[TMIC] Re: tmic-digest Digest V2009 #105
-- Original message from tmic-digest-requ...@eskimo.com: -- Jill, I've been on Prednisone off and on since 1983.numerous side effects, but it also does some good..thru the years I took 'dose-paks' for my bad outbreaks of eczemaseveral times I'd be put on 100mg amd then be backed off slowly Never just go off!! that could kill you, depending size of dosage, altho' when my hubby had strained muscles in his chest and they knew it had nothing to do with his heart, they gave him 50mg two days and then stopped it. Side effects I've experienced are loss of bone density, steroid induced cataracts, cataract induced diabetes, weight gain, etc.I'm on low dosage 20 mg in a.m. since I had sweats, chills in 2004 which after 2 weeks in 2 hospitals they discovered was something in my liver...it's gone now, but when they try to wean me completely off, I start sweats, chills again. Personally I hate to take it, but the other option is worseso, you do what you have to do, and go on with life! At onset and diagnosis of tm, I fought idea of IV steroid treatment but listened to doctors and got 1000 units by IV for 5 days then was slowly weaned with oral pred..there's worse things, and by listening to drs, I came away from onset to become one of walking woumded. Hope my rambling has helped!! janh P.S. If you have other questions I'll try to answer them.jh Is anyone out there? I'm weaning off my prednisone now and had a few questions. Thanks, Jill F, I shod
[TMIC] Re: tmic-digest Digest V2009 #106
f, I had some white flair in my brain does this mean I mean I may that I may have MS too\? -- Original message from tmic-digest-requ...@eskimo.com: -- MY DEAR PRECIOUS JUDE, YOU KNOW WE ALL ARE WITH YOU IN SPIRIT AND OUR PRAYERS. YOU AND I TALK JUST ABOUT EVERYDAY. I WEAR YOUR ANGEL EARRINGS EVERYDAY .I ASO WEAR OUR ROSE NECKLACES. YOU ARE LOVED BY SO MANY, EVEN THE ONES ON THE LIST THAT DO NOT KNOW HOW INCREDABLE A WOMAN YOU ARE. I KNOW AND LOVE YOU SO MUCH.WE SHARE SO MANY THINGS, WE LAUGH, CRY AND WE PLAY GONE WITH THE WIND YOU MEL ME SCARLET. WELL YOUR THE STRONGER ONE MY PRECIOUS JUDE. I KNOW I WILL BE IN THE OPERATING ROOM WITH YOU HOLDING YOUR HAND THE HOLD TIME, YES DO NOT WORRY, I PROMISE YOU THAT OUR HEARTS WILL BE ONE AND IN THE NAME OF THE FATHER, SON, HOLY GHOST I WILL BE WITH YOU. MY STRENGTH WILL GO INTO YOUR BODY, THATS A PROMISE MY DEAR JUDE. GOD AND JESUS AND THE ANGELS WILL BE THERE TOO. TRY NOT TO BE AFFRAID SO MANY PRAYERS ARE BEING SAID FOR YOU. YOUR SO LOVED AND THE PEOPLE WHO HAVE NEVER CROSSED YOUR PATH SHOULD. OUR TM FAMILY IS JUST A REMARKABLE GROUP OF PEOPLE. EVERYONE IS CONCERNED FOR YOU. I KNOW THAT YOU CAN GET THRU THIS MY ANGEL.JUST KEEP THE FAITH AND GOD WILL PROTECT YOU . OUR MOTTO IS NEVER SAY NEVER REMEMBER? TOMORROW IS ANOTHER DAY GOD BLESS AND KEEP YOU MY ANGEL! FRIENDS FOREVER WE SHALL BE! NOTHING CAN SEPERATE US MY SWEET JUDE YOU SHALL SEE LIFE IS HARD TO SAY THE LEAST WE HAVE ONE ANOTHER THAT MAKES ME FEEL SO MUCH INNER PEACE!!! YOU ARE TRULY LOVED MY SWEET JUDE YOU JUST REST MY SWEET GOD WILL DO THE REST YOU WILL SEE!! YOU KEEP THE FAITH I WILL NOT LET YOU DOWN NOR WILL THIS WONDERFUL TM FAMILY YOUR AN INSPIRATION TO US ALL HOW YOU DO IT IS BEYOND ME YOU JUST HAVE THOSE MAGICAL WORDS YOU NEVER CEASE TO AMAZE ME!!! TIAD PAM!!! Need a job? Find an employment agency near you.
