Re: [TMIC] January Birthdays
HAPPY BIRTHDAY TO OUR JANUARY FRIENDS!! - Original Message - From: Barbara H.mailto:barbara...@gmail.com To: TMICmailto:tmic-list@eskimo.com ; jharpe...@aol.commailto:jharpe...@aol.com Sent: Friday, December 31, 2010 11:41 PM Subject: [TMIC] January Birthdays Happy Birthday and Best wishes for the New Year! Please send any additions or corrections to tmic-list@eskimo.commailto:tmic-list@eskimo.com. 1- 7 Lauren (sugal...@adelphia.netmailto:sugal...@adelphia.net) 1/8 Nancy Williams (willj...@aol.commailto:willj...@aol.com) 1-8 Sandi (sam...@fidmail.commailto:sam...@fidmail.com) 1/9 Julienne (julesin...@aol.commailto:julesin...@aol.com) 1/13 Debi (brade...@hotmail.commailto:brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.commailto:jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nzmailto:k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.netmailto:xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.commailto:snow121...@hotmail.com 1/23 Grace (grace...@gmail.commailto:grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.commailto:w2sm...@aol.com) 1-28 Holly (r...@aol.commailto:r...@aol.com) 1-28 Sally (thenavigato...@aol.commailto:thenavigato...@aol.com) Emoticon74.gif
Re: [TMIC] Age
Initially paraplegic, then improved to walking with fore-arm crutches. Tail not involved. Bladder a problem; sphincter will not release, so I've had a Foley for years, changed about every two weeks. Alton On Dec 27, 2009, at 11:17 PM, Janice Nichols wrote: S, it sounds like no TM, but stroke that manifested itself in the spinal cord.Do you or did you have the paralyzation problems that we TM'ers have? Also, the bladder and bowel problems prevalent with TM? If so, is it only because the clot was in the cord rather than anywhere else?Sorry to be dense, but don't quite understand. Janice -- From: Alton Ryder a-ry...@comcast.net Sent: Sunday, December 27, 2009 5:10 PM To: tmic list tmic-list@eskimo.com Subject: Re: [TMIC] Age is spinal stroke what transverse myelitis is? a myelitis is an inflammation of a nerve bundle, in our case the spinal cord; the infection manifests by white cells in the fluid around the cord (I had none, so I didn't really have TM.) transverse means across the thickness of the cord spinal strokes are failures in blood flow in the arteries serving the spinal cord, usually one of the two arteries that run parallel to the cord, in my case one of the tiny arterial capillaries inside the cord at T9-T10 my cholesterol level was very high then (1997,) and I had been riding as a passenger all day I was lucky; the clot could have lodged in my brain with consequences not good. Alton, currently 75 with very low bad cholesterol, high good stuff, and expecting at least another decade of a good life
[TMIC] Looking for info
Hey everyone...I need some help. Does anyone remember where I can find the info on the embryonic stem cell research that is going on that basically outlines the fact that it isn't killing any babies? I'm sure I read something not that long ago and possibly it was something that Dr. Kerr wrote...or even did an interview on...I just don't remember..(thanks TM) and I can't find it. I need to find this info for someone that is preparing a presentation to a group of people. Kevin Weilacher N.E. Ohio (Canton)
Re: [TMIC] Age
i was fortunate with the bowel/bladder problems. not like i dont have areas there that is not touched but it is controllable. i have sensations that are not normal ,it could have been different in that the nerves could have really messed me up in that area. it is not unusual though when other things in the neurological arena cause the same disfunctions nerves are nerves so one could say that when things go wrong, what we have here is a lack of communication we have a body that is wonderfully made when it works right. --- On Sun, 1/2/11, Alton Ryder a-ry...@comcast.net wrote: From: Alton Ryder a-ry...@comcast.net Subject: Re: [TMIC] Age To: Janice Nichols jan...@centurytel.net Cc: tmic list tmic-list@eskimo.com Date: Sunday, January 2, 2011, 11:02 AM Initially paraplegic, then improved to walking with fore-arm crutches. Tail not involved. Bladder a problem; sphincter will not release, so I've had a Foley for years, changed about every two weeks. Alton On Dec 27, 2009, at 11:17 PM, Janice Nichols wrote: S, it sounds like no TM, but stroke that manifested itself in the spinal cord. Do you or did you have the paralyzation problems that we TM'ers have? Also, the bladder and bowel problems prevalent with TM? If so, is it only because the clot was in the cord rather than anywhere else? Sorry to be dense, but don't quite understand. Janice -- From: Alton Ryder a-ry...