Re: [TMIC] overdoing it
the thing that frustrates me the most is that we have experienced the damned if you do and damned if you don't kind of suffering. pardon my expression. being a hill-billy land owner i was use to working hard and enjoying the fruit of it,so to speak. now I feel like I am only a ,,,uhbeats me. we are all tired. I think. I thunk. I thought. --- On Sat, 9/4/10, Barbara Alma balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.com Subject: [TMIC] overdoing it To: malugss...@gmail.com, tmic-list@eskimo.com Date: Saturday, September 4, 2010, 12:07 AM Hugs, Barbara A in Auburn CA Dalton, Don't feel badly about it, it happens to all of us, and we do it over and over again. Sometimes it isn't even what you did today or yesterday, but the total of a few days in a row. Your body just doesn't behave as we want it to ~ not your fault or any one of ours, just the way it is. I cannot tell you how many times I've read on here about any one of us writing in how we've done ourselves in and had to go to bed for a day or several days to get over it. I wish that I could tell you it'll never happen again, but it will. You will eventually get used to it happening and know what to do to make yourself feel better. That's the best advice I can give. However, I would totally enjoy the strong days if you can afford to take it easy afterward. Life is meant to be lived and enjoyed to the best that you can. Go for it when you can. Take care and a big hug to you, Barbara A -Original Message- From: Dalton Garis malugss...@gmail.com To: Barbara Alma balmat...@aol.com; tmic-list@eskimo.com Sent: Thu, Sep 2, 2010 11:54 pm Subject: Re: [TMIC] Must report setback You’re absolutely right. That is exactly what I did, and not for the first time. I must keep reminding myself that current stamina is illusory and an unreliable measure of what pertains over a week or longer. I have to take it easy on strong days. Thanks! Dalton From: Barbara Alma balmat...@aol.com Date: Fri, 03 Sep 2010 00:55:27 -0400 To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback Hi Dalton, I don't know if anyone else has asked this or not, but could you have overdone it? Most of us know that if we push ourselves too much it seems to look like a relapse and takes a bit to get over it. It can take a day to several days till we are back to what is the new normal for us. I've had TM for 11 years (I thought it was 12 until I did the math recently) and I continue to overdo it on a regular basis. I've been trying to get some things done around the house and have been focused on that, not on myself. I really did myself in 3 times in the past 2 weeks. The mind/body connection isn't really strong with me lately. I'm not saying that this is what is happening to you, and of course, keep your doctor's appointment. But, it's definately something to keep in mind. If not for now, but also in the future, our bodies ain't what they use to be! It's a shame, but true! Hugs, Barbara A in Auburn CA -Original Message- From: Dalton Garis malugss...@gmail.com To: Janice Nichols jan...@centurytel.net; Jan Hargrove jmh1...@sbcglobal.net; jack...@att.blackberry.net; TMIC tmic-list@eskimo.com Sent: Wed, Sep 1, 2010 9:09 pm Subject: Re: [TMIC] Must report setback I have an appointment in a few days. I am better today. Don’t know what happened. Totally weak. Got better as the day went by and I had to work through it, moving and resting, moving and resting. Today I am much better. Thanks! Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: Janice Nichols jan...@centurytel.net Date: Wed, 1 Sep 2010 14:22:36 -0500 To: Dalton Garis malugss...@gmail.com, Jan Hargrove jmh1...@sbcglobal.net, jack...@att.blackberry.net, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback I am really sorry to hear this. Have you contacted your doctor - if so, what does he say about it? Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Wednesday, September 01, 2010 1:13 AM To: Janice Nichols mailto:jan...@centurytel.net ; Jan Hargrove mailto:jmh1...@sbcglobal.net ; jack...@att.blackberry.net ; TMIC mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback Friends; Today awoke extremely weak, and out of breath with the least expenditure of effort. By 10:00 had lost a lot of muscle coordination and all strength. Just went from sitting in one chair to another. Sweating profusely. But still no seizures. Dalton Garis
Fw: [TMIC] overdoing it
However, I would totally enjoy the strong days if you can afford to take it easy afterward. The only thing I would add to this, if you know that you're going to have a BIG day, try to plan to rest the day before if you need to, also rest the day after. Take one day at a TIME, Todd in CC, TX --- On Fri, 9/3/10, Barbara Alma balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.com Subject: [TMIC] overdoing it To: malugss...