[TMIC] JUDE

2009-01-23 Thread kimr1999






With all that is going on with Jude lets stop, read below and really think of the words of comfort we give each other on this site



Through every trial and moment of pain, we stand together to help one another.Sometimes the hand of a stranger comes along and lifts up our hearts..Our responsibility is to continue that selfless act of love and pass on the comfort.

~*~ 
-- Original message from montzma...@aol.com: -- 

I JUST SPOKE WITH JUDE., ITS NOT GOOD NEWS AT ALL.THE DR. JUST LEFT AND TOLD HER THE INFECTION IS THRU HER WHOLE BODY. THEY NOW ARE CALLING IN A INFECTIOUS DISEASE DR, WELL ITS TO LATE.
SHE TOLD ME FOR ALL WHO PRAY TO PRAY FOR HER.SHE DOES NOT THINK THERE IS ANYTHING THEY CAN DO FOR HER.
SHE DOES NOT WANT DAVE TO KNOW YET WHAT THE DOCTOR TOLD HER. DAVE MADE A COMMENT TO HER THAT HE IS AFFRAID OF LOOSING HER.
SHE WANTS US TO HELP DAVE THRU THIS.
ELLA, PATTI AND I HE KNOWS THE BEST. I PROMISED WE WOULD BE THERE FOR HIM. I HAVE CALLED HIM AND E-MAILED HIM.SHE IS SUFFERING SO BAD I CANNOT HARDLY SEE THE KEYBOARD FROM TRYING NOT TO CRY.
SHE IS IN MC CLAIRNES HOSPITAL HER ROOM IS 1205. THE HOSPITAL NUMBER IS 810-342-2173 ITS HARD FOR HER TO GET TO THAT PHONE.
HER CELL SHE HAS WITH HER ITS 810-252-5841.IF SHE DOES NOT ANSWER SHE IS SLEEPING ARE IN SEVERE PAIN.
I AM SO SAD BUT I KNEW THIS WOULD HAPPEN EVNTUALLY.JUDE DOES NOT WANT US CRYING ABOUT HER BUT TO JUST REMEMBER HER.
SHE WILL ALWAYS BE WITH ME, SHE IS MY ANGEL AND WILL BE IN MY HEART ALWAYS .I WISH I COULD BE WITH HER BUT I CANNOT.
I HOPE PATTI SEES THIS AND COULD GO AND SING TO HER, SHE LIKES THAT AND SEEING PATTI. I AM GOING TO WRITE PATTI JUST IN CASE SHE DID NOT GET THIS MESSAGE! NO MATTER WHAT HAPPENS I HOPE JUDE GOES QUIETLY IN HER SLEEP WITH NO PAIN.
BUT SHE DIED TWICE ON US BEFORE SO WE JUST HAVE TO WAIT THIS OUT
 GOD BLESS JUDE AND DAVE AND OUR TM FAMILY!



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[TMIC] JUDE

2009-01-23 Thread Patricia Cooley
IS THERE ANY UPDATE ON JUDE?  DID THEY SEND HER HOME?  IS DAVE CONSIDERING
THE CHANGE TO UM HOSPITAL?

 

I CAN'T CONCENTRATE ON ANYTHING JUST THINKING ABOUT HER AND PRAYING FOR HER.

 

 

PATTI - WISCONSIN



Re: [TMIC] Stem-cell research

2009-01-23 Thread Kevin Wolfthal



http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4







Kevin Wolfthal wrote:



http://www.whitehouse.gov/agenda/technology/

Scroll to the bottom.






Re: [TMIC] JUDE

2009-01-23 Thread Alle111
I have tried calling Dave (the last time at 5:00 Ohio time) but still no 
answer and no answering maching but when I do get him I will let yoou know. 
Take 
care everyone.Ella
**Know Your Numbers: Get tips and tools to help you improve your 
credit score. 
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Re: [TMIC] Stem-cell research

2009-01-23 Thread Kevin Wolfthal


Patti,
If the trials are successful, and the pharmaceutical company can get the 
treatments
approved, I don't see why anyone with an SCI injury wouldn't be 
treated.  It will

of course have to prove profitable and we'll see how the insurance companies
deal with it.  But it's a hopeful start.

Kevin





Patricia Cooley wrote:

KEVIN:

IT SOUNDS WONDERFUL.  I JUST WONDER IF THEY WILL CONSIDER PEOPLE WITH TM AND
NOT JUST ACCIDENT VICTIMS.  ALSO, SINCE I AM ABLE TO GET AROUND WITH A
WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED.  IT WILL BE INTERESTING.
THANKS FOR LETTING US KNOW.

PATTI IN WISCONSIN

-Original Message-
From: Kevin Wolfthal [mailto:wolft...@optonline.net] 
Sent: Friday, January 23, 2009 3:52 PM

To: tmic-list@eskimo.com
Subject: Re: [TMIC] Stem-cell research



http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4







Kevin Wolfthal wrote:
  

http://www.whitehouse.gov/agenda/technology/

Scroll to the bottom.







  




Re: [TMIC] Stem-cell research

2009-01-23 Thread jrushton
I had the same concern, Patti..Jeanne 
 
---Original Message---
 
From: Kevin Wolfthal
Date: 1/23/2009 6:43:12 PM
To: Patricia Cooley;  tmic-list@eskimo.com
Subject: Re: [TMIC] Stem-cell research
 
Patti,
If the trials are successful, and the pharmaceutical company can get the
treatments
approved, I don't see why anyone with an SCI injury wouldn't be
treated.  It will
of course have to prove profitable and we'll see how the insurance companies
deal with it.  But it's a hopeful start.
 
