Re: [TMIC] Re: Need your input
Janice I just love to see the posts from here. I am on FB like so many of us. I enjoyed it at first, but there is so much needless posting and takes so long to go everything until you get something about TM that helps. I am a pet lover, but get tired of looking at all the cute animal posts that have nothing to do with TM. I don't believe I will leave FB, but would like to see more posts here from people. I miss the people who didn't go to FB. Patti in Wisconsin On Tue, Jan 22, 2013 at 8:23 PM, Janice Nichols jan...@centurytel.netwrote: You know, it sounds like everyone wants to come back to our site here. Let’s get back to sharing and responding again. Also, those questions that pop up over time too. I doubt that anyone can go for long without questions about something! What a great bunch we have! Janice *From:* rn11...@yahoo.com *Sent:* Monday, January 21, 2013 6:43 PM *To:* tmic tmic-list@eskimo.com *Subject:* Fw: [TMIC] Re: Need your input I have had a flu shot every year for over 25 years. Also had a pneumonia shot. See my PCP every 3 months; he takes care of my meds. I am having a lot of bone pain from my metastatic breast cancer that I will speak with my oncologist about when I see her in February. Trouble is the treatment also causes bone pain. I hate facebook! Miss the old TMIC group. Cheryl - Forwarded Message - *From:* Robert Pall robthe...@aol.com *To:* heyjude48...@aol.com; snow121...@hotmail.com *Cc:* tmic-list@eskimo.com *Sent:* Monday, January 21, 2013 6:52 PM *Subject:* Re: [TMIC] Re: Need your input I have taken the flu shot for the past 15+ yearsnever got the flu.and I do not believe getting TM had anything to do with any kind of immunizations. I also see my regular MD twice a year minimum and he does prescribe most of my meds. However I see my neurologist at least once per year to insure that I am up to date with the best pain killers and meds available This year he is doing a baclofen injection into my spine to see if a baclofen pump will be beneficial and he also prescribed 2 oz per month of marijuana which I know is beneficial Finally I would love to see this list get busy again.I hate going on facebook! Rob in New Jersey . . -Original Message- From: Heyjude48458 heyjude48...@aol.com To: snow121100 snow121...@hotmail.com Cc: tmic-list tmic-list@eskimo.com Sent: Mon, Jan 21, 2013 3:03 pm Subject: [TMIC] Re: Need your input *Hi Carol,* ** *Thank you for answering me...I'm trying to rev up the TMIC list again. Anything you want to know or questions you need answered please email me. It's important that you write in from time to time.* ** *Love you,* *Jude* *Michigan* ** *Learn from yesterday, Live for today, Hope for tomorrow.* * Albert Einstein* In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, snow121...@hotmail.com writes: Hey Jude! I have received a flu shot every year, except the first year, after the onset of TM. I became sick in June 2005. I have not noticed any complications. I think we all have to figure out the pros and cons. I have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about now, but then I was told it would be better to make 2 shorter graphs than 1 longer one. Anyway, along with my doctors, my daughter an RN and my son-in-law a doctor, I have made the decision to get flu shots annually and pneumonia vaccine every 5-7 years as recommended. When I lived near Chicago, my neurologist was Dr. Joy Derwenskus at Northwestern where she was also an associate professor. Now that I live closer to Indianapolis, I see Dr. Margaret Frazer, in Carmel. She is with JWM Neurology and also works in research. As much as you can enjoy a doctor, I have enjoyed seeing both of them. I see no fault with them just get exasperated with all the unknowns of TM. *Carol * Worrying does not empty tomorrow of its troubles; It empties today of its strengths. -- From: heyjude48...@aol.com Date: Mon, 21 Jan 2013 11:53:38 -0500 Subject: Need your input To: samm...@fidmail.com; ginnahamil...@yahoo.com; k...@col.gen.nz; xring...@mwt.net; snow121...@hotmail.com; grace...@gmail.com; w2sm...@aol.com; r...@aol.com; thenavigato...@aol.com CC: tmic-list@eskimo.com; heyjude48...@aol.com *Hi ladies and gentleman,* ** *This is Jude from TMIC. We are having two discussions and need your input. First, we are talking about the need for a neurologist when someone has TM, and the other topic is the need for flu shots, have you had them and what does your Dr. say about them.* ** *There has been quite a bit of activity lately, but we need more. Will be happy to answer any questions you have or talk about any topics you can think of.* ** *I
[TMIC] Facebook
For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
Re: [TMIC] Facebook
I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis malugss...@me.com wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA (718) 838-0437
[TMIC] BACK TO E-MIL
I AM SO HAPPY SOME OF YOU ARE COMING BACK. IT REALLY HELPS TO HEAR FROM TM PEOPLE. MARIE