@comcast.net Sent: Sunday, December 27, 2009 5:10 PM To: tmic list tmic-list@eskimo.com Subject: Re: [TMIC] Age is spinal stroke what transverse myelitis is? a myelitis is an inflammation of a nerve bundle, in our case the spinal cord; the infection manifests by white cells in the fluid around the cord (I had none, so I didn't really have TM.) transverse means across the thickness of the cord spinal strokes are failures in blood flow in the arteries serving the spinal cord, usually one of the two arteries that run parallel to the cord, in my case one of the tiny arterial capillaries inside the cord at T9-T10 my cholesterol level was very high then (1997,) and I had been riding as a passenger all day I was lucky; the clot could have lodged in my brain with consequences not good. Alton, currently 75 with very low bad cholesterol, high good stuff, and expecting at least another decade of a good life
RE: [TMIC] A Bad Fall
i do experience the inability to keep my balance over the least of things. step on some little something that the grands left out and the tree may come down! i think its more in my head than in my legs lack of communication cuts in to the no-brain barrier --- On Sat, 1/1/11, Patricia Cooley patticoole...@gmail.com wrote: From: Patricia Cooley patticoole...@gmail.com Subject: RE: [TMIC] A Bad Fall To: 'Janice Nichols' jan...@centurytel.net, 'Todd Tarno' toddtm2...@sbcglobal.net, 'TMIC' tmic-list@eskimo.com Date: Saturday, January 1, 2011, 3:33 PM Yes I do use a cane when I go out, but in the house I get along without one. Each time I fell, it was through stupidity. Once I stepped on my shoe lace and went down. All I got were rug burns on my knees. It has been a long time since then and I am much more careful. Patti From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Saturday, January 01, 2011 1:20 PM To: Patricia Cooley; 'Todd Tarno'; 'TMIC' Subject: Re: [TMIC] A Bad Fall Good Grief, Patti!! You better stop falling – next one could really be bad. Do you use a cane? Janice From: Patricia Cooley Sent: Friday, December 31, 2010 2:54 PM To: 'Todd Tarno' ; 'TMIC' Subject: RE: RE: [TMIC] A Bad Fall Todd I did the same thing about 6 weeks after I got home from the hospital. I was at the computer paying some bills. When I finished, I got up to go to the bathroom and completely forgot that I couldn’t walk. Needless to say, I landed flat on my face. Fortunately, I didn’t hurt myself, but I thought okay how do I get up since my hubby was outside cutting the grass. I was lucky that my P.T. therapist showed me what to do in case I would fall. As I was going down all I could think was oh s__t! Well, what she showed me worked. I have gone down at least 2 more times, but I have been lucky that all I bruised was my self esteem. We all must remember to be very careful. I hope you didn’t hurt yourself. Patti - Wisconsin From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Friday, December 31, 2010 2:09 PM To: TMIC Subject: Fw: RE: [TMIC] A Bad Fall I need to be more careful. When I was getting of the computer yesterday headed to the bathroom, I turned back around to see the computer was having trouble turning off, that is when BACK on the fall again. I almost made it another year without falls, maybe next year. Happy New Year everyone, Todd --- On Fri, 12/31/10, PAMELA S subers...@msn.com wrote: From: PAMELA S subers...@msn.com Subject: RE: [TMIC] A Bad Fall To: toddtm2...@sbcglobal.net, TMC Group tmic-list@eskimo.com Date: Friday, December 31, 2010, 1:38 AM I've fallen down the stairs several times these past few years. But, I count my blessings I'm able to go down the stairs. My hips are constantly bruised where I fall into things, but I am so lucky I am walking there in the first place. My PT gets aggrevated at me for doing too much, and my insurance company thinks I should do more. I'm not to good at decisions, friends. Chiropractors have been the ones who have given me the most relief, too. Date: Thu, 30 Dec 2010 11:01:06 -0800 From: toddtm2...