looking at these four walls and this bed. I think it has been probably 6 weeks since I have been out of this bed even tho I have my own lift. Six weeks ago was the last suicide attempt. Damn that charcoal was nasty!! Hildred in Charlotte, NC It might be hot outside, but I can't go outside to tell you! (One positive thing!)