Re: [TMIC] Facebook
I disagree, unless at 61 I am one of the younger ones. I enjoy the words and the pictures. I collect a lot of the (to me) inspirational photos. I get a lot out of them, maybe because I haven't been reading as much as I used to. I have to get back to my books. Jude In a message dated 1/23/2013 11:39:25 A.M. Eastern Standard Time, patticoole...@gmail.com writes: I AGREE COMPLETELY DALTON. PATTI On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis _malugssuak@me.com_ (mailto:malugss...@me.com) wrote: For my situation, I don't need Facebook; But i see that for the young they really like to send pictures to each other. WE, on the other hand, grew up READING things rather than VIEWING things, and that is the difference. We read and the younger set views. It is WORDS ON A PAGE for us, but for the younger set they IMAGE more. dg Dalton Garis Flushing, Queens New York, USA _(718) 838-0437_ (tel:(718)%20838-0437)
[TMIC] Re: Subscribe
Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC.When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice.Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Stress
Janet. I think we serve the same God. He is my rock and my salvation. I have two wonderful people coming tonight who pray beautifully. Thank you for the good wishes. Jude Always end the day with a positive thought. No matter how hard things were, Tomorrow's a fresh opportunity to make it better. In a message dated 1/23/2013 1:20:13 A.M. Eastern Standard Time, j.d...@shaw.ca writes: Jude - I am truly sorry to learn about Dave. Your question was on stress and TM and how it affects one. I have found that any, repeat, any amount of stress sends me up and over the edge, around the bend, bonkers, psycho, or whatever you wish to call it. In November I deliberately stopped all meds cold turkey (yes, I know, bad idea) - after about a week I knew I would live. I have the same pain level now as I did when I was taking effexor, welbutrin, quetiapine, lyrica, oxycontin, and flexeril. At this point I am only taking oxy at night to cope with the pain so I can sleep - except tonight it isn't working so I added some Lyrica. Yesterday and today were stressful days for me, plus my roommate is giving me grey hair. lol. So for me - a little stress is as detrimental as a lot. May you and yours find your way through this dark night of the soul, and I love what Dalton said to you: Is there any Remover of Difficulties save God? Say: Praised be God! He is God! All are His servants and all abide by His bidding. May the God you worship remove your difficulties. Janet
Re: [TMIC] Stress
Cindy, Wow...you really had it bad. I had the same problems when I was in the nursing home after my gall bladder surgery, except I had huge pressure sores the size of a tennis ball on my behind. Isolation for MRSA is the pits. I hated it that people had to mask and gown in order to come in. The aids refused to help me with my bowel program. And now, thinking about having the pain pump put in leaves me with frightening thoughts about going back to the home for recuperation. Thank you for the prayers for Dave, keep praying please. I love you, Jude In a message dated 1/23/2013 12:43:30 A.M. Eastern Standard Time, cindymcle...@socal.rr.com writes: Jude, you are talking about stress. I spent part of 2010 and all of 2011 going from the hospital to the skilled nursing facilities (SNF) because of a server broken leg. I had more than 6/7 surgeries, was bedridden where I was not able to raise up higher than 20%. That made eating almost impossible and I lost over 30 pounds. I was told by my PC that I almost died 3 times. I have to leave my dog and cat. Luckily I had a friend that took my dog and gave her great care. I had billing problems with the SNF and they tried to refuse me the second time I needed to go there. I had to have one surgery without anything to put me under. I got to listen to everything in the operating room. Lucky for me I have no sensation. I had no one at home to take care of bills, etc. I had to figure out how to do that in the hospital or SNF. I am not including the really awful stuff. I am a single woman and had no partner to help me through all this. But I had many friends and family that put on the yellow gowns (I had MRSA and was in isolation) to come in my room and cheer me up. My stress level was very high. My blood pressure was very low - 92 over 47 on good days. Thank God the most of that is behind me. I had great doctors, great family and great friends to get me though this. We all deal with what comes our way, in our own way. I will pray for Dave. Cindy - Original Message - From: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: _dncapen@gmail.com_ (mailto:dnca...@gmail.com) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, January 22, 2013 8:01 PM Subject: Re: [TMIC] Stress There are about 16 of us who email regularly. I had no idea that anyone else was even receiving our notes. If the membership is truly that high then I expect more people to participate. Jude in Michigan In a message dated 1/22/2013 10:25:50 P.M. Eastern Standard Time, _dncapen@gmail.com_ (mailto:dnca...