Kevin
 
 
 
 
 
Patricia Cooley wrote:
 KEVIN:

 IT SOUNDS WONDERFUL.  I JUST WONDER IF THEY WILL CONSIDER PEOPLE WITH TM
AND
 NOT JUST ACCIDENT VICTIMS.  ALSO, SINCE I AM ABLE TO GET AROUND WITH A
 WALKER, WOULD PEOPLE LIKE ME EVEN BE CONSIDERED.  IT WILL BE INTERESTING.
 THANKS FOR LETTING US KNOW.

 PATTI IN WISCONSIN

 -Original Message-
 From: Kevin Wolfthal [mailto:wolft...@optonline.net]
 Sent: Friday, January 23, 2009 3:52 PM
 To: tmic-list@eskimo.com
 Subject: Re: [TMIC] Stem-cell research



 http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4







 Kevin Wolfthal wrote:

 http://www.whitehouse.gov/agenda/technology/

 Scroll to the bottom.







 
 
 floral.jpgb_floral.jpg

Re: [TMIC] Stem-cell research

2009-01-23 Thread Pieter and Heather
interesting Kevin,  Thanks for posting this.  I'm sure we will all be 
wondering and watching how these experiments turn out.  I'm sure there will 
be many more in the future.  Perhaps one day it will help all of us.


Heather in Calgary


- Original Message - 
From: Kevin Wolfthal wolft...@optonline.net

To: tmic-list@eskimo.com
Sent: Friday, January 23, 2009 2:52 PM
Subject: Re: [TMIC] Stem-cell research





http://news.yahoo.com/s/ap/20090123/ap_on_sc/sci_stem_cells_4







Kevin Wolfthal wrote:



http://www.whitehouse.gov/agenda/technology/

Scroll to the bottom.









[TMIC] Update on Kim

2009-01-23 Thread kimr1999







First I would like to thank Jenna for coming to the hospital to help me today (and the visit was great) 
Nero left and good news the paralysis and stinging in my arms and hands has nothing to do with my TM. The MRI’s they did last night found 3 herniated discs on my neck that is causing spinal cord depression causing my arms and hands to go numb. He called neurosurgeon to come see me tomorrow and let me know what my options will be. So far a friend that had the same this said the least evasive is to inject steroids directly into the disc to stop the bone on bone rub and release the compression on the spinal cord this is good news!!! So this explains why after receiving the first dose of IV steroids my arms and hand improved 90% within 5 hours. 
If it were TM related the damage can not be reversed! But the herniated disc can be repaired! So YIPPIE!!!

Down side right now is with all the steroids I have not slept at ALL since I go up Wed at 6:30 am, serious best I have done is a 20 minute nap today! They gave me morphine and Ambian sleep pills tonight so hoping I get some sleep tonight! I am starting to feel like a zombie going thru the motions, getting harder to focus with sleep deprivation.

Will post what Nero-surgeon says once I hear from them tomorrow

Again thanks for the one on one email I have gotten the concern and advice mean a lot to me
What a great second family we all have in each other! Note J

Note: to the Atlanta TM suport group if I get out of the hospital by Sunday in time for our meeting I will be there!!







[TMIC] Any news on Jude?

2009-01-23 Thread kimr1999





Any news on Jude?







Re: [TMIC] Update on Kim

2009-01-23 Thread Grace M.

  *Hi Kim,  *



  *Like Barbara, I feel odd telling you congratulations on the
 herniated discs, but I'm so relieved that it isn't a recurrent TM attack.
 Good luck sleeping tonight.  I'm always a mess while on IV SoluMedrol but
 the sleeping pills do knock me out.  *



  *Feel better soon!  *



  *Gracie*



Re: [TMIC] Any news on Jude?

2009-01-23 Thread Heyjude48458
 
 
Yes,  I have an update on  myself.  But first, thank
you all for the love and prayers  sent my way.  
I am sure I could feel the warmth  of all of your 
arms around me and the prayers  have worked, 
because I am now  home.
 
The doctors still do not know the  names of the 
bacteria that has invaded my  body.  They have 
sent cultures out to U of M in Ann  Arbor (A2), 
but no one can figure out what  kind of bacteria 
they are.  I now have several  new ones and all the
docs say is that the bacteria is  colonic in nature,
meaning they come from the colon,  but they have 
not been seen before so no one  knows how to treat 
them.  There is no problem  with sending me to 
Ann Arbor, but so far it has been  sufficient to 
send the labs, and I agree with  that.
 
I am just a tad septic, with an  attack of 
autonomicdysreflexia that caused  my blood 
pressure to plummet.  I was  talking to Gunny at 
the time, so it is his  fault!!!   LOL...  My home nurse
had just arrived so when she got  in the house, 
Gunny hung up, but he waited  online for me, not 
wanting to leave me alone.   The nurse took vitals 
and my blood pressure was 85/54  and she 
immediately called 911.  I  remember nothing after 
that, but woke up in the hospital  later on.
 
They didn't do a whole lot for me  in the hospital 
because the drugs they were giving  me were 
making me feel sick.  Each  time they tried a new 
med I would throw it back up at  them and so  they
quit that after a while.  The  wounds,
(pressure sores) are what are  infected and  now 
the bones in that vicinity are  dx'd as being 
diseased too, so treatment it very  difficult.  This 
time, before sending me home, they  took deep 
biopsies and lots of blood to send  to the various 
labs in the area, including  A2.
 
Umm, I have not had much  energy.  All blood 
levels are low, except for the  ones that are 
supposed to be low...those are  high!  
 
Well, folks, I am getting tired  and sleepy. So 
will go for now and catch you up  on the rest
later.
 
I love and appreciate you  all.
 
Jude,  
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