RE: [TMIC] Rectal problems

[Tracey L. Black]

Naomi:
You couldn't have said it better. I have 3 wonderful children, my middle child, 
Ashlee, is the one that was hit with TM. Her older brother is graduating from 
high school today and her little sister is finishing up her last day of 4th 
grade today. Ashlee is done with 7th grade today. It wasn't that long ago that 
I heard my two daughters talking and it took all I had to not cry at what they 
were saying to each other (I have a baby monitor in Ashlee's room so that if 
she needs me during the night, she can call for me.) They were in Ashlee's room 
and I was in mine. My little girl, Kenli, was telling Ash how much she missed 
Ashlee taking care of her and running around in the yard with her. She was 
explaining to Ashlee that this hasn't only effected Ashlee, it has affected 
everyone in our family. They were being very open with each other and it was at 
that moment that I realized that I had raised two very good, grateful, 
affectionate, caring, but also independent daughters. It couldn't have been a 
prouder moment for me. Like I said before, my son is graduating from high 
school today. Instead of going out running around every night with his friends 
and running around after graduation tonight, he is coming home (on his own free 
will) to celebrate with the rest of us and our neighbors. He would much rather 
be at home with us and hanging out with our neighbor friends than be out 
running the streets. Have a great day!
 
Tracey L. Black
Certified Insurance Service Representative
Hockley  O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
 

Thank you for providing information to us. Please beware that no coverage is 
bound and no change to your insurance program is confirmed until verified by a 
licensed agent during regular business hours. If you do not hear from us within 
1 business day, please re-contact us in case your information has not been 
retained.

 



From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Thursday, June 07, 2007 8:29 PM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] Rectal problems


Jude,
 
I wasn't sure if you were directing your questions to Natalie or me, but I can 
add my two cents.
 
The finger thing that you speak of is the digital stimulation.  It is done by 
inserting one or two fingers in the rectum, to stimulate the anus which causes 
the bowels to move.  As I said before, this was something that my husband had 
to do for me in the early stages of TM.
 
To assume, that I feel worse than you, because I am a quad is very a sumptuous 
on your part.  Apparently that isn't true, because I don't feel like ending it 
all.
 
To be fair to you, I understand that feeling, because I've been through the 
'why me and what did I do to deserve this and this is the end of life as I 
know it.  Well, that was the end of life as I knew it.  Now I have a brand-new 
life, in which I have to do things differently than the last life.
 
While I was struggling to live in the early days of TM, I ask the good Lord to 
spare my life, to let me live it to see one more day.  He saw fit to answer my 
prayers.  When I was conscious enough to realize that I could move nothing but 
my head, I felt like I would have been better off not seeing another day.  I 
was deeply depressed.  
 
My family was very supportive.  My husband was by my side, day and night for 
two straight months.  My daughter and son was begging me to hang on.  My mother 
was there for me to cry on her shoulder.  I felt if I gave up on life, I would 
have let all their prayers and care be in vain.  That would be so selfish of me.
 
I worked very hard to put the life that the Lord granted me, to good use.  I 
worked hard in rehabilitation to gain some strength and movement.  Just the 
tiniest of task completed was cause for celebration.  Besides, I had my 49th 
birthday party in the hospital.  In attendance were a host of friends, family, 
nurses, doctors, therapists and other patients who I had met along the way.  I 
was only 48 years old!  I still have a life to live.  I still have something to 
give back to this world.  I thank the Lord for sparing me my mind.  I can still 
think on my own!  I could still talk (once my throat healed from the 
ventilator).  Oh yes!  I was still alive and have something to offer.
 
I think now about how much I would have missed if I had not lived.  My 
daughter, Danielle and her husband Damon, has a two-year-old, Kayla, who light 
up the room as soon as she hit the door.  She likes playing choo-choo train, 
while standing on my foot rest of my wheelchair, and us riding around the 
island in the kitchen.  She loves playing elevator, while standing on my foot 
rest while I tilt the cheer up and down.  She loves playing in my hospital bed 
and pushing the buttons to make it go up and down.  She thinks coming to Mam 
Ma's house is like being in an amusement park.  I think about how my daughter 
would have felt when 

[TMIC] ot

[ashfordrichard]

Good morning tmiclist. Heres wishing everyone good health. Hoping that June  
weather makes everyone aware of how hot weather takes its toll on us. Be 
careful those that have to work in it. Rick

RE: [TMIC] ot

[Tracey L. Black]

I have been told that if anyone is on Ditropan XL, they should be very
careful in hot weather so that they don't dehydrate. Has anyone else
heard that? 


