[TMIC] Traveling with TM
My husband and I have taken several trips since TM hit me nine years ago. Traveling started after I read a proverb. Hope deferred makes the heart sick. I wrote in the margin of my Bible, It's time to say yes to Jim's Pacific Ocean Highway 101 trip. The whole idea petrified me and the biggest what if was - what if TM hits again while I'm away from home. You could list your greatest ten fears and figure I had many of them too. We made as many adjustments as we could and flew from Michigan to Seattle, Washington, with small, small suitcases for a two week vacation. We drove from Seattle to San Diego, California. Then flew back home. I didn't have a TM relapse. I didn't loose my meds. I didn't die from riding so long. We have great memories of that trip. Another summer we took our boat on a week's vacation. I didn't fall overboard, but We had to take my brother so he could take over my usual duties. Darn TM. We had to admit that TM changed me and our finances too much to be able to maintain our boat so we sold it (at a loss). Darn TM. We waited a year and bought a used motor home and set out on a three week cross country trip to the Grand Canyon and Yellowstone National Park. I didn't fall off a cliff or get eaten by a grizzly We've taken other trips since and each one has built confidence. Yes they were tiring. Yes I was in pain. I wished to be in my own bed, didn't want to ride one more mile, or walk one more step. However, until writing this that's not what I remembered about those trips. They were good times, with good memories and lots of pictures to prove it. A lot of TMers have traveled and helped me prepare. I'm glad we did it! Patti - Michigan
Re: [TMIC] Traveling with TM
I am getting braver too - going to Nashville this March for 10 days. Still with some reservations, really looking forward to it. Janice -Original Message- From: Pat Voorheis Sent: Monday, January 28, 2013 7:53 AM To: tmic Subject: [TMIC] Traveling with TM My husband and I have taken several trips since TM hit me nine years ago. Traveling started after I read a proverb. Hope deferred makes the heart sick. I wrote in the margin of my Bible, It's time to say yes to Jim's Pacific Ocean Highway 101 trip. The whole idea petrified me and the biggest what if was - what if TM hits again while I'm away from home. You could list your greatest ten fears and figure I had many of them too. We made as many adjustments as we could and flew from Michigan to Seattle, Washington, with small, small suitcases for a two week vacation. We drove from Seattle to San Diego, California. Then flew back home. I didn't have a TM relapse. I didn't loose my meds. I didn't die from riding so long. We have great memories of that trip. Another summer we took our boat on a week's vacation. I didn't fall overboard, but We had to take my brother so he could take over my usual duties. Darn TM. We had to admit that TM changed me and our finances too much to be able to maintain our boat so we sold it (at a loss). Darn TM. We waited a year and bought a used motor home and set out on a three week cross country trip to the Grand Canyon and Yellowstone National Park. I didn't fall off a cliff or get eaten by a grizzly We've taken other trips since and each one has built confidence. Yes they were tiring. Yes I was in pain. I wished to be in my own bed, didn't want to ride one more mile, or walk one more step. However, until writing this that's not what I remembered about those trips. They were good times, with good memories and lots of pictures to prove it. A lot of TMers have traveled and helped me prepare. I'm glad we did it! Patti - Michigan
[TMIC] Fwd: Post Traumatic Stress Disorder
This comes from our friend, Kevin. Do any of you suffer from Post Traumatic Stress Disorder? From: notification+pz==f...@facebookmail.com Reply-to: g+412xnq3c00q50b3d004nqj74n7vz00bw1sfh29...@groups.facebook.com To: tmf...@groups.facebook.com Sent: 1/28/2013 9:51:36 A.M. Eastern Standard Time Subj: [Transverse Myelitis Folks] There are some of us that suffer from forms of... _Kevin D. Weilacher posted in Transverse Myelitis Folks_ (http://www.facebook.com/n/?groups/TMFolk/permalink/473204612741039/mid=7708da4G5e350529G5356 387G96bcode=1.1359384696.AbnAxWsvcTVZgZeSn_m=heyjude48...@aol.com) (http://www.facebook.com/n/?profile.phpid=718959149mid=7708da4G5e350529G5356387G96bcode=1.1359384696.AbnAxWsvcTVZgZeSn_m=heyjude48...@aol.com) _Kevin D. Weilacher_ (http://www.facebook.com/n/?profile.phpid=718959149mid=7708da4G5e350529G5356387G96bcode=1.1359384696.AbnAxWsvcTVZgZeSn_m= heyjude48...