[TMIC] Re: tmic-digest Digest V2009 #111
I'm here. Rick -- Original message from tmic-digest-requ...@eskimo.com: -- yes BERNARD BUTCHER From: jrushton [mailto:jrush...@columbiaenergyllc.com] Sent: Thursday, February 26, 2009 12:06 PMTo: tmicSubject: [TMIC] Is anybody there?? Arial
[TMIC] MS
Thanks F for the info. Rick
[TMIC] Re: tmic-digest Digest V2009 #111
-- Original message from tmic-digest-requ...@eskimo.com: -- yes BERNARD BUTCHER From: jrushton [mailto:jrush...@columbiaenergyllc.com] Sent: Thursday, February 26, 2009 12:06 PMTo: tmicSubject: [TMIC] Is anybody there?? / Arial
[TMIC] Many Thanks
My Deareast of Freinds, To so a simple thank you is it seems not quite significant enough to say to you how much it means to send out a call for help like I had to do concerning my son. At a time like this when I felt embarrassed to ask for money from people who actually don't owe my family a thing and to see the out pouring of love and sympathy from many of you was an amazing thing. Its hard for me to put into words the way it made me feel just knowing that you all felt my need and distress in this difficult time in our life with the loss of a son, a freind and such a tender spirit. Jeff when he was alive read many of the letters from the fine people and was, to say the least, amazed at the amount of caring from people on the list for each other. He was so proud, knowing my condition, that I found you all. He could not believe how willing we all were to give advise to each other in our times of need. If it helps to sustain us, know this, he is in Heaven, of this I am sure, spreading to our heavenly Father the fact that people are good and in a time of need that my needs were met by the most unlikely source, handicapped people like me who were there in my time of need. We have all been bless by a crippling disease, not by the way it affected our mortal body but by our mortal heart. We all deserve a huge hug and a pat on the back. I cannot express in words the pride I have for the TMA and the IDC. To say anything more than thank you all, I just don't have the words in my vocabulary to express how I feel for the out pouring of love. Just let me say thank you for your help and you can let your mind tell you how proud you should feel for what you did for someone you barely know. Again Thank you and concider yourself blessed by God our Father. With all my love, Rick Ashford
[TMIC] Re: tmic-digest Digest V2009 #51
Hi Gang, First I would like to really thank those of you who shared your prayers and dug into your pockets for me. Its quite humbling to see such and output love true and caring. I was quite embarased to have to come to you with a request, but you are my family and after conciderable thought, I figured It couldn't hurt to ask. You responded with prayers and a total of about $650. I will be writting the people who actually sent money seperately, I owe you all so much. this has been a very trying time for us all and It seemed to hit my wife and me very hard, we still can't believe Jeff is gone. I personally have had a big set back in my TM I think because of my helplessness to take the lead and to really take care off the expence brought own by this tragic event. I'm better now and My Dr. was wonderfull and helped me through it. My Pastor Dr. Greg Jordan was a big part of keeping us sane and grounded WE thank you all so much. I really can't say much more than that. God Bless Us All. Your friend Rich Ashford -- Original message from tmic-digest-requ...@eskimo.com: -- First I would like to thank Jenna for coming to the hospital to help me today (and the visit was great) Nero left and good news the paralysis and stinging in my arms and hands has nothing to do with my TM. The MRI’s they did last night found 3 herniated discs on my neck that is causing spinal cord depression causing my arms and hands to go numb. He called neurosurgeon to come see me tomorrow and let me know what my options will be. So far a friend that had the same this said the least evasive is to inject steroids directly into the disc to stop the bone on bone rub and release the compression on the spinal cord this is good news!!! So this explains why after receiving the first dose of IV steroids my arms and hand improved 90% within 5 hours. If it were TM related the damage can not be reversed! But the herniated disc can be repaired! So YIPPIE!!! Down side right now is with all the steroids I have not slept at ALL since I go up Wed at 6:30 am, serious best I have done is a 20 minute nap today! They gave me morphine and Ambian sleep pills tonight so hoping I get some sleep tonight! I am starting to feel like a zombie going thru the motions, getting harder to focus with sleep deprivation. Will post what Nero-surgeon says once I hear from them tomorrow Again thanks for the one on one email I have gotten the concern and advice mean a lot to me What a great second family we all have in each other! Note J Note: to the Atlanta TM suport group if I get out of the hospital by Sunday in time for our meeting I will be there!!
