[TMIC] New symptom. Yikes!
The throbbing, itching, sort of numbness that has plagued me on the scalp, ears, left cheek... has now moved to my lips and tip of my tongue. This morning, coffee tasted weird. I've never heard anything like that mentioned anywhere from the group. My left leg is also getting weaker; I don't feel my left foot very much. Something weird is going on with my right eye. Reading and focusing is a problem. The ophthalmologist has checked everything and finds nothing to be concerned about. Limbs numb. Okay, I understand. That's TM. But the head! Do I have to look forward to a numb head? Wish I could go to the Seattle symposium, but I can't travel alone and can't get anyone to go with me. Will someone ask Dr. Kerr this question for me? Please. Thanks. R
Re: [TMIC] New symptom. Yikes!
Dear Regina, Great to be in this group. You're not alone. I get the numbness sometimes pins needles on my face scalp. Drives me nuts when it hits my nostrils. My sense of smell is off too. The smell of grains sometimes makes me gag (bread, cereal, rice, etc.) Nothing shows up in my head on MRI but who knows. The neuro isn't worried about it so why should I be? The eye problem is different. You really should see your doctor about that. Wish me luck guys. My first appointment at the MS Rehab Centre today. My neuro is not happy with my 'decline'. It is my intention to throw away my walker and to mount my cane over the fireplace. Now isn't that positive of me, lol? Diane in Canada P.S. After TM, they added 'possible' MS but that was 9 yrs. ago - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Monday, July 14, 2008 8:44 AM Subject: [TMIC] New symptom. Yikes! The throbbing, itching, sort of numbness that has plagued me on the scalp, ears, left cheek... has now moved to my lips and tip of my tongue. This morning, coffee tasted weird. I've never heard anything like that mentioned anywhere from the group. My left leg is also getting weaker; I don't feel my left foot very much. Something weird is going on with my right eye. Reading and focusing is a problem. The ophthalmologist has checked everything and finds nothing to be concerned about. Limbs numb. Okay, I understand. That's TM. But the head! Do I have to look forward to a numb head? Wish I could go to the Seattle symposium, but I can't travel alone and can't get anyone to go with me. Will someone ask Dr. Kerr this question for me? Please. Thanks. R
Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday.
Well, I cannot get it, so I'll never see what Gracie looks like, unless someone tapes it and send it to me or emails an extract. Alton
Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday.
GracieI wouldn't miss it!! You are so brave to do this and of course you know that on this list how we look on the outside doesn't really matter. It's what we have on the inside that counts. We share our joys and our sorrows we care, we pray and we remember each other every day thru this TM List. Teeth or no teeth, my dear, you represent all of us, you are our Heroine!!! Trudy (Northern Va) On Sun, Jul 13, 2008 at 8:31 PM, Grace M. [EMAIL PROTECTED] wrote: *Hi Deb and Jeanne,* *It's carried by most cable packages and is also on satellite. It's about Devic's NMO, which is what caused my TM. Hope you get to watch.* ** *And Jeanne, I look HORRIBLE. (And I do mean horrible.) I've never looked so bad in my entire life, but, I'm very happy to still be alive and kicking. So far, the Rituxan infusions have kept me stable, though my May infusion failed and I had to have an immediate gram repeat. The neuro thinks that we might have to do them a bit more often than every three months. Oh well, if that's what it takes, that's what it takes. * ** *Gracie* * *
Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday.