@gmail.com) writes: Where did you come up with the 16 number? I believe that about 100 people receive the list emails. Debbie Sent from my iPod. On Jan 22, 2013, at 7:40 PM, _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) wrote: There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, _robthecfo@aol.com_ (mailto:robthe...@aol.com) writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall _robthecfo@aol.com_ (mailto:robthe...@aol.com) To: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) ; ashfordrichard _ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ; pjv1234 _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) ; a-ryder _a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) ; bpelow _bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) ; xbeeclarkx _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) ; ladylinda48 _ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) ; LadyNotes _LadyNotes@aol.com_ (mailto:ladyno...@aol.com) ; akua _akua@artfarm.com_ (mailto:a...@artfarm.com) ; kay _...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ; patticooley38 _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; Bgunny7682 _Bgunny7682@aol.com_ (mailto:bgunny7...@aol.com) ; r.c.pratt _r.c.pratt@verizon.net_ (mailto:r.c.pr...@verizon.net) ; snow121100 _snow121100@hotmail.com_ (mailto:snow121...@hotmail.com) ; j.dunn _j.dunn@shaw.ca_ (mailto:j.d...@shaw.ca) ; jannic _jannic@centurytel.net_ (mailto:jan...@centurytel.net) ; jcsnod _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) ; jefshps _jefshps@aol.com_ (mailto:jefs...@aol.com) ; jlubin _jlubin@eskimo.com_ (mailto:jlu...@eskimo.com) ; malugssuak _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) ; Thenavigator10 _Thenavigator10@aol.com_
Re: [TMIC] Re: Need your input
So Regina...what are the issues you want to discuss? Jude In a message dated 1/23/2013 12:29:34 A.M. Eastern Standard Time, regina...@sbcglobal.net writes: I can think of a lot of issues to talk about. What holds me back is that I don't want to bore anyone. I'm sitting at my computer, a bit dazed because I've taken a small doze of a sleeting pill as I was shall I say the word --- On Tue, 1/22/13, heyjude48...@aol.com heyjude48...@aol.com wrote: From: heyjude48...@aol.com heyjude48...@aol.com Subject: Re: [TMIC] Re: Need your input To: jan...@centurytel.net Cc: tmic-list@eskimo.com Date: Tuesday, January 22, 2013, 6:45 PM We really do have a good group. I'm busting my butt to come up with topics to discuss. Anything that you think of will be appreciated. Jude In a message dated 1/22/2013 9:23:26 P.M. Eastern Standard Time, jan...@centurytel.net writes: You know, it sounds like everyone wants to come back to our site here. Let’s get back to sharing and responding again. Also, those questions that pop up over time too. I doubt that anyone can go for long without questions about something! What a great bunch we have! Janice From: _rn11974@yahoo.com_ (http://us.mc1813.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com) Sent: Monday, January 21, 2013 6:43 PM To: _tmic_ (http://us.mc1813.mail.yahoo.com/mc/compose?to=tmic-list@eskimo.com) Subject: Fw: [TMIC] Re: Need your input I have had a flu shot every year for over 25 years. Also had a pneumonia shot. See my PCP every 3 months; he takes care of my meds. I am having a lot of bone pain from my metastatic breast cancer that I will speak with my oncologist about when I see her in February. Trouble is the treatment also causes bone pain. I hate facebook! Miss the old TMIC group. Cheryl - Forwarded Message - From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; snow121...@hotmail.com Cc: tmic-list@eskimo.com Sent: Monday, January 21, 2013 6:52 PM Subject: Re: [TMIC] Re: Need your input I have taken the flu shot for the past 15+ yearsnever got the flu.and I do not believe getting TM had anything to do with any kind of immunizations. I also see my regular MD twice a year minimum and he does prescribe most of my meds. However I see my neurologist at least once per year to insure that I am up to date with the best pain killers and meds available This year he is doing a baclofen injection into my spine to see if a baclofen pump will be beneficial and he also prescribed 2 oz per month of marijuana which I know is beneficial Finally I would love to see this list get busy again.I hate going on facebook! Rob in New Jersey.. -Original Message- From: Heyjude48458 heyjude48...@aol.com To: snow121100 snow121...@hotmail.com Cc: tmic-list tmic-list@eskimo.com Sent: Mon, Jan 21, 2013 3:03 pm Subject: [TMIC] Re: Need your input Hi Carol, Thank you for answering me...I'm trying to rev up the TMIC list again. Anything you want to know or questions you need answered please email me. It's important that you write in from time to time. Love you, Jude Michigan Learn from yesterday, Live for today, Hope for tomorrow. Albert Einstein In a message dated 1/21/2013 12:42:34 P.M. Eastern Standard Time, _snow121100@hotmail.com_ (http://us.mc1813.mail.yahoo.com/mc /compose?to=snow121...