Tracey L. Black
Certified Insurance Service Representative
Hockley  O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
 

Thank you for providing information to us. Please beware that no
coverage is bound and no change to your insurance program is confirmed
until verified by a licensed agent during regular business hours. If you
do not hear from us within 1 business day, please re-contact us in case
your information has not been retained.


-Original Message-
From: Robert Pall [mailto:[EMAIL PROTECTED] 
Sent: Friday, June 08, 2007 11:29 AM
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: RE: [TMIC] ot

Rick,
Interesting that you stated that hot weather is bad for us
TM'rs. I personally have not been able to pinpoint the weather as being
something that effects me...the only possible exception is that very
humid weather can make me feel worse. I would be interested if the group
commented on the effect that weather has had on themin the meantime
I hope everyone has a great summer!

Rob in Sunny New Jersey 

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]

Sent: Friday, June 08, 2007 10:24 AM
To: tmic-list@eskimo.com
Subject: [TMIC] ot

Good morning tmiclist. Heres wishing everyone good health. Hoping that
June  weather makes everyone aware of how hot weather takes its toll on
us. Be careful those that have to work in it. Rick

Re: [TMIC] ot

[Kevin Wolfthal]

Extremes of heat OR cold affect me badly.

Heat makes my fatigue worse, and generally feel weak.

Cold causes my pain to be worse.

Kevin






[EMAIL PROTECTED] wrote:

Robert Pall has asked the list to comment on the effects of hot weather on us 
with TM. I get exausted very fast when I get out in the hot weather. Now, part 
of this may or may not be due to medications. But I do take extra caution in 
hot weather. So should you. Rick
  

From: Robert Pall [EMAIL PROTECTED]
Date: 2007/06/08 Fri AM 11:29:29 EDT
To: [EMAIL PROTECTED], 
	tmic-list@eskimo.com

Subject: RE: [TMIC] ot

Rick,
Interesting that you stated that hot weather is bad for us
TM'rs. I personally have not been able to pinpoint the weather as being
something that effects me...the only possible exception is that very
humid weather can make me feel worse. I would be interested if the group
commented on the effect that weather has had on themin the meantime
I hope everyone has a great summer!

Rob in Sunny New Jersey 


-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]

Sent: Friday, June 08, 2007 10:24 AM
To: tmic-list@eskimo.com
Subject: [TMIC] ot

Good morning tmiclist. Heres wishing everyone good health. Hoping that
June  weather makes everyone aware of how hot weather takes its toll on
us. Be careful those that have to work in it. Rick






  

Re: [TMIC] ot

[Heather Pieter]

I'm currently in a 6 month study on how weather affects people with 
Neuropathic Pain.  Being run by a Neurologist doing research at the hospital 
I was in.


Weather does affect me and from what I have gathered over the last few years 
also affects a lot of us with TM.


Heather in Calgary

- Original Message - 
From: Robert Pall [EMAIL PROTECTED]

To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Friday, June 08, 2007 8:29 AM
Subject: RE: [TMIC] ot


Rick,
Interesting that you stated that hot weather is bad for us
TM'rs. I personally have not been able to pinpoint the weather as being
something that effects me...the only possible exception is that very
humid weather can make me feel worse. I would be interested if the group
commented on the effect that weather has had on themin the meantime
I hope everyone has a great summer!