@gmail.com, tmic-list@eskimo.com Date: Friday, September 3, 2010, 11:07 PM Hugs, Barbara A in Auburn CA Dalton, Don't feel badly about it, it happens to all of us, and we do it over and over again. Sometimes it isn't even what you did today or yesterday, but the total of a few days in a row. Your body just doesn't behave as we want it to ~ not your fault or any one of ours, just the way it is. I cannot tell you how many times I've read on here about any one of us writing in how we've done ourselves in and had to go to bed for a day or several days to get over it. I wish that I could tell you it'll never happen again, but it will. You will eventually get used to it happening and know what to do to make yourself feel better. That's the best advice I can give. However, I would totally enjoy the strong days if you can afford to take it easy afterward. Life is meant to be lived and enjoyed to the best that you can. Go for it when you can. Take care and a big hug to you, Barbara A -Original Message- From: Dalton Garis malugss...@gmail.com To: Barbara Alma balmat...@aol.com; tmic-list@eskimo.com Sent: Thu, Sep 2, 2010 11:54 pm Subject: Re: [TMIC] Must report setback You’re absolutely right. That is exactly what I did, and not for the first time. I must keep reminding myself that current stamina is illusory and an unreliable measure of what pertains over a week or longer. I have to take it easy on strong days. Thanks! Dalton From: Barbara Alma balmat...@aol.com Date: Fri, 03 Sep 2010 00:55:27 -0400 To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback Hi Dalton, I don't know if anyone else has asked this or not, but could you have overdone it? Most of us know that if we push ourselves too much it seems to look like a relapse and takes a bit to get over it. It can take a day to several days till we are back to what is the new normal for us. I've had TM for 11 years (I thought it was 12 until I did the math recently) and I continue to overdo it on a regular basis. I've been trying to get some things done around the house and have been focused on that, not on myself. I really did myself in 3 times in the past 2 weeks. The mind/body connection isn't really strong with me lately. I'm not saying that this is what is happening to you, and of course, keep your doctor's appointment. But, it's definately something to keep in mind. If not for now, but also in the future, our bodies ain't what they use to be! It's a shame, but true! Hugs, Barbara A in Auburn CA -Original Message- From: Dalton Garis malugss...@gmail.com To: Janice Nichols jan...@centurytel.net; Jan Hargrove jmh1...@sbcglobal.net; jack...@att.blackberry.net; TMIC tmic-list@eskimo.com Sent: Wed, Sep 1, 2010 9:09 pm Subject: Re: [TMIC] Must report setback I have an appointment in a few days. I am better today. Don’t know what happened. Totally weak. Got better as the day went by and I had to work through it, moving and resting, moving and resting. Today I am much better. Thanks! Dalton Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: Janice Nichols jan...@centurytel.net Date: Wed, 1 Sep 2010 14:22:36 -0500 To: Dalton Garis malugss...@gmail.com, Jan Hargrove jmh1...@sbcglobal.net, jack...@att.blackberry.net, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback I am really sorry to hear this. Have you contacted your doctor - if so, what does he say about it? Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Wednesday, September 01, 2010 1:13 AM To: Janice Nichols mailto:jan...@centurytel.net ; Jan Hargrove mailto:jmh1...@sbcglobal.net ; jack...@att.blackberry.net ; TMIC mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Must report setback Friends; Today awoke extremely weak, and out of breath with the least expenditure of effort. By 10:00 had lost a lot of muscle coordination and all strength. Just went from sitting in one chair to another. Sweating profusely. But still no seizures. Dalton Garis
Re: [TMIC] Pain Pump
Cindy, no, I'm not talking about the meds versus one another, I'm talking about using the same pump for the pain meds instead of baclofen. I couldn't imagine having two pumps. That's a lot of hardware in the body. Twice the chance for infections. Yes, I agree with you, this is some life we live. So many changes to the body, choices to choose from, and decisions to make Have a Blessed Day, Naomi -Original Message- From: Cindy McLeroy cindymcle...@socal.rr.com To: LadyNotes ladyno...@aol.com Sent: Mon, Aug 30, 2010 4:17 pm Subject: Re: [TMIC] Pain Pump Hi, are you talking about the baclofen meds vs pain meds? I don't have either one, but thought your question interesting. I had a friend that I believe had 2 pumps, one for each. He ended up removing them both because of complications. Would the same pump work for pain meds? This is some life we lead sometimes, isn't it. Best of luck with your decision. Know it will be a difficult one. Cindy McLeroy - Original Message - From: ladyno...@aol.com To: quad-l...@eskimo.com ; tmic-list@eskimo.com Sent: Sunday, August 29, 2010 11:02 PM Subject: [TMIC] Pain Pump I had a baclofen pump removed last September 11, due to complications with it. At the time of removal, I was told that I could not have it put back in. But what I did not know at the time, was that I could get pain medicine put directly into the pump also. Now I'm considering having the pump put back in just for the pain medicine. My question is, has anyone ever had the pump removed and reinstalled? I would normally be concerned about them fooling around with my spinal cord, but I'm already a quadriplegic, completely paralyzed on the right side and minimal, nonfunctional, use on the left side. My only concern would be that they would something affect my brain. Naomi.