@aol.com) 9:51am Jan 28 There are some of us that suffer from forms of PTSD If you're not sure if there's a chance that you might.look over this list and if you find that there are quite a few items that affect youIt could be a good indication to go see your doc and talk about this What are the signs of PTSD? A wide variety of symptoms may be signs you are experiencing PTSD: Feeling upset by things that remind you of what happened Having nightmares, vivid memories, or flashbacks of the event that make you feel like it’s happening all over again Feeling emotionally cut off from others Feeling numb or losing interest in things you used to care about Becoming depressed Thinking that you are always in danger Feeling anxious, jittery, or irritated Experiencing a sense of panic that something bad is about to happen Having difficulty sleeping Having trouble keeping your mind on one thing Having a hard time relating to and getting along with your spouse, family, or friends It’s not just the symptoms of PTSD but also how you may react to them that can disrupt your life. You may: Frequently avoid places or things that remind you of what happened Consistent drinking or use of drugs to numb your feelings Consider harming yourself or others Start working all the time to occupy your mind Pull away from other people and become isolated - Some factors can increase the likelihood of a traumatic event leading to PTSD, such as: The intensity of the trauma Being hurt or losing a loved one Being physically close to the traumatic event Feeling you were not in control Having a lack of support after the event _View Post on Facebook_ (http://www.facebook.com/n/?groups/TMFolk/permalink/473204612741039/mid=7708da4G5e350529G5356387G96bcode=1.1359384696.AbnAxWs vcTVZgZeSn_m=heyjude48...@aol.com) · _Edit Email Settings_ (http://www.facebook.com/n/?settingstab=notificationssection=group_notificationmid=7708 da4G5e350529G5356387G96bcode=1.1359384696.AbnAxWsvcTVZgZeSn_m=heyjude48458 @aol.com) · Reply to this email to add a comment.
Re: [TMIC] Fwd: Post Traumatic Stress Disorder
I have PTSD from TM
[TMIC] RE:POST TRAUMATIC STRESS
Yes I suffer from this,is there anything i can offer.
[TMIC] Fwd: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons?
I got this from the TM quad list. They're talking about standing wheelchairs. Do any of you have one. I want one real bad. Jude From: davekrehb...@earthlink.net To: wheelch...@aol.com, quad-l...@eskimo.com Sent: 1/28/2013 1:41:39 P.M. Eastern Standard Time Subj: RE: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I definitely plan to get a standing wheelchair. Before my accident five years ago, I was 6 feet tall. These days, I'm looking up at everybody. I did some therapy in a standing frame at a local rehab facility, and it was an incredibly emotional experience. The world looks like an entirely different place when you're standing at your traditional height. I understand the standing frames and standing wheelchairs have many other benefits: strengthening bones, increasing flexibility, assisting with digestion, and other benefits related to blood pressure. My plan is to try to raise some funds to build a shed, so that I can get a standing frame or standing wheelchair as well as a generator. I absolutely concur that you need to be evaluated properly. The physical therapist did not start me in a standing frame... they started with a tilt table. Raising your head so far up in the air is a challenge when you been sitting down and lying down for so long. But my insurance covers this... and I hope yours does too. Take care, Dave Krehbiel From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Friday, January 25, 2013 9:59 AM To: shellbell5...@aim.com; quad-l...@eskimo.com Subject: Re: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I personally hope that in everyone's life, they have the opportunity to try out a standing wheelchair. Some of the benefits can be overwhelming. However, I usually advise that a Standing Evaluation, with an Occupational Therapist to determine if and how long one can stand, vertical. Some with low blood pressure may pass out with a quick stand. Some can not operate a manual stander because of strength issues. A motorized stander might work better then a manual unit. By all means, if you meet the perimeters... Go For It. Best Wishes In a message dated 1/23/2013 9:41:49 P.M. Central Standard Time, _shellbell5705@aim.com_ (mailto:shellbell5...@aim.com) writes: Hi to everyone, So, long story short, UCP agreed to either make my kitchen accessible OR purchase A standing wheelchair.I have been looking at the standing wheelchairs and there is even one That is manual. Are they much bigger than a regular electric chair ? and if ya have one what are your thoughts and or experiences and the pluses or minuses? ? (I understand the benefit ti standing Ii stand daily in my standing frame, oh and sores are not a issue) . thanks everyone!!! N shelly C6C7 incomplete Sent from my iPad
[TMIC] RE:post traumatic stress
Yes I suffer from this,is there anything i can offer.Mine is military related,
[TMIC] Re: Medtronic Webinar for Spastisity
Hello All, Please watch your mailbox for a letter from Medtronic. They are having a Webinar for spasticity on Feb. 12th. If you want the information let me know and I will send it to you. This will be great for anyone with problems with spasms. Take Care, Jude Michigan
Re: [TMIC] Traveling with TM
