Re: [TMIC]
. I DO NOT KNOW WHO YOU ARE BUT PLEASE DO NOT CONTINUE TO SEND ME E-MAILS. I HAVE ASKED YOU SEVERAL TIMES TO STOP. I HAVE NO INTEREST IN THE LINKS YOU KEEP SENDING. MY ANTI-VIRUS PROGRAM WON'T LET ME OPEN THEM UP AS THEY SAY THEY ARE DANGEROUS. PATTI - WISCONSIN On Tue, Oct 4, 2011 at 6:21 PM, Patricia Enstrom pge...@aol.com wrote: http://digestinalready.net/wp-**content/plugins/post-rich-** videos-and-photos-galleries/**qwoopkd.htmhttp://digestinalready.net/wp-content/plugins/post-rich-videos-and-photos-galleries/qwoopkd.htm
Re: [TMIC] Facebook
Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
Re: [TMIC] Facebook
Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to go make to my part-time job. It was exhausting at times but I enjoyed the people contact. Last year we moved about 120 miles away to be near my daughter and her family for my health. I didn't seek work after we moved. I don't miss working but do miss the people contact. Patti - Wisconsin On Wed, Oct 5, 2011 at 9:39 AM, Robert Pall robthe...@aol.com wrote: Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
RE: [TMIC] Facebook
I am totally with you Patti. After completing my rehab (one month), I returned to work part-time. I lasted two and a half months. At the end of each day, I hurt so bad I couldn't do anything - even cook dinner. And it took the entire weekend to recuperate from the exhaustion in order to start the next week. That meant turning down almost every offer to do anything fun. I finally gave in and went out on permanent disability. I so miss the social interaction afforded by working, but I don't miss the forced exertion. To keep from becoming almost a hermit confined to the house - which is so easy to do when you don't work - I make a point of 'scheduling' things to go out and do during the week - even if it's just to grab a bite to eat for lunch or check out a new sale. After 34 years of working (31 for the same company), it was very hard to let go of the people contacts. it's so easy at work to be 'involved' in co-workers lives just thru office conversation. It's not 'convenient' for them after you're gone. I try to stay in occasional e-mail contact with several of them, but it's just not the same. TM definitely adversely affects your personal life as well as your physical one. I think that's why we feel so connected to each other on this site - we all sympathize and appreciate each other's losses as we've all walked in each other's shoes where TM is concerned. Loss of health, loss of jobs, loss of friends, loss of dignity. It tears away at one's resolve, but this site affords us a non-aggressive format for social contact (albeit thru cyber space), appreciation and validation of aches, pains and fears, and a way to gain knowledge about our condition thru the experiences of others. I thank everyone on this site for helping me get thru the worst of my times and teaching me how to accept and move on with what I do have. You're all an inspiration! Betty (in Northern California) _ From: pat cooley [mailto:patticoole...@gmail.com] Sent: Wednesday, October 05, 2011 7:55 AM To: Robert Pall Cc: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to go make to my part-time job. It was exhausting at times but I enjoyed the people contact. Last year we moved about 120 miles away to be near my daughter and her family for my health. I didn't seek work after we moved. I don't miss working but do miss the people contact. Patti - Wisconsin On Wed, Oct 5, 2011 at 9:39 AM, Robert Pall robthe...@aol.com wrote: Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
Re: [TMIC] Facebook
That's what finally got me. I just retired the same way Dalton Garis New York, New York On Oct 5, 2011, at 2:29 PM, Elizabeth Clark xbeecla...@gmail.com wrote: I am totally with you Patti… After completing my rehab (one month), I returned to work part-time. I lasted two and a half months. At the end of each day, I hurt so bad I couldn’t do anything - even cook dinner. And it took the entire weekend to recuperate from the exhaustion in order to start the next week. That meant turning down almost every offer to do anything fun. I finally gave in and went out on permanent disability. I so miss the social interaction afforded by working, but I don’t miss the forced exertion. To keep from becoming almost a hermit confined to the house – which is so easy to do when you don’t work – I make a point of ‘scheduling’ things to go out and do during the week – even if it’s just to grab a bite to eat for lunch or check out a new sale. After 34 years of working (31 for the same company), it was very hard to let go of the people contacts… it’s so easy at work to be ‘involved’ in co-workers lives just thru office conversation. It’s not ‘convenient’ for them after you’re gone. I try to stay in occasional e-mail contact with several of them, but it’s