Re: [TMIC] I met a TMer!!!!!
Kevin, we didn't spend the whole time talking about our symptoms etc, perhaps just how we cope daily with the situations that arise. Our husbands were with us and of course it was very helpful for them too. There were times when we actually talked about entirely unrelated tm topics but it always came back to tm. How are your beautiful canes coming along? hugs Gilly - Original Message - From: kevin weilacher To: Gillian Clark ; TM list Sent: Saturday, September 12, 2009 10:51 PM Subject: Re: [TMIC] I met a TMer! Gilly, that is wonderful...I know how cool it was for me when I met two other TMr's here locally for the first time. It was kind of goofy because the whole 2 hours or so of our conversation consisted of comparing symptoms and such but it was such a comfort I guess, knowing that there were others right there in front of me, that knew exactly what I had and was experiencing. It kind of gives you something of a special bond that you don't always experience with other friends Here's to your continued friendship with them... Take care, Kevin -- From: Gillian Clark mingalett...@activ8.net.au To: TM list tmic-list@eskimo.com Sent: Saturday, September 12, 2009 4:18:20 AM Subject: [TMIC] I met a TMer! G'day All, It's been such a long time since I've written to the list but I assure you, I've been reading and keeping up with you all. I was devastated to hear we have lost another member of our family. R.I.P. Rick. I've bought myself out of posting retirement today because something so special has happened! I have just said goodbye to my visitors. They are Allen and Andrea Southern. Andrea is a member of our list, a lurking member but a member none the less. After 8 years of tm I've never met another person in the flesh who has it. We had a lovely visit and I can't begin to describe how wonderful it was to have a real life conversation with another tmer. OK, I won't ramble anymore but I did so want to share with you all. hugs Gilly, the old girl from Australia.
Re: [TMIC] I met a TMer!!!!!
G'day Janice, I know what you mean about our list, they most certainly saved me and it's always wonderful to know you are all here. Having Andrea here in the flesh was just something else again. Also the fact that our residuals are just so similar was especially bonding. hugs Gilly - Original Message - From: Janice To: Gillian Clark ; TM list Sent: Saturday, September 12, 2009 11:25 PM Subject: Re: [TMIC] I met a TMer! That would be totally awesome to experience that. I felt a lot like you do now when I started on this website. It was wonderful to finally talk to others who had the same disease. I hope I experience a meeting with someone with TM too. Janice - Original Message - From: Gillian Clark To: TM list Sent: Saturday, September 12, 2009 3:18 AM Subject: [TMIC] I met a TMer! G'day All, It's been such a long time since I've written to the list but I assure you, I've been reading and keeping up with you all. I was devastated to hear we have lost another member of our family. R.I.P. Rick. I've bought myself out of posting retirement today because something so special has happened! I have just said goodbye to my visitors. They are Allen and Andrea Southern. Andrea is a member of our list, a lurking member but a member none the less. After 8 years of tm I've never met another person in the flesh who has it. We had a lovely visit and I can't begin to describe how wonderful it was to have a real life conversation with another tmer. OK, I won't ramble anymore but I did so want to share with you all. hugs Gilly, the old girl from Australia.
Re: [TMIC] I met a TMer!!!!!
That's very kind of you Jan :)), I just don't often to have something constructive to say these days. I think too maybe I'm a bit too unconventional in my approach to help many of the new people. Of course, I didn't really need to tell you that, did I? :)) hugs Gilly - Original Message - From: Jan Hargrove To: TM list ; Gillian Clark Sent: Sunday, September 13, 2009 12:40 AM Subject: Re: [TMIC] I met a TMer! G'Day to you, too! I'm so glad for you that you've met another tmer in 'real' life..but I'm asking you to please not go into retirement again and never speak up!! We miss you!! Hugs, janh --- On Sat, 9/12/09, Gillian Clark mingalett...@activ8.net.au wrote: G'day All, It's been such a long time since I've written to the list but I assure you, I've been reading and keeping up with you all. I was devastated to hear we have lost another member of our family. R.I.P. Rick. I've bought myself out of posting retirement today because something so special has happened! I have just said goodbye to my visitors. They are Allen and Andrea Southern. Andrea is a member of our list, a lurking member but a member none the less. After 8 years of tm I've never met another person in the flesh who has it. We had a lovely visit and I can't begin to describe how wonderful it was to have a real life conversation with another tmer. OK, I won't ramble anymore but I did so want to share with you all. hugs Gilly, the old girl from Australia.
