Glad to hear from you. Hope you keep us up with how you are doing and good
luck trying to improve your situation.
Janice
From: Robert Pall
Sent: Sunday, January 25, 2015 3:13 PM
To: jannic...@gmail.com ; malugss...@gmail.com
Cc: skle...@cox.net ; mic...@hotmail.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,
Hi everyone. It has been 17+ years for me and at the beginning you were my only
support.
As for me things have been lousy for almost 2 years (especially lousy....it
is always plain lousy) coincidentally this is the period I have had the
Baclofen Pump. I am not saying that it has not helped my legs (banding)
somewhat....however either the pump or the combo of it with m7y other meds have
been making me feel lousy. I am lowering my dosage from the pump to see if that
helps and if so I will have the pump removed and go on as I have for the
previous 15 years.
I am the support group leader for NJ and we try to get together 3 times a
year. It is nice to see my old friends online again...I am either to old or to
computer illiterate to use facebook. I am really glad the group here is getting
together...I have missed it!
Rob in NJ
-----Original Message-----
From: Janice Nichols <jannic...@gmail.com>
To: Dalton Garis <malugss...@gmail.com>
Cc: Susan Kleinz <skle...@cox.net>; amy shultz <mic...@hotmail.com>; Tmic
<tmic-list@eskimo.com>
Sent: Sun, Jan 25, 2015 3:21 pm
Subject: Re: [TMIC] Hey everybody,
Dalton, maybe TM later on in life?
Janice
From: Dalton Garis
Sent: Friday, January 23, 2015 1:51 PM
To: Janice Nichols
Cc: Susan Kleinz ; amy shultz ; Tmic
Subject: Re: [TMIC] Hey everybody,
Incredible story!
I still remember Love Canal and all that.
Behind our house and across the street was the rail yard and a great big pile
of coal that was used for the trains, but I used it for play. It was great fun
climbing up to the top of the pile then jump off as far as I could go, hit near
the bottom of the pile and slide around in that slippery coal. My mother would
throw me in the bath and there would be a black ring around it about 8” deep.
Trouble is, that there is a lot of mercury in coal, which we also used to heat
our home. We had a large room in the cellar with a window for trucks to send
coal into it down a chute.
I think all that play in the coal especially exposed me to too much mercury,
and that it gave me all sorts of problems growing up, including reading
difficulties, concentration, sleep, growth difficulties maybe, and now TM.
d.
Dalton Garis
Flushing, Queens
New York, USA
(718) 838-0437
On Jan 23, 2015, at 14:03, Janice Nichols <jannic...@gmail.com> wrote:
WOW!! What a story. So glad you are doing so much better, but how long
will you need to keep taking the treatments? Surely you are about through.
So sorry you have had to go through this, but you were so smart to come up with
this testing. Keep up with the good improvement.
Janice
From: Susan Kleinz
Sent: Friday, January 23, 2015 9:30 AM
To: Janice Nichols
Cc: amy shultz ; Tmic
Subject: Re: [TMIC] Hey everybody,
Hello ™ friends:
This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5
years ago when I relapsed and spent my time in bed or the lazy boy outside
(tacky, I know). After trying everything I could find to help me get better
(acupuncture, prolotherapy, PRP therapy, cranial facial, myofacial pt therapy…)
I decided to have a food allergy test and toxic heavy metals test. I was only
allergic to bananas, yogurt and whey. No big deal. However my heavy metals
test showed me in dangerous levels of lead, mercury, cadmium, gadolinium(from
MRI'S) After my first set of chelation, which is an IV solution that pulls the
metals from your body, I felt
bizarre results. I could do so much more! I can walk so much better, no
longer in bed, worked for 7 months straight in my father's store, and basically
feel like I have so much of my life back. I am now on my 31st treatment. Most
people only needs 6. I have a "heavy body burden" of toxic metals. Our family
home was built on the Motorola dumping ground. 20 years of toxic wastes dumped
into the ground and into our water. Our whole neighborhood is sick with
cancer, immune issues, ms…etc.) It is expensive to do this treatment… $155
per. My husband has wiped out our savings to help me get better. I feel that
the reason I contracted ™ is because of this poisoning. I used to lay in bed
and feel I was being poisoned. Every day I felt like this. I even dreamed
that my husband was poisoning me… I passed these metals on to two of my three
children who were able to detox with 6 treatments only.
This treatment may be available soon under insurance, but mine does not cover
NMD -Naturepaths (sp?).
I even feel and look more like myself!
I am always thinking about all of you.
Susan
On Jan 22, 2015, at 6:11 PM, Janice Nichols <jannic...@gmail.com> wrote:
Amy
Glad to hear you are doing much better. Is what you had similar to what
I had in the hospital where I had a UTI infection, but, of course, I didn’t
feel it. Then it went systemic and
I nearly died too. No fun.
Janice
From: amy shultz
Sent: Thursday, January 22, 2015 5:34 AM
To: Tmic
Subject: Fwd: [TMIC] Hey everybody,
I am here and on FB too. Does anyone know how Jude Hoops Is? I haven't
seen her anywhere. Or heard from her. This is Amy Shultz. I had a really bad
summer up till Oct 31st when I almost died. The doctors said my body took a big
hit. I had severe sepsis and septic shock. Since my hair is falling out really
bad and nails are splitting and peeling and breaking. Real fragile. I even take
6000mcg of Biotin a day and have for a couple years. So IDK what's going on.
Amy Shultz
Ohio
Sent from my Verizon Wireless 4G LTE smartphone
-------- Original message --------
From: suerdlagpu...@gmail.com
Date:01/21/2015 9:47 AM (GMT-05:00)
To: Pat <p...@voorheissigns.com>, Susan Kleinz <skle...@cox.net>
Cc: malugss...@gmail.com, Janice Nichols <jannic...@gmail.com>, Nikki
Macleod <nmacleo...@yahoo.co.uk>, tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,
Good story. Very instructive.
Thanks
Dalton
Sent from my BlackBerry 10 smartphone.
Original Message
From: Pat
Sent: Wednesday, January 21, 2015 9:23 AM
To: Susan Kleinz
Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod;
tmic-list@eskimo.com
Subject: Re: [TMIC] Hey everybody,
I'm here and on Face Book. I haven't had any changes in my TM, but I do
have an interesting story about a suspected relapse.
In December, 2013, I thought I had a TM relapse or a stroke and went to ER
walking and talking as if I was in a drunken stupor. CT, MRI's, and Labs showed
nothing new had happened and I recovered fine. My doctors and I were stumped.
In December 2014, I woke up one morning feeling my "TM normal" with the
start of a cold. I went thru my routine of meds, reading, and coffee. I had
difficulty standing up, my walking was bad and felt drunk when I started for
another cup of coffee. I again wondered if I was having a TM relapse.
I sat and compared the two "relapses". I didn't want to go thru another 36
hour observation in ER. I felt and walked and talked as if drunk both times. I
had the start of a cold both times. I had taken cough syrup both times, but the
bottle was almost empty so it couldn't be that.
I didn't have a relapse at all. I had a reaction to taking a full dose of
cough syrup with Dextromethorphan and my TM meds Lyrica and Baclofen - on an
empty stomach.
What a relief! I saw my PCP yesterday for my RX renewals and I think she
was as relieved as I was. That means no TM relapses in 11 years. Praise the
Lord!
Patti - Michigan.
> On Jan 18, 2015, at 1:12 PM, Susan Kleinz <skle...@cox.net> wrote:
>
> Me too. On a trip but will be responding. ! So glad someone is still out
there in our tm group
>
> Sent from my iPhone
>
>> On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote:
>>
>> I'm still here also.
>>
>> Dalton
>>
>> Sent from my BlackBerry 10 smartphone.
>> Original Message
>> From: Janice Nichols
>> Sent: Saturday, January 17, 2015 12:33 PM
>> To: Nikki Macleod; tmic-list@eskimo.com
>> Subject: Re: [TMIC] Hey everybody,
>>
>> Hi Nikki,
>> I remember you! The old group has pretty well disbanded and gone to
>> Facebook , etc. I have had TM for 8 years and there is always
>> something improving. You have to work hard at it and keep moving, but it
>> really pays off. Once in a while the bladder even improves for a
>> hile - and then to the usual, but I will take what I can get. I really
>> wish doctor's would not give a time limit on improvement - we all go at
>> different paces with
>> different problems to deal with. You sound great and I am really
>> proud of all your accomplishments. It couldn't have been easy for you.
>> Keep in touch.
>>
>> Janice
>> Missouri
>>
>>
>> -----Original Message-----
>> From: Nikki Macleod
>> Sent: Saturday, January 17, 2015 6:37 AM
>> To: tmic-list@eskimo.com
>> Subject: [TMIC] Hey everybody,
>>
>> Hi everyone,
>> It's been a while since I've been in here and I was wondering how
everyone
>> was doing. Any improvement. The last time I posted I was really messed
up
>> mentally. Suicidal and really low, a horrible time in my life. My life
has
>> changed dramatically since then, me and my fiancé of nearly 10 years
broke
>> up and I never though I'd say this but it was for the best. I am much
>> happier. I live in my little bungalow with my dog Finlay who I've had
since
>> before TM and have 24/7 care. My depression is much better, it is now
stable
>> and under control. I am getting out and about much more especially since
I
>> recently got my new powered wheelchair. I am starting to not only love
life
>> again but love myself again. I also have more positive news, I have
recently
>> been experiencing some weird sensations in my left hand and some of my
>> fingers which I can only describe as what feels like pins and needles. I
>> figured this is a good thing considering it is numb until I get these
>> episodes. I've also had episodes of feeling as though the soles of feet
are
>> burning like they are on fire. TM struck me on 15/02/2011. Doctors told
me
>> after a certain period of time that would be the end of the improvement.
I
>> believe that you may continue to improve way after that (I have). Has
anyone
>> else experienced anything like this?
>>
>> Nikki, Durham, UK.
>>
>> Sent from my iPad
>
>