just not the same. TM definitely adversely affects your personal life as well as your physical one. I think that’s why we feel so connected to each other on this site – we all sympathize and appreciate each other’s losses as we’ve all walked in each other’s shoes where TM is concerned. Loss of health, loss of jobs, loss of friends, loss of dignity. It tears away at one’s resolve, but this site affords us a non-aggressive format for social contact (albeit thru cyber space), appreciation and validation of aches, pains and fears, and a way to gain knowledge about our condition thru the experiences of others. I thank everyone on this site for helping me get thru the worst of my times and teaching me how to accept and move on with what I do have. You’re all an inspiration! Betty (in Northern California) From: pat cooley [mailto:patticoole...@gmail.com] Sent: Wednesday, October 05, 2011 7:55 AM To: Robert Pall Cc: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to go make to my part-time job. It was exhausting at times but I enjoyed the people contact. Last year we moved about 120 miles away to be near my daughter and her family for my health. I didn't seek work after we moved. I don't miss working but do miss the people contact. Patti - Wisconsin On Wed, Oct 5, 2011 at 9:39 AM, Robert Pall robthe...@aol.com wrote: Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
Re: [TMIC] Facebook
Same for me; Just had another attack today like Epilepsy because my lesion is on the brainstem so extreme joy or stress will give me a fit. Can someone explain how to get on disability? Dalton Garis New York, New York On Oct 5, 2011, at 2:29 PM, Elizabeth Clark xbeecla...@gmail.com wrote: I am totally with you Patti… After completing my rehab (one month), I returned to work part-time. I lasted two and a half months. At the end of each day, I hurt so bad I couldn’t do anything - even cook dinner. And it took the entire weekend to recuperate from the exhaustion in order to start the next week. That meant turning down almost every offer to do anything fun. I finally gave in and went out on permanent disability. I so miss the social interaction afforded by working, but I don’t miss the forced exertion. To keep from becoming almost a hermit confined to the house – which is so easy to do when you don’t work – I make a point of ‘scheduling’ things to go out and do during the week – even if it’s just to grab a bite to eat for lunch or check out a new sale. After 34 years of working (31 for the same company), it was very hard to let go of the people contacts… it’s so easy at work to be ‘involved’ in co-workers lives just thru office conversation. It’s not ‘convenient’ for them after you’re gone. I try to stay in occasional e-mail contact with several of them, but it’s just not the same. TM definitely adversely affects your personal life as well as your physical one. I think that’s why we feel so connected to each other on this site – we all sympathize and appreciate each other’s losses as we’ve all walked in each other’s shoes where TM is concerned. Loss of health, loss of jobs, loss of friends, loss of dignity. It tears away at one’s resolve, but this site affords us a non-aggressive format for social contact (albeit thru cyber space), appreciation and validation of aches, pains and fears, and a way to gain knowledge about our condition thru the experiences of others. I thank everyone on this site for helping me get thru the worst of my times and teaching me how to accept and move on with what I do have. You’re all an inspiration! Betty (in Northern California) From: pat cooley [mailto:patticoole...@gmail.com] Sent: Wednesday, October 05, 2011 7:55 AM To: Robert Pall Cc: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to go make to my part-time job. It was exhausting at times but I enjoyed the people contact. Last year we moved about 120 miles away to be near my daughter and her family for my health. I didn't seek work after we moved. I don't miss working but do miss the people contact. Patti - Wisconsin On Wed, Oct 5, 2011 at 9:39 AM, Robert Pall robthe...@aol.com wrote: Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
Re: [TMIC] spouting off
Cheryl, We have a couple of subdivisions in my town that are strictly for people over 55 who want just what you are looking for. They have all the bars for support in bathrooms, wide doorways, 1 floor level, etc.Check into places like that in your town.Also, many condo’s now have handicap-assessable rooms. Let me know if you find anything and good luck. Janice From: rn11...@yahoo.com Sent: Tuesday, October 04, 2011 10:31 AM To: tmic Subject: [TMIC] spouting off Hi, I hope no one is offended by the comments I am about to make. Why isn't there housing for handicapped people who are not low income? All the handicapped housing is federally subsidized and there are limits to what you can have for an income.My income is too high for one person and leaves me unable to live in any of these types of housing. Why can't there be a set number of apartments that I could pay the full rent myself to live there? Once my house is ready to sell,I don't know where I'll find an apartment to move to with minimal stairs. I know many of you are having a hard time due to lack of money and help,and that I am very lucky,but it is so frustrating. Cheryl