[TMIC] Re: tmic-digest Digest V2009 #51
Hi Gang, I saw where Pres. Obama signed the stem cell bill. If it does pass the Senate and House, whats next, what does this really mean to us. Anyone that knows more please post and give some of us some hope. Thanks Rick -- Original message from tmic-digest-requ...@eskimo.com: -- First I would like to thank Jenna for coming to the hospital to help me today (and the visit was great) Nero left and good news the paralysis and stinging in my arms and hands has nothing to do with my TM. The MRI’s they did last night found 3 herniated discs on my neck that is causing spinal cord depression causing my arms and hands to go numb. He called neurosurgeon to come see me tomorrow and let me know what my options will be. So far a friend that had the same this said the least evasive is to inject steroids directly into the disc to stop the bone on bone rub and release the compression on the spinal cord this is good news!!! So this explains why after receiving the first dose of IV steroids my arms and hand improved 90% within 5 hours. If it were TM related the damage can not be reversed! But the herniated disc can be repaired! So YIPPIE!!! Down side right now is with all the steroids I have not slept at ALL since I go up Wed at 6:30 am, serious best I have done is a 20 minute nap today! They gave me morphine and Ambian sleep pills tonight so hoping I get some sleep tonight! I am starting to feel like a zombie going thru the motions, getting harder to focus with sleep deprivation. Will post what Nero-surgeon says once I hear from them tomorrow Again thanks for the one on one email I have gotten the concern and advice mean a lot to me What a great second family we all have in each other! Note J Note: to the Atlanta TM suport group if I get out of the hospital by Sunday in time for our meeting I will be there!!
[TMIC] Re: tmic-digest Digest V2009 #11
Title: AOL Email My dear friends, I' never heard of the notion of a state or city volintatily doing any thing for free , there has to be a hitch in someone giddy up to think that this county, city town and all there ride thier golden horses they ride on on. For instance when we had a tornado blow through here they had the nerve to first raise our taxes, and then take a whole page on our local news paper to beg for and demand an increase to pick up the ruins left. We just spent 12 milion dollars on a new jail full of good people who would love to have a few days in the sun cleaning up after this natural disaster. Instead the would rather punish these people by letting them sit around and do nothing. I'd sell my soul to the devil before I'd let them take charge of buring Jeff. We like a little over three thousand dollars. Plus what ever a headstone costs. But we spent everything we could muster up and I must say he went in style. Thank you Jude, Gunny and everyone for your generosity. It could only happen here where love exists. I just can't say how much this means to Jeannette and me. God built this list and with out a doubt he doesn't half way do anything. What goes around comes around. God ,Father,an Jesus, thank you for this brother and sisterhood and especially take care of our dear Jude. Protect us and surround us with this type of love, a lesson we learned from you. Thank you and I can't say what a family we have. Love Jeanette.Rick and our family. -- Original message from tmic-digest-requ...@eskimo.com: -- Hello All, Thank you so much for the kind, positive response regarding my plea for Rick Ashford. I do have one thing to say... It seems to be the same people who always respond to those of us in need, that emailed me.Maybe there are a bunch of you out there who read the List that are sending a donation to Rick's request, and simply haven't emailed me about it. I hope and Pray that people have done just that. However, Rick needs donations from more than the few people who always respond to those of us in need. The rest of you, who haven't sent Rick the money he needs so badly, please think about it again and dig deep into your pockets and send him something. I will post his address again when I can find where I wrote it down. If anyone else wants to post it, that would be a great help. And, those of you who would rather send your donation to me, I will then pass it on to Rick and will be sure to give you credit for being so generous. All my love and appreciation, Jude Hoops 6067 E. Frances Rd. Mt. Morris, MI. 48458 New year...new news. Be the first to know what is making headlines.