@hotmail.com) writes: Hey Jude! I have received a flu shot every year, except the first year, after the onset of TM. I became sick in June 2005. I have not noticed any complications. I think we all have to figure out the pros and cons. I have Type 2 Diabetis, heart disease (I had 6 bypasses when I was 49 years old). Yes, 6! I had 2 bypasses in 2 of the arteries. I don't know about now, but then I was told it would be better to make 2 shorter graphs than 1 longer one. Anyway, along with my doctors, my daughter an RN and my son-in-law a doctor, I have made the decision to get flu shots annually and pneumonia vaccine every 5-7 years as recommended. When I lived near Chicago, my neurologist was Dr. Joy Derwenskus at Northwestern where she was also an associate professor. Now that I live closer to Indianapolis, I see Dr. Margaret Frazer, in Carmel. She is with JWM Neurology and also works in research. As much as you can enjoy a doctor, I have enjoyed seeing both of them. I see no fault with them just get exasperated with all the unknowns of TM. Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. From: _Heyjude48458@aol.com_ (http://us.mc1813.mail.yahoo.com/mc/compose?to=heyjude48...@aol.com) Date: Mon, 21 Jan 2013 11:53:38 -0500 Subject: Need your input To: _sammyrg@fidmail.com_
Re: [TMIC] Stress
Janice, Will you please forward this to Jan, I don't have her address. Jan, For some reason, I didn't get your email. It's great to hear from you again. I have missed you. If you can think of any topics for us to discuss, I would surely appreciate the input. I love you, Jude, Michigan In a message dated 1/22/2013 11:45:11 P.M. Eastern Standard Time, jan...@centurytel.net writes: Jan, how are you doing?Have you developed more problems? Janice From: _Jan Hargrove_ (mailto:jmh1...@sbcglobal.net) Sent: Tuesday, January 22, 2013 10:15 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Cc: _TMIC-List@eskimo.com_ (mailto:TMIC-List@eskimo.com) Subject: Re: [TMIC] Stress My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: heyjude48...@aol.com heyjude48...@aol.com To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: ashfordrichard _ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ; pjv1234 _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) ; a-ryder _a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) ; bpelow _bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) ; xbeeclarkx _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) ; ladylinda48 _ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) ; LadyNotes _LadyNotes@aol.com_ (mailto:ladyno...@aol.com) ; akua _akua@artfarm.com_ (mailto:a...@artfarm.com) ; kay _...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ; patticooley38 _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; Bgunny7682 _Bgunny7682@aol.com_ (mailto:bgunny7...@aol.com) ; r.c.pratt _r.c.pratt@verizon.net_ (mailto:r.c.pr...@verizon.net) ; snow121100 _snow121100@hotmail.com_ (mailto:snow121...@hotmail.com) ; j.dunn _j.dunn@shaw.ca_ (mailto:j.d...@shaw.ca) ; jannic _jannic@centurytel.net_ (mailto:jan...@centurytel.net) ; jcsnod _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) ; jefshps _jefshps@aol.com_ (mailto:jefs...@aol.com) ; jlubin _jlubin@eskimo.com_ (mailto:jlu...@eskimo.com) ; malugssuak _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) ; Thenavigator10 _Thenavigator10@aol.com_ (mailto:thenavigato...@aol.com) Cc: tmic-list _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tue, Jan 22, 2013 6:56 pm Subject: [TMIC] Stress Hello Guys Gals, How is everyone tonight? I honestly hope you are well and in good spirits. How does stress affect your life with TM? What do you do to alleviate it? How do you fight it? We just found out that my husband (Dave) has cancer of the blood with lesions on his liver. He got a call from his Dr. just a few minutes ago. He has to go in to talk to the Dr. on Thursday. I am so worried about him. I can't get out of this damn bed to even lift a finger to help him, because I have a broken leg. What are some of the things you do to combat stress in
Re: [TMIC] Stress