Re: [TMIC] I met a TMer!!!!!
G'day Patti, What a thrill for you to meet some of my fave peeps :))!!! I was so sorry to hear of Jim's death, it's amazing how much it affects me. I would never have thought I could feel so much for people I had never met in the flesh. What a great family we are!!! hugs GIlly - Original Message - From: pjv1...@chartermi.net To: Gillian Clark ; TM list Sent: Sunday, September 13, 2009 10:32 AM Subject: Re: [TMIC] I met a TMer! It's exciting isn't it? I met Heather from Calgary after two years of emails and phone calls. I met Jude while she was sick and then got to watch her get better and I had the priviledge of meeting Carol and her precious Jim who just passed away as well as Lynne Meyers and two others at a Michigan meeting. Each time I sit with another TMer I leave feeling invigorated. We can moan and groan and laugh all at the same time and it's such fun! Patti - Michigan Gillian Clark mingalett...@activ8.net.au wrote: G'day All, It's been such a long time since I've written to the list but I assure you, I've been reading and keeping up with you all. I was devastated to hear we have lost another member of our family. R.I.P. Rick. I've bought myself out of posting retirement today because something so special has happened! I have just said goodbye to my visitors. They are Allen and Andrea Southern. Andrea is a member of our list, a lurking member but a member none the less. After 8 years of tm I've never met another person in the flesh who has it. We had a lovely visit and I can't begin to describe how wonderful it was to have a real life conversation with another tmer. OK, I won't ramble anymore but I did so want to share with you all. hugs Gilly, the old girl from Australia.
Fw: Re: [TMIC] need advice
I heard that there is plum juice in Dr. Pepper. Does that help? Be a Pepper, I'm a Pepper, Are you a Pepper too? Todd in CC, TX --- On Sat, 9/12/09, fr...@franksheldon.com fr...@franksheldon.com wrote: From: fr...@franksheldon.com fr...@franksheldon.com Subject: Re: [TMIC] need advice To: Linda limoga43...@yahoo.com, tmic-list@eskimo.com Date: Saturday, September 12, 2009, 4:17 PM I am scheduled to see our medical doctor next week, but thought maybe someone might have some ideas to help me till then. Linda, You missed my E-mail: Metamucil at least once a day. Follow the direction. H2O- Water at least a liter (Quart) every day. Coffee Tea don't count!! Mineral oil: One Tablespoonful every day, orally! Prunes one a day or every other day, orally. There is now a plum drink that may work just as well. I hope that helps F
Re: [TMIC] need advice
I'm a paraplegic and so management is critical for me. I found out that my bladder meds ( detrol la) may cause constipation as well as memory loss so I only use them for special occasions. When I was new to TM I took Metamucil for about a month and then I figured out to do it with diet. I am a vegetarian and lactose intolerant. I got rid of coffee and caffeine tea ( only drink herb infusions). I drink cranberry juice and grape juice ( I find orange too acid) and water from my Brita filter container. Raisins loosen, water washes. Your diet is critical. I have had TM for nearly 7 years now, and as embarrassing as it is to admit, my bowels and bladder are not getting better, in fact at times they are worse.I take Metamucil faithfully every morning and for some time that helped my bowels, but lately it is notI feel the urge and can not hold it in and have an accidentany suggestions or any good thoughts as what to do? I don't know whether to take the metamucil 2 times a day or add something else. I am on meds for my bladder and so far so good there. I am scheduled to see our medical doctor next week, but thought maybe someone might have some ideas to help me till then. Thanks.Linda in Ohio --
Re: Fw: Re: [TMIC] need advice
I heard that there is plum juice in Dr. Pepper. Does that help? Be a Pepper, I'm a Pepper, Are you a Pepper too? Todd in CC, TX I'm a pepper!! warm for breakfast with a rasher of bacon. three eggs sunny side, Grits with Jalepena and cheddar!!! pH
[TMIC] Update on Mike