Gracie, I whole heartly agree with Trudy. You go girl! Now if other stations will join in and get me info out there! Prayers and thoughts for you and yours, Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile, Candy K. - Original Message - From: Trudy Ogilvie [EMAIL PROTECTED] To: Grace M. [EMAIL PROTECTED] Cc: jrushton [EMAIL PROTECTED], Deb Monteleone [EMAIL PROTECTED], tmic tmic-list@eskimo.com Sent: Monday, July 14, 2008 11:37:58 AM (GMT-0500) America/New_York Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. Gracie I wouldn't miss it!! You are so brave to do this and of course you know that on this list how we look on the outside doesn't really matter. It's what we have on the inside that counts. We share our joys and our sorrows we care, we pray and we remember each other every day thru this TM List. Teeth or no teeth, my dear, you represent all of us, you are our Heroine!!! Trudy (Northern Va) On Sun, Jul 13, 2008 at 8:31 PM, Grace M. [EMAIL PROTECTED] wrote: Hi Deb and Jeanne, It's carried by most cable packages and is also on satellite. It's about Devic's NMO, which is what caused my TM. Hope you get to watch. And Jeanne, I look HORRIBLE. (And I do mean horrible.) I've never looked so bad in my entire life, but, I'm very happy to still be alive and kicking. So far, the Rituxan infusions have kept me stable, though my May infusion failed and I had to have an immediate gram repeat. The neuro thinks that we might have to do them a bit more often than every three months. Oh well, if that's what it takes, that's what it takes. Gracie
[TMIC] RE: tmic-digest Digest V2008 #283
You need to see a doctor ASAP if you have not had a bowel movement in 2 weeks... GO to the ER now, if you can't get to your doctor today/tomorrow. This can be very serious. Marieke RN, TM @T1 since March 18, 2004 Forwarded Message Attachment-- Date: Mon, 14 Jul 2008 12:16:29 -0400 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] i know this network is very impersonabal (thats what i put it into it though) so, i don't mind asking about personal questions. i am serious bowel issues. i haven't gone to the bathroom in 2 weeks tomorrow. i am scared to death auto-dysflexia will set in my head will start pounding i The i’m Talkaton. Can 30-days of conversation change the world? Find out now. _
[TMIC] Re: Bum pain....
Candy wrote: I'm wondering if any of you have the feeling as if your hip/pelvic bones are trying to come through your bum muscles or as if I fell on my bum and it is terribly bruised? This is the only feeling I have on my bum other than I know when my bum is touched. I had to do alot of sitting yesterday - driving to Dr. office, in the office, and drive back home. Today my bum is so sore like it is bruised. This is not the first time - it seems to happen anytime that I have to sit for long periods of time. This is the only feeling I have in bum and it really hurts! Candy...I have EXACTLY the same problem. It got so bad I thought I had broken my hip..! Went to the neurohe ordered an MRIand come to find out I have facet joint disease and myofascial pain syndrome. Try googling those...good heavens...! There's nothing I can do to get that joint disease reversed so I take Oxycontin, Percodan for the breakthrough pain and Neurontin for the burning. I'm in pain 24/7 even with the narcotics. All they do is take the edge off. So sorry you are going through this also. Hugs, Lynn **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus0005000112)
Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER onMonday.
Grace would you mind if I uploaded to youtube? I wonder what DiscoveryHealth would say? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile, Prayers and thoughts for you and yours, Candy K. - Original Message - From: rj rankin [EMAIL PROTECTED] To: CANDIS KALLEY [EMAIL PROTECTED] Sent: Monday, July 14, 2008 10:21:17 PM (GMT-0500) America/New_York Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER onMonday. This is randy. I have the same machine already hooked up. All I have to do is it one button that says copy and its done. I'd be glad to do that if u want to put it in the mail. My address is 1826 river rock trail - woodstock, GA 30188. My cell is 2562826472. I'm also on facebook which is very easy to join. I'm listed as randy rj rankin Sent from my Verizon Wireless BlackBerry From : CANDIS KALLEY [EMAIL PROTECTED] Date : Mon, 14 Jul 2008 21:07:06 -0400 (EDT) To : rj rankin[EMAIL PROTECTED] Subject : Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. I taped it but it is VCR. I have a machine that will take the tape and make a DVD. BUT I need to have someone come and hook it up for me. I will be leaving tomorrow for the Symposium in Seattle, WA and won't be back until the 23rd. I have a handyman that could come the 27th but that will be the earliest that I could get a DVD done. I will see what it will take to upload to UTube then no one has to pay for shipping. If someone else can do it faster, please let me know. