Re: [TMIC]

2009-06-14 Thread Janice
You two seem to be worse than I am!   I have found in the winter I choose 
lighter sweaters than before TM.   In the summer,
we keep the air conditioner pretty cool - around 71 with ceiling fans going 
too.  In the winter we keep the heat at around
65 during the day and 60 at nite.All our friends know to wear heavier 
clothing and grab an afghan when they come over.
I also can be doing basically nothing and all of a sudden I feel a heat coming 
out from within - hate it.  Hope this improves.
Janice
  - Original Message - 
  From: bradebi 
  To: transverse myelitis ; Janice ; kimr1...@bellsouth.net 
  Sent: Friday, June 12, 2009 9:45 PM
  Subject: Re: [TMIC]






    
Does you sweat burn your skin?...it drives me crazy
Debi



---Original Message---

From: kimr1...@bellsouth.net
Date: 6/12/2009 7:32:22 PM
To: bradebi;  transverse myelitis;  Janice
Subject: Re: [TMIC]

I am sitting here with the AC going, ceiling fan and two fans on me and 
sweating! feet feel like there on fire(when I put lotion on them it melts and 
turns to water) no kidding. banding is on right side rib cage to waist.
Kim
-- Original message from bradebi brad...@gmail.com: 
-- 





      
  Hi Janice
  I get very hot when it is only in the 70 or 80's  for no reason I 
can just be on the computer or watching TV and I will get real hot so much that 
I sweat a lot..(I soak my blouse) but I only sweat on my face neck and 
breasts..my lesion is at nipple level  T4  my  banding is where my bra 
snaps...so it feels like my bra is way to tight.
  In the cold weather I get more spastic and tight it hurts to bend 
knees and ankles. I still have the  banding in winter too...and if my husband 
puts the furnace up to high I will over heat...I love to go out in the snow 
with just what I have on and bear foot and watch all the steam come off me..its 
a riot...
  Debi
  TM spastic paraplegic T4 incomplete
  South Lake Tahoe Ca.






  From: Janice
  Date: 6/11/2009 6:41:35 PM
  To: transverse myelitis
  Subject: [TMIC]

  This is Janice,

  I have 2 questions:

  1. With hot weather coming, do any of you have a problem with all 
of a sudden being really hot?  I know some
  of you had a problem with the cold last winter, but does your 
body change in summer and you get hit with being hot instead
  of cold?I really have a problem with heat - especially with 
humidity.  I get hot, then weak.   Not good.

  2.  Several of you have mentioned the tight band around your 
body.  I am not sure this band is in the same place for
  everyone.Also, has there been any change in the band with 
those of you who have had TM for a long time?  


 
 
 

   
   
   
Spiral_notebook.jpg

[TMIC] Depends and Poise

2009-06-14 Thread JHarper33
My mother-in-law in an assisted living facility nearby uses  Depends briefs 
and Poise pads. They do add up even at the discount store. Does  anyone buy 
them in bulk somewhere or know of a place to get a good price on  them?
 
Thanks,
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
**Download the AOL Classifieds Toolbar for local deals at your 
fingertips. 
(http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)


[TMIC] Managing in winter

2009-06-14 Thread JHarper33
This may seem like an odd question here at the beginning of  the summer, 
but my husband and I were talking about job situations and long-term  
possibilities and the like, and he made the comment that he never considered  
moving 
up North where there was a lot of snow because of my  situation.
 
It's true that when we do have snow and ice, which isn't too  often here in 
SC, I pretty much am confined inside. I walk without a cane or  walker, but 
my balance and footing aren't sure enough that I could walk where it  is 
slippery.
 
Though I love him for taking that into account, I hate that he  is limited 
in that way.
 
How DO some of you manage in wintry weather? Does just  sprinkling rock 
salt on your driveway or front step help, or are there other  things you do to 
cope, or do you just stay inside when it's slippery  out?
 
Barbara H.
_http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) 
**Download the AOL Classifieds Toolbar for local deals at your 
fingertips. 
(http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)