Re: [TMIC] Re: tmic-digest Digest V2008 #332
In 2001 I had an acute attack of transverse myelitis, paralyzing me from the chest down. I was in rehab hospital for eight weeks and I slowly recovered and finally I was able to walk. From the beginning, they told me that I would never use my hands because I was struck at c5 and c6.. I can't use either hand and I need help every day to bathe me, to cook for me, to clean my house, to write for me, and anything else that requires the use of your hands. I just thank God for the things I can do. I don't have much family that will help me, but I do have many good friends that take me places and care about me. I suggest that you get all the therapy that you can for your hands and arms. Good luck to you, and be sure to contact me if you have any questions. Have a wonderful day! Priscilla -Original Message- From: Amanda Diskey [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Fri, 12 Sep 2008 12:01 am Subject: [TMIC] Re: tmic-digest Digest V2008 #332 hey everyone, i hope all is going well. i am s sick of this hospital. i might get to go see dr. kerr. did anyone else lose their arms and hands? i am getting all the muscles in my arms back, however not my hands. i am hoping vthey come back soon. --- On Wed, 9/10/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #332 To: [EMAIL PROTECTED] Date: Wednesday, September 10, 2008, 12:50 PM tmic-digest DigestVolume 2008 : Issue 332 Today's Topics: [TMIC] Re: tmic-digest Digest V2008 [ [EMAIL PROTECTED] ] Re: [TMIC] new friend [ Jan Hargrove [EMAIL PROTECTED] ] Re: [TMIC] jude [ Jenna [EMAIL PROTECTED] ] RE: [TMIC] new friend [ wim from holland wim_from_holland@ ] Re: [TMIC] Testing 123[ [EMAIL PROTECTED] ] Re: [TMIC] new friend [ Diane [EMAIL PROTECTED] ] Re: [TMIC] jude [ L T CHERPESKI [EMAIL PROTECTED] ] Re: [TMIC] gel cushion[ Alton Ryder [EMAIL PROTECTED] ] Display Notification: [TMIC] Re: tmi [ Rita Asbury [EMAIL PROTECTED] ] ? ? The site is tmic-list@eskimo.com .At least it as the last? the? time I checked.Rick ? -- Original message from [EMAIL PROTECTED]: -- Thanks Jim, ? Heather in Calgary - Original Message - From: Jim Lubin To: tmic-list@eskimo.com Sent: Sunday, September 07, 2008 10:13 AM Subject: [TMIC] Paralympics Athletes living with Transverse Myelitis Beijing Paralympics Athletes living with Transverse Myelitis United States Sarah Castle (Wheelchair Basketball) http://www.olympicspirit.us/paralympics/39341_46582.htm http://paralympics.teamusa.org/athlete/athlete/1929 Anjali Forber-Pratt (Wheelchair Track) http://paralympics.teamusa.org/athlete/athlete/2209 http://anjaliforberpratt.com/content/about Amanda McGrory (Wheelchair Track Basketball) http://paralympics.teamusa.org/athlete/athlete/2217 Kerri Morgan (Wheelchair Track) http://paralympics.teamusa.org/athlete/athlete/2218 Steven Toyoji (Wheelchair Track Basketball) http://paralympics.teamusa.org/athlete/athlete/2205 Great Britain Gordon Reid (Wheelchair Tennis) Australia Greg Ball (Cycling) http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39 Madison de Rozario (Wheelchair Track) http://www.madid.com.au/bio.htm http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337 Watch online http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000KEY=SPID=13327SPSID=107765 http://www.cbc.ca/sports/paralympics/ http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm Jim Lubin?? [EMAIL PROTECTED] http://makoa.org/jim disAbility Resources: http://www.makoa.org ? Welcome, Amanda! ? Sorry you have to meet us this way, but you've come to the right place. Wecome to the family!! ? Hugs, janh --- On Tue, 9/9/08, Amanda Diskey [EMAIL PROTECTED] wrote: From: Amanda Diskey [EMAIL PROTECTED] Subject: [TMIC] new friend To: tmic-list@eskimo.com Date: Tuesday, September 9, 2008, 3:40 PM my name is amanda and i am newly diagnosed with tm. i am still in the hospital in rehab. hope this gets through to the list. i could use sum friends. ? Hi Bob, I am sorry you have been in the hospital, I hope you are feeling better now. Jude is doing ok, is the update I got today.? I will check with Pam again tomorrow and she if she can give me more info.? Or maybe Ella or Patti know more. ? Jenna - Original Message From: bob [EMAIL PROTECTED] To: tmic tmic-list@eskimo.com Sent: Tuesday, September 9, 2008 12:57:00 PM Subject: [TMIC] jude how is jude doing i just spent 12 days in the hospital and just came home last evening..can i please have an update on jude?thank you Also welcome from
[TMIC] Fw: ;7%
