Re: [TMIC] Sjogren's (Amended)
*Hi Linda, * ** *Sjogrens was one of the diseases considered whenever I was still in the diagnostic process, before they had received the results of my NMO IgG test. MS was not considered as a possibility at that time, the reason being that my paralysis and optic nerve involvement was bilateral, which is not typical for MS attacks. This also allowed them to quickly eliminate the possibility of stroke. Diseases considered included Sjogren's, Lupus, ADEM (Quickly eliminated because there was not yet any brain involvement.), Sarcoid, and Vasculitis. Once all of my clinical results were complete, including the NMO IgG, it was a done deal.* ** *As an aside, my neuro opth thinks that I have now developed Sjogrens in addition to NMO, though I had a negative SS-A, Ro, SS-B and La with no Rheumatic Factor. My eyes are so dry right now, that I have scratches on the cornea. Same deal going on with the mouth. I have to see her every six months for a complete workup due to NMO, so I'll no doubt find out more at that visit. * ** *Stay warm!* *Gracie * Grace, thanks for posting this Sjogrens site. I have to say, of all the info I have read, this is the ONLY place that has actually mentioned Transverse Myelitis - up to 1% with Sjogrens! My doctor explained it to me when I got TM, but I had no idea what he was talking about - still sitting there in a fog with a totally numb body. I kind of feel like the doctor explained it to me again today, except today I actually know what he was talking about! I don't know, maybe ignorance was bliss at that time... Regina, did you read the articles and were you a bit surprised? Linda - Original Message - *From:* Grace M. grace...@gmail.com *To:* regina...@sbcglobal.net *Cc:* tmic-list@eskimo.com *Sent:* Thursday, January 07, 2010 4:23 PM *Subject:* Fwd: [TMIC] Sjogren's (Amended) *Hi Regina, * ** *They've actually identified the autoimmune antibody that is a marker for Devic's NMO. Although one can have a concurrent diagnosis of NMO AND Sjogren's (Which is extremely rare.), I don't think that they are related with the exception that both are autoimmune diseases, at leat I have not yet read anything to that effect in the literature. * ** *No Regina, the optic damage that occurs in Devic's NMO is limited to the optic nerve and disk. It is much more destructive that the ON which is encountered in MS, and permanent blindness is a relatively common occurence. * ** *Did your doctor not explain to you that Sjogren's can affect parts of the body other than the eyes?* ** * Sjogren's Subtypes Primary Sjogren's Disease VS Sjogren's Syndrome Apr 24, 2006 http://www.suite101.com/daily.cfm/2006-04-24 Elaine Moorehttp://www.suite101.com/profile.cfm/daisyelaine This article describes the clinical and diagnostic differences between primary and secondary Sjogren's syndrome. Sjogren's disease is a chronic autoimmune disease that occurs as a localized syndrome primarily causing mouth and eye dryness (sicca syndrome) or as a systemic disease affecting multiple organs. Sjogren's is suspected of affecting about 2-3 million Americans, 90 percent of them women. Frequently, the condition remains unrecognized and untreated, and when treated, the average diagnosis is reported to take 3.5 years. Women in their fourth decade of life are most likely to be affected. The complaint most often listed at the time of diagnosis is mouth dryness. In Sjogren's syndrome, white blood cells known as lymphocytes invade the exocrine glands. The exocrine glands produce needed moisture for lubricating and bathing the body's organs. Continued at: http://autoimmunedisease.suite101.com/article.cfm/sjogrenssubtypes Grace *
[TMIC] Linda---More Resources/Research papers re: Sjogren's and TM.
*Hi Irish, * ** *I dug these out of my files for you. There's a lot of info re: Sjorgen's and TM. Hope they're helpful. If you want any more, let me know. I've got a ton of papers stashed away in this old computer. If you would like to research further, just search for Sjogren's and TM using boolean search. (And, not, or, but, near, or the + (and) and - (not) symbols. You'll pull up a lot more information that way.) * ** *XOXO* *Gracie* http://jnnp.bmj.com/content/77/6/780.extract http://www.myelitis.org/newsletters/journal-1-07.htm http://archneur.ama-assn.org/cgi/content/full/58/5/815 http://www.sjogrensworld.org/mandel.htm http://www.ingentaconnect.com/content/adis/dgs/2004/0064/0002/art1 http://emedicine.medscape.com/article/1066649-overview
[TMIC] sympom check question
I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
RE: [TMIC] symptom check question
Yes, I get electric shocks from my left armpit down to my fingers sometimes. I have isolated it to my ring finger - if I twist it or bang it, I get the shocks. Then it will go away for months (?) Bernie From: randy rankin [mailto:rj_ran...@yahoo.com] Sent: Friday, January 08, 2010 3:39 PM To: tmic-list@eskimo.com Cc: tmic-list@eskimo.com Subject: [TMIC] sympom check question I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] sympom check question
Yes. My lesion was at C4-c6. I sometimes get exactly that feeling when I reach with my right hand. It feels like I have grasped a live wire and makes me think twice about what I had just done. (Did I just stick a fork in an electrical outlet?) I do not have (LeHermittes -sp?) tingling when I bend chin to chest. However, I get a shock feeling, tingling, or loss of balance if I bend my neck backwards. I had lots of muscle spasms in my neck prior to TM. Patti - Michigan randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
[TMIC] Shampoo shower caps
Hello everyone (and happy new year). I was talking with Dan Montz (Pam's husband) and he wanted if I used them and asked if I'd pass the info to you. It does seem like a good thing. Have a good one...Ella In a message dated 1/7/2010 8:28:52 P.M. Eastern Standard Time, MontzMagic writes: TMIC GROUP ABOUT THEM--OK -HERE IS THE INFO ---SAGE PRODUCTS INC--1-800-323-2220---3909 THREE OAKS ROAD--CARY OL. 60013---REORDER IS NUMBER IS #7909 COMFORT SHAMPOO CAP--ALL-IN-ONE--RINSE FREE SHAMPOO ANS CONDITIONER -1 CAP PER BAG --- I THINK PAM WOULD LIKE FOR THEM TO KNOW ABOUT HIS IF THEY DO NOT ALREADY??
[TMIC] cold feet, good socks
Hi Everyone, I seems like a couple of years ago someone wrote about some warm socks that really helped. At the time I didn't live in really cold weather, but have since moved and find the cold not only affects how my feet feel, but the spacticity and my ability to function. I've been looking at some NuWool toe socks by injinji on Amazon. But they're about $16 + shipping and thought it might be worth it to ask for some feedback first, just in case someone has some better ideas. I've got a couple of pairs of toe socks that go to my knees and they make a difference in how I feel. I bought them when I lived in warmer weather, but haven't been able to find them now that I live in cold! I find short ones that only go to my calves, but all the way up to my knees is better. Any Suggestions? The toe socks help because the tight muscles all the way down my leg, on my right side (where the original paralysis was) have caused my 3 middle right toes to curve under like hammer toes and the extra fabric around each individual toe helps to keep them a little straighter, as well as warmer. Does anyone else have this problem? Sally Banking Click here to find the perfect banking opportunity! http://thirdpartyoffers.netzero.net/TGL2241/c?cp=FmBxxEOvMyuPe_ItpN2zsQAAJ1ErWBvm7c97AU15639A7UVuAAYAAADNAAAXeAA=
Re: [TMIC] sympom check question
24/7 since March 1 2007 from the chest down and google Lhermittes sign, I have that too. Mindy the Artisan On Jan 8, 2010, at 3:39 PM, randy rankin wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