[TMIC] Steffie And Shelby My grandaughters
Dear List. I hope you never get caught without Buriel Insurance, but we had to shell out several thousands of dollars out of our pockets collectivly. My dear friends as the rep. for tma and Idc I have found myself financially imbarrest and I am reaching out for your monitary contibutions. Please ,I know it is a hard time for eveyone. But if by some chance you can help me help my grandaughters. Anything would be deeply appretiated. I've never asked for anything but We are in dire straits. I know that this is not your problem, but I wouldn't ask if the cause was noy so, so needed. Most of all we need your prayers and that will suffice, but please dig deep my friends and the giving will enrich you as well. I Pray you never get caught in such a spot, it is quite uneasy to ask, and quite embarressing. I love and Pray for your help. Yours unconditionally,Rick Ashford 2221 Woodlawn rd Brighton,Tn 38011.
[TMIC] The children of my LATE SONJeffreyHughey
MY DEAR FRIENDS.In the spirit of giving please dig deep and bless My grandaughthes Steffine and Shelby Hughey,with a monitary offering for two wonderful girls.I understand that these are hard times to ask for money, but please they are alone and my friends I have never ask before for anything and it would help so much. Send if you can to my address Richard Ashford 2221 Woodlawn Rd. Brighton TN 38011. Thanks in advance. Rick
Re: Read: [TMIC] Re: tmic-digest Digest V2009 #3
Title: Read: [TMIC] Re: tmic-digest Digest V2009 #3
My dear friends at tma tmic and the International Disabality Coalition. I have announced the death of my oldest son Jeffery Lynn Hughey that happened on new Years eve in Mammoth Springs Ark. As best we can tell he fell asleep at the wheel, he was alone and carened down a very large hill and finally met his demies wedged between two large trees. We pray he didn't suffer long.Jeff left two daughters whom I ask you make an offering of money to be donated to his two daughters.In this time of layoffs and cutbacks, I no that I ask alot. If could please send donations to Rick @2221 Woodlawn Rd.Brighton Tn38011 . I will see that they recieve it. Thanks in advance.{Please dig deep) Thanks again The family of My son.Rick
-- Original message from "Margaret Monson" mag...@telus.net: --
Your message
To: tmic-list@eskimo.com; tmic-dig...@eskimo.com
Cc: tmic-digest-requ...@eskimo.com
Subject: [TMIC] Re: tmic-digest Digest V2009 #3
Sent: 03/01/2009 10:46 PM
was read on 04/01/2009 9:06 AM.