Jan, It is wonderful to hear from you. It's been so long. For some reason, I didn't get your email. Thank you for the compliments. Any subjects you can think of to discuss will be appreciated. I really need your help to keep this thing going. Love you, Jude In a message dated 1/22/2013 11:45:11 P.M. Eastern Standard Time, jan...@centurytel.net writes: Jan, how are you doing?Have you developed more problems? Janice From: _Jan Hargrove_ (mailto:jmh1...@sbcglobal.net) Sent: Tuesday, January 22, 2013 10:15 PM To: _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) Cc: _TMIC-List@eskimo.com_ (mailto:TMIC-List@eskimo.com) Subject: Re: [TMIC] Stress My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: heyjude48...@aol.com heyjude48...@aol.com To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: ashfordrichard _ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ; pjv1234 _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) ; a-ryder _a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) ; bpelow _bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) ; xbeeclarkx _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) ; ladylinda48 _ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) ; LadyNotes _LadyNotes@aol.com_ (mailto:ladyno...@aol.com) ; akua _akua@artfarm.com_ (mailto:a...@artfarm.com) ; kay _...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ; patticooley38 _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; Bgunny7682 _Bgunny7682@aol.com_ (mailto:bgunny7...@aol.com) ; r.c.pratt _r.c.pratt@verizon.net_ (mailto:r.c.pr...@verizon.net) ; snow121100 _snow121100@hotmail.com_ (mailto:snow121...@hotmail.com) ; j.dunn _j.dunn@shaw.ca_ (mailto:j.d...@shaw.ca) ; jannic _jannic@centurytel.net_ (mailto:jan...@centurytel.net) ; jcsnod _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) ; jefshps _jefshps@aol.com_ (mailto:jefs...@aol.com) ; jlubin _jlubin@eskimo.com_ (mailto:jlu...@eskimo.com) ; malugssuak _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) ; Thenavigator10 _Thenavigator10@aol.com_ (mailto:thenavigato...@aol.com) Cc: tmic-list _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tue, Jan 22, 2013 6:56 pm Subject: [TMIC] Stress Hello Guys Gals, How is everyone tonight? I honestly hope you are well and in good spirits. How does stress affect your life with TM? What do you do to alleviate it? How do you fight it? We just found out that my husband (Dave) has cancer of the blood with lesions on his liver. He got a call from his Dr. just a few minutes ago. He has to go in to talk to the Dr. on Thursday. I am so worried about him. I can't get out of this damn bed to even lift a finger to help him, because I have a broken leg. What are some of the things you do to combat stress in your lives? We are facing
Re: [TMIC] Stress
Jan, I had Janice send you a note from me. I hope you got it. If not, let me know. I need your spelling of your last name, address and phone number for my address book. I promise not to share it with anyone. I may want to send you a card or call you sometime. I love you. Jude, Michigan In a message dated 1/22/2013 11:15:31 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: heyjude48...@aol.com heyjude48...@aol.com To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 _Heyjude48458@aol.com_ (mailto:heyjude48...@aol.com) To: ashfordrichard _ashfordrichard@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ; pjv1234 _pjv1234@chartermi.net_ (mailto:pjv1...@chartermi.net) ; a-ryder _a-ryder@comcast.net_ (mailto:a-ry...@comcast.net) ; bpelow _bpelow@yahoo.com_ (mailto:bpe...@yahoo.com) ; xbeeclarkx _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) ; ladylinda48 _ladylinda48@yahoo.com_ (mailto:ladylind...@yahoo.com) ; LadyNotes _LadyNotes@aol.com_ (mailto:ladyno...@aol.com) ; akua _akua@artfarm.com_ (mailto:a...@artfarm.com) ; kay _...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ; patticooley38 _patticooley38@gmail.com_ (mailto:patticoole...@gmail.com) ; Bgunny7682 _Bgunny7682@aol.com_ (mailto:bgunny7...@aol.com) ; r.c.pratt _r.c.pratt@verizon.net_ (mailto:r.c.pr...@verizon.net) ; snow121100 _snow121100@hotmail.com_ (mailto:snow121...@hotmail.com) ; j.dunn _j.dunn@shaw.ca_ (mailto:j.d...@shaw.ca) ; jannic _jannic@centurytel.net_ (mailto:jan...@centurytel.net) ; jcsnod _jcsnod@yahoo.com_ (mailto:jcs...@yahoo.com) ; jefshps _jefshps@aol.com_ (mailto:jefs...@aol.com) ; jlubin _jlubin@eskimo.com_ (mailto:jlu...@eskimo.com) ; malugssuak _malugssuak@gmail.com_ (mailto:malugss...@gmail.com) ; Thenavigator10 _Thenavigator10@aol.com_ (mailto:thenavigato...@aol.com) Cc: tmic-list _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tue, Jan 22, 2013 6:56 pm Subject: [TMIC] Stress Hello Guys Gals, How is everyone tonight? I honestly hope you are well and in good spirits. How does stress affect your life with TM? What do you do to alleviate it? How do you fight it? We just found out that my husband (Dave) has cancer of the blood with lesions on his liver. He got a call from his Dr. just a few minutes ago. He has to go in to talk to the Dr. on Thursday. I am so worried about him. I can't get out of this damn bed to even lift a finger to help him, because I have a broken leg. What are some of the things you do to combat stress in your lives? We are facing other things too that are considered major stressors on the stress scale. I really need your help on this. My TM is acting up like crazy. Hugs, Jude, Michigan Here's to the nights that turned into mornings, with the friends that turned into family...