Rob in Sunny New Jersey

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]

Sent: Friday, June 08, 2007 10:24 AM
To: tmic-list@eskimo.com
Subject: [TMIC] ot

Good morning tmiclist. Heres wishing everyone good health. Hoping that
June  weather makes everyone aware of how hot weather takes its toll on
us. Be careful those that have to work in it. Rick



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Checked by AVG Free Edition.
Version: 7.5.472 / Virus Database: 269.8.13/840 - Release Date: 6/8/2007 
3:15 PM

Re: [TMIC] Rectal problems

[LadyNotes]

Tracy,
 
Yes, I know the feeling of having raised wonderful  children.  It is one that 
you never forget.  Congratulations to your  son!  Kudos to him for wanting to 
spend this special time in his life, with  his family and neighbors.  Stay 
the loving mother that you are and revel in  your children's success.  

Naomi
C-4 quad since July 2,  2005





** See what's free at http://www.aol.com.

Re: [TMIC] ot

[Diane]

Heat also makes my fatigue worse and often leads to a flare.
I do not feel the cold unless I am unwell.
Diane in 90oF. today.
  - Original Message - 
  From: Kevin Wolfthal 
  To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com 
  Sent: Friday, June 08, 2007 11:43 AM
  Subject: Re: [TMIC] ot



  Extremes of heat OR cold affect me badly.

  Heat makes my fatigue worse, and generally feel weak.

  Cold causes my pain to be worse.

  Kevin

Re: [TMIC] ot

[LadyNotes]

The only problem, so far that I've noticed, is that I sunburn  easily.  This 
may be due to some of the medications I take.  

Naomi
C-4 quad since July 2,  2005





** See what's free at http://www.aol.com.

RE: [TMIC] ot

[Wendy]

Since I'm fairly new with the TM everyone's input has really been helpful.
Sometimes I think I'm going crazy as symptoms come and go or change,  then I
read the comments and many of you are having the similar experience.  

 

Heat seems to make my fatigue worse also and I've been getting these hot
flashes in my feet.   My feet get so hot I have to take my shoes off at
times.  

 

Wendy in NJ

 

  _  

From: Diane [mailto:[EMAIL PROTECTED] 
Sent: Friday, June 08, 2007 8:51 PM
To: Kevin Wolfthal; [EMAIL PROTECTED]; Tmic-list@eskimo.com
Subject: Re: [TMIC] ot

 

Heat also makes my fatigue worse and often leads to a flare.

I do not feel the cold unless I am unwell.

Diane in 90oF. today.

- Original Message - 

From:  mailto:[EMAIL PROTECTED] e 

To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com 

Sent: Friday, June 08, 2007 11:43 AM

Subject: Re: [TMIC] ot

 


Extremes of heat OR cold affect me badly.

Heat makes my fatigue worse, and generally feel weak.

Cold causes my pain to be worse.

Kevin

Re: Re: [TMIC] ot

[Heather Pieter]

Rick,

I haven't got any results as the information is still being gathered. 
Apparently there are 70 people involved in this study.  I know that there 
are some with diabetes etc (I think that is the main group of people).  Not 
sure if I will find out any results actually but will ask when I see them 
again.  For 6 months I have to fill out a set of papers every day.  It only 
takes a few mins per day.  There is a graph that indicates what  your pain 
level is for the previous 24  hours.  Also keep track of foods eaten, 
including fruits, vegetables, meats, breads, and some misc etc.  Then a page 
that is filled out each week regarding moods etc.  We take this in in 6 
months then I guess they compile it all.  There is also a page with the 
temp, weather changes, sunshine, rain/snow, humidity and can't remember the 
6th one.


Interesting though.
I also have had problems with the weather since the beginning.  The colder 
the weather the stiffer my muscles etc and the harder to move or do 
anything.  When the weather warms up it is much better however the very hot 
weather or hot sunshine are no good for me either.


Heather in Calgary
- Original Message - 
From: [EMAIL PROTECTED]

To: Heather  Pieter [EMAIL PROTECTED]
Sent: Friday, June 08, 2007 10:43 AM
Subject: Re: Re: [TMIC] ot


Please keep us noticefied of your study. Do you currently have anything of 
news yet on your study? Rick


From: Heather  Pieter [EMAIL PROTECTED]
Date: 2007/06/08 Fri PM 12:54:27 EDT
To: Robert Pall [EMAIL PROTECTED],  [EMAIL PROTECTED],
 tmic-list@eskimo.com
Subject: Re: [TMIC] ot

I'm currently in a 6 month study on how weather affects people with
Neuropathic Pain.  Being run by a Neurologist doing research at the 
hospital

I was in.