Re: [TMIC] I haven't been here for a long time
Hi! From what all I have heard from you all about the TM Facebook, I have decided not to use it. You just can’t beat this group of TM’ers. I do wish more of you would join in more often. We need all opinions and concerns. Janice From: j.d...@shaw.ca Sent: Sunday, October 02, 2011 12:34 AM To: pjv1...@chartermi.net ; tmic Subject: Re: [TMIC] I haven't been here for a long time I am in on the facebook groups, but I don't like it. I much prefer to hear from everyone on the tmic list. It is much more personal and a lot more information is shared. Facebook is simply something for people to do while they are not doing anything. If that makes sense. I am glad you heard from Jude. She is such a special lady. Janet Dunn - Original Message - From: pjv1...@chartermi.net To: tmic Sent: Saturday, October 01, 2011 6:34 PM Subject: [TMIC] I haven't been here for a long time Hi I got booted off tmic several months ago by the computer phantom that does that every once in a while and decided not to sign back up for various reasons. I signed up today because I visited with David and Judy Hoops , aka Hey Jude, today and we talked about how long it had been since we had been on the TMIC. I visited the archives to see what the current subjects are and who was participating and the subject that caught my attention was RE: facebook. How fitting. That was exactly what Dave and Judy and I talked about. They told me about TM on FaceBook and how confused they get by it and wondered if it had totaly replaced TMIC. I told Dave I would chek into it and let him know what I found out. It was good to see so many people post on that subject. There were names that I hadn't seen on TMIC for a long time. It sounds like a lot of people were lurking I the background. I remember the last post I read. Someone asked how Saronj from India was and she answered. Jude has been in hospital twice in the last three weeks. She sure is a trooper! She's in ICU now awaiting test results. I think I'll stay on TMIC for a while. Patti - Michigan TM for 8 years and wouldn't have known what to do without TMIC and the TM Forum. I'm glad there's plenty of info for new TMers, however, my brain couldn't have handled it all back then.
Re: [TMIC] spouting off
When I was in Rochester, I lived in a HUD apt building. (disabled 18+ or 55 +) Tehy did a rate adjustment based on my income -- I paid more. So perhaps such an apartment is available to you. One of the administrators told me I could get an income adjustment /assessment based on medical deductions. I got the doctor to write a letter naming all the things i used as medical necessities as a result of TM: wipes, caths, bags, etc. Thousands of dollars were deducted from my income I save all my receipts, grocery, pharmacy, from wherever stuff related to my condition is purchased. They add up. Re:Taxes: you can deduct for medical expenditures -- you should see a tax advisor. --
Re: [TMIC] OFF TOPIC; my cancer marker results
Cheryl, was sooo glad to hear your news! Keep up the good work and keep your positive attitude.You are one tough cookie! Janice From: rn11...@yahoo.com Sent: Thursday, September 22, 2011 3:15 PM To: tmic Subject: [TMIC] OFF TOPIC; my cancer marker results Hi Everyone, Got my blood work results today. My CA2729 (a cancer marker) has gone from 112 down to 53.8 . The letrozole seems to be working! Thank you for the prayers,I really appreciate it. Cheryl wlEmoticon-openmouthedsmile[1].png
RE: [TMIC] Facebook
Hey everybody; I've done this site on and off since the beginning. I do like the facebook thing. I like the quick banter when I'm going nuts for social stimulation. I've just taken a temporary job as a school nurse. They needed someone fast and they agreed to try and accomodate me, but it is only 6 weeks. I'm about to collapse before the end of the day. I do need the money because my disability insurance has fought tooth and toenail to not pay. When I walk in the halls, my feet spasm, my legs get charlie horses all night, and in the am, I have a heck of a time with the stairs. But, when it's all said and done, I really love this job. It is so exhilirating working with these kids. Pam CC: patticoole...@gmail.com; robthe...@aol.com; pjv1...@chartermi.net; tmic-list@eskimo.com From: malugss...@gmail.com Subject: Re: [TMIC] Facebook Date: Wed, 5 Oct 2011 20:32:10 -0400 To: xbeecla...