Re: [TMIC] Stress
I have been having trouble getting my mail sent out. I hope this gets out. Jude I'm so sorry to hear about my friend Dave. Very hard to hear. Anyway does anyone has recently heard anything about the studies being done by Dr. Jack Kessler. I saw a special about him on Netflix. Have we made any progress since Pres. Bush shot down funding. I hope someone has seen this special if not you need to see it. Rick in Tn From: heyjude48...@aol.com heyjude48...@aol.com To: jmh1...@sbcglobal.net Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:52 PM Subject: Re: [TMIC] Stress Jan, I had Janice send you a note from me. I hope you got it. If not, let me know. I need your spelling of your last name, address and phone number for my address book. I promise not to share it with anyone. I may want to send you a card or call you sometime. I love you. Jude, Michigan In a message dated 1/22/2013 11:15:31 P.M. Eastern Standard Time, jmh1...@sbcglobal.net writes: My dear Jude, I'm so glad that you are putting life back into the TMIC!!! I've quit trying to keep up with the facebook pages... I look forward to reading from old friends,altho I won't be talking much yet.I promise to read what's written and I'll join in the writing when I'm able So glad you're back in our world!! Hugs, janh From: heyjude48...@aol.com heyjude48...@aol.com To: robthe...@aol.com Cc: tmic-list@eskimo.com Sent: Tue, January 22, 2013 8:40:51 PM Subject: Re: [TMIC] Stress There are only 16 of us though and I am trying to come up with topics for us to discuss. Actually, I am looking through our FB sites to try and come up with them. So anything you have to offer will mean a lot to me. I need your help. Jude, Michigan No decision is a decision not to make a decision... In a message dated 1/22/2013 9:34:38 P.M. Eastern Standard Time, robthe...@aol.com writes: I for one am thrilled to see all of the emails again.maybe facebook is not the forum for us...especially the older ones of us!!! Rob in NJ -Original Message- From: Robert Pall robthe...@aol.com To: Heyjude48458 heyjude48...@aol.com; ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 9:26 pm Subject: Re: [TMIC] Stress I take 60 mg of Cymbalta every morning...it helps both fibroneuralga as well as anxiety, depression and stress ...I also take 20 mg of diazapan to sleep each night. Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: ashfordrichard ashfordrich...@bellsouth.net; pjv1234 pjv1...@chartermi.net; a-ryder a-ry...@comcast.net; bpelow bpe...@yahoo.com; xbeeclarkx xbeecla...@gmail.com; ladylinda48 ladylind...@yahoo.com; LadyNotes ladyno...@aol.com; akua a...@artfarm.com; kay k...@cole.gen.nz; patticooley38 patticoole...@gmail.com; Bgunny7682 bgunny7...@aol.com; r.c.pratt r.c.pr...@verizon.net; snow121100 snow121...@hotmail.com; j.dunn j.d...@shaw.ca; jannic jan...@centurytel.net; jcsnod jcs...@yahoo.com; jefshps jefs...@aol.com; jlubin jlu...@eskimo.com; malugssuak malugss...@gmail.com; Thenavigator10 thenavigato...@aol.com Cc: tmic-list tmic-list@eskimo.com Sent: Tue, Jan 22, 2013 6:56 pm Subject: [TMIC] Stress Hello Guys Gals, How is everyone tonight? I honestly hope you are well and in good spirits. How does stress affect your life with TM? What do you do to alleviate it? How do you fight it? We just found out that my husband (Dave) has cancer of the blood with lesions on his liver. He got a call from his Dr. just a few minutes ago. He has to go in to talk to the Dr. on Thursday. I am so worried about him. I can't get out of this damn bed to even lift a finger to help him, because I have a broken leg. What are some of the things you do to combat stress in your lives? We are facing other things too that are considered major stressors on the stress scale. I really need your help on this. My TM is acting up like crazy. Hugs, Jude, Michigan Here's to the nights that turned into mornings, with the friends that turned into family...
[TMIC] Re: Input
Rick, Thank you for your words re: Dave. It means a lot to have such a good friend as you. Is there any ongoing research being done? Would you Google it for me, using whatever browser you use? I have Google for lack of knowing what else is out there. I only use it when I want to know about something, which isn't often anymore. I should use it more though. I need topics for us to discuss. Anything that you can think of will be appreciated. Thanks dear friend, Jude In a message dated 1/23/2013 2:43:34 P.M. Eastern Standard Time, el...@att.net writes: Hey Jude, I'm so sorry to hear about my friend Dave. What a bitch. I wnt someon e to respond if they know anything about the latest result of the research being done by Dr. Jack Kessler on stem cells. I watched a special on him on Netflix. His research team seems to have the dedication needed to get something. Has anything happened since Pres. Bush shot down the funding on studies. Just where do we stand today? Rick in Tn.