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile, Prayers and thoughts for you and yours, Candy K. - Original Message - From: randy rankin [EMAIL PROTECTED] To: TM Group tmic-list@eskimo.com Sent: Monday, July 14, 2008 6:15:22 PM (GMT-0500) America/New_York Subject: RE: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. This is randy - I'm confused. Did I read an email that someone was willing or interested in making a DVD copy? I cannot get discovery health and I am now thinking that some people think that I am going to record it and make copies. I don't have the channel. If I DID I would do that but I AM interested in BUYING a copy if someone is planning on making a copy of the show. Sorry about the confusion. It is sometimes hard to keep track with the emails subject lines - and messages --- On Mon, 7/14/08, Wendy Wood [EMAIL PROTECTED] wrote: From: Wendy Wood [EMAIL PROTECTED] Subject: RE: [ TMIC ] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. To: [EMAIL PROTECTED] Date: Monday, July 14, 2008, 3:55 PM I was wondering if I could pay you to tape it. Is that what you are referring to or are you thinking I can tape it? I don’t get the channel. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, July 14, 2008 2:08 PM To: Wendy Wood Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. Whatever is the shipping the cost off the cd plus ur time. I don't know what is reasonable for u. I get stuff from amazon or half.com for as little as 5 bucks or less plus shipping and sometimes more depending on what it is. I don't know if this show is sold on half or amzn or not I guess I could chck. But I don't want to put u through a lot of wrk and time for nothng Sent from my Verizon Wireless BlackBerry From : Wendy Wood [EMAIL PROTECTED] Date : Mon, 14 Jul 2008 12:58:00 -0400 To : [EMAIL PROTECTED] Subject : RE: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. How much do you want for it? From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, July 14, 2008 1:50 PM To: Wendy Wood Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. I would. How much would u like? I can give my addy as well Sent from my Verizon Wireless BlackBerry From : Wendy Wood [EMAIL PROTECTED] Date : Mon, 14 Jul 2008 12:28:25 -0400 To : 'tmic'tmic-list@eskimo.com Subject : RE: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. Does anyone want to tape in on DVD and I will purchase a copy? From: Melissa B [mailto:[EMAIL PROTECTED] Sent: Monday, July 14, 2008 12:16 PM To: Alton Ryder; tmic Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. I don't get it either. I was looking forward to watching it and seeing her story. - Original Message - From: Alton Ryder To: tmic Sent: Monday, July 14, 2008 10:23 AM Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. Well, I cannot get it, so I'll never see what Gracie looks like, unless someone tapes it and send it to me or emails an extract.
[TMIC] Gracie
Gracie, Congrats!!! You were great. You are a beautiful woman inside and out. Your children are wonderful as I am sure you know. Thanks for helping to educate society. Catherine Love Catherine Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile
[TMIC]
Grace, the program was go. You looked very pretty.
Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday.
Hey Jim, Would you be able to upload to YouTube? Prayers and thoughts for you and yours, Candy K. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile, - Original Message - From: Jim Lubin [EMAIL PROTECTED] To: Grace M. [EMAIL PROTECTED], jrushton [EMAIL PROTECTED] Cc: Deb Monteleone [EMAIL PROTECTED], tmic tmic-list@eskimo.com Sent: Monday, July 14, 2008 10:45:55 PM (GMT-0500) America/New_York Subject: Re: [TMIC] TMIC] Re: My Devic's NMO episode is on Mystery ER on Monday. Great program Grace! I recorded it on my computer and cut out the commercials and the other story. Your segment comes out to 19 mins. I'll burn you a dvd. You looked fine to me. :-) Jim At 05:31 PM 7/13/2008, Grace M. wrote: Hi Deb and Jeanne, It's carried by most cable packages and is also on satellite. It's about Devic's NMO, which is what caused my TM. Hope you get to watch. And Jeanne, I look HORRIBLE. (And I do mean horrible.) I've never looked so bad in my entire life, but, I'm very happy to still be alive and kicking. So far, the Rituxan infusions have kept me stable, though my May infusion failed and I had to have an immediate gram repeat. The neuro thinks that we might have to do them a bit more often than every three months. Oh well, if that's what it takes, that's what it takes. Gracie Jim Lubin [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org
