Re: [TMIC] Questions
Hi, Jude! So wonderful to be hearing from you and that you are doing better. God bless you, dear one! I was told by the first neuro I saw at the onset that one of the 'theories' for TM was the varicella-zoster (chicken pox virus) which is also the 'causative virus of herpes zoster which makes sense in what your provider says. The virus, once it is in our system, never leaves of can also show up as that horribly painful shingles. Anyone that has been stricken with that can attest to that. Jeanne in Dayton
Re: [TMIC] Questions
Its funny you should talk about cold sores and herpes virus. I never had a problem with that in the past and that was the first thing I was asked when I got sick (Sept. 05). Right now I have sores on my tongue which is probably some sort of herpes. Very annoying. I am taking an antibiotic but I know that does not kill a virus. 2 of my daughters (grown) also had mild cases of shingles this past year. Maybe we all have the chicken pox virus in our systems. Feel good, Rosalie In a message dated 10/3/2008 2:58:56 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I always hate when my email is filled with forwarded messages. I usually just delete then and very rarely pass them on. I feel exactly the same way. I delete more email, even from my very best friend, who sends me every darn joke out there on the Internet. Every once in a while there are photographs that are too cute and I appreciate those. The political messages I can live without hearing. I know how I feel; I know who I am going to vote for, and I can decide for myself when there are issues on the table to be discussed. What I'm trying to say is this forum is for Transverse Myelitis and I'd like to read email having to do with this disease and how each of us is coping with it on a daily basis. Maybe there are new members wanting to ask questions about TM... Heck~I have a question. Has anyone ever been told that their TM is related to the Herpes virus? When I get sick, I always get a cold sore on the corner of my mouth...never anywhere else. But the doctors say that my herpes viral titers are sky high and can find no reason for them to be like that. Has anyone else been told that TM is caused by a virus? Love, Hugs Prayers. Jude New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. _Try it out_ (http://local.mapquest.com/?ncid=emlcntnew0001) ! **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! (http://local.mapquest.com/?ncid=emlcntnew0001)
Re: [TMIC] Questions
AOL EmailJude, it is so good to hear from you! Welcome back - we've missed you, dear lady. I am curious to know why your herpes viral titers are so high when you get sick, especially when you don't have any real symptoms. I know when most of us gave our gallon of blood when first diagnosed, they tested for absolutely everything! No stone unturned. Again, welcome back Jude. Looking forward to hearing more from you. I've missed you!! Hugs, Linda - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: TMIC-LIST@eskimo.commailto:TMIC-LIST@eskimo.com Sent: Friday, October 03, 2008 12:58 PM Subject: [TMIC] Questions I always hate when my email is filled with forwarded messages. I usually just delete then and very rarely pass them on. I feel exactly the same way. I delete more email, even from my very best friend, who sends me every darn joke out there on the Internet. Every once in a while there are photographs that are too cute and I appreciate those. The political messages I can live without hearing. I know how I feel; I know who I am going to vote for, and I can decide for myself when there are issues on the table to be discussed. What I'm trying to say is this forum is for Transverse Myelitis and I'd like to read email having to do with this disease and how each of us is coping with it on a daily basis. Maybe there are new members wanting to ask questions about TM... Heck~I have a question. Has anyone ever been told that their TM is related to the Herpes virus? When I get sick, I always get a cold sore on the corner of my mouth...never anywhere else. But the doctors say that my herpes viral titers are sky high and can find no reason for them to be like that. Has anyone else been told that TM is caused by a virus? Love, Hugs Prayers. Jude -- New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it outhttp://local.mapquest.com/?ncid=emlcntnew0001!
Re: [TMIC] Unidentified subject!
A warm welcome to you Lynne. Larry is right. You will find this group to be very understanding, full of love and support and nothing embarrasses us! We've pretty much talked about everything here. This is a safe haven. I hope you'll feel comfortable and just jump in with any questions or concerns you may have. Looking forward to getting to know you. Hugs, Linda (in Eagle, Idaho) - Original Message - From: Larry Thronemailto:[EMAIL PROTECTED] To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Sunday, September 28, 2008 10:48 AM Subject: RE: [TMIC] Unidentified subject! Lynne, As we say around here, glad you found us, sorry you had too. Welcome home. You will find this bunch wonderfully helpfull and underestanding. Don't hesitale asking any questions. You can get a lot of love and support here, all you have to do is ask. Larry in Oklahoma who is going out to mow. Date: Sun, 28 Sep 2008 06:38:39 -0700 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] Unidentified subject! At Patti's suggestion at yesterdays support group meeting I decided to join tmic. My name is Lynne and I have had TM for 4 years now. I am able to walk with a cane now, after spending almost a year in a wheel chair. Prior to TM i worked as a registered nurse. I am married and have two sons ages 22 and 25. Along with TM we are dealing with helping care for father in law who has alzheimers. Lynne
Re: [TMIC] 34th TM Birthday
Larry, Happy 34th! You are an inspiration to us all. It sounds like you're
going to have a full house there for some time. It can really be a lot of fun
- keeps you young.