[TMIC] Re: Stress
Wow...thanks Roger for your points on imagery, distraction, and age progression. Those are all valid things to think about. Yours, Jude In a message dated 1/22/2013 11:09:04 P.M. Eastern Standard Time, r.c.pr...@frontier.com writes: First of all, let me say to Jude that I am really sorry to hear about Dave. My prayers are with you. Stress - what a difficult topic. As I mentioned in a previous e-mail, I have gone through 3 different illnesses that I believe are all related (auto-immune problems). All I can say is that stress has made all the symptoms/residuals (whatever you want to call them) worse. Just when I think things are getting better, a bunch of stresses hit and then everything seems to go to hell-in-a-handbasket. So we all know that stress is a bad thing. Some suggestions that I try to use for pain relief also seem to help with stress. These include: !--[if !supportLists]-- · !--[endif]--Visual imagery and distraction: Imagery involves concentrating on mental pictures of pleasant scenes or events or mentally repeating positive words or phrases to reduce pain. Distraction techniques focus your attention away from negative or painful images to positive mental thoughts. This may include activities as simple as watching television or a favorite movie, reading a book or listening to a book on tape, listening to music, or talking to a friend. * Age progression/regression: Use your mind’s eye to project yourself forward or backward in time to when you are pain-free (or stress-free) or experiencing much less pain (or stress). Then instruct yourself to act as if this image were true. I know that at first I thought this was a bit lame, the old mind over matter silliness, but it can help some. As others have said, I also place a lot of importance on faith and prayer. I beieve very strongly that God loves us, and talking to Him helps a lot. Just some thoughts - Roger in Kennewick, WA
Re: [TMIC] Re: Subscribe
i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...butnone of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...butnone of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, i.whidd...@sky.com writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex England Tel: 01268 771642 Regards Iris UK
Re: [TMIC] Re: Subscribe
Kim, So glad to see you. I have to wear leg warmers and socks. I get too cold too easily. Once I get chilled it takes a ton of blankets for me to get warmed up again and it takes hours. It also bothers me to get too warm...then I'm likely to have an attack of autonomicdisreflexia. Almost had one the other evening, but I took an Oxycodone and it never developed. Jude In a message dated 1/23/2013 7:29:27 P.M. Eastern Standard Time, kimharrison7...@att.net writes: Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and happy to see this site in action once again! Rob in New Jersey -Original Message- From: Heyjude48458 heyjude48...@aol.com To: i.whiddett i.whidd...@sky.com Cc: tmic-list tmic-list@eskimo.com Sent: Wed, Jan 23, 2013 1:41 pm Subject: [TMIC] Re: Subscribe Thanks Iris, I am so happy you are writing. I am really punishing myself to find topics for us to talk about. What can you think of that is pertinent toTM? Love you, Jude In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time, _i.whiddett@sky.com_ (mailto:i.whidd...@sky.com) writes: Hi Jude I've always wondered if I somehow snuk in under the radar of TMIC. When I was diagnosed with TM 3 1/2 yrs ago it was all new and very frightening and I had very little help or info from the doctors. While looking for help on the Internet, I was lucky enough to find the group and finally began to understand what had happened but, like most us, not why it had happened! So, thanks for taking on board what seems to be a lone voice from the UK and for all the kind words of encouragement and advice. Just to be sure I am a proper member, my details are:- Iris Whiddett 98 Eastwood Road Rayleigh Essex EnglandTel: 01268 771642 Regards Iris UK
[TMIC] reviving the list
Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer's that prefer this way of communicating, well done. I'm a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ)
Re: [TMIC] reviving the list
Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
Re: [TMIC] Re: Subscribe
Hi Jill, It's been years! Good to hear from you. Now I have one more member to add to my list. I am updating my address book on AOL and need your last name, phone number and address, if you don't mind. I promise I won't share your info with anyone. I only want it in case I want to send you a card or call you sometime. I am having fun with TMIC, but it's a lot of work and tough to handle all by myself. If you can think of topics to discuss I will surely appreciate it if you will let me know. You describe autonomic disreflexia exactly. Whenever it happens to me, I have to take an Oxycodone or Valium right away. Otherwise, I do take the pain medicine, but never Valium. In fact, right now I don't have any in the house. But, your talking about it makes me scared again. It's a very frightening experience. Maybe that will be our next topic. By the way, I have been sending all of my mail with a copy to the TMIC list. Is that what I'm supposed to do? Plus, I'm saving all of the mail on my computer, but have no way of backing it up. If my computer should die, I will lose everything. Anyway, it is good to talk to you again. I've missed you. Love, Jude Michigan Dance like no one's watching, Sing like on one's listening, Love like you'll never be hurt, Play like there's no winners, Behave like mom's watching, Give like you have plenty, and SMILE...(unknown) In a message dated 1/23/2013 8:26:44 P.M. Eastern Standard Time, jillybean60...@yahoo.com writes: Hi Jude, I'm glad to see you back. I looked up the definition to autonomicdisreflexia and it is exactly what I was trying to describe to my doctors what happened to me that dreaded night 4 years ago. I was wondering how you were diagnosed? I have lesions at T4 and T10. I felt like I was having a panic attack, stroke, and going blind and having a heart attack all at the same time and burning up and taking my clothes off and driving with the windows down.