@gmail.com Same for me; Just had another attack today likeEpilepsy because my lesion is on the brainstem so extreme joy or stress will give me a fit. Can someone explain how to get on disability? Dalton GarisNew York, New York On Oct 5, 2011, at 2:29 PM, Elizabeth Clark xbeecla...@gmail.com wrote: I am totally with you Patti… After completing my rehab (one month), I returned to work part-time. I lasted two and a half months. At the end of each day, I hurt so bad I couldn’t do anything - even cook dinner. And it took the entire weekend to recuperate from the exhaustion in order to start the next week. That meant turning down almost every offer to do anything fun. I finally gave in and went out on permanent disability. I so miss the social interaction afforded by working, but I don’t miss the forced exertion. To keep from becoming almost a hermit confined to the house – which is so easy to do when you don’t work – I make a point of ‘scheduling’ things to go out and do during the week – even if it’s just to grab a bite to eat for lunch or check out a new sale. After 34 years of working (31 for the same company), it was very hard to let go of the people contacts… it’s so easy at work to be ‘involved’ in co-workers lives just thru office conversation. It’s not ‘convenient’ for them after you’re gone. I try to stay in occasional e-mail contact with several of them, but it’s just not the same. TM definitely adversely affects your personal life as well as your physical one. I think that’s why we feel so connected to each other on this site – we all sympathize and appreciate each other’s losses as we’ve all walked in each other’s shoes where TM is concerned. Loss of health, loss of jobs, loss of friends, loss of dignity. It tears away at one’s resolve, but this site affords us a non-aggressive format for social contact (albeit thru cyber space), appreciation and validation of aches, pains and fears, and a way to gain knowledge about our condition thru the experiences of others. I thank everyone on this site for helping me get thru the worst of my times and teaching me how to accept and move on with what I do have. You’re all an inspiration! Betty (in Northern California) From: pat cooley [mailto:patticoole...@gmail.com] Sent: Wednesday, October 05, 2011 7:55 AM To: Robert Pall Cc: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to go make to my part-time job. It was exhausting at times but I enjoyed the people contact. Last year we moved about 120 miles away to be near my daughter and her family for my health. I didn't seek work after we moved. I don't miss working but do miss the people contact. Patti - Wisconsin On Wed, Oct 5, 2011 at 9:39 AM, Robert Pall robthe...@aol.com wrote: Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and
RE: [TMIC] Facebook
Hi Dalton, The first thing is to file as soon as possible. I believe they make you wait five months from the time you file before actually making any payment to you. Here's two websites for Social Security\Disability - http://www.ssa.gov/disability/index.htm - and - http://www.ultimatedisabilityguide.com/ On the first site, the form to fill out requests the last 15 years of employment BEFORE you became disabled. Also, check these websites: http://groups.yahoo.com/group/Disinissues/ and http://groups.yahoo.com/group/offtopicplace/ They have a lot of answers for SSDI and LTD. Another site: http://www.disabilityhelpsite.com/ Here's one that outlines acceptable disabilities http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm Usually TM falls under the Neurological disability. Just remember. most initial requests for SS are denied. You must stay on top of them and keep applying. And make sure your physician writes a very detailed description of your condition and limitations. When I filled out my portion of the form, I included every single affected task - no matter how seemingly insignificant. bathing/showering (including temperature sensation loss in lower body), toileting (including chronic constipation due to medications and loss of bladder bowel muscle control), holding a hair dryer to dry my hair, walking up and down the stairs in my home, making meals, dusting/vacuuming, changing bed sheets, anything requiring manual dexterity/finger function - my fingers are now somewhat clawed, weak and not able to write or keyboard/mouse normally; I have difficulty pulling zippers; blowing my nose is next to impossible; laundry is difficult (pulling wet clothes out of washer), standing at sink to do dishes (difficulty holding wiping them). I have balance issues due to major weakness in left leg, I can no longer run, jump or even walk swiftly fatigue easily after any exertion and must usually lay down to recover. Take a couple days to make sure your list covers everything. Good luck with it. Betty (in Northern California) _ From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Wednesday, October 05, 2011 5:32 PM To: Elizabeth Clark Cc: pat cooley; Robert Pall; pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Same for me; Just had another attack today like Epilepsy because my lesion is on the brainstem so extreme joy or stress will give me a fit. Can someone explain how to get on disability? Dalton Garis New York, New York On Oct 5, 2011, at 2:29 PM, Elizabeth Clark xbeecla...