[TMIC] Re: TM/Hi Barbara, I'm another one.
*Hi Barbara,* ** *I'm another one. My relapsing LETM (Longitudinal Extensive Transverse Myelitis) is caused by NMO, which is a neuroimmunological inflammatory disease. Although I have experienced LETM many times, my official diagnosis is NMO. For me, TM is a symptom of my underlying disease process. Our member Linda C., experiences relapsing TM as a result of her Sjogren's. Like me, she is on a a heavy hitter chemo. (Rituxan---chemotherapeutic agent, a monoclonal antibody typically reserved for Non Hodgkin's Lymphoma, and severe RA patients.)* ** *TM can be caused, or be present in several different disorders. NMO, Lupus, Sjogren's, ADEM, MS, and others. And of course, it can also be idiopathic.* ** *Gracie (NMO+ since 2005) *
Re: [TMIC] Re: TM/Hi Barbara, I'm another one.
Tell you what, this has been one really enlightening morning just reading all of these emails.You can tell that you have really delved into your diseases trying to figure them out -which I would think would be quite difficult considering all of the underlying and overlying diseases that can exist also. My hat is off to you all! Janice From: Grace M. Sent: Sunday, February 14, 2010 10:24 AM To: Barbara Alma ; tmic-list@eskimo.com Subject: [TMIC] Re: TM/Hi Barbara, I'm another one. Hi Barbara, I'm another one. My relapsing LETM (Longitudinal Extensive Transverse Myelitis) is caused by NMO, which is a neuroimmunological inflammatory disease. Although I have experienced LETM many times, my official diagnosis is NMO. For me, TM is a symptom of my underlying disease process. Our member Linda C., experiences relapsing TM as a result of her Sjogren's. Like me, she is on a a heavy hitter chemo. (Rituxan---chemotherapeutic agent, a monoclonal antibody typically reserved for Non Hodgkin's Lymphoma, and severe RA patients.) TM can be caused, or be present in several different disorders. NMO, Lupus, Sjogren's, ADEM, MS, and others. And of course, it can also be idiopathic. Gracie (NMO+ since 2005)
Re: [TMIC] Re: TM/Hi Barbara, I'm another one.
*Hi again Janice, * *I'm firmly of the opinion that a patient needs to be educated re: their own disease process, in order to take a proactive stance re: treatment protocol and disease management. The best thing that one can do for themselves is to start pulling up the research. I have alerts set on my mail program that regularly update me with the new abstracts and papers regarding NMO, that are published online. It's been a huge help. * *Grace* * *
Re: [TMIC] Re: TM/Hi Barbara, I'm another one.
I agree with you.After all, it is our body and the more we learn, the better off we are - usually. Janice From: Grace M. Sent: Sunday, February 14, 2010 11:47 AM To: jan...@centurytel.net ; tmic-list@eskimo.com Subject: Re: [TMIC] Re: TM/Hi Barbara, I'm another one. Hi again Janice, I'm firmly of the opinion that a patient needs to be educated re: their own disease process, in order to take a proactive stance re: treatment protocol and disease management. The best thing that one can do for themselves is to start pulling up the research. I have alerts set on my mail program that regularly update me with the new abstracts and papers regarding NMO, that are published online. It's been a huge help. Grace