Hello to all you out there. P-pray Uuntil Ssomething Hhappens I need this back... If you'll do this for me... I'll do it for you.. When there is nothing left but God, that is when you find out that God is all you need. Take 60 seconds and give this a shot! All you do is simply say the following small prayer for the person who sent you this. Father, God bless all my friends and loved ones in whatever it is that You know they may be needing this day! And may their life be full of your peace, prosperity and power as he/she seeks to have a closer relationship with you. Amen. Then send it on to five other people. Within hours you caused a multitude of people to pray for other people. Then sit back and watch the power of God work in your life. P. S. Five is good, but more is better. When Jesus died on the cross, he was thinking of you! If you are one of the 7% who will stand up for him, forward this with the title 7%. 93% of people won't forward this. attachment: HI_AND~3.GIFattachment: image0011.jpgattachment: image0022.gifattachment: image0033.jpgattachment: image0044.gifattachment: image0055.jpgattachment: imstp_animation_butterflies_en_020908.gif
[TMIC] Hi all--I'm back again
Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
*Hi Sharon,* ** *It's not uncommon for an MS patient to have an episode of TM. I have Devic's NMO, and have frequent bouts of severe myelitis. We have to remember that the term Transverse Myelitis means just what it says. Transverse---transversing, or across, Myelitis---inflammation of the spinal cord. It can be caused by a variety of illnesses but is also often idiopathic. (No known cause.)* ** *Gracie (Devic's NMO since 2005)*
Re: [TMIC] Hi all--I'm back again
Sharon, It's great to see your name pop up again!! I've wondered about you and your family...I'm sorry you're having another bout with whatever, but so good to hear from you. Please keep us updated.I (of course) have no clue to help, but will keep you in my thoughts and prayers! Hugs, janh --- On Fri, 9/12/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 3:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Re: tmic-digest Digest V2008 #332
Hi Amanda, I can type with my thumb and I sometimes use a voice recognition program called Dragon-Naturally Speaking.? I went to JH and saw Dr. Kerr about?6 months after I had the attack.? He prescribed neurontin for me which helped the tingling and burning in my legs and the banding.? I really liked him; he was very compassionate and helpful.? I changed to lyrica when it came out. Have a wonderful day! Priscilla -Original Message- From: Amanda Diskey [EMAIL PROTECTED] To: [EMAIL PROTECTED] Sent: Fri, 12 Sep 2008 5:47 pm Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #332 i am in rehab now, i do have some use of my hands. i feed myself, bathe myself, brush my hair, learning to dress myself, and i can write a little too. i refuse to give up! i have good therapists too. i might be going to johns hopkins to see dr. kerr. do u see him? how do u type? thank u for the email back, i haven't seen many people who have lost their hands from this. most are only affected from the waist down. i was struck at c5 to t3, but supposedly the swelling was mild. who knows what will happen? either way i guess we have to adapt huh? can u move ur wrists? --- On Fri, 9/12/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #332 To: [EMAIL PROTECTED], tmic-list@eskimo.com Date: Friday, September 12, 2008, 2:42 PM In 2001 I had an acute attack of transverse myelitis, paralyzing me from the chest down. I was in rehab hospital for eight weeks and I slowly recovered and finally I was able to walk. From the beginning, they told me that I would never use my hands because I was struck at c5 and c6.. I can't use either hand and I need help every day to bathe me, to cook for me, to clean my house, to write for me, and anything else that requires the use of your hands. I just thank God for the things I can do. I don't have much family that will help me, but I do have many good friends that take me places and care about me. I suggest that you get all the therapy that you can for your hands and arms. Good luck to you, and be sure to contact me if you have any questions. Have a wonderful day! Priscilla -Original Message- From: Amanda Diskey [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Fri, 12 Sep 2008 12:01 am Subject: [TMIC] Re: tmic-digest Digest V2008 #332 hey everyone, i hope all is going well. i am s sick of this hospital. i might get to go see dr. kerr. did anyone else lose their arms and hands? i am getting all the muscles in my arms back, however not my hands. i am hoping vthey come back soon. --- On Wed, 9/10/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #332 To: [EMAIL PROTECTED] Date: Wednesday, September 10, 2008, 12:50 PM tmic-digest DigestVolume 2008 : Issue 332 Today's Topics: [TMIC] Re: tmic-digest Digest V2008 [ [EMAIL PROTECTED] ] Re: [TMIC] new friend [ Jan Hargrove [EMAIL PROTECTED] ] Re: [TMIC] jude [ Jenna [EMAIL PROTECTED] ] RE: [TMIC] new friend [ wim from holland wim_from_holland@ ] Re: [TMIC] Testing 123[ [EMAIL PROTECTED] ] Re: [TMIC] new friend [ Diane [EMAIL PROTECTED] ] Re: [TMIC] jude [ L T CHERPESKI [EMAIL PROTECTED] ] Re: [TMIC] gel cushion[ Alton Ryder [EMAIL PROTECTED] ] Display Notification: [TMIC] Re: tmi [ Rita Asbury [EMAIL PROTECTED] ] ? ? The site is tmic-list@eskimo.com .At least it as the last? the? time I checked.Rick ? -- Original message from [EMAIL PROTECTED]: -- Thanks