Re: [TMIC] Re: tmic-digest Digest V2007 #228
FRANK, I HAVE BEEN TOLD 2 LESIONS DOES NOT HAVE TO MEAN MS. Interesting? I have read and been told... Another he said, she said Let me think T.M. by definition is a single episode affliction... So, I guess, if both lesions are from the same episode, you could have 2 lesions with the diagnosis of T.M. Does that make sense?? F
Re: [TMIC] Re: tmic-digest Digest V2007 #228
They drew CSF and blood to send to the Mayo and I tested positive for NMO. (Totally different from MS. MS requires immunomodulation. NMO requires immunosuprression. Grace, What does NMO stand for? F
[TMIC] Re: tmic-digest Digest V2007 #228
FRANK, I HAVE BEEN TOLD 2 LESIONS DOES NOT HAVE TO MEAN MS. I KNOW PEOPLE WHO HAVE 2 LESIONS IN THEIR SPINE. THEY HAD MORE THAN ONE MRI 3 ARE 4 SPINAL TAPS. THE TAPS ALWAYS CAME BACK NORMAL AS THE BLOOD WORK AND THE EYE TEST. I KNOW YOU ARE A DOCTOR BUT HOW DO YOU KNOW FOR SURE WHEN THE TESTS ALL ARE NORMAL. I JUST HAD A SPINAL TAP ABOUT 4 MONTHS AGO A MRI AND ALOT OF TESTS WHILE IN THE HOSPITAL. I DO HAVE A NEW HEMOANGIOMA BUT THAT IS NOTHING TO WORRY ABOUT. PLEASE EXPLAIN WHY YOU SAY 2 LESIONS MEAN MS? THANKS PAM ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Re: tmic-digest Digest V2007 #228
Hi Pam, I have two LETM lesions. (Long/Extensive/Transverse/Myelitis) At first glance at my MRI's it might have appeared to be quite likely that I have MS. However, I don't. They drew CSF and blood to send to the Mayo and I tested positive for NMO. (Totally different from MS. MS requires immunomodulation. NMO requires immunosuprression. Also both diseses have totally different pathiologies and outcomes.) They also look for the presence of oligoclonal bands in the CSF. Our optic neuritis is also different due to axon death. MS patients almost always regain their sight, but we don't. An attack can be halted mid-stream for damage control, and our sight will improve, but once the optic nerve has suffered axon death, it's a done deal. They've also discovered recently (It's in Dr. Wingerchuk's research.) that we can also have brain lesions. This was once thought not to be the case, but the diagnostic criteria has changed to include them. I believe the number for nonspecific brain lesions is around 60% now. Grace