@sbcglobal.net Subject: Fw: RE: [TMIC] A Bad Fall To: tmic-list@eskimo.com I too had a bad fall, when I was trying to sit on the floor. I was trying a new short cut, going from standing with my walker to straight to the floor without sitting in a chair first then going down to the floor. So don't try this at home or anywhere else. lol I let my chiropractor know that my left shoulder blade was hurting, so he followed that point to my spine and snapped back in one of my ribs. This was a week before Christmas, so it did make for a great Christmas gift. So please be very safe everyone, Todd in CC,TX --- On Thu, 12/30/10, wim from holland wim_from_holl...@hotmail.com wrote: From: wim from holland wim_from_holl...@hotmail.com Subject: RE: [TMIC] To: jan...@centurytel.net, TMIC tmic-list@eskimo.com Date: Thursday, December 30, 2010, 7:31 AM Janice Normaly I could say, just fine, not better or worse. After all this time it was very study. But last summer I overstreched my hamstrings by a fall. A very stupid one, sitting on the bed I reached too far for clothes on the floor and slide from the bed. I jused after that time my wheelchair all the day, because standing and walking with crutches was too painfull. Now after recovering, it is hard to get back to what I could do before. I hope in summer when we go to Spain I can get it back in the warm sun and dayly in the swimming pool. Wim From: jan...@centurytel.net To: wim_from_holl...@hotmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] Date: Mon, 27 Dec 2010 10:31:41 -0600 Wim, it is great hearing from you again! How are you doing – besides learning to be grandparents. Janice From: wim from holland Sent: Monday, December 27, 2010 9:03 AM To: TMIC
Re: [TMIC] Age
And my lesions were in the brainstem. Which means that either physical exertion or stressful situations or attempts at verbal or written communication can overload the circuitry and send me into convulsions that end up with me on the floor, stiff as a board and unable to talk. Talk about communication! Last summer was a real example. I was visiting my 94-year-old mother, who is very frail, when I had an attack after getting too excited that the Yankees had one a close game against the Red Sox. There we were, me on the floor and my mother putting a pillow under my head. What a pair we made. It was all very funny to both of us. Eventually, I was able go get up and resume something like a normal posture. I am at peace, since as an economics professor I can still work and the TM only meant that I must be very careful and slow with things, but at least I can walk, and take care of my needs. So, I thank God for what I have. Dalton Dalton H. Garis Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass jcs...@yahoo.com Date: Sun, 2 Jan 2011 08:34:55 -0800 (PST) To: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Age Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 2 Jan 2011 08:35:01 -0800 i was fortunate with the bowel/bladder problems. not like i dont have areas there that is not touched but it is controllable. i have sensations that are not normal ,it could have been different in that the nerves could have really messed me up in that area. it is not unusual though when other things in the neurological arena cause the same disfunctions nerves are nerves so one could say that when things go wrong, what we have here is a lack of communication we have a body that is wonderfully made when it works right. --- On Sun, 1/2/11, Alton Ryder a-ry...@comcast.net wrote: From: Alton Ryder a-ry...@comcast.net Subject: Re: [TMIC] Age To: Janice Nichols jan...@centurytel.net Cc: tmic list tmic-list@eskimo.com Date: Sunday, January 2, 2011, 11:02 AM Initially paraplegic, then improved to walking with fore-arm crutches. Tail not involved. Bladder a problem; sphincter will not release, so I've had a Foley for years, changed about every two weeks. Alton On Dec 27, 2009, at 11:17 PM, Janice Nichols wrote: S, it sounds like no TM, but stroke that manifested itself in the spinal cord. Do you or did you have the paralyzation problems that we TM'ers have? Also, the bladder and bowel problems prevalent with TM? If so, is it only because the clot was in the cord rather than anywhere else? Sorry to be dense, but don't quite understand. Janice -- From: Alton Ryder a-ry...@comcast.net Sent: Sunday, December 27, 2009 5:10 PM To: tmic list tmic-list@eskimo.com Subject: Re: [TMIC] Age is spinal stroke what transverse myelitis is? a myelitis is an inflammation of a nerve bundle, in our case the spinal cord; the infection manifests by white cells in the fluid around the cord (I had none, so I didn't really have TM.) transverse means across the thickness of the cord spinal strokes are failures in blood flow in the arteries serving the spinal cord, usually one of the two arteries that run parallel to the cord, in my case one of the tiny arterial capillaries inside the cord at T9-T10 my cholesterol level was very high then (1997,) and I had been riding as a passenger all day I was lucky; the clot could have lodged in my brain with consequences not good. Alton, currently 75 with very low bad cholesterol, high good stuff, and expecting at least another decade of a good life