[TMIC] Re: tmic-digest Digest V2008 #517
Jude All I need is a new key board And Prayers for my wife, it really hasn' sunk in yet S gglad to hear from you,how are you are you making the most of every day tell Dave ello for me...I love my Jude -- Original message from tmic-digest-requ...@eskimo.com: -- Pam that is so beautiful!!!Love you, Have a great 2009!!!From: "montzma...@aol.com" montzma...@aol.comTo: tmic-list@eskimo.comSent: Wednesday, December 31, 2008 8:42:30 AMSubject: [TMIC] NEW YEAR! ANOTHER YEAR IS HERE MY OH MY! 2008 JUST FLEW BYE WE ALL HAVE HAD PROBLEMS IT DOES NOT SEEM FAIR WHO EVER SAID LIFE WAS FAIR! ITS HARDER ON MANY OF US OTHERS NOT SO MUCH I TAKE IT DAY BY DAY THATS WHAT I HAVE LEARNED!!! WE CANNOT LIVE IN THE PAST BUT THE FUTURE IS IN OUR CONTROL WE HAVE OUR FAMILY AND FRIENDS SOME JUST HAVE THE LIST!!! THIS LIST IS PRECIOUS REALLY ITS A GOD GIVEN GIFT HELPED BY MR. LUBIN THERE WOULD NOT BE ANY LIST!! I THANK GOD EVERYDAY FOR HAVING THIS WONDERFUL LIST ITS SO INFORMATIVE TO EVERYONE ON IT I DO NOT KNOW WHAT I WOULD DO IF THERE WAS NO LIST!!! OUR TM FAMILY IS SUCH A HELP WE KNOW WHAT WE GO THRU WE SHARE THINGS PERSONAL OUTSIDE THE LIST WE CANNOT DO EVERYONE DOES NOT UNDERSTAND BUT WE DO!! SO LETS BE GREATFUL! WE HAVE THIS SPECIAL BOND 2009 IS TOMORROW LIFE WILL GO ON!! I WISH YOU ALL THE BEST! I THINK OF YOU ALL WE ALL WILL BE BLESSED LETS NOT FORGET GOD IS WATCHING OVER USALL! HAPPY NEW YEAR EVERYONE TIAD PAM! HAPPY NEW YEAR EVERYONE!!! TIAD PAM! One site keeps you connected to all your email: AOL Mail, Gmail, and Yahoo Mail. Try it now.
[TMIC] Re: tmic-digest Digest V2009 #3
Dear Friends, This is Rick, I hope you all a Happy New Year,sad to say and believe but I lost my oldest son to a car wreck on new years eve. I hope you will remember him in your prayers tonight Besides us he left two young daughters, Stephine an Shelby His name is Jeffery Lynn Hughey. Age 45 What a waist. Thank You Rick -- Original message from tmic-digest-requ...@eskimo.com: -- Happy Birthday to all you January kids. I wish the best for all of you. Patti in Wisconsin From: jharpe...@aol.com [mailto:jharpe...@aol.com] Sent: Thursday, January 01, 2009 11:42 PM To: tmic-list@eskimo.com Subject: [TMIC] January birthdays Happy Birthday to the January kids! Happy Birthday and Happy New Year! Please send any additions or corrections to tmic-list@eskimo.com. 1- 7 Lauren (sugal...@adelphia.net) 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1/9 Julienne (julesin...@aol.com) 1/13 Debi (brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Patti Dotson (ll...@aol.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com) 1/30 Cora (ceckenb...@wildblue.net) New year...new news. Be the first to know what is making headlines.
[TMIC] Re: tmic-digest Digest V2008 #387
We should talk about things as a group. mnay voices are heard better than just a few. -- Original message from [EMAIL PROTECTED]: -- I actually had an email like this typed earlier and deleted it.. I am glad someone else thinks the same way I do and actually sent it out!! Kudos to you Kevin Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency P.O. Box 3039 132 Buford Avenue Gettysburg, PA 17325 Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. From: kevin weilacher [mailto:[EMAIL PROTECTED] Sent: Friday, October 24, 2008 3:34 PMTo: jrushton; Lawrence King; tmicSubject: Re: [TMIC] Guidelines Yes..I haven't seen this much activity in some time... Now we're spending more time arguing about what should or shouldn't be posted and there has been more political posting than I care to hear or read about... I've seen enough already on TV.Thank God (ohh...should I even post that..?) that the election is almost over...Let's get back to what we're here for folks... From: jrushton [EMAIL PROTECTED]To: Lawrence King [EMAIL PROTECTED]; tmic tmic-list@eskimo.comSent: Friday, October 24, 2008 1:03:58 PMSubject: Re: [TMIC] Guidelines Whew!!! At least we've got a little blood flowing through the TMIC site, good or bad!! I thought it had rolled up the rug and closed the door or had taken my name out of the pot!! Jeanne in Dayton ---Original Message--- From: Lawrence King Date: 10/24/2008 10:16:15 AM To: tmic-list@eskimo.com