Re: [TMIC] Pain Pump
Thank you Todd, for the information and the prayers Have a Blessed Day, Naomi -Original Message- From: Todd Tarno toddtm2...@sbcglobal.net To: LadyNotes ladyno...@aol.com Sent: Mon, Aug 30, 2010 2:33 pm Subject: Fw: [TMIC] Pain Pump Hey Naomi, They should be able to replace the pump, if there isn't too much scare tissue to but it back in with pain medication. Sorry to hear that you need it. Good Luck, and you will be praying for you, Todd in CC, TX --- On Mon, 8/30/10, ladyno...@aol.com ladyno...@aol.com wrote: From: ladyno...@aol.com ladyno...@aol.com Subject: [TMIC] Pain Pump To: quad-l...@eskimo.com, tmic-list@eskimo.com Date: Monday, August 30, 2010, 1:02 AM I had a baclofen pump removed last September 11, due to complications with it. At the time of removal, I was told that I could not have it put back in. But what I did not know at the time, was that I could get pain medicine put directly into the pump also. Now I'm considering having the pump put back in just for the pain medicine. My question is, has anyone ever had the pump removed and reinstalled? I would normally be concerned about them fooling around with my spinal cord, but I'm already a quadriplegic, completely paralyzed on the right side and minimal, nonfunctional, use on the left side. My only concern would be that they would something affect my brain. Naomi.
[TMIC] Fatigue/Cycle
If I can stay asleep until 11:30 am and not get up until 1, I am up until 4 am asleep by 5a.m. -- a 17 hour day -- and feel rested. If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it takes time) I am exhausted by 4 p.m. in bed by 10 p.m. and unable to fall asleep until 2 am and exhausted when i have to wake up at 8 am -- a 12 hour day This may be apropos of nada, but I wonder if others find that recasting/reshaping their sleep/wake cycles, grants more energy, buys more time. --
Re: [TMIC] overdoing it
Hi, all, I find that taking 4 hours (Noon to 4:pm) to relax, meditate, perhaps to dream, helps rejuvenate my body and mind. I use an old Barkalounger that elevates my legs, lowers my heart and brain. I also have told everyone that this is my time, no phone calls, etc. I know this helps, if it doesn't work for you, you are not relaxing enough. Frank
Re: [TMIC] overdoing it
Hey, I am slowly adapting to the constant pain and all of the other sequelae of this affliction. I am slowly moving into my brain, leaving my body- I am living in my mind. My body is becoming just some sort of biological device in which I exist. The pain is associated with, connected to, this biological vessel, and so is less important to me. My two cents Frank
Re: [TMIC] changes
Hi Barbara, Great information you gave Kevin. You suggested group therapy and that you had done it yourself. Are you talking about for depression? If so I can see how that would be very beneficial to physically be with others who share the same or similar depression issues. Is this what you meant and if so how did you get involved in a group therapy? Sorry if this is obvious to everyone else except me - I just haven't heard of it. Thanks Linda - Original Message - From: Barbara Almamailto:balmat...@aol.com To: wolft...@optonline.netmailto:wolft...@optonline.net ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Thursday, September 02, 2010 10:34 PM Subject: Re: [TMIC] changes Hello Kevin, How have you been? It looks like you are finally getting some services and some medications. Looks like you are on the right track. I'm so thrilled to hear that you are getting physical therapy and the anti-depression meds. Who knows how much better you'd be if you would have gotten this long ago, but at least you are getting them now. It's hard work, but I hope that you will see some reward from the therapy. If you can get strong enough to get out again, a group therapy may be a good situation for you. I did that for quite some time prior to moving here and it helped me so much with my depression. I should do it again, as I find myself slipping every now and then, like several times a year, and not pulling myself out too easily. It's hard to start, but once you do, you'll find that you don't want to miss it. I found that I felt that I was helping others and in turn it felt like I was helping myself. Very much like the TMIC, but you get to do it in person, so you get that human contact that is necessary for us to thrive. Hugs, Barbara A in Auburn CA -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Wed, Sep 1, 2010 11:55 am Subject: [TMIC] changes Hi Friends, Well, we're having another heatwave here in the northeast (CT), after almost winter weather a few weeks ago, weird. I've been trying some new things to try to feel 'human' again, and pull myself out of my depression. I started on the anti-depressant Lexapro about 3 weeks ago. No noticeable change yet, but I know it can take several weeks. At least no bad side effects like I had with Lyrica and Cymbalta. I'm also getting physical therapy at home three days a week, which is kicking my butt, (fatigue, pain), and will be starting occupational therapy for my hands. Last week, my BP was low, and still is in the 100/60 area. Before that it was 120/70. I am treated for high BP and have a call in to my doctor about this. Maybe it has to do with PT after being sedentary for so long? Anyway, I'm trying to be proactive about things..not easy for me. Wishing you all the best. Kevin
Re: [TMIC] Fatigue/Cycle
Yep, Akua, can totally relate to everything you said. Since TM, I have had such trouble with my sleep, or lack thereof, that I find myself crying at the drop of a hat - Sleeping pills don't work for me. However, many people have told me about their positive experience with Melatonin. Out of sheer desperation, I talked to my pharmacist about it. He reviewed my meds and told me it would be ok to take. After 3 days I actually slept 9 hours, then 8 hours and it's been pretty consistent since. The most I was sleeping before was 3 or 4 hours, wake up and not get back to sleep for another 2 hours and only for an hour if I was lucky - and then it wasn't even a restful sleep. I have to take a nap every day. Basically no quality of life because I was so so tired all the time from not sleeping. I'm all set to go to the Symposium in Dallas and I am already worried about the long air travel, the long days at the Symposium itself and how in the world I will be able to handle all of it. Linda - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, September 04, 2010 1:46 PM Subject: [TMIC] Fatigue/Cycle If I can stay asleep until 11:30 am and not get up until 1, I am up until 4 am asleep by 5a.m. -- a 17 hour day -- and feel rested. If I have to be up at 8a.m. and dressed by 10 a.m. (I'm paralyzed, it takes time) I am exhausted by 4 p.m. in bed by 10 p.m. and unable to fall asleep until 2 am and exhausted when i have to wake up at 8 am -- a 12 hour day This may be apropos of nada, but I wonder if others find that recasting/reshaping their sleep/wake cycles, grants more energy, buys more time. --
Re: [TMIC] Fatigue/Cycle
O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua --
Re: [TMIC] Fatigue/Cycle
I hope this information might help others who are having sleep disturbances. If anybody has or is taking Melatonin maybe you could give us your input. Yes, I'm very excited to be in the presence of those who understand. Will be learning and having fun at the same time. Sounds pretty good to me. - Original Message - From: Akuamailto:a...@artfarm.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Saturday, September 04, 2010 7:32 PM Subject: Re: [TMIC] Fatigue/Cycle O Linda! Glad you've found a solution! I'm adding melatonin to my list to investigate. Thanks for sharing that! And don't worry worry is a waste of energy. Deep breathe, envision all the fun you will have in learning more, hearing more and being in the presence of those who understand! I so wish i could sit in such caring company! I look forward to hearing about the new insights and new developments. Akua --
