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RE: [TMIC] November Birthdays
I wish all the November babies a very happy birthday, and hope you all have a wonderful Thanksgiving. Patti - Wisconsin From: Barbara H. [mailto:barbara...@gmail.com] Sent: Sunday, October 31, 2010 10:34 PM To: TMIC Subject: [TMIC] November Birthdays Happy Birthday to the November kids! Please send any additions or corrections to tmic-l...@eskimo.com. 11-01 Ella (elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.net) 11-8 Diane (mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.net) 11-17 Becky opi...@bellsouth.net 11/18 Drema (dho.d...@comcast.net) 11/20 Cossy (cos...@yahoo.com) 11-21 Pearl Bernocchi (bernoc...@aol.com) 11/22 Judy Hoops (heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.net)
[TMIC] Happy Birthday
Happy Birthday to all November TM'ers. Candy K.
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[TMIC] Hello all, about me
Hello John; In answer to your question, I was diagnosed in 1992 with pretty good recovery except a straight catheter and extreme fatigue with any viral infection. A few years ago I started getting weaker. In 2000 I had trouble with BIH from the high protein in my spinal fluid. Now all of the sudden I'm weak as a kitten and can hardly get around. The initial hit was between my shoulder blades. My arms weren't effected at first, but they now are. I've continued to work with intermittant leave until last August. This they call Latent TM. I was told in the beginning, once I got well, it would probably stay away. I still have the feeling that there is a fist gripping between my shoulder blades frequently, but the weakness is worse than it's ever been. I'm barely walking, but I am walking. I fall alot. Since 1992 some doctors have learned about tm but many I've used have no idea. I was actually laughed at once for the burning sensation. I said give me a felt marker. I'll mark where it burns, and you will find a dermatone diagram standing in front of you. My biggest issue now is how to adjust to disability. I still have a mortgage over my head. I am a nurse who was working 12 hour shifts on her feet. My only problem was young nurses making fun when a foot dragged or I seemed to be tiring out. Today, I barely make it to 2 in the afternoon before it hurts to hold my head up. PT kills me. The tiniest exercizes and I can't do anything for 2 days without pain. Somehow this doesn't feel latent to me. I need all the advice I can get, especially on disability issues and lifestyle transitions.
Re: FW: [TMIC] burning spine
does anyone know when TM was first diagnosed--how long it has been around? On Sun, Oct 31, 2010 at 12:08 PM, PAMELA S subers...@msn.com wrote: -- From: subers...@msn.com To: jcs...@yahoo.com Subject: RE: [TMIC] burning spine Date: Sun, 31 Oct 2010 15:06:57 -0700 Hello John; I am new to this site, but I feel the burning. I also feel it around my rib cage along dermatones. As a result, when I fist had the transverse myelitis, my doctors thought I was breaking out with shingles. But, I never got the shingle sores. After it quit burning it itched like crazy. I've had so many doctors tell me they didn't know what this was until recently. So I thought maybe it wasn't that common. Date: Sat, 30 Oct 2010 15:50:38 -0700 From: jcs...@yahoo.com To: tmic-list@eskimo.com Subject: [TMIC] burning spine anybody ever feel a burning sensation in their spine? we have talked about the legs and feet and things but this burning in my spine may be the muscle at the spine but it sure feels like it is in it. sometime i feel the sensation you felt when they done the spinal tap. sickening.
Re: [TMIC] Hello all, about me
I hate that part about the mortgage. im in the same boat. the most i can draw from disability is @ 1400. thats before the medicaid insurance is taken out. i understand thats @ 100 per month. i signed that paper for disability but it will be 5b months before i get anything from it. trying to work a little meanwhile. totally understand you not being able to stay on your feet. my boss asks me a lot John when did you quit drinking? my answer is always am i supposed to? of course we are both joking. others have watched me and asked someone later was I drunk or what? if i get a small accomplishment done i feel like i have really done something. my sis-n-law is a nurse and i have several friends who are nurses and they seam to understand somewhat of what i am going through,they work on a neurological floor at the hospital. My Family Dr told me TM was somethng you see in medical school but never really expect to actually deal with it so it is overlooked. She told me since i seam to have more information on it than she did that if i wanted to do any treatment other than what we were doing to just name it and we would try it. nice of her but being the redneck that i am thought it was rather lame. you should get some good feedback in this list. just be patient and dont read any negative emmotion into anything,,rememberwe are all or most all on some pretty good medication. did i have the microphone turned on when i said that! OMG! welcome John from WV --- On Mon, 11/1/10, PAMELA S subers...@msn.com wrote: From: PAMELA S subers...@msn.com Subject: [TMIC] Hello all, about me To: TMC Group tmic-list@eskimo.com Date: Monday, November 1, 2010, 2:50 PM Hello John; In answer to your question, I was diagnosed in 1992 with pretty good recovery except a straight catheter and extreme fatigue with any viral infection. A few years ago I started getting weaker. In 2000 I had trouble with BIH from the high protein in my spinal fluid. Now all of the sudden I'm weak as a kitten and can hardly get around. The initial hit was between my shoulder blades. My arms weren't effected at first, but they now are. I've continued to work with intermittant leave until last August. This they call Latent TM. I was told in the beginning, once I got well, it would probably stay away. I still have the feeling that there is a fist gripping between my shoulder blades frequently, but the weakness is worse than it's ever been. I'm barely walking, but I am walking. I fall alot. Since 1992 some doctors have learned about tm but many I've used have no idea. I was actually laughed at once for the burning sensation. I said give me a felt marker. I'll mark where it burns, and you will find a dermatone diagram standing in front of you. My biggest issue now is how to adjust to disability. I still have a mortgage over my head. I am a nurse who was working 12 hour shifts on her feet. My only problem was young nurses making fun when a foot dragged or I seemed to be tiring out. Today, I barely make it to 2 in the afternoon before it hurts to hold my head up. PT kills me. The tiniest exercizes and I can't do anything for 2 days without pain. Somehow this doesn't feel latent to me. I need all the advice I can get, especially on disability issues and lifestyle transitions.
[TMIC] Nov. birthdays
Happy Birthday to all those born in November! Cheryl in Easthampton,MA.
[TMIC] HAPPY November Birthday
Happy Birthday to the November kids! --
[TMIC] UNSUBSCRIBE
[TMIC] Lesions
I have a question for those of you who were originally diagnosed with TM and having lesions from T7-T10 on one side of your spine. 1. Did you lose feeling just on one side from your waist down? 2. After a couple years or more, did you start having trouble with your opposite leg? (Tingling and tightness) I would appreciate hearing back from you. Carol from Addison, IL
Re: [TMIC] November Birthdays
Birthday Wishes to all of our November Friends!! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com Sent: Sunday, October 31, 2010 9:34 PM Subject: [TMIC] November Birthdays Happy Birthday to the November kids! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 11-01 Ella (elbanks...@aol.commailto:elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.commailto:jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.commailto:gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.netmailto:mag...@telus.net) 11-8 Diane (mon...@sympatico.camailto:mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.netmailto:chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.netmailto:wolft...@optonline.net) 11-17 Becky opi...@bellsouth.netmailto:opi...@bellsouth.net 11/18 Drema (dho.d...@comcast.netmailto:dho.d...@comcast.net) 11/20 Cossy (cos...@yahoo.commailto:cos...@yahoo.com) 11-21 Pearl Bernocchi (bernoc...@aol.commailto:bernoc...@aol.com) 11/22 Judy Hoops (heyjude48...@aol.commailto:heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.commailto:bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.commailto:rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.netmailto:fla...@webtv.net)