Hey, I know someone else who apparently just won the lottery in England also.
Don't forget to send your bank account number to that guy in Africa. It would
be a shame to miss out on all those millions they want to send you!
Blessings,
Linda in Eagle, Idaho
- Original Message -
From: Larry Thronemailto:[EMAIL PROTECTED]
To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] ; Tmic
groupmailto:tmic-list@eskimo.com
Sent: Tuesday, September 30, 2008 5:41 PM
Subject: RE: [TMIC] 34th TM Birthday
Thanks, I'm doing well and evidently I've just won the lottery in England.
All I have to do is send my bank account number to some guy in Africa to get my
money. Oh geeze, how lucky am I!
Date: Tue, 30 Sep 2008 07:28:54 -0700
From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]
To: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED]
Subject: RE: [TMIC] 34th TM Birthday
Larry
I have tried since Saturday to say Happy 34th but keep getting my
messages back from the tmic as undeliverable. I hope this one gets to you. I've
wondered where you were and hoped you were busy and not sick. It sounds like
you have a full house now, with lots vying for your attention. I'm glad you
checked in and shared with us.
Blessings to you and your family
Patti - Michigan
Larry Throne [EMAIL PROTECTED] wrote:
Sorry for any confusion. I was diagnosed with TM at age 18. As strange as
it may sound TM has provided me with many blessings and helped make me the man
I am today.
I found the TMIC just a little over 10 years ago. You folks have been a
second family to me since then. I have laughed, cried and prayed with several
of our family over these past ten years and hope to continue doing so. With a
14 year old around the house I don't have much time on the computer right now
so I check the archives instead of getting the daily mails.
Below are the first few paragraphs of my story which is located at #304
in the TMIC members stories. The things that have changed is that I no longer
work with children. I am a social worker at a small psychiatric hospital in
Oklahoma. (my father likes to tell people that he always knew I would end up in
a psych. hospital, he just didn't think I would be the one with the keys!) I
still sail but not as much as I would like. I don't walk as much as I should.
My hands and shoulders are arthritic after so many years of excess use and I
fear falling. My wife I are raising one of our grand daughters and our great
grand daughter. Having them here keeps us busy and active.
I've been taking provigal for the fatigue that many of us suffer from and
neurontin for the pain. Early in my TM experience I discovered I am one of
those that can't take narcotics. Well I could, and did but they got way out of
control, eventually controlling my life. I have been off of them for 19 years.
I've been a member of a 12 step recovery group for over twenty years and doing
so reminds me of who I am. I still hurt sometimes and that's okay. I may have
to slow down or stop. But at least I can feel and I am here to experience life.
Larry in Oklahoma who is just happy to be here!
Twenty four years ago todayLarry Throne (lbthrone(AT)hotmail.com)Sun, 27
Sep 1998 15:58:58 PDT
I had been working for a construction company for just a couple of
months. I was eighteen and it was my first really good job. We were building a
power plant in southeastern Oklahoma, they were behind schedule and had us
working seven days a week, twelve hours a day. I was young, healthy and making
good money. I thought I had nothing to worry about.It had been a wet rainy
summer and everyone on the crew had been fighting a summer flu, I was just
beginning to feel the aches and pains on friday morning when I went to work.
(hmmm) On saturday, I just felt terrible. My head was pounding, i had no energy
and I was perspiring profusely. I went on to work but shortly after lunch I had
a fainting spell. My boss sent me home. I went to bed at 2:00 pm and slept
straight through to sunday afternoon when my father came in to check on me. It
was after 5:00 pm. When I awoke, I couldn't urinate, my bladder was distended
and I had a fever. Dad took me to the E.R. and I was catheterized. The ER
doctor sent home and told to return the next day for testing.The next morning
our family Doctor was calling , he had talked with the E.R. doc and was
concerned, he wanted me there at the hospital asap. Over the next 24 hours
everyone at the hospital in Ada Oklahoma had poked, prodded and examined me, I
think the janitor even had his turn. They did a spinal tap (those sure are nice
aren't they!) When I woke up the second day, I was paralyzed from the waist
down.I was transferred to
Re: [TMIC] 34th TM Birthday
Gosh, aren't we all so lucky! I've also won but they want my Social Security number, also! How can you go wrong??!! Jeanne in Dayton, WA