(this happened on my way home from work) I am always s worried that it's going to happen again, and yes back then I said I blamed it on the cold and shivering on my way home. Super cold Chicago January night. Glad to see you're back, and that's nice of you to help out the group. Jill From: heyjude48...@aol.com heyjude48...@aol.com To: kimharrison7...@att.net Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 6:37 PM Subject: Re: [TMIC] Re: Subscribe Kim, So glad to see you. I have to wear leg warmers and socks. I get too cold too easily. Once I get chilled it takes a ton of blankets for me to get warmed up again and it takes hours. It also bothers me to get too warm...then I'm likely to have an attack of autonomicdisreflexia. Almost had one the other evening, but I took an Oxycodone and it never developed. Jude In a message dated 1/23/2013 7:29:27 P.M. Eastern Standard Time, kimharrison7...@att.net writes: Thank you Jude.. our Cheerleader !! How is the cold effecting ya'all.. I HATE it... everything stings and hurts more and worse is I can not wear sholes for socks so TM legs stick and feet are freezing... anyone else? From: heyjude48...@aol.com heyjude48...@aol.com To: jcs...@yahoo.com Cc: tmic-list@eskimo.com Sent: Wed, January 23, 2013 7:24:07 PM Subject: Re: [TMIC] Re: Subscribe I'm happy that you guys are glad to see us active again. I am working my = off to keep us up and running. Neither Jim Lubin or Sam Siegel are interested in doing anything with us anymore so it is just me trying like hell to keep things interesting. However, I am running out of ideas to talk about and need your help. I just got an email today from a lady who is interested in joining us, so I sent her the info. Help! Jude In a message dated 1/23/2013 5:51:24 P.M. Eastern Standard Time, jcs...@yahoo.com writes: i wollowed with why and how and the thought came to me,,it doesnt matter how or why if i knew,,it would still hurt. From: Robert Pall robthe...@aol.com To: heyjude48...@aol.com; i.whidd...@sky.com Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 1:56 PM Subject: Re: [TMIC] Re: Subscribe There is a ton of information and personal stories,pictures etc at the T.M.I.C. Internet Club. The reason I like this site is that we talk about TM and the medicines and conditiions we have. I am not looking to make friends (although that is a plus). I just want to share information that may help us cope with this awful condition. As for me I have always believed that the cause of my TM was excess stress which probably caused my immune system to overreact to some minor illness like a summer cold.that being said no doctor can say what caused any of us to have TMI myself decided it was stresseveryone one of us thinks he knows the cause of TM ...but none of us do! All the best and
Re: [TMIC] reviving the list
What are the 3 groups? I also started here and since no one was talking, I moved to FB (which I don't really like). Why are there so many groups? Seems there should only be one. Thanks Candy From: heyjude48...@aol.com heyjude48...@aol.com To: s.gurn...@xtra.co.nz Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 PM Subject: Re: [TMIC] reviving the list Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
Re: [TMIC] reviving the list
Hi Candy, It's good to hear from you again. It's been years. I guess there must be room for 3 groups. I don't know. Maybe it's the fact that on Facebook one can see what the other person looks like. That aspect was fun for me at first...seeing everyone for the first time. Incredible, almost like meeting a long lost friend. But, then, lately, I have kind of been appalled by the fact that instead of truly voicing their opinions about a given subject all people do is make one line comments about nothing. I can't explain it. People are wonderful and very supportive and I love them all so, but TMIC just seems better to me. It's getting late, I'll talk to you soon. Send me your full name, address and phone number for my address book. I may want to send you a card or call you some time. I will never give out your info to anyone. Love and Hugs, Jude, Michigan In a message dated 1/23/2013 11:03:32 P.M. Eastern Standard Time, kandyd...@yahoo.com writes: What are the 3 groups? I also started here and since no one was talking, I moved to FB (which I don't really like). Why are there so many groups? Seems there should only be one. Thanks Candy From: heyjude48...@aol.com heyjude48...@aol.com To: s.gurn...@xtra.co.nz Cc: tmic-list@eskimo.com Sent: Wednesday, January 23, 2013 10:17 PM Subject: Re: [TMIC] reviving the list Hi Shirley, Thank you for the well wishes...however, I am confused. On one hand you say we are doing a good job, but then you say (the way I read it) that Facebook is better because the groups are closed. Please help me out. Judy Michigan Dare to dream, dare to fly, dare to be the ever chosen one to touch the sky...(unknown) In a message dated 1/23/2013 9:49:01 P.M. Eastern Standard Time, s.gurn...@xtra.co.nz writes: Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are coming back to the site. I think a big thank you is in order to Jude and Janice for their contribution to the club of TMer’s that prefer this way of communicating, well done. I’m a silent observer, I am one of the Global Moderators of the TMA site, so my time goes into the Board Index sites, plus helping newbies out both there and FB. The 3 TM groups on FB are well patronized and are closed to the public, which is a lot more private for us, as some of our problems can be rather personal. I look forward to catching up with some of you again, either here or FB. Take Care everybody. Shirley Gurnell (NZ) Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long... God is great, God is good, Let us thank Him, For this group... Life is short, Smile at everyone, Hug or shake hands with people, Bless all that you know, Pray for everyone, Laugh uncontrollably, Live long...
[TMIC] Reviving the List
Hi Jude, There is one page on FB called Living with Transverse Myelitis, this is for TM sufferers. The second is, Transverse Myelitis Folks which is for caregivers and TM sufferers, the third is TM-HA, for ladies only. Delicate questions can be asked and answered amongst us, who have been there and done that. A lot of people probably don't know how to find this site, I had to google it, and I'm a regular on the TMA site. I have seen you on one of the FB sites, Jude, don't ask me which one tho. Cheers Shirley (NZ) Sent from my iPad