Hi Everyone, We finally got Mike's schedule for radiation and chemo. Mike had his fist radiation treatment Thursday. The anticipation of the unknown was the most stressful part of the treatment, but the 20 minute session went relatively smooth. Eight consecutive weeks have been scheduled thus far and will overlap with chemo. Next Tuesday the 15th starts his first chemo treatment. The first appointment is going to last six hours starting at 9am..the next two consecutive days are scheduled at 2pm and last 2 to 3 hours. The crib board will be on hand for anyone that wants to take him on..he would love the company!!!. Both Mike and I are very please with the Oncology facility on 13th street. The doctors and support staff have been very accommodating and helpful in every possible way. We both know that the next few weeks are going to be very rough, but with the support of family, friends and a whole lot of prayers, Mike is going to gain strength through YOU..Keep the prayers going. I'll keep you posted, HUGS, Jill and Mike
Re: [TMIC] Looking for TMr's for support groups
Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass. From: kevin weilacher hwyfli...@yahoo.com To: tmic-list@eskimo.com Sent: Saturday, September 12, 2009 4:59:53 PM Subject: [TMIC] Looking for TMr's from N.E. Ohio area Who here on the list is from what is classified as the N.E. Ohio area. I have the 2007-2008 TMA directory and I'm sure that there have been some changes or updates. I'm looking at trying to start a NE Ohio TMA support group. I know there is an Ohio support group but I believe the closest area is Columbus. Honestly, that is a bit too far for me to drive for support meeting get togethers. I know Gunny is on here and I know about Ella in Elyriacan anyone help me out..? I think we could benefit from something like thisespecially in light of the recent posting from Gilly...where she said that she just recently met another TM'r. How many others are out there that would like to meet another TM'r and you might have someone in your back yard so to speak that you don't know about. Thanks, Kevin
Re: [TMIC] Looking for TMr's for support groups
...and I'm Laura from Edmonton, Alberta. :) On Sun, Sep 13, 2009 at 7:25 PM, Catherine camoa...@yahoo.com wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass.
Re: [TMIC] Looking for TMr's for support groups
Jill From Chicago --- On Sun, 9/13/09, Laura Beaudin laura.beau...@gmail.com wrote: From: Laura Beaudin laura.beau...@gmail.com Subject: Re: [TMIC] Looking for TMr's for support groups To: Catherine camoa...@yahoo.com Cc: kevin weilacher hwyfli...@yahoo.com, Transverse Mylitis Group tmic-list@eskimo.com Date: Sunday, September 13, 2009, 8:29 PM ...and I'm Laura from Edmonton, Alberta. :) On Sun, Sep 13, 2009 at 7:25 PM, Catherine camoa...@yahoo.com wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass.
Re: [TMIC] Looking for TMr's for support groups
There is a list of established support groups for various states and countries here: http://www.myelitis.org/support.htm#3 Barbara H. http://barbarah.wordpress,com On Sun, Sep 13, 2009 at 9:25 PM, Catherine camoa...@yahoo.com wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass. -- *From:* kevin weilacher hwyfli...@yahoo.com *To:* tmic-list@eskimo.com *Sent:* Saturday, September 12, 2009 4:59:53 PM *Subject:* [TMIC] Looking for TMr's from N.E. Ohio area Who here on the list is from what is classified as the N.E. Ohio area. I have the 2007-2008 TMA directory and I'm sure that there have been some changes or updates. I'm looking at trying to start a NE Ohio TMA support group. I know there is an Ohio support group but I believe the closest area is Columbus. Honestly, that is a bit too far for me to drive for support meeting get togethers. I know Gunny is on here and I know about Ella in Elyriacan anyone help me out..? I think we could benefit from something like thisespecially in light of the recent posting from Gilly...where she said that she just recently met another TM'r. How many others are out there that would like to meet another TM'r and you might have someone in your back yard so to speak that you don't know about. Thanks, Kevin