@gmail.com wrote: I am totally with you Patti. After completing my rehab (one month), I returned to work part-time. I lasted two and a half months. At the end of each day, I hurt so bad I couldn't do anything - even cook dinner. And it took the entire weekend to recuperate from the exhaustion in order to start the next week. That meant turning down almost every offer to do anything fun. I finally gave in and went out on permanent disability. I so miss the social interaction afforded by working, but I don't miss the forced exertion. To keep from becoming almost a hermit confined to the house - which is so easy to do when you don't work - I make a point of 'scheduling' things to go out and do during the week - even if it's just to grab a bite to eat for lunch or check out a new sale. After 34 years of working (31 for the same company), it was very hard to let go of the people contacts. it's so easy at work to be 'involved' in co-workers lives just thru office conversation. It's not 'convenient' for them after you're gone. I try to stay in occasional e-mail contact with several of them, but it's just not the same. TM definitely adversely affects your personal life as well as your physical one. I think that's why we feel so connected to each other on this site - we all sympathize and appreciate each other's losses as we've all walked in each other's shoes where TM is concerned. Loss of health, loss of jobs, loss of friends, loss of dignity. It tears away at one's resolve, but this site affords us a non-aggressive format for social contact (albeit thru cyber space), appreciation and validation of aches, pains and fears, and a way to gain knowledge about our condition thru the experiences of others. I thank everyone on this site for helping me get thru the worst of my times and teaching me how to accept and move on with what I do have. You're all an inspiration! Betty (in Northern California) _ From: pat cooley [mailto:patticoole...@gmail.com] Sent: Wednesday, October 05, 2011 7:55 AM To: Robert Pall Cc: pjv1...@chartermi.net; mailto:tmic-list@eskimo.com tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to
Re: [TMIC] Facebook
Rob, Really glad to hear you are still active – even adventurous! Keep it up. I just got back from New Hampshire – first traveling vacation since TM 4 years ago.Was pretty nervous about it, but everything worked out pretty well. Needing to rest now that I am back. Janice From: Robert Pall Sent: Tuesday, October 04, 2011 10:11 AM To: tmic-list@eskimo.com Subject: [TMIC] Facebook I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
Re: [TMIC] Facebook
Betty, you hit the nail on the head!!! That is exactly what this website is all about. Janice From: Elizabeth Clark Sent: Wednesday, October 05, 2011 1:29 PM To: 'pat cooley' ; 'Robert Pall' Cc: pjv1...@chartermi.net ; tmic-list@eskimo.com Subject: RE: [TMIC] Facebook I am totally with you Patti… After completing my rehab (one month), I returned to work part-time. I lasted two and a half months. At the end of each day, I hurt so bad I couldn’t do anything - even cook dinner. And it took the entire weekend to recuperate from the exhaustion in order to start the next week. That meant turning down almost every offer to do anything fun. I finally gave in and went out on permanent disability. I so miss the social interaction afforded by working, but I don’t miss the forced exertion. To keep from becoming almost a hermit confined to the house – which is so easy to do when you don’t work – I make a point of ‘scheduling’ things to go out and do during the week – even if it’s just to grab a bite to eat for lunch or check out a new sale. After 34 years of working (31 for the same company), it was very hard to let go of the people contacts… it’s so easy at work to be ‘involved’ in co-workers lives just thru office conversation. It’s not ‘convenient’ for them after you’re gone. I try to stay in occasional e-mail contact with several of them, but it’s just not the same. TM definitely adversely affects your personal life as well as your physical one. I think that’s why we feel so connected to each other on this site – we all sympathize and appreciate each other’s losses as we’ve all walked in each other’s shoes where TM is concerned. Loss of health, loss of jobs, loss of friends, loss of dignity. It tears away at one’s resolve, but this site affords us a non-aggressive format for social contact (albeit thru cyber space), appreciation and validation of aches, pains and fears, and a way to gain knowledge about our condition thru the experiences of others. I thank everyone on this site for helping me get thru the worst of my times and teaching me how to accept and move on with what I do have. You’re all an inspiration! Betty (in Northern California) From: pat cooley [mailto:patticoole...@gmail.com] Sent: Wednesday, October 05, 2011 7:55 AM To: Robert Pall Cc: pjv1...@chartermi.net; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Robert you are much braver than I could ever be. Just the thought of heights makes me sick to my stomach. I did work part-time before TM and after about 7 months I was able to go make to my part-time job. It was exhausting at times but I enjoyed the people contact. Last year we moved about 120 miles away to be near my daughter and her family for my health. I didn't seek work after we moved. I don't miss working but do miss the people contact. Patti - Wisconsin On Wed, Oct 5, 2011 at 9:39 AM, Robert Pall robthe...@aol.com wrote: Good for youpeople do not realize how much we go thru to accomplish even the simplest of things! All the best! Rob in New Jersey -Original Message- From: pjv1234 pjv1...@chartermi.net To: Robert Pall robthe...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Oct 4, 2011 10:37 pm Subject: RE: [TMIC] Facebook Congratulations on your retirement. I know I've said it before, but I can't imagine working while having TM. I think skydiving is the ultimate gutsy thing to try. I'm not that gutsy, however, I went white water rafteing this spring and found it to be exilerating. Patti On Tue, Oct 4, 2011 at 11:11 AM, Robert Pall wrote: I have not been around here for awhile. I stopped working in Februuary and neveer changed my email address until yesterday. I have been on Facebook which has a TM group and there are a lot of people on it from this group. I was confused but now I am not and I am glad to be back where I started. By the way to celebrate my 764th birthday and my 14th annivarsary with TMJ I went skydiving at the Jersey Shoreit was incredible and the most exciting thing I ever did! I continue to not allow TM to disrupt my life! Rob in New Jersey
[TMIC] Pyrrhic Victory?
I have an aide come once a week for two hours. I would like more time and more help as those two hours are spent grocery shopping, so I get no help around the house. But I can't afford more. The Home Health Care agency charges $25 an hour for her and I was fortunate to be granted a subsidy from United Way, so I only have to pay half. But that's still $25 a week additional for groceries. They had a nurse come every six months. This I never understood, as she either harassed my aide and made me lose part of the precious two hours as she asked inane questions, or she came and asked me to show her my care plan. The last time the nurse was here in the spring, she insulted and threatened me. I swore she would not enter my house again and I wrote a letter about what occurred, but decided against sending it. Two weeks ago the nurse called me, and in her usual rude and cavalier way,left a message telling me told me she would be over the next day. I called and said would not be available. Then i called the agency and said that I did not want anymore dealings with this person and could they please find someone else to send. The head of the agency said they only had one person to do this. I said i didn't understand why this had to be done... why was a nurse necessary? I reminded her that i had used their services for 3 years now, that i was very happy with my aide, but was not going to voluntarily submit myself to insult and distress. The head went on to try to persuade me/dissuade me by telling me that their one other nurse covered another territory. To which i had nothing to say. This was their requirement and it made no sense to me. This week she called me and left a message saying call her. I really dislike messages that don't have information and when i returned the call-- 90 minutes later, she was to be out of the office for the next two days. I was directed to the second in command who said that i was going to be reclassified. Reclassified? I said i have one person, once a week, for two hours who goes shopping. Well i would be reclassified so that a nurse wouldn't have to come. I said nothing. Since getting TM i find it hard to follow illogic and agree with it. But on further reflection I think they got money that i didn't pay for having a nurse attributed to my account and perhaps United Way picked up the tab, to the tune of $75/hour and they were able to continue with this subtle fraud until I refused to have the nurse come harass me again. But that's 3 years of unnecessary nonservice and easy money for that firm. It's a dirty shame. I'm glad i didn't cave on this. Akua --