Jim, ? Heather in Calgary - Original Message - From: Jim Lubin To: tmic-list@eskimo.com Sent: Sunday, September 07, 2008 10:13 AM Subject: [TMIC] Paralympics Athletes living with Transverse Myelitis Beijing Paralympics Athletes living with Transverse Myelitis United States Sarah Castle (Wheelchair Basketball) http://www.olympicspirit.us/paralympics/39341_46582.htm http://paralympics.teamusa.org/athlete/athlete/1929 Anjali Forber-Pratt (Wheelchair Track) http://paralympics.teamusa.org/athlete/athlete/2209 http://anjaliforberpratt.com/content/about Amanda McGrory (Wheelchair Track Basketball) http://paralympics.teamusa.org/athlete/athlete/2217 Kerri Morgan (Wheelchair Track) http://paralympics.teamusa.org/athlete/athlete/2218 Steven Toyoji (Wheelchair Track Basketball) http://paralympics.teamusa.org/athlete/athlete/2205 Great Britain Gordon Reid (Wheelchair Tennis) Australia Greg Ball (Cycling) http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39 Madison de Rozario (Wheelchair Track) http://www.madid.com.au/bio.htm http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337 Watch online
Re: [TMIC] Hi all--I'm back again
Thanks Grace. I've been away from the TM community too long. No MRI has shown any lesions on my spine but my neuro told me he still thought I had a hidden spinal lesion. Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Fri, 9/12/08, Grace M. [EMAIL PROTECTED] wrote: From: Grace M. [EMAIL PROTECTED] Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Date: Friday, September 12, 2008, 1:25 PM Hi Sharon, It's not uncommon for an MS patient to have an episode of TM. I have Devic's NMO, and have frequent bouts of severe myelitis. We have to remember that the term Transverse Myelitis means just what it says. Transverse---transversing, or across, Myelitis---inflammation of the spinal cord. It can be caused by a variety of illnesses but is also often idiopathic. (No known cause.) Gracie (Devic's NMO since 2005)
Re: [TMIC] Hi all--I'm back again
Hi Jan-- good to see you! The thoughts and prayers are always welcome. Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Fri, 9/12/08, Jan Hargrove [EMAIL PROTECTED] wrote: From: Jan Hargrove [EMAIL PROTECTED] Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED], tmic-list tmic-list@eskimo.com Date: Friday, September 12, 2008, 2:29 PM Sharon, It's great to see your name pop up again!! I've wondered about you and your family...I'm sorry you're having another bout with whatever, but so good to hear from you. Please keep us updated.I (of course) have no clue to help, but will keep you in my thoughts and prayers! Hugs, janh --- On Fri, 9/12/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 3:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
Re: [TMIC] Hi all--I'm back again
Thanks Amanda. I am always in a quandary about what to do in situations like this. I don't want to go to the hospital. Stupid, huh? I'm sorry you have TM. How are you doing now? Sharon The bluebird in the cedar tree spoke to me... Your heart's desire dwells here--this is where you belong --- On Fri, 9/12/08, Amanda Diskey [EMAIL PROTECTED] wrote: From: Amanda Diskey [EMAIL PROTECTED] Subject: Re: [TMIC] Hi all--I'm back again To: [EMAIL PROTECTED] Date: Friday, September 12, 2008, 2:32 PM hey sharon, my name is amanda i was diagnosed about a month ago, and i would definitely be afraid it was a tm attack. i would go see my neuro and see if he could find out what is going on. i really hope u get feeling better and it is not a tm attack. good luck --- On Fri, 9/12/08, Sharon M [EMAIL PROTECTED] wrote: From: Sharon M [EMAIL PROTECTED] Subject: [TMIC] Hi all--I'm back again To: tmic-list@eskimo.com Date: Friday, September 12, 2008, 4:01 PM Hi everyone: Some of you may remember me and most won't. I had a TM attack in 1997 and found this group. I rejoined several years ago and after a few months forgot how to get into the group! lol So now I've subscribed once again. I have never been without symptoms since the TM attack in 97. In that attack in just a few hours I became numb on the left side from just below the breast to my toes. It was like a line had been drawn down the middle of me and everything was totally numb on the left from that level down. I lost bladder control, too. I was later dxed with MS in 1998. Among other symptoms, I have been numb since the TM attack in different parts of my body and I have never been without some degree of numbness. For the past 3 weeks I've been abnormally numb. It is very much like the TM attack in 97 except I haven't lost bladder control and this time the severe numbness is on the right side. It started under my right breast, moving under my arm, around my back Now the numbness is all the way to my toes, except part of my hip. I did call my neuro and he asked if I thought I was in the middle of a MS flare. At the time I said no because I feel fine. Now I'm wondering if I made a mistake. Could this be a TM thing? What do you all think? glad to be back Sharon Marsden