Re: [TMIC] Age
Dalton with your lesions that high up it is amazing that you can do anything! --- On Sun, 1/2/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Age To: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Date: Sunday, January 2, 2011, 1:23 PM And my lesions were in the brainstem. Which means that either physical exertion or stressful situations or attempts at verbal or written communication can overload the circuitry and send me into convulsions that end up with me on the floor, stiff as a board and unable to talk. Talk about communication! Last summer was a real example. I was visiting my 94-year-old mother, who is very frail, when I had an attack after getting too excited that the Yankees had one a close game against the Red Sox. There we were, me on the floor and my mother putting a pillow under my head. What a pair we made. It was all very funny to both of us. Eventually, I was able go get up and resume something like a normal posture. I am at peace, since as an economics professor I can still work and the TM only meant that I must be very careful and slow with things, but at least I can walk, and take care of my needs. So, I thank God for what I have. Dalton Dalton H. Garis Associate Professor of Economics And Petroleum Market Behavior The Petroleum Institute P.O. Box 2533, Umm al Nar Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760-- From: john snodgrass jcs...@yahoo.com Date: Sun, 2 Jan 2011 08:34:55 -0800 (PST) To: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Age Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 2 Jan 2011 08:35:01 -0800 i was fortunate with the bowel/bladder problems. not like i dont have areas there that is not touched but it is controllable. i have sensations that are not normal ,it could have been different in that the nerves could have really messed me up in that area. it is not unusual though when other things in the neurological arena cause the same disfunctions nerves are nerves so one could say that when things go wrong, what we have here is a lack of communication we have a body that is wonderfully made when it works right. --- On Sun, 1/2/11, Alton Ryder a-ry...@comcast.net wrote: From: Alton Ryder a-ry...@comcast.net Subject: Re: [TMIC] Age To: Janice Nichols jan...@centurytel.net Cc: tmic list tmic-list@eskimo.com Date: Sunday, January 2, 2011, 11:02 AM Initially paraplegic, then improved to walking with fore-arm crutches. Tail not involved. Bladder a problem; sphincter will not release, so I've had a Foley for years, changed about every two weeks. Alton On Dec 27, 2009, at 11:17 PM, Janice Nichols wrote: S, it sounds like no TM, but stroke that manifested itself in the spinal cord. Do you or did you have the paralyzation problems that we TM'ers have? Also, the bladder and bowel problems prevalent with TM? If so, is it only because the clot was in the cord rather than anywhere else? Sorry to be dense, but don't quite understand. Janice -- From: Alton Ryder a-ry...@comcast.net Sent: Sunday, December 27, 2009 5:10 PM To: tmic list tmic-list@eskimo.com Subject: Re: [TMIC] Age is spinal stroke what transverse myelitis is? a myelitis is an inflammation of a nerve bundle, in our case the spinal cord; the infection manifests by white cells in the fluid around the cord (I had none, so I didn't really have TM.) transverse means across the thickness of the cord spinal strokes are failures in blood flow in the arteries serving the spinal cord, usually one of the two arteries that run parallel to the cord, in my case one of the tiny arterial capillaries inside the cord at T9-T10 my cholesterol level was very high then (1997,) and I had been riding as a passenger all day I was lucky; the clot could have lodged in my brain with consequences not good. Alton, currently 75 with very low bad cholesterol, high good stuff, and expecting at least another decade of a good life
