Re: [TMIC] Unidentified subject!
I have never really been bothered by banding - sometimes I can feel it, but really no problem. My worst problem is spondolosis/arthritis down low in my back that is aggravated by TM. Also, the never going down the backs of my calves. That can knock me to the floor when it hits. Otherwise, I'm pretty good. Janice -Original Message- From: Iris Whiddett Sent: Sunday, January 25, 2015 4:10 PM To: robthe...@aol.com Cc: tmic Subject: [TMIC] Unidentified subject! Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Unidentified subject!
Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as banding. Iris UK Sent from my iPad On 26 Jan 2015, at 00:25, Betty Shaffer vasso...@gmail.com wrote: I, too, have banding. When I asked the neurologist about it, he asked, what's that? I tried to explain it to him. Sent from my iPad On Jan 25, 2015, at 2:10 PM, Iris Whiddett i.whidd...@icloud.com wrote: Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Hey everybody,
Glad to hear from you. Hope you keep us up with how you are doing and good luck trying to improve your situation. Janice From: Robert Pall Sent: Sunday, January 25, 2015 3:13 PM To: jannic...@gmail.com ; malugss...@gmail.com Cc: skle...@cox.net ; mic...@hotmail.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi everyone. It has been 17+ years for me and at the beginning you were my only support. As for me things have been lousy for almost 2 years (especially lousyit is always plain lousy) coincidentally this is the period I have had the Baclofen Pump. I am not saying that it has not helped my legs (banding) somewhathowever either the pump or the combo of it with m7y other meds have been making me feel lousy. I am lowering my dosage from the pump to see if that helps and if so I will have the pump removed and go on as I have for the previous 15 years. I am the support group leader for NJ and we try to get together 3 times a year. It is nice to see my old friends online again...I am either to old or to computer illiterate to use facebook. I am really glad the group here is getting together...I have missed it! Rob in NJ -Original Message- From: Janice Nichols jannic...@gmail.com To: Dalton Garis malugss...@gmail.com Cc: Susan Kleinz skle...@cox.net; amy shultz mic...@hotmail.com; Tmic tmic-list@eskimo.com Sent: Sun, Jan 25, 2015 3:21 pm Subject: Re: [TMIC] Hey everybody, Dalton, maybe TM later on in life? Janice From: Dalton Garis Sent: Friday, January 23, 2015 1:51 PM To: Janice Nichols Cc: Susan Kleinz ; amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Incredible story! I still remember Love Canal and all that. Behind our house and across the street was the rail yard and a great big pile of coal that was used for the trains, but I used it for play. It was great fun climbing up to the top of the pile then jump off as far as I could go, hit near the bottom of the pile and slide around in that slippery coal. My mother would throw me in the bath and there would be a black ring around it about 8” deep. Trouble is, that there is a lot of mercury in coal, which we also used to heat our home. We had a large room in the cellar with a window for trucks to send coal into it down a chute. I think all that play in the coal especially exposed me to too much mercury, and that it gave me all sorts of problems growing up, including reading difficulties, concentration, sleep, growth difficulties maybe, and now TM. d. Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote: WOW!!What a story. So glad you are doing so much better, but how long will you need to keep taking the treatments?Surely you are about through. So sorry you have had to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote:
[TMIC] Unidentified subject!
Hi Rob, sorry to hear that things have been so bad for you. Not many speak about banding. In six years I have had some very slight improvement in other areas but the banding is always with me, intensifying with changes in the weather. I have accepted that it is a permanent part of my life. Strangely, it never bothers me when I am in bed. Regards Iris UK Sent from my iPad
Re: [TMIC] Hey everybody,
Dalton, maybe TM later on in life? Janice From: Dalton Garis Sent: Friday, January 23, 2015 1:51 PM To: Janice Nichols Cc: Susan Kleinz ; amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Incredible story! I still remember Love Canal and all that. Behind our house and across the street was the rail yard and a great big pile of coal that was used for the trains, but I used it for play. It was great fun climbing up to the top of the pile then jump off as far as I could go, hit near the bottom of the pile and slide around in that slippery coal. My mother would throw me in the bath and there would be a black ring around it about 8” deep. Trouble is, that there is a lot of mercury in coal, which we also used to heat our home. We had a large room in the cellar with a window for trucks to send coal into it down a chute. I think all that play in the coal especially exposed me to too much mercury, and that it gave me all sorts of problems growing up, including reading difficulties, concentration, sleep, growth difficulties maybe, and now TM. d. Dalton Garis Flushing, Queens New York, USA (718) 838-0437 On Jan 23, 2015, at 14:03, Janice Nichols jannic...@gmail.com wrote: WOW!!What a story. So glad you are doing so much better, but how long will you need to keep taking the treatments?Surely you are about through. So sorry you have had to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy boy outside (tacky, I know). After trying everything I could find to help me get better (acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…) I decided to have a food allergy test and toxic heavy metals test. I was only allergic to bananas, yogurt and whey. No big deal. However my heavy metals test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from MRI'S) After my first set of chelation, which is an IV solution that pulls the metals from your body, I felt bizarre results. I could do so much more! I can walk so much better, no longer in bed, worked for 7 months straight in my father's store, and basically feel like I have so much of my life back. I am now on my 31st treatment. Most people only needs 6. I have a heavy body burden of toxic metals. Our family home was built on the Motorola dumping ground. 20 years of toxic wastes dumped into the ground and into our water. Our whole neighborhood is sick with cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155 per. My husband has wiped out our savings to help me get better. I feel that the reason I contracted ™ is because of this poisoning. I used to lay in bed and feel I was being poisoned. Every day I felt like this. I even dreamed that my husband was poisoning me… I passed these metals on to two of my three children who were able to detox with 6 treatments only. This treatment may be available soon under insurance, but mine does not cover NMD -Naturepaths (sp?). I even feel and look more like myself! I am always thinking about all of you. Susan On Jan 22, 2015, at 6:11 PM, Janice Nichols jannic...@gmail.com wrote: Amy Glad to hear you are doing much better. Is what you had similar to what I had in the hospital where I had a UTI infection, but, of course, I didn’t feel it. Then it went systemic and I nearly died too.No fun. Janice From: amy shultz Sent: Thursday, January 22, 2015 5:34 AM To: Tmic Subject: Fwd: [TMIC] Hey everybody, I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad summer up till Oct 31st when I almost died. The doctors said my body took a big hit. I had severe sepsis and septic shock. Since my hair is falling out really bad and nails are splitting and peeling and breaking. Real fragile. I even take 6000mcg of Biotin a day and have for a couple years. So IDK what's going on. Amy Shultz Ohio Sent from my Verizon Wireless 4G LTE smartphone Original message From: suerdlagpu...@gmail.com Date:01/21/2015 9:47 AM (GMT-05:00) To: Pat p...@voorheissigns.com, Susan Kleinz skle...@cox.net Cc: malugss...@gmail.com, Janice Nichols jannic...@gmail.com, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21,