Cc: Lawrence King Subject: Re: [TMIC] Guidelines The guidelines need to include "political messages" We are one group united by our common factor TM. but when a member spouts political rhetoric we are divided into the right and the left. There are tons of groups devoted to this type of political banter but only one for TM sufferers! I happen to be very politically active (even volunteering for my party) but I respect the rights of my fellow TM family members to have their Own Opinion politically, I respect that they were not born yesterday, have a lifetime of experiences shaping their views and have asovereignright to their opinions! keep politics out of this one please! Mindy the Artist On Oct 24, 2008, at 8:51 AM, [EMAIL PROTECTED] wrote: Just a reminder of the TMIC Guidelines on the TMIC site at http://www.myelitis.org/tmic/#guidelines: Please keep messages plain text. Do not post personal information that you don't want the world knowing. The message archive is searchable by anyone with Internet access. Please do not use excessive quoting when replying to a message. Please do not use graphics in messages. Please do not forward or post long jokes or fictional stories. Please do not forward virus warning unless you have verified it to be true and not a hoax. Check these sites: In a message dated 10/24/2008 7:59:38 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Subject: Fw: New Company Policy Notice to All EmployeesAs of November 5, 2008, when President Obama is officially elected into office, our company will instill a few new policies which are in keeping with his new, inspiring issues of change and fairness:1. All salespeople will be pooling their sales and bonuses into a common pool that will be divided equally between all of you. This will serve to give those of you who are underachieving a "fair shake." 2. All low level workers will be pooling their wages, including overtime, into a common pool, dividing it equally amongst yourselves. This will help those who are "too busy for overtime" to reap the rewards from those who have more spare time and can work extra hours.3. All top management will now be referred to as "the government." We will not participate in this "pool ing" experience because the law doesn't apply to us.4. The "government" will give eloquent speeches to all employees every week,
[TMIC] Re: tmic-digest Digest V2008 #331
The site is tmic-list@eskimo.com .At least it as the last the time I checked.Rick -- Original message from [EMAIL PROTECTED]: -- Thanks Jim, Heather in Calgary - Original Message - From: Jim Lubin To: tmic-list@eskimo.com Sent: Sunday, September 07, 2008 10:13 AM Subject: [TMIC] Paralympics Athletes living with Transverse Myelitis Beijing Paralympics Athletes living with Transverse MyelitisUnited StatesSarah Castle (Wheelchair Basketball)http://www.olympicspirit.us/paralympics/39341_46582.htmhttp://paralympics.teamusa.org/athlete/athlete/1929Anjali Forber-Pratt (Wheelchair Track)http://paralympics.teamusa.org/athlete/athlete/2209http://anjaliforberpratt.com/content/aboutAmanda McGrory (Wheelchair Track Basketball)http://paralympics.teamusa.org/athlete/athlete/2217Kerri Morgan (Wheelchair Track)http://paralympics.teamusa.org/athlete/athlete/2218Steven Toyoji (Wheelchair Track Basketball)http://paralympics.teamusa.org/athlete/athlete/2205Great BritainGordon Reid (Wheelchair Tennis)AustraliaGreg Ball (Cycling)http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39Madison de Rozario (Wheelchair Track)http://www.madid.com.au/bio.htmhttp://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337Watch onlinehttp://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000KEY=SPID=13327SPSID=107765 http://www.cbc.ca/sports/paralympics/http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm Jim Lubin [EMAIL PROTECTED]http://makoa.org/jim disAbility Resources: http://www.makoa.org
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Heres something new. Sandy made me co-represenative in Tennessee. I like that. More later. Rick
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Dear friends. I am happy to say I'm back online. Please send me an e-mail to verify that I'm back on line. thanks. Rick PS if you don't mind.