Re: [TMIC] Is anybody there? I; m trying to find someone who remembers meeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee eeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
Hi Jude and Alton, I remember you both! How are each of you? I haven't been on TMIC very much since moving to Utah - just recently 'signed on' again. But I remember you both from when I was first hit with TM in 2005 when I lived in Hawaii. I've particularly thought about you Jude since I tore my Achilles tendon, apparently while stretching, but without realizing anything had happened - until the pain got really bad. It reminded me of how you had broken both of your legs just by stretching out! I hope by now you've healed well and maybe can use your legs a little at least? And the thing I remember about you, Alton, is that you were a scientist - and it seems like you liked to cook or bake? Was it bread? I can't remember the latter for sure. Hope all is well with you, Happy New Year, Sally Judy, we all remember you. What is your question? Alton
Re: [TMIC] Looking for info
google cord blood stem cell Hey everyone...I need some help. Does anyone remember where I can find the info on the embryonic stem cell research that is going on that basically outlines the fact that it isn't killing any babies? I'm sure I read something not that long ago and possibly it was something that Dr. Kerr wrote...or even did an interview on...I just don't remember..(thanks TM) and I can't find it. I need to find this info for someone that is preparing a presentation to a group of people. Kevin Weilacher N.E. Ohio (Canton) --
[TMIC] IMPORTANT REMINDER
I received an email from someone who wrote I am distressed to see that your archives are public and anyone can search my name and come up with some very private medical information. Do not post personal information that you don't want the world knowing. The message archive is searchable by anyone with Internet access. The archive is at http://www.mail-archive.com/tmic-list@eskimo.com/ If you want a message deleted send me the page url example: http://www.mail-archive.com/tmic-list@eskimo.com/msg06410.html and I will try to get it deleted. The only alternative option is to remove the archive completely. Keep in mind that many people found help by search for their own symptoms and finding a message someone else had posted. That was the reason the archive has always been publicly searchable. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] IMPORTANT REMINDER
Absolutely Jim, it's very reassuring to people newly diagnosed to read of the problems we all have, most especially the very personal ones. Gilly - Original Message - From: Jim Lubin To: tmic-list@eskimo.com Sent: Monday, January 03, 2011 12:41 PM Subject: [TMIC] IMPORTANT REMINDER I received an email from someone who wrote I am distressed to see that your archives are public and anyone can search my name and come up with some very private medical information. Do not post personal information that you don't want the world knowing. The message archive is searchable by anyone with Internet access. The archive is at http://www.mail-archive.com/tmic-list@eskimo.com/ If you want a message deleted send me the page url example: http://www.mail-archive.com/tmic-list@eskimo.com/msg06410.html and I will try to get it deleted. The only alternative option is to remove the archive completely. Keep in mind that many people found help by search for their own symptoms and finding a message someone else had posted. That was the reason the archive has always been publicly searchable. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
[TMIC] CCSVI / Liberation Treatment
Please, would anyone who has recieved the venogram with angioplasty performed on them contact me. I am going for a consultation Tuesday with a group of Interventional Radiologists to educate them as to the possibilities and I only know of two Patients to date that have had the procedure performed on them and with great success. Thank You. Cyril Mansperger 845 797-9932
[TMIC] CINDY MCLEROY
THINGS ARE LOOKING PRETTY GOOD SO FAR. THE ROD IN HER FEMUR HAD TO BE REMOVED AND THE DR. FELT THEY WERE AHEAD OF THE INFECTION. SHE HAS BEEN TRANSFERRED TO A REHAB FACILITY NEAR ST. JUDE. IT'S GOING TO TAKE TIME... WILL LET THE LIST KNOW MORE AS IT HAPPENS. SHE DOES NOT HAVE ACCESS TO HER COMPUTER/E-MAIL. I HAVE READ HER ALL MESSAGES SENT TO ME FULL OF YOUR WELL-WISHES AND PRAYERS. FEEL FREE TO CONTACT ME AT ANY TIME. A FELLOW TM'ER SINCE 2000 JOAN FINK