Weather does affect me and from what I have gathered over the last few 
years

also affects a lot of us with TM.

Heather in Calgary

- Original Message - 
From: Robert Pall [EMAIL PROTECTED]

To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Friday, June 08, 2007 8:29 AM
Subject: RE: [TMIC] ot


Rick,
Interesting that you stated that hot weather is bad for us
TM'rs. I personally have not been able to pinpoint the weather as being
something that effects me...the only possible exception is that very
humid weather can make me feel worse. I would be interested if the group
commented on the effect that weather has had on themin the meantime
I hope everyone has a great summer!

Rob in Sunny New Jersey

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]

Sent: Friday, June 08, 2007 10:24 AM
To: tmic-list@eskimo.com
Subject: [TMIC] ot

Good morning tmiclist. Heres wishing everyone good health. Hoping that
June  weather makes everyone aware of how hot weather takes its toll on
us. Be careful those that have to work in it. Rick



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No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.472 / Virus Database: 269.8.13/840 - Release Date: 6/8/2007
3:15 PM







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Checked by AVG Free Edition.
Version: 7.5.472 / Virus Database: 269.8.13/840 - Release Date: 6/8/2007 
3:15 PM

Re: [TMIC] Turning cells into tissues. Is it too good to be true?

[Akua]

The new technique developed by Shinya Yamanaka of Kyoto University, 
depends on inserting just four genes into a skin cell.  These 
accomplish the same programming task as the egg, or at least one 
very similar.

What do you think?
I


I hope certification of this technique happens soon, so I can walk again.
Akua
--

http://www.healrecover.blogspot.com
http://www.akualezli.blogspot.com

Re: [TMIC] ot

[cakalley]

I found that wearing soxes makes my feet colder - and when I take my soxes off, they are damp like my feet are sweating but I feeling, sensation,as ifmy feetare in an ice bucket. Going barefoot has helped but I wear slip on cloth sandeles when I go out.
Candy K.

-Original Message- From: L T CHERPESKI <[EMAIL PROTECTED]>Sent: Jun 8, 2007 11:14 PM To: [EMAIL PROTECTED], Tmic-list@eskimo.com, Kevin Wolfthal <[EMAIL PROTECTED]>Cc: TM List Subject: Re: [TMIC] ot 



Same for me, Kevin. I was cold the entire first year of TM and had to wear one, sometimes two pair of sox on my feet. Now, I can't stand to have ANYTHING touch my feet - bare feet only for me at home anyway. Very strange.

Linda

- Original Message - 
From: Kevin Wolfthal 
To: [EMAIL PROTECTED] ; Tmic-list@eskimo.com 
Sent: Friday, June 08, 2007 9:43 AM
Subject: Re: [TMIC] ot
Extremes of heat OR cold affect me badly.Heat makes my fatigue worse, and generally feel weak.Cold causes my pain to be worse.Kevin[EMAIL PROTECTED] wrote: 
Robert Pall has asked the list to comment on the effects of hot weather on us with TM. I get exausted very fast when I get out in the hot weather. Now, part of this may or may not be due to medications. But I do take extra caution in hot weather. So should you. Rick
  
From: "Robert Pall" [EMAIL PROTECTED]
Date: 2007/06/08 Fri AM 11:29:29 EDT
To: [EMAIL PROTECTED], 
	tmic-list@eskimo.com
Subject: RE: [TMIC] ot

Rick,
	Interesting that you stated that hot weather is bad for us
TM'rs. I personally have not been able to pinpoint the weather as being
something that effects me...the only possible exception is that very
humid weather can make me feel worse. I would be interested if the group
commented on the effect that weather has had on themin the meantime
I hope everyone has a great summer!

Rob in Sunny New Jersey 

-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]]

Sent: Friday, June 08, 2007 10:24 AM
To: tmic-list@eskimo.com
Subject: [TMIC] ot

Good morning tmiclist. Heres wishing everyone good health. Hoping that
June  weather makes everyone aware of how hot weather takes its toll on
us. Be careful those that have to work in it. Rick