[TMIC]
unsubscribe
[TMIC]
Before I unsubscribe I wanted to let each and every one of how much you have helped me. My son's fiancée was paralyzed with TM/spinal stroke almost 2 years ago. As you know it has been quite a long road. There is drug addiction involved as well, so a sad story with a 2 year old baby as well. One of the things I have learned around here, and I have learned a lot, is that there is always possibility, and there is ALWAYS a way through this. I have pretty much stayed in the background, but if I had any info to share with ya'll I peeked my head up to try to give back. Every one of you are unsung heroes, and in my small way, whenever I hear people I know who are big charitable people, I steer them in this direction. GOD bless each and everyone of you. Thank you, thank you, thank you. TIAD!!! Cammy
RE: [TMIC] med question - meloxicam and baclofen
Good morning everyone. Sorry to break in like this, BUT, I felt it necessary to alert ya'll to the virus warning for Yahoo,Hotmail, And AOL users. Please check out SNOPES.com virus warning. It is true. Be careful. Cammy From: randy rankin [mailto:[EMAIL PROTECTED] Sent: Thursday, April 03, 2008 5:02 PM To: TM Group Subject: [TMIC] med question - meloxicam and baclofen Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. You rock. That's why Blockbuster's offering you one month of Blockbuster Total Accesshttp://us.rd.yahoo.com/evt=47523/*http:/tc.deals.yahoo.com/tc/blockbuster/text5.com, No Cost.
RE: [TMIC] Unidentified subject!
Top o' the mornin's to yal. Southern Irish, hahaha. I was wondering if any of you know if low blood pressure can cause a spinal stroke? From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Sunday, March 16, 2008 12:15 PM To: TM Subject: [TMIC] Unidentified subject! Just saying hey!!! Hope everyone had a good weekend! Celebrated Saint Patty's day Steve Jabs in Pa
RE: [TMIC] Obama
Please take a look at snopes.com From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, February 19, 2008 11:40 AM To: Tmic-list@eskimo.com Subject: [TMIC] Obama Think about this long and hard people. I found this article I have attached, it's Worth the read. I have to ask myself, if Obama is elected President, will he take the oath of office on a bible or the koran? Media Matters - Schlussel: Should Barack Hussein Obama be president when we ahttp://mediamatters.org/items/20061225 Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/2050827?NCID=aolcmp0030002598
RE: [TMIC] Obama
...as long as there is a separation of church and state. I, personally am aspiritual person, some people would like to pigeon hole me as a Christian. Does it matter? I think it is important to keep a clear message. I find myself snoping many things today, as info gets a little out of whack. From: sal r [mailto:[EMAIL PROTECTED] Sent: Tuesday, February 19, 2008 1:08 PM To: Cammy; '[EMAIL PROTECTED]'; 'Tmic-list@eskimo.com' Subject: RE: [TMIC] Obama is there a problem even if he is muslim or not? because obviously a white president couldnt do it as you all can tell... Cammy [EMAIL PROTECTED] wrote: Please take a look at snopes.com From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, February 19, 2008 11:40 AM To: Tmic-list@eskimo.com Subject: [TMIC] Obama Think about this long and hard people. I found this article I have attached, it's Worth the read. I have to ask myself, if Obama is elected President, will he take the oath of office on a bible or the koran? Media Matters - Schlussel: Should Barack Hussein Obama be president when we ahttp://mediamatters.org/items/20061225 Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/2050827?NCID=aolcmp0030002598 Never miss a thing. Make Yahoo your homepage.http://us.rd.yahoo.com/evt=51438/*http:/www.yahoo.com/r/hs
RE: [TMIC] Pray for Jude
Yes that is right, and they also have non-dairy for those who can't have dairy products. From: Melissa B [mailto:[EMAIL PROTECTED] Sent: Wednesday, February 13, 2008 1:46 PM To: Natalie Boyles; tmic-list@eskimo.com Subject: Re: [TMIC] Pray for Jude There is also something called acidophilus. I'm not sure if that is spelled right or not. You can get it at the pharmacy. It has to be kept refrigerated and can be taken in large doses. This replaces the good bacteria that has been lost. - Original Message - From: Natalie Boylesmailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, February 13, 2008 4:18 PM Subject: Re: [TMIC] Pray for Jude If it is the gut thing, my father had it bad when he was being treated for cancer. He finally did get rid of it by eating a lot of yogurt. He almost lived on yogurt. Natalie Boyles On Feb 13, 2008 2:14 AM, [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] wrote: Hi Rick, Is it possible that you mean C-Diff? A gut issue where the bad bacteria is dominant over the good?? That's the analogy that I use anyway. I had it 2 years ago, and per my MD, may never quite get rid of it so need to make sure I continue to use probiotics. It takes a good while before you have any relief at all from it, and it is generally caused by too many antibiotics which kill off the good, bad and the ugly. Keep praying all! Hugs to all, Barbara A The year's hottest artists on the red carpet at the Grammy Awards. AOL Music takes you there.http://music.aol.com/grammys?NCID=aolcmp0030002565
RE: [TMIC] scissoring legs
Hi everyone, this is Cammy. I have been reading all your correspondences and have learned so much. I just want to remind all of you that as Natalie has said here, some of the doctors don't know a lot. The reason I got into the TM group was because the doctors in Portland, OR, did not test my future daughter-in-law for a spinal stroke, fortunately they knew about TM, but missed the stroke. They don't know everything so please don't get discouraged, and stay in touch with this group, cause you are not crazy, in fact in my book you are all very courageous, amazing and smart people. From: Natalie Boyles [mailto:[EMAIL PROTECTED] Sent: Friday, November 09, 2007 9:49 PM To: tm Subject: Re: [TMIC] scissoring legs Oh my I can barely hop, if at all. Not sure if it is hop or a stumble. And, skipping is totally gone. It is as if my body does not comprehend what my mind is telling it to do. It is strange. I wonder why all neuros do not ask us to try it. And, I wonder why this does not show up on the nerve conduction tests. I know one neuro thought my emg test was awful, but then he finally decided I must be causing the poor results. Only one neuro thought I might have a slight nerve delay or whatever it is called. This little hop/skip thing at least makes me feel there is reason I have such difficulty. Thanks for sending in this info. Natalie B On Nov 8, 2007 7:39 PM, Louise Croyden [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] wrote: Hi All, I don't write in very often but I noticed your message about trying to hop. The physiotherapist I am seeing had me try to hop and to skip. I couldn't do either. Have you tried skipping yet? It definitely is a strange feeling to get all psyched up to hop off the floor and the feet just stay planted there! I asked why and she said that both hopping and skipping require very quick messages between the nerves, brain and muscles and, when we have a spinal cord injury, the responses aren't fast enough. They aren't her exact words, and it was a few months ago, but that is the gist of it. I asked if practising would help but, if I remember correctly, she didn't seem to think it would. I think she was using it more as a diagnostic tool than an exercise for me to do. Regards. Louise
RE: [TMIC] IMPORTANT REMINDER
Good morning Jude, when it comes to help, especially with something as serious as this and many spinal diseases, as you have said here so beautifully, use an alias. So many of you have been so generous with your time and knowledge, I AM SO VERY GRATEFUL. Cammy From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, November 02, 2007 2:27 AM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] IMPORTANT REMINDER In a message dated 10/30/2007 8:23:10 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I received an email from someone who wrote I am distressed to see that your archives are public and anyone can search my name and come up with some very private medical information. My goodness, most of us are adults who have a spinal cord disorder and have pretty much given up on our privacy when it comes to questions asked and answers given regarding our specific needs. It is most likely that at one time or another we have had to grow up and speak like an adult about topics we might not have spoken openly about before we became humbled by, in our case, Transverse Myelitis, a disease we need to become more vocal about, if anything. The TMIC List is edited by adept persons donating their time to whatever task it is that they are overseeing. There are strict rules and regulations regarding speach when alluding to private physical issues. We have come to grow up and use real words, such as urinating over going potty, for example. Maybe there ought to be an Adult Content header somewhere in our initial dialouge, but one will not be able to find anything pornographic or anything even near so in the context of the words used regarding Transverse Myelitis in all of its questions and answers. If you have a difficulty with words such as penis or vagina then, yes, you may have a problem and ought to take your unfortunate spinal cord injury somewhere else, but remember, as you go, here...you will find the truth backed up by the latest news coverage, lively discussion and so many hugs, so much love, and all of the Prayers you want, that I doubt you will find anywhere else. Now...what is your question? And, oh, by the way, I know more than just a few people who go by aliases and even at least one of us who writes very intelligently to the list under at least three names and addresses. Jude from MI See what's new at AOL.comhttp://www.aol.com?NCID=AOLCMP0030001170 and Make AOL Your Homepagehttp://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169.
RE: [TMIC] Scooter
HI, my name is Cammy. For what it is worth, I JUST got info sent to me online re: scooters. Her are two sites. 1) mobilityproductinfo.com 2) thescooterstore.com This last one has advertisements saying they will do all they can to put into a scooter. Hope this helps. From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Thursday, October 25, 2007 2:12 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Scooter Somehow, these social workers and Durable Medical Equipment people don't understand that people also want to have a Quality of Life. In order to do that, we need to be mobile. This is why equipment with wheels are made. Sure, there are those who need scooters in their home for sure, but they aren't the only ones who benefit from them. I had the same problem when I wanted a wheelchair. She told me since I can get around my house without it that I didn't need it. But I asked her if I was supposed to be house bound for the rest of my life or if I were supposed to try and have some quality to my life and go to a shopping mall, amusement park or county fair, etc. Sure, we all have our limitations, but don't let anyone discount what you can do and try not to let them stop you from doing it if you can help it. OK, I've vented also. I'll get off my soapbox now! Hugs to all, Barbara A See what's new at AOL.comhttp://www.aol.com?NCID=AOLCMP0030001170 and Make AOL Your Homepagehttp://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169.
RE: [TMIC] steroids
Hello everyone. My name is Cammy and I am in L.A. My son and his fiancée live in Portland. Jeff And Amy. Amy is just now getting out of the hospital after first attack of TM. We newcomers to this. They want to give her chemo, ½ dosage but the neurologist is afraid of doing it. There appears to be more help in Seattle. OHSU won't take her unless they can offer something that is different from what they have been doing. What can ya'll tell me about what is happening. I hve been reading all the info this morning from ya'll and have learned a lot. Look forward to hearing frome you. Cammy also at [EMAIL PROTECTED], this e-mail is my work e-mail. From: Jenna Stentz [mailto:[EMAIL PROTECTED] Sent: Thursday, October 18, 2007 8:02 PM To: sal r; tm Subject: Re: [TMIC] steroids It take quite a while for the effects to go away for me. At least 9 weeks usually before I started to feel like myself again. I know the first week afterwards is always really bad. Usually end up back in the ER because I am so sick. How long has it been since you stopped taking them? Jenna - Original Message From: sal r [EMAIL PROTECTED] To: tm tmic-list@eskimo.com Sent: Thursday, October 18, 2007 10:43:43 PM Subject: [TMIC] steroids ok well i have another problem...2 yrs was the last time i was on steroids...i have seen side effects...how long does the effects of steroids last? how long until its out of my body? __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