I haven't been to Nashville. I think the climate will be perfect in March. Anything you do to Kick TM behind you brings confidence. Patti On Jan 28, 2013, at 9:24 AM, Janice Nichols jan...@centurytel.net wrote: I am getting braver too - going to Nashville this March for 10 days. Still with some reservations, really looking forward to it. Janice -Original Message- From: Pat Voorheis Sent: Monday, January 28, 2013 7:53 AM To: tmic Subject: [TMIC] Traveling with TM My husband and I have taken several trips since TM hit me nine years ago. Traveling started after I read a proverb. Hope deferred makes the heart sick. I wrote in the margin of my Bible, It's time to say yes to Jim's Pacific Ocean Highway 101 trip. The whole idea petrified me and the biggest what if was - what if TM hits again while I'm away from home. You could list your greatest ten fears and figure I had many of them too. We made as many adjustments as we could and flew from Michigan to Seattle, Washington, with small, small suitcases for a two week vacation. We drove from Seattle to San Diego, California. Then flew back home. I didn't have a TM relapse. I didn't loose my meds. I didn't die from riding so long. We have great memories of that trip. Another summer we took our boat on a week's vacation. I didn't fall overboard, but We had to take my brother so he could take over my usual duties. Darn TM. We had to admit that TM changed me and our finances too much to be able to maintain our boat so we sold it (at a loss). Darn TM. We waited a year and bought a used motor home and set out on a three week cross country trip to the Grand Canyon and Yellowstone National Park. I didn't fall off a cliff or get eaten by a grizzly We've taken other trips since and each one has built confidence. Yes they were tiring. Yes I was in pain. I wished to be in my own bed, didn't want to ride one more mile, or walk one more step. However, until writing this that's not what I remembered about those trips. They were good times, with good memories and lots of pictures to prove it. A lot of TMers have traveled and helped me prepare. I'm glad we did it! Patti - Michigan
Re: [TMIC] Fwd: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons?
The only thing I can think of is my walker with a place to sit. Janice From: heyjude48...@aol.com Sent: Monday, January 28, 2013 4:48 PM To: tmic-list@eskimo.com Subject: [TMIC] Fwd: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I got this from the TM quad list. They're talking about standing wheelchairs. Do any of you have one. I want one real bad. Jude -- From: davekrehb...@earthlink.net To: wheelch...@aol.com, quad-l...@eskimo.com Sent: 1/28/2013 1:41:39 P.M. Eastern Standard Time Subj: RE: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I definitely plan to get a standing wheelchair. Before my accident five years ago, I was 6 feet tall. These days, I'm looking up at everybody. I did some therapy in a standing frame at a local rehab facility, and it was an incredibly emotional experience. The world looks like an entirely different place when you're standing at your traditional height. I understand the standing frames and standing wheelchairs have many other benefits: strengthening bones, increasing flexibility, assisting with digestion, and other benefits related to blood pressure. My plan is to try to raise some funds to build a shed, so that I can get a standing frame or standing wheelchair as well as a generator. I absolutely concur that you need to be evaluated properly. The physical therapist did not start me in a standing frame... they started with a tilt table. Raising your head so far up in the air is a challenge when you been sitting down and lying down for so long. But my insurance covers this... and I hope yours does too. Take care, Dave Krehbiel From: wheelch...@aol.com [mailto:wheelch...@aol.com] Sent: Friday, January 25, 2013 9:59 AM To: shellbell5...@aim.com; quad-l...@eskimo.com Subject: Re: [QUAD-L] Standing wheelchair' anyone have one ? If so pros and cons? I personally hope that in everyone's life, they have the opportunity to try out a standing wheelchair. Some of the benefits can be overwhelming. However, I usually advise that a Standing Evaluation, with an Occupational Therapist to determine if and how long one can stand, vertical. Some with low blood pressure may pass out with a quick stand. Some can not operate a manual stander because of strength issues. A motorized stander might work better then a manual unit. By all means, if you meet the perimeters... Go For It. Best Wishes In a message dated 1/23/2013 9:41:49 P.M. Central Standard Time, shellbell5...@aim.com writes: Hi to everyone, So, long story short, UCP agreed to either make my kitchen accessible OR purchase A standing wheelchair.I have been looking at the standing wheelchairs and there is even one That is manual. Are they much bigger than a regular electric chair ? and if ya have one what are your thoughts and or experiences and the pluses or minuses? ? (I understand the benefit ti standing Ii stand daily in my standing frame, oh and sores are not a issue) . thanks everyone!!! N shelly C6C7 incomplete Sent